Genetic test and b9 results still have that sinking feeling

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Bellefleur
Bellefleur Member Posts: 58
edited December 2016 in Benign Breast Conditions

it's been almost a year since I started this journey of breast indentations and pain and tests. Thankfully it's was all positive results; that I have lazy ligaments and sensitive estrogen receptors. My genetic test came back receand it was all good news which was a huge relief since I've had a few great aunts get premenopausal breast and ovarian cancers. I've noticed my non dented breast seems to be getting small despite me gaining some weight and the pain has seem to increase on that side. I still have that sinking feeling I got the first time I noticed my original breast changes. I thought that with all the positive results that the worried feeling would go away. I still feel like a shoe is going to drop on my head. Does anyone else have the same feeling? Or does it just take time to unwind from that time of just not knowing what's instore?

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2016

    Great aunts are really not very relevant, so I certainly wouldn't be worried based on that. It doesn't sound like you have anything rationally to worry about. If you are still anxious, continuing to post on a cancer board certainly doesn't help that when you have gotten a clean bill of health. If you have health (or oter) anxiety you should discuss it with your doctor

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  • Bellefleur
    Bellefleur Member Posts: 58
    edited December 2016

    I'm on the benign board for the reason that my condition is not cancer. My family history is enough that it was considered when going through with an MRI from the breast specialist. I posed a question for others that have b9 result to see if they still felt worried or if that feeling eventually goes away. I don't have anxiety issues or otherwise but it was a long 10 months of wait for test and then results and then just finally getting the genetic test results. Living that long in a state of waiting can screw with your sense of am I really okay. I've stayed on these boards because when I first was looking for information the only thing people had posted about indentations was that it's cancer and I want to let them know it isn't always the case.

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  • Emily2008
    Emily2008 Member Posts: 605
    edited December 2016

    Given the long process you've had to undergo, I can imagine that it will take awhile to feel like you really can exhale and relax.

    I think you know it's all fine, so you'll slowly but surely put this period of time in your rear view mirror.

    Gentle hugs to you!

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  • Bellefleur
    Bellefleur Member Posts: 58
    edited December 2016

    Emily2008

    Thank you for the thoughtful response. You're right it will probably just take a little time to decompress from this situation. I was hoping it would go as quickly as it came but really that's never the case with anything. it's earlier to gain 10lbs than to lose it. I wish nothing but good things for you

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2016

    I agree with Melissa Dallas. I think the benign breast conditions forum is mostly attended by those with anxiety and it makes the condition much worse. The anxiety of each feeds off others and intensifies. Anxiety is a serious condition that should be monitored and treated.

    I hope you are able to accept that you don't have cancer and can enjoy your life. Wishing you comfort.

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  • Bellefleur
    Bellefleur Member Posts: 58
    edited December 2016

    telling someone to they shouldn't post on here and assuming they have anxiety or are going to feed other anxiety it down right rude. I wrote about my situation and asked a question about if it took others time to get over it. Questioning my mental health is not a positive or healthy way to treat someone who you know very very little about. Being dismissive of anyone who is just looking for support that yes this just takes a little time and that it's understandable to feel this way is not appropriate either. Emily2008 was supportive and thoughtful and considerate unlike the two of you basically just said you're fine so go away or get mental help.

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2016

    Bellefleur, You are putting a negative judgment on mental illness. I am not. I have a mental illness (anxiety and panic disorder) and it is those judgments that keep me and others from talking openly about it. Mental illness is what it is. I also have diabetes and heart disease but never feel judged for that.

    One can assume if you are still worried after a year there is some anxiety there and I hate to see how people's anxiety is catered too on this forum. It is not just not helpful but could be dangerous.

    A few years ago I had an ultrasound of a thyroid tumour that was diagnosed as "suspicious for malignancy". I had a biopsy that confirmed it to be "suspicious for malignancy" so I had to have the left half of my thyroid removed. I visited a thyroid cancer forum to compare notes on biopsy reports because I was anxious. They were very helpful but when my pathology report from surgery came back showing "benign" I was expected to move on because it was a cancer forum and I did not have cancer. I thanked them and removed my account. I would not hang out in a lung cancer forum if I had pneumonia or asthma.

    Cancer is a very scary disease that only those with cancer 'get'. Anxiety is scary as well and should be seen to by those dealing with anxiety who can give support and solutions.


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  • Bellefleur
    Bellefleur Member Posts: 58
    edited December 2016

    Your negative is the issue here. I have family with mental health issue and it's rude to tell to go get help or tell them the problem they have. It has been a year since the journey start but it ended a week ago so it's obvious you didn't read what had written. This is a board for people with benign breast issue if you have a problem with people that it was suspected they did and turns out they don't being on this page take it up with the moderators it's no to my problem it's yours. I've said to be supportive to those that hadn't the same issue I did and the information was f-I'm going bleek. I have other medically issue but I don't talk about them here because they aren't relevant to my breasts. Instead commenting about how I shouldn't be on here since it's not cancer you should stick your boards and support people you think are worthy of thoughtful considerate responses. I've never had such negative comments directed at me for posing a question to help gain an understanding of turning a new chapter

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2016

    I wish you peace.

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  • Wicked
    Wicked Member Posts: 141
    edited December 2016

    Bellefleur, having breast issues, of any kind, is very time consuming and thought consuming. I've been dealing with mine, including a cancer dx, since April. Well I had the BMX and they found no further cancer, other than the tiny area we already knew about. In some ways, it feels like running a marathon and then having to suddenly stop. At the end, runners don't just come to a complete stop at the finish line, they run a little ways further and then stop. Your mind is on one track and you suddenly have to shift to another. It's reasonable to have trouble doing this quickly. I do think that you should be mindful on spending too much time on here, so you can move on, but I think it's reasonable that it will take time. I can relate to how you're feeling.

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  • Bellefleur
    Bellefleur Member Posts: 58
    edited December 2016

    thank you Wicked. I don't spend much time on the page. This post emails me when someone comments. I only post periodically on not diagnosed but worried when it's in direct relation to what I went through since there was so little positive information I don't want anyone else to feel a holy crap what is going to happen as I first did. Your analogy is amazing I'd never thought of it that way I just assumed once all the information was in a flip would be switched and that would be that. I hope and wish nothing but great things for you.

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