Waiting and waiting....

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newt72
newt72 Member Posts: 16
edited December 2016 in Diagnosed and Waiting for Test Results

Hi all! I have been lurking for a couple of weeks since my diagnosis (11/22) but this is the first time I am posting. I have realized what a waiting game it is for all the tests and answers and as others have said, that's the hardest part. I had an MRI and genetic testing done last Tuesday, the genetic test results won't be back till next week but the MRI results are available on my online chart. I have read it and it says another suspicious area "non-mass enhancement" was found and recommend MRI guided biopsy. That was yesterday and I thought I would have heard back from my BS by now, but I have not. My last appt with her was at time of diagnosis and no future appts were scheduled at that time. I know we were waiting for results for genetic test too before making final treatment decision, but I am still a little bothered that I haven't heard from her office. Also, I am still waiting to hear results of the needle biopsy she took from lymph node at same time as breast biopsy. For some reason that path report did not come back at the same time when the breast biopsy did, but it's been nearly three weeks now! Is this normal...should I look for a different BS?

Btw, I am 44, a mom to 3 beautiful boys, and wife to an awesome and loving husband :) I discovered a lump near my nipple in October and was diagnosed November 22 with IDC right breast, ER/PR+, HER2 -

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2016

    Hi newt and welcome to Breastcancer.org. We're so sorry you have to be here, but we're really glad you found us and have decided to post! You're sure to get some great advice and support here soon from others.

    Have you tried calling your BS's office to ask for an update? It is normal to have different pieces of your path report come at different times, but we know how anxious you must be awaiting answers. Maybe a phone call will do you wonders!

    Please keep us posted on what you find out, and we look forward to supporting you as you start your treatment journey.

    --The Mods

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  • newt72
    newt72 Member Posts: 16
    edited December 2016

    Thank you for the reply. I plan to call them tomorrow. On one hand, no news is good news and I'm glad they're aren't overly concerned about rushing to do anything, but it would be nice to be told what they do know as it becomes available.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    Welcome newt72--when you find out about treatment, you can visit the different threads here and find really helpful (and inspiring) information for tx, to allieviate side effects (invaluable) lifestyle choices, supplements, etc. I found out so much to do here on bc.org, and made a few friends along the way. I love these discussion boards and after finding my way here I never visited other support websites. This is by far my lifeline to get through this journey, which I will be on for the rest of my life, no doubt.

    Claire in AZ

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  • newt72
    newt72 Member Posts: 16
    edited December 2016

    Thank you Claireinaz! I have already gotten a lot of valuable info from these boards in the short amount of time I've been here. I definitely believe it will be a lifeline for me as well.

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  • newt72
    newt72 Member Posts: 16
    edited December 2016

    @abbylinc I hope your mom gets answers soon. The waiting/not knowing is awful!

    I finally heard from my BS yesterday, she still did not have results from lymph node...she keeps blaming it on the lab and admin at the hospital. She said it should be today or tomorrow. She also went over the results of the MRI and confirmed that I will need an MRI-guided biopsy for the other suspicious area that was found, however that will wait to be scheduled we get the genetic test results. I'm just ready to have a plan in place!

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  • adoxa
    adoxa Member Posts: 4
    edited December 2016

    on the topic of waiting, after many misdiagnoses in June 2016 results were stage 2 ER+. Today december 8, 2016 and still no treatment has started, no matter how I ask and beg, two Oncologists just look up at the ceiling, just two days ago I was told if I have not heard anything in a month I should call their office....... This is not lost luggage and even if it would get faster attention. I know my mouth was whispering wtf. What is wrong here, any left over cancer has already had six months to grow, spread, whatever it wants. Cannot understand how two oncologists can deal like that, one dies not want to get them p.o. But.....

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  • Emily2008
    Emily2008 Member Posts: 605
    edited December 2016

    Adoxa, you were diagnosed in June and you haven't started any form of treatment? Why in the world not??? What are the docs waiting for?

    I was in surgery the first time just 3 weeks after diagnosis. With my recurrence it was 6 weeks after diagnosis, but that was also because I had a lot of scans that had to be scheduled prior to surgery.

    I'm so sorry for your delay! I would be furious!

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