Depression and fatigue after surgery - what was your experience?
I had a bilateral mastectomy on November 8, with immediate implant reconstruction and a Level 1 and 2 ALND. I slept a TON during the first two weeks, but felt I really turned a corner physically after that.
But as I improve physically, I seem to be getting worse emotionally. I've been struggling with really bad depression since the 3rd week of recovery, and now my fatigue seems to be getting worse again. I'm exhausted all the time and having a really tough time concentrating (I work from home as a writer).
I know post-surgical depression is a common problem, but I also have a history of depression, so I'm torn as to what to do. I'd like to avoid going on SSRIs, especially because so many are believed to interfere with tamoxifen, which I will be starting soon. And Effexor isn't an option for me (I've tried it in the past, but don't tolerate it). But I'm feeling horrible!
My question is: what was your experience with depression and/or fatigue following surgery? How long did it last? Can I expect it to improve as I continue recovering, or should I be worried that it will persist even after I've healed? Am I foolish to grit my teeth and wait it out?
Comments
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As this is winter, have you had your Vit. D level checked? Low Vit. D is quite common in today's world - especially with those dealing with BC and it can definitely cause depression and fatigue. If that is the cause - it's not hard to deal with but does take a few days to start 'working' once you start working g on it.
S.A.D. (Seasonal Affective Disorder) is something I've bee dealing with for over 20 yrs be a use of low Vit. D especially from late Aug til late May. I keep it under control with taking Vit. D (5,000 IUs daily per my PA's suggestion) and using a Light Box daily for at least an hour or more. A Light Box is a medically designed light that simulates sunshine to help with Vit. D. I REFUSE to take any anti- depressant drugs as I am ADD and take meds for it so I deal with my SAD without any issues using Vit. D and my Light Box so that's what I do.
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Funny you mention Vitamin D. Just started taking it a few days ago. We'll see if it helps.
I'm also wondering if antibiotics are messing with my mood. I know they can, and I'm still on them over a month out of surgery! I'm taking probiotics in the meantime to try to offset the effects.
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I had a similar experience after my BMX. It totally blind-sided me. I had already had a lumpectomy and re-excision, 4 rounds of chemo, and a bout of sepsis. I lost my hair on day 15 post-first chemo. Through it all, I held up pretty well, so I expected to be fine with the BMX.
Well, it all went to hell in a handbasket! The BMX itself was a piece of cake, but within 7 days I developed a massive amount of tissue death. The dead, black tissue had to be cut out, which didn't hurt but it left a big crater about 4" x 4" x 2"--all the way to the chest wall. I had to pack the wounds twice day and it was horrible. By 2wks post-op I could hardly even get off the couch. I didn't want to bathe or go outside or do anything. My sleep was disrupted, too. I was miserable. Thankfully, my doctor recognized it for what it was--PTSD. PTSD is very common following a devastating illness or injury. She really "got" my sense of mutilation and grief. My doctor put me on a course of Lexapro, which helped with my constant anxiety. I also have bipolar disorder which is easily triggered by lack of sleep, so she also put me on a sleeping pill for awhile. Do you know that I was like a new person within 2 weeks?! It was really pretty amazing. Sure, I still had the big crater (it took 16 weeks to heal!) and I still had to do gross dressing changes, but at least I could get off the couch, work, cook, and generally return to my regular life. And after about 5 months I no longer needed the meds.
My suggestion would be to talk to your doctor about your depression, especially since you have a history of depression. You don't have to suffer like this.
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Thanks for sharing your story, mustlovepoodles! I will definitely talk to my doctor. My only concern is coming off the meds later on. I've had trouble withdrawing from SSRIs before. Did you have any problems discontinuing the Lexapro?
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I had surgery on Nov. 23 and was in great spirits with fantastic pathology report and little to no pain. However, in the last several days (~12 days post-op) I started getting much more pain - like being slightly electrocuted on my entire chest with intense tightness. And I believe my direct to implants are too large. I was a slightly droopy C cup from nursing and really wanted to be an A cup or small B since I am 5'10" and 128lbs I figured I could rock a lean, flatish look. But instead PS put in 250ccs and I feel enormous and they are high on my pecs. The whole thing is bumming me out especially since I have several open wounds that have to be tended to with Silvadene 2 X day to make sure no infection gets in. Right now, the best thing I do is force myself to go for walks and use a little valium at the end of the day when I am most weary.
