Starting Chemo in Nov 2016

Options
1293032343546

Comments

  • Hopfull2
    Hopfull2 Member Posts: 418
    edited December 2016

    hello ladies. Good evening. I hope all of you are doing good.

    Granemama I hope you feel better with your cold.

    Hope88, I know what u mean it's so depressing looking at the shed of hair just coming out. I'm cold capping but I had my big shed last week and another today cuz I washed my hair. I cried. It's like that was my hair throwing chemo in my face. Cuz I've been doing well with all other SE. Well hope u can hang on to your hair a little longer.

    Hope everyone has an amazing weekend enjoying the holiday season.

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    Hey all. Remember the video of my daughter and her school group singing for the CBC music contest? They are one of the 10 finalists...the winner will be announced on the 16th. :) Been doing all her university applications too....it's a scary time! Very proud of her.

    I'm looking forward to seeing my MO next week and asking a bunch of questions. I need some things explained. Can't wait to get going again!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited December 2016

    when you get off the a/c and on to just Taxol it is so much better. Very few side effects if any. Infusion time is so quick compared to all three. About an hour for pre-Med's then an hour for the Taxol and you are out of there. All kinds of energy that day and the next from the steroids so we try to plan on doing things during that time because I know the next day is crash day but not too bad. Has anyone had their tumor markers done to see how effective the treatments are yet? I started at 195 and a couple of weeks ago was down to 162 so we know it's working. Will have it tested again on the 28th.

  • aterry
    aterry Member Posts: 290
    edited December 2016

    Nfullblume, I'm sorry to hear about your hemmorhoids. I have them left over from my first pregnancy. I had a bit of a flare up during my second cycle but I've been pruning it regularly this time and it has helped. Good luck.

    My third cycle, in general, is going a bit better. My MO let me cut back on the Dexamethasone and that has helped. I've been using Nystatin to control mouth and throat problems and that has helped. My chemo book this time is "Delta Wedding", Eudora Welty's first novel which I first read 40 years ago and am enjoying more the second time around. It's short so I read about half during the infusion and now I'm savoring the rest at bedtimes.

    Mysunshine48, thanks for pepper upper--much appreciated. Best wishes for continued health and vitality!

  • amw5
    amw5 Member Posts: 189
    edited December 2016

    Grannemama - We are chemo twins. (((hugs))) I do number 3 of A/C this Tuesday.

    Nfullblume - Yes indeed. (((hugs)))

    mysunshine4 - Thx for your words of encouragement. It's truly and greatly appreciated. (((hugs)))

    I hope everyone has a wonderful weekend.

    Praying for all of my dear pink warriors.



  • Superstar3102
    Superstar3102 Member Posts: 16
    edited December 2016

    at Dianrose.. my first ultrasound ( since starting chemo ) is December 27th

    Thank you to sunshine ☀️... i'm into my third day following chemo #2. needless to say I've been in bed all day

  • aterry
    aterry Member Posts: 290
    edited December 2016

    Leslie, congratulations to your dd on the final round! Good luck with the application process It can be confusing and stressful. I recall how difficult it was to get all the teacher recommendation letters together and then one (from a math teacher), had terrible grammar and spelling errors. I didn't think we could ask him for a redo with corrections so dd didn't use it. Once the process is over and a selection is made you dd will feel great and so will you

  • Nanpop
    Nanpop Member Posts: 75
    edited December 2016

    Hi Everyone,


    I am going to the "Look Good Feel Better" event tomorrow. That should be nice. I find that my tongue gets sore around day 8 after treatment. Anyone find any foods that soothe the tongue or supplements? I am taking b's and probiotics to see if it helps. I cut down the nausea medicine because of the big "C". I can't wait to be done with all this.

    Treatment #3 AC is Thursday. I believe walking a lot helps me with the SE's. So. I'm going to walk as much as possible. I'm having a hard time putting on weight. My MO told me I need to eat more but I don't have much of any appetite.

    Good luck with the next treatment ladies.

  • Superstar3102
    Superstar3102 Member Posts: 16
    edited December 2016

    at Nanpop...

