Waiting for surgery

Catsme
Catsme Member Posts: 74
edited December 2016 in ILC (Invasive Lobular Carcinoma)

I was diagnosed 12/7/2016 with grade 1 ILC ER+, PR+ (awaiting HER2).  Had mammogram on 11/23, u/s on 11/29, MRI with contrast, 12/2 and Bx on 12/5.   Met with surgeon on 12/8 and have appointment with plastic surgeon on 12/19 and with oncologist on 12/20.  No imaging, path or clinical indications of lymph node involvement. I am nervous and concerned now about the amount of time between diagnosis and surgery; looks like the earliest will be 1/31/2017.  I have several appointments between now and end of January, but was curious if anyone else had this much time between diagnosis and surgery?

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  • stephincanada
    stephincanada Member Posts: 228
    edited December 2016

    When will you find out grade and HER2 status? If it is grade 3 and/or HER2 positive, I would try and push for an earlier date, because those grow quickly. I had a tumour blow up between two breast MRIs that were six months apart: certain tumour types grow very quickly. (The medical establishment will often tell you that breast cancer takes years to grow. That is not always the case.) I was scheduled to have surgery one month after diagnosis with the best breast surgeon in my city. I told them that I don't care who performs the surgery, I want an earlier date because we know this is an extremely aggressive tumour. I ended up with a much younger surgeon who performed an amazing surgery: she got clear margins even though the tumour was a mere 1.6 mm from my chest wall. Good luck; I know waiting can be torture.

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