Starting Chemo in Nov 2016

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  • pmevans50
    pmevans50 Member Posts: 54
    edited December 2016

    I'd like to join the FB page. I'm Patricia Evans and I have the same profile pic, so should be easy to find me. :-)


    I hop everyone is doing well!!

  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    yes Sorella, right now its "closed" so we can add people...it will become secret. We can also pick a name for the group that has nothing to do with cancer!

    right now its Nov Chemo, but that is so everyone can find it etc...

    Becky

  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Patricia did you click the link and request to join?

    https://www.facebook.com/groups/604831976364120/

  • Hope88
    Hope88 Member Posts: 55
    edited December 2016

    Ladies,

    I am not a huge facebooker so I would probably forget to check it. I will continue to monitor and post here though.

    Thinking of all of you.

    Becky, I think most of us have a port for chemo. I wonder why your MO didn't suggest it? After the initial discomfort, it has been fine. I never feel anything in my veins the day of or after. Hope you feel better soon.

    Gai

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    I did join the group, but I hope we keep posting here too. I kind of like all my "cancer talk" being separate from my FB.

    I'm in between treatments...this 3 week schedule seems to take forever. I understand it, but really wish I could just go get the next one and get this done.

  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Hope88, I totally thought I would be getting a port, but when I first met with my MO he said he didn't think I needed one, my veins were good...and I could start chemo sooner..

    I did put some heat on it last night and it feels much better today, I"m going to have them use my other arm for my next treatment just to give this arm a longer break LOL


  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Leslie, I will continue to post here too, its just easier on fb since I can do it from my phone (and I"m a fb addict lol) its more convenient and easier to keep up with posts and respond specifically to one person..

    When I'm at work (like right now lol) its easy to get on here and read and post :-)


  • aterry
    aterry Member Posts: 290
    edited December 2016

    Becky, my infusions are through my veins. I had my third infusion yesterday and so far no problems. During the second infusion I felt a little heat sensation during the pushing for the A and my nurse slowed down the push which corrected it. I hope you see improvement, soon. Before the start of your next infusion I would tell the nurse of your experience.

  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    Aldea, I hope your second infusion went well! I know we are on the same TC schedule. Mine was fine and now just working my way through the lack of sleep from steroids! At least this time I know that over the course of the next 10 days or so, we'll start to feel better!

  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    Also, I learned something interesting that others might want to explore if you are having issues with nausea. I was told that one of the medications I am receiving on my infusion day (Emend or Aloxi, not sure which one) works on the same receptors as Zofran. The infusion med is effective foe 48 hours. As a result, compazine might be more effective than Zofran for the first 48 hours. After that, apparently, Zofran is your first choice, with compazine along side it as needed. Obviously, go over this with your doctor, but for those of you dealing with nausea, I hope this help.

    Also, for me, going on Senekot (bills itself a a 'gentle, natural vegetable laxative") the same day I start the steroid, seems to be helping and does, in fact, seem gentle.

  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    I am not using a port, but I have just 4 treatments and TC is apparently easier on the veins than AC. Nevertheless, they don't seem to be able to use the same vein twice, but find a new one each time. So, I guess it depends on how many good options you have. And, you want to avoid the arm on the side where you had surgery for any procedure like this to reduce risk of lymphadema.

  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Aterry and Annie, Thanks!

    I did not have surgery yet, so they can use either arm...as of now the first 2 they used the same arm, same vein...so maybe that is the issue. I told my nurse last time that it was hurting and she checked it and said it wasn't swollen or anything and looked good. I'm going to make sure that they use my other arm next time to give this one a break.


  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    Superstar, I hope your treatment yesterday also went well!

  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Anyone who is wearing a wig have tips on the itching? I ordered a cap to wear under it but it hasn't arrived yet. All my hair isn't out yet, but its patchy, and soooo itchy! this morning after my shower I dried whats left of my hair...then put on some gold bond powder..

    at work today (I'm a teacher so I really want to keep wearing a wig everyday since my students don't know) I went into the bathroom on my lunch and had to just take my wig off and scratch like crazy LOL I"m hoping when all the hair is gone it will get better?

    And also what do you guys sleep on or put on your head at bedtime? I haven't bought new pillowcases yet but I've been looking into satin ones...and I wear a beanie cap to bed, but end up taking it off when I get hot...

  • Pamela23
    Pamela23 Member Posts: 510
    edited December 2016

    Annie--I'm on the same TC schedule with you. Had my 2nd round yesterday.

    BG46TN-- I bought a cheap satin pillowcase on amazon.

    https://www.amazon.com/Morning-Glamour-Single-Head...=sr_1_2?s=home-garden&ie=UTF8&qid=1481233593&sr=1-2&keywords=Morning+Glamour+satin+pillowcase

  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    Hope you are doing ok, Pamela. These first 6-7 seem to require some patience while my body settles back down. Take care!

  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    Becky, I am not wearing a wig, at least not yet. I work remotely so, for now, I am relying on a collection of hats. I will say, though, that even though I let my hair fall out vs. shaving it, when I finally buzzed the the last of it off, it itched a lot less. For some reason I was avoiding the buzzer, but it did feel better after that. I hope you get some relief

  • amw5
    amw5 Member Posts: 189
    edited December 2016

    I hope everyone is doing well. (((hugs)))

    My next (third) A/C chemotherapy is on Tuesday, December 13.