    I use Alum on my tongue. When I eat sliced tomatoes, I get sores on my tongue. My Aunt turned me onto Alum last summer. It taste awful, dab little bit on the sore and keep it there for as long as you can then spit it out. It's in the grocery store in the spice aisle ... foid

  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Nanpop I go to the Look Good Feel Better on Tuesday, I can't wait!! and my #3 chemo is Friday...I also have the big C from the nausea meds...I've been taking Colace, and even exlax but nothing works...I'll have to try some other things this time around.


  • Hope88
    Hope88 Member Posts: 55
    edited December 2016

    Nanpop and Becky, I go to the class tomorrow too! And it's just in time, my husband shaved me today. Whew, the gray was sprinkled through. Becky, my chemo #3 is Friday as well.

    Hope everyone is feeling great!!

    Gail

  • Nfullblume
    Nfullblume Member Posts: 171
    edited December 2016

    Evening ladies!! I know we are all on different meds for nausea, but has anyone only taken the nausea meds for 3 days after chemo? I'm going to try to only take the Emend this cycle, those are for days 1-3. Then I'm going to wing it and see if I can get through with no Zofran. As much as I'm thankful for these meds, they're causing problems that may be worse for me. I bought some organic prune juice and will use that and senekot this round.

    I'm holding on to my hair for about 2 weeks now, so I guess what I have will remain now. It doesn't want to come loose. Haven't shaved my legs or my armpits for over a month now, that's a serious silver lining!!

    I made a gallon and a half of bone broth today. We are making homemade pho on Wednesday night. I figured that would be great for treatment day since it counts as liquids too.

    Thinking about you ladies!!


    Rachel

  • javamama
    javamama Member Posts: 119
    edited December 2016

    Second chemo bad week is over. Now going into my good week. I haven't stopped claritan like I did the last time. Hopefully, this will prevent those weird pains I got in my ovaries the last time. I did wake up with a huge headache this morning though.

    I'm jealous of those you you who get to try the neulasta on the belly. Mine is still pretty torn up from the reconstruction surgery. So, the back of my arm is where it's going to go of the last two treatments. At least, I think it's the last two. I don't think they do neulasta during the T portion of chemo.

    Two treatments down. Six more to go. I can do six of anything.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited December 2016

    For those suffering from the big C I have found that a bowl of Honey Nut Cheerios works the best. I eat a bowl every night before bed.

    This week will be treatment number 6 for me and my scalp is still sore, anyone else? I don't sleep more then 5-6 hours at a time and that is with Med's. Any suggestions?

  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Javamama sorry you are having the headaches! That was me the first round and its so annoying! If you dont mind me asking what did they do on your belly during surgery? take skin to create breasts? Im just curious since I haven't had surgery yet, but am definitely looking at a bmx...It stinks you can't get the Neulasta there...just take the claritin and some advil for the bone pain and hot baths!

    Dianarose I'll have to try the honey nut cheerios (I'll try anything now!) wonder what makes it work? the fiber? I was eating raisin bran last time, taking colace and nothing helped...I"m not a prune juice fan..

    What other constipation remedies have worked for others? I need to start planning for this next round LOL

    Nfullblume I only have zofran for my nausea med after chemo...I know that is causing the big C, but when I try to go without it I feel sick and since I teach I don't want to feel that way all day...so I usually do the full 5 days, I can usually make it overnight without taking more though which is good...

  • aterry
    aterry Member Posts: 290
    edited December 2016

    DianaRose, I'm also having trouble sleeping but I think it's just that I drink so much water my sleep cycles are broken by trips to the bathroom--usually 3 a night--and then it's hard to get back to a deep sleep. I try to get my daily water quotient in before 8:00pm but maybe I need to finish by 7:00. All my life I've had trouble waking up in the morning and now I'm wide awake at 4:00am every day.

    Nfullblume, I've also been making bone broth. How do you store yours? It would take me a long time to use a gallon and a half.


  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    Nfullblume, I take 3 meds for nausea. Emend, Dexamethasone and Ondansetron. The emend is each morning for 3 days starting with the morning of chemo. The O is taken 1 hour before chemo, then 12 hours later and that's it. The D is taken 3 tablets before chemo, then 2 tablets the next two days. So far, the combo of the 3 has kept my nausea totally at bay. Now, this Wednesday is my last of the FEC and that is all the nausea meds I have, so I don't know if I will take all of these while on the D (different than the above D...lol) portion of my chemo.

