TRIPLE POSITIVE GROUP

hi. I am new and never joined anything like this. I was diagnosed triple positive in September and am 1/2 way through chemo. Will probably take both breasts. I am so scared. I see a counselor but I still cry all the time. Is there anyway out of this nightmare?

This is a question for you Herceptin gals - I've had my 4th infusion and I was just wondering how often you get a blood draw to check your levels? They did one for my first infusion with another one a week later to check my levels. Everything was moving in the right direction but no more draws since October. I don't see my MO until the 30th it just feels weird not being monitored so closely which I'm sure is perfectly normal now that I'm on the mend. I was just wondering how often they check blood levels.

Heathet, I had labs two months after my last TCHP (because i asked for them if i remember correctly) and no more during the remainder of my herceptin treatments.

Heathet, I had blood work done every time I went for my Herceptin infusion, so every three weeks. Now I see my MO every three months and each time I'm there they draw my blood.

I've just been diagnosed for the second time in 4 years. This is a second primary cancer, triple positive. Er 90%, Pr 90% Her2+-grade 3....I'm having another mastectomy within the next few weeks. This is very small .2mm, thoughts on treatment

Yes I have a family history so I've always had Regular mammon and since my first diagnosis even more so because I'm followed by oncology. I've been on Tamoxifen so everyone was surprised at this new diagnosis. Yes chemo and herceptin were mentioned

I'm sorry you have a second diagnosis Momat, but I'm glad it was caught so early. Herceptin for sure with the HER2+. I wasn't getting chemo until they found I was triple pos.

Hi-- this is my first post and not sure if I am doing it right-- tried before and think something went wrong-- go in on Tuesday for my 4th chemo and am tired of being so scared and teary all the time-- I trying to do things like walk, talk to survivors and be positive but the fear comes on so strong-- am making my family miserable-- want to skip Christmas but cant - have a 15 year old-- am so afraid this is too hard on him-- is there any hope that one day I will be happy -- am fighting-- but still so scared --I read positive quotes and try to pray but am still Debbie Downer-- feels like my whole life now revolves around the cancer-- any advice?

Thank you!!! Helps to speak to someone that went through it-- you painting is gorgeous - thanks for letting me know there is light -- I can almost feel it - but just still a little too far away-- think when Chemo is over, things will get better -

will probably get a double mastectomy- they found something in my right breast and it is in too difficult a place to biopsy---so may have both out- know that will be another step but am ok with that -- wasnt going to win any beauty contests anyway - thanks for responding-- hearing from someone that is surviving and moving forward really helps -

Eleine Therese,

No, I have no idea what they will try next after the pathology report. It will be a nervous Christmas.

This illness can be so isolating, it is hard to find the willpower to just carry on..I just want to hide in my bed most days...

I am mostly sad at this point.

Thank you so much for your reply. I am just emotionally totally drained at this point. A lot of things are going on around me with my family. My mom 94 has been staying with me for awhile but now finally moving in to a elderly facility in January.the move is stressful both for her but also for me since I am arranging everything..Another family member (my dads 3rd wife) has cancer in her stomach and is on her last leg, only a few days left so it is just very heavy to see someone passing away in cancer at this point. I said my goodbyes so will not visit anymore. Her son is there 24/7.

I am not working at all and I am lucky I do not need to at the moment. I am taking clonazepan which calms me down. Well, I think I just need a bit of rest for this upcoming surgery. It has been a nerv wrecking fall and it is just getting to me I guess. I also had an old work college contacting me and can not take his constant need to be in focus. I told him off for the first time in 23 years...:) I believe he is narcissist because it is just about me me me, mening himself. My patience is gone for jerks and that might be a sign of health actually but I am tired of so much going on around me and need it to just be quiet. This is a time I need to focus on myself and not on other people as I am mostly doing in my every day life usually. Anyway, just emotionally drained and do not want anything more to disturb me...:) I need love not crap to put it bluntly.

Kattis your mind is exactly where it should be. You did awesome in getting rid of this annoying person. i for one, am so proud of you. You need to do that. You are going through more than enough, dealing with the close people in your life, and trying to get a grip of where you are heading. You gotta put the strength in your needs. Nothing wrong. I am not saying having to be nasty, but whoever does not understand, too bad. My daughter did just that also. She has zero tolerance for annoying people these days, she is very quick in discerning who is gonna be a pain in the neck. Her energy being focused only in the positive, and full filling situations. She chooses more carefully her invites, she goes when she can only and if she wants only. I think everyone should be doing this.

Seriously, Yoga is one very nice way to get yourself in the zone. To be honest, there is this constant anxiety that does not go away, she is stage IV, but she definitely puts a cage around C, and tries the darndest to work around it, infusion day, scan day fine, otherwise it's not talked about it. Meds, check. Pain meds, check. and then it's like get out of the way. I am in awe how she does it, but that is how she choose to deal with it.

Here in this thread, or the more specific ones you will wanna go to after results, you will have the nicest people going at it along with you. You are not alone. Hold tight.

ang - yay!

Thank you for your encouragement..and so great to hear from some that are years in and still doing strong..it helps!

Lots of love to all...

Hi Everyone-- not sure I am doing this right but here goes-- I just had my 4th chemo treatment and was looking forward to being 2 treatments away from being finished. I went in for a sonogram and the radiologist said it didn't appear that the tumor had shrunk-- I emailed my oncologist and he said the good news was that the tumor hadn't grown and that it may just be dead cells around the tumor a sonogram cant tell. What scared me is he said they may stop chemo, do the surgery and then restart the chemo again?? Has this happened to anyone-- I'm not sure I can to this again - cant stop crying even though I know its great news the tumor hasn't grown-- thinking about restarting the chemo just seems so daunting-- going to get a second opinion on Monday but cant handle the anxiety-- they have me on Xanax but think I need more! Any thoughts-- ??