  • Nfullblume
    Nfullblume Member Posts: 171
    edited December 2016

    Marie, I'm right behind you with my last AC injection on Wednesday. Hugs to you!!

  • amw5
    amw5 Member Posts: 189
    edited December 2016

    Nfullblume - How many ACs are you doing? How many Taxols are you doing? I have four each (not sure what the 'standard' is).

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    I think my eyelashes are starting to go. My eyebrows still don't look too bad. I'm hoping to keep at least some of them but I'm not hopeful if they are falling out now. Other than that this waiting between treatments is almost like torture. I just want the next one and get on with it!


  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Annie, I had my husband buzz it again last night and in the shower I put a ton of conditioner and rubbed like crazy so it would come out LOL it did feel much better!

    Leslie I hear ya on wanting the next treatment to come faster! I have to wait until next Fri for #3 and I"m so ready to get it done! I can't imagine how hard it will be when I start the Taxotere and go every 3 weeks!! ugh!

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    I'm every 3 weeks now BG...it feels like forever. One more FEC to go, then 3 D with the Herceptin, then 15 more Herceptin on it's own, all 3 weeks apart.

    I still have fuzz on my head, it just doesn't want to come out! My legs and underarms are pretty smooth though.


  • aterry
    aterry Member Posts: 290
    edited December 2016

    Nfullblume, Congratulations on completing the last AC! I'll be interested to see how your transition to Taxol goes.

  • Grannemama
    Grannemama Member Posts: 10
    edited December 2016

    Hi ladies!

    Haven't checked in for a while. Had third AC last week and then came down with a cold this week. I know, my fears came true. Stuffy nose and scratchy throat. Temp only at 99.0.Seems I'm constantly hand washing and sanitizing, but...I'm guessing I just need to take it slower. Can't take vitamin C, so just spending the entire day in bed and drank 3+ liters of liquids. I love to go to the supermarket but now I'm considering delivery. And a mask when I attend the kids holiday concert at school. Cant be too careful now I feel.

    Amw5-we have the same regimen AC x4 then Tx4 on Tuesdays!! I'm just at #4 this week if WBC are ok after this cold.

    Nfullbloom- I'm just one day ahead of you. Can you believe it? Who thought we'd ever be excited about our last AC? What a club!

    BG46TN- hope you're feeling better

    Ladies, don't ever be afraid to ask for help, try not to overdo it, practice self care and self love

    Anyone on AC feeling tenderness in their toes? I am. Wasn't expecting it yet, not until Taxol

  • Nfullblume
    Nfullblume Member Posts: 171
    edited December 2016

    Marie, in the same as you. 4 AC and then 4 Taxol. 2 week intervals.

    Terry, come on last one. I wonder if I can ring the bell for being half done!? ๐Ÿ˜œ

    Grannemama, congrats on being close too.

    I've been doing pretty well this go round. I had my doctor prescribe some meds for these blasted hemmrhoids. It's crazy how much havoc those things can cause. Today is day 10, so it's first day I was allowed to take prescribed meds for them. This shit needs to get cleared up before I go back in on Wednesday. I'm definitely doing Miralax 2x a day this go round. I can't keep fighting this battle. It's a huge pain in the rear!!!!! ๐Ÿ˜‚๐Ÿ˜œ

  • Sorella
    Sorella Member Posts: 107
    edited December 2016

    My third treatment was Monday and I am impatiently waiting for this feeling of doom to lift. This is the longest so far. I have one more AC and then 4 Taxols. I am on an every 2 week schedule. Hope you are all feeling best as possible

  • SleeplessinCO
    SleeplessinCO Member Posts: 36
    edited December 2016

    Becky - I haven't had any itching on my head and I've always had very sensitive skin, so I'm actually surprised. I had my husband buzz it last weekend, but I still have a little hair. I've honestly just been shampooing/conditioning with my regular shampoo (Pantene) to help the remainder fall out, and that seems to keep the itching away. I wonder if the powder you're using might make it dry out more. Wishing you the best!

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited December 2016

    To all of you amazing ladies......Just popping in to say that I am over a year out of chemo and doing well. My hair came back......have had 4 haircuts! It will happen to you too. I remember all too well wondering if I would ever see the light at the end of the tunnel after chemo and surgeries. But I did....and so will you. Just remember, there are thousands of us who have traveled this journey before you. It's not easy.....but we are STRONG and stick together and here to support each other. I had some pretty bad side effects during chemo. Anything I can possibly help you with, just PM me. I am now as healthy as before....I see a few changes.....new normal, they say, but am back into exercise and am actually teaching a 5 miles exercise class. My range of motion is good as ever. Keep going......one day at a time does it. Be positive.

  • Hope88
    Hope88 Member Posts: 55
    edited December 2016

    Fellow warriors,

    Mysunshine, thanks for the words of encouragement. I am so happy you are doing well.

    Nfullblume, sorry to hear about your hemorrhoids. I have had them since my first pregnancy. Are you experiencing blood problems as well? Hope you feel better soon.

    I can't remember who asked about foot pain or numbness on AC, but I am experiencing that as well. My right foot is the worse, but that might also be because I have arthritis in that foot. The pain and numbness was pretty bad all day yesterday, but got a little better today. I am kind of worried what will happen with Taxol.

    Well, now with the shredding of my hair, I have the tingling and sensitivity of my scalp. My hair is in a sad state.

    Ok, I am depressing myself...lol.

    Have a great day ladies!๐Ÿ˜๐Ÿค“

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