    BG, I told the dietitian that I made yogurt with granola and fruit in it each morning for breakfast (yeah, ok, I did when I was going/taking it to work...not so much now that I'm sitting home) She suggested I also cut a prune up into it...the other fruit will mask the prune taste since I'm not a prune fan. Can you hide prunes or something in something else?

    DianaRose, I was told to use a moisturising conditioner and massage it in...I also find letting my head "airdry" rather than throwing a scarf/hat on immediately is keeping the itching and soreness down. Don't know what to tell you about the sleep...I just limit my naps to 20 min tops unless I"m really feeling crappy.

    My question is, if this chemo is suppose to throw me into menopause, how many treatments does that take? My "friend" came to visit this week, and I'm not impressed.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited December 2016

    Leslie- after I started the first round of chemo 4 years ago I had a period that lasted 11 days then never had another one. I am going to try s good conditionr

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    I'm going to hope this is the last one then Dianarose...lol. thanks!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited December 2016

    Leslie- that's one thing you won't miss. Do you have hot flashes yet? Sometimes I thought my ears were going to catch on fire lol.

    My pattern is feel good day of chemo and next. Then I start to come down off the steroids for a few days and feel like crap and no energy again. Anyone else in this shit pattern

  • Nanpop
    Nanpop Member Posts: 75
    edited December 2016

    I am learning way too much about the big "c". Our bodies need soluable and insoluble fiber. Insolvable make everything move faster through the intestines. Soluable softens it and slows it down.

    Miralax is great for softening. I'm taking it starting two days before treatment. I take steroids for three days with emend for two days. Walking on a treadmill has helped with nausea and constipation.

    So I'm not taking the zofran unless it's an emergency. Ativan works as to stop nausea so I take it instead.

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    Dianarose...I believe I was/am perimenopausal before my diagnosis, so I think I've had a few hot flashes, but not the mega bad ones I've watched friends/coworkers deal with. Not looking forward to those. My periods have been wonky for the past year or 2, and lately have been 2 months apart, then could be absolutely never ending and brutal, or barely there for a few days. Myabe I'm wrong, but I believe the hormone therapy they give you to take for the next few years when we are done...I thought I read somewhere that the ones if you are in menopause are "better" than the ones if you aren't? Am I totally wrong? Anyway, I'm ready to be done with the periods. I've been ready for a few years on that front. lol

  • IronMom3
    IronMom3 Member Posts: 26
    edited December 2016

    wow, you ladies post a lot! I was in such a brain fog that I've only made it in here once. Thank you for the welcome and the confirmation that I should be talking to my onc about my nausea. I spent 4 days in bed and vomiting, so I'm not looking forward to doing that again!

    Leslie2016 - where in Ontario are you? I noticed you have IV fluids at home, I'm going to ask my onc about that. I was so sick starting on chemo day, that I didn't drink anything for 4 days. Of course, then I was so dehydrated I felt awful. I'm sure not drinking to flush the chemo through me didn't help either.

    I requested to join the Facebook group. My name is Erin Hathway.

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    Hey IronMom. The way the nausea was explained to me....you take the meds (like gravol) the SECOND you feel you might be getting nauseous. You also eat something, even if it's just a cracker, and yes, you make sure you drink that water!! It was explained a lot of the time when we are feeling nauseous we are really hungry, but you don't eat, which makes the nausea worse, then you can't eat or drink, which makes it worse....etc. Just do it!! YOu want to stay ahead of it...not after you are already sick.

    The hospital set up for CCAC to come to my house for the 3 days after my chemo and set up hydration. I have a port now, so they hook up a litre of saline to go in over 4-6 hours. The nurse comes, hooks me up, leaves, comes back 4-6 hours later, unhooks me. The first chemo I didn't have the port, so they left the line in my hand/wrist that they used for chemo for the 3 days...the nurse took it out on the last day. I've had no nausea, and no dehydration issues. I know on at least one occasion I could feel myself perk up while getting it. All I know is, I have had very little issues with side effects, so I'm sticking with what I'm doing!!

    You asked where I am...about 40 min north of Toronto.