I'm also thinking of going to a PTSD therapist. There are Somatic Experience Trauma specialist who deal with physical trauma in LA. My friend suffered a horrible bike accident and he has turned me on to a few names. I'd be glad to share with you if you are interterested.
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Renee, I would love to get the names of some somatic trauma specialists. On top of the trauma of surgery, I'm dealing with significant cording and range of motion problems in my right arm where they did the axillary dissection, and that has been really hard to cope with. It's scary to think I might have long-term issues.
I hear you on the implants. It's a weird adjustment, although my situation is a little different. I was a small A cup and wanted to go to a B. I agonized over implant sizing—despite considerable hand-holding from my plastic surgeon (my twin sister, if you can believe!). She did a fantastic job, but they are bigger than I expected and definitely bigger than I'm used to. However, keep in mind that what you see now is NOT the final result. Right now, you are still swollen from surgery. As to being high on your chest, according to my sister that will definitely resolve in a few months on its own. There are bands you can wear above the breasts to speed up the process, but they will settle naturally.
For the sensation of electrocution and tightness, my guess is that those are muscle spasms. My sis warned me about those. The Valium should help with that. I have had a lot of tightness, too, but it's gradually going away. It does get better!
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It's interesting that implants are sometimes bigger than what we wanted; I have read about this reaction so frequently. At the time we are going through this, many of us (myself included) don't know enough about implants to ask for a specific cc amount, especially if going direct to implant without much time to learn about the specifics. We typically reference cup size. My "original" breasts were too big for my frame (an F cup on a 5'5" 140 lb body), and I told the PS that I preferred to have a B cup or smaller. But I wound up with a full C, sometimes D. Though there was a bit of swelling post op, i am now a couple of years out and I remain a full C or D.
I have read in other posts that the PS wants a size that can be snugly "held" by the pecs (if we are having the typical under the pec insertion done) and that may be bigger than our preference. Wish that would be explained outright instead of waking up with a bigger size than wanted/expected. The electric "shocks" are normal...it is the nerves making reconnections and it settles down within a few months. Spasms settle down somewhat, but you will always "feel" the implants under the pecs, and the movement of the implants under the pecs can be noticeable; watch yourself in the mirror as you use your arms/chest muscles to figure out what type of clothing works best. Sensation gradually returns to underarms and between breasts but you will likely remain numb in the center breast area.
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Thanks, ladies. It's comforting to know that being larger than expected is not always permanent and happens frequently. My pain is just so bad I keep fantasizing that smaller would have been pain-free. I'm sure anyone who has gone through this even without reconstruction would laugh at that notion.
Melee I tried to post a link to the somatic experiencing trauma institute website but it wouldn't go through. There are a lot of MFTs w/ SE training that you can access by your zip code on their site. I recently moved to Brentwood from Hancock Park so my friend gave me 2 recs on the westside: Debra Clydesdale and Carla Becker. I have yet to meet with either one as I can't drive yet so I'll have to wait until I get the clearance. When were you able to drive again? I also have this huge fear of being in the passenger seat and the airbag inflating and my foobs exploding! I keep thinking of that Radiohead song "Fake Plastic Trees". Did I mention I am a stand up comic? I'm always trying to find humor in the darkness.
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I drove for the first time exactly 4 weeks after my surgery. I probably could have driven earlier if not for the problems in my right arm because of the axillary dissection. But I've heard it really varies from person to person. You're not supposed to be driving as long as you're still on pain meds. Other than that, once you've got good range of motion in your arms, you should be good to go. However, I can't imagine driving for any length of time. I still have a ton of fatigue, which I guess is normal since we had such major surgeries (I was under anesthesia for 8 hours).
I hear you on the exploding foobs! I haven't had that particular image (although now I will, thanks!), but they just seem like water balloons that could pop at any moment.
Sorry to hear you're in so much pain. I have the occasional zap (which I think are the nerves coming back online). But what you described to me before sounded a lot like muscle spasms. My cousin had them really bad after her double mastectomy and Valium was a lifesaver for her. She made a big deal about it to me before my surgery, as did my sister. You've mentioned you have some, so try it next time you're feeling that intense tightness and pain and see if it helps.
Thanks for the info on the somatic experiencing trauma institute. Will definitely check it out.
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I suffered from depression and I was exhausted. I did see a psychiatrist and start a low dose of anti depressents I sleep less now,
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