  • Pamela23
    Pamela23 Member Posts: 510
    edited December 2016

    Dianarose-- you described my pattern this week. It was round 2 for me and a bit different from round 1. I had the insomnia from the steroids the first night and felt pretty good the 1st full day after chemo but the next day...felt like I was hit by a truck. Fatigue, bone pain, keeping nausea at bay, constipation, you know, the fun stuff. Today I feel pretty normal and actually did a mini workout since I can't seem to put too much effort behind it, and ran errands. Didn't even nap. Hopefully I'll be back on track until next time.

  • 2blessed2bestressed
    2blessed2bestressed Member Posts: 15
    edited December 2016

    Ugh, I had my period a week after my first chemo and now here it is again a week after my 2nd chemo. I thought the chemo was going to shut this lady down. Guess not. Anyone think I should be concerned or call it in? Or safe to just fill my MO in on the 20th?


    Dinarose - I get chemo on Tuesday am 100% normal on Wednesday & Thursday. And by Friday I'm paranoid emotional basket case. A little tired but I think that is stressed induced.

  • 2blessed2bestressed
    2blessed2bestressed Member Posts: 15
    edited December 2016

    Ugh, I had my perioda week after my first chemo and now here it is again a week after my 2nd chemo. I thought the chemo was going to shut this lady down. Guess not. Anyone think I should be concerned or call it in? Or safe to just fill my MO in on my appointment on the 20th?

    Dinarose - I get chemo on Tuesday am 100% normal on Wednesday & Thursday. And by Friday I'm paranoid emotional basket case. A little tired but I think that is stressed induced. And then I wake up on Sunday like nothing ever happened. My poor family! Lol. I might cave and take the anti anxiety next time.

    Nfullblume - I haven't had any nausea. 🙌🏻My MO hits me with the following during chemo: emend, aloxi and dexamethosone. Then for the the next two mornings I have to take 3 dexamethones. And can take zofran as needed, up to 3 a day. I did take the zofran as prescribed on round 1 on day 2-4. But for round 2 I cut it back to 2 a day for days 2 & 3. I may try to lose it all together on the next go around. Although I'm a bit scared to mess with it. But I hate meds. I don't even take antibiotics in real life.

    BG - I'm chemo before surgery too. Although I'm praying my cancer disappears before I get there. BUT in the event my big old tumor does need to go, I'm meeting with the plastic surgeon this week for a consult and photo shoot. So weird. I really don't know what to expect and feel a little overwhelmed. I'll let you know how it goes.

    As for my hair, I finally braved up and had my cousin shave it off. Not nearly as traumatic as I thought it would be. I got a few looks in my wig but I just pretended I didn't notice.

    image

  • Nfullblume
    Nfullblume Member Posts: 171
    edited December 2016

    I love your attitude, 2blessed! Super cute wig!

    I'm going to take the Emend for days 1-3 this time, but may only take Zofran if I need it. My bum can't afford more constipation issues. I've got a whole list of questions for my MO on Wednesday. I'm hoping that Taxol may be nausea free with no meds. I'm getting pretty tired of taking this stuff that causes a whole laundry list of other problems.

    I bought prune juice and I'm going to try that and steel cut oatmeal. Though the cheerios have me curious. I've gotta find some natural ways to keep things moving. Clearly, being able to drop the anti nausea meds would be easiest.

    Good night girls!!

  • amyemn
    amyemn Member Posts: 25
    edited December 2016

    2blessed I had a similar experience with my period. I got it shortly after my first infusion, then spotted on and off for the next 24 days. Right before my 3rd infusion I got my period again. I too was concerned because I thought chemo would shut it down. I mentioned it to my oncologist at my 3rd infusion appointment. She didn't seem concerned and said that should be my last period. Sure enough, that 3rd infusion shut it down quick!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited December 2016

    Leslie- I think you have to be in menopause for six months to a year before you can have choices other then tamoxifen. You need to hurry up girl. I was 51 years old, how old are you? Are you having radiation after chemo? When I had my tissue expanders out and had the permanent implants in I had them take my ovaries at the same time. Figured I was already under and it would be one place the little cancer bastards wouldn't be able to go to but I was too late. The cancer was already in one ovary yet never showed on any of the scans. Something to think about. Then you have choices of which drug to be on. I find that when I feel sick as much as I don't feel like eating I force myself and it does help. I have never taken a nausea drug. The big C is scary as Ihad a blockage in October that about killed me and had my stomach pumped for over two days. Horrible experience. I eat the Honey Nut Cheerios once a day and go like clockwork.

Categories