Starting Chemo in Nov 2016

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  • BG46TN
    BG46TN Member Posts: 286
    edited October 2017

    I stupidly have 2 accounts on here...my BG46TN one and a BeckyG one...I need to delete one LOL I accidentally signed in under the one I don't use..so now I have postings in 2 different names oops...

    Becky


    My full name is Becky Guidi but I go by Becky Lee on facebook...let me know if you can't find me, since I"m a HS teacher sometimes I have myself hidden so students can't find me LOL

    My profile pic is me with a beanie cap on and my daughter in a Chip (chip n dale) hat :)


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  • livin-on-a-prayer
    livin-on-a-prayer Member Posts: 14
    edited December 2016

    I too would be interested in a private Facebook group - do we use Facebook messenger or something else. It would of been good last night/morning when I was awake from 3:45 a.m. on.

    Javamama - good luck today. I am feeling so well and like myself again it is hard to go back into the fog of chemo.

    By the way my name is Jennifer Miller on Facebook. We will initially need to put our aliases by our real names so we can remember who everyone is.

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  • LatinMixy
    LatinMixy Member Posts: 31
    edited December 2016

    Hello ladies! Yes, I am one of those... I do not have a Facebook account, but I just love our group, so I am willing to try it again. And yes, a chat would have been wonderful last night, when I couldn't sleep since 2am on.

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  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    livin-on-a-prayer there are a lot of Jennifer Millers on FB LOL I tried looking you up! What is your profile picture?

    Rachel, I sent you a friend request :-)


    Becky

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  • fromtritotam
    fromtritotam Member Posts: 29
    edited December 2016

    Hi Ladies-

    Not sure who asked about the brow gel but the box says to start before chemo and continue for 4 weeks after. Hope this helps!

    Day 6 post AC here and I'm still nauseous. I made the choice to not take the Zofran- the C is getting to me! I am eating as much fiber as I can and taking miralax and senokot. Tomorrow will be better :)

    I am also up for a FB group- I am Kelly Main Swab on Facebook. My profile pic is me and my daughter.

    I hope everyone is having a good day!

    Kelly


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  • livin-on-a-prayer
    livin-on-a-prayer Member Posts: 14
    edited December 2016

    BG46TN I have Jennifer Kaiser in parenthesis. There is a picture of my husband and I at my daughter's wedding in a navy blue dress. It is difficult having such a common name.

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  • livin-on-a-prayer
    livin-on-a-prayer Member Posts: 14
    edited December 2016

    fromtritoa -Kelly - Have you tried prune juice? I used that later on instead of the scenekot, because it made so gassy and it seemed to work well and didn't taste so bad.

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  • amw5
    amw5 Member Posts: 189
    edited December 2016

    I had my hair buzzed off on November 13 (two days before my first chemotherapy). It finally started coming out (just before my second chemotherapy on November 29). I got most of the left over hairs out last night. Now I'm almost fully bald, and I'm ok with it (since I know this is part of the healing process). Oh my goodness. It's amazing how sensitive one's bald head can be. I'm still wearing my pretty and colorful scarves. I'll also get some cute and fun hates (as I won't be wearing any wigs).

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  • amw5
    amw5 Member Posts: 189
    edited December 2016

    I'm up for a Facebook group. Please let me know if you all decide to create one. Thx. (((hugs)))

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  • Coupon
    Coupon Member Posts: 29
    edited December 2016

    fromtritotam, have you try ground flax seed mix with yogurt? I have been trying to take approximately 4 teaspoons of ground flax seed with 2 teaspoons of chia seed and mix with yogurt daily. It's high in fibre and I don't have constipation problem.

    Just came home from 2nd infusuo, started feeling a bit dizzy at end of infusion. Resting in bed now...

    Take care everyone.

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  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    I will create a private/secret FB group later when I get home from work...then I will post and anyone who wants to join can let me know. I will make everyone that joins an administrator so that we can all add members from here when we see someone interested.

    Do we want a special name for our group? I"ll start it as "Nov Chemo" but then we can think of a better name :-) When my sister had bc 3 years ago, her group from here started a fb group called the "Chemo Sabes" LOL

    Becky

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  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Jennifer Miller and Kelly Swab I sent you friend requests.. FB won't let me create a group until I have people to add to it LOL so once someone accepts my friendship on fb, I can start the group.

    amw5 what is your FB name?

    Latinmixy, javamama, and Sorella what are your names on FB also?

    And anyone else who has a FB account and would like to join a secret group....let me know your full name, either on this post or private message me.

    Becky

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  • Pamela23
    Pamela23 Member Posts: 510
    edited December 2016

    Please put me in the FB group. Pamela Hill Hallissey

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  • Superstar3102
    Superstar3102 Member Posts: 16
    edited December 2016

    Please add me to the Facebook group... can't keep up with the forum ?

    Michele Hawk Dra

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  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Michelle and Pamela I sent you friend requests...I can't figure out how to add people to that group that are not already my fb friend LOL

    Here is the link to the group, right now it is "closed" I will switch it to "secret" once everyone joins...I think my problem with adding people was because it was "secret"

    click the link, request to join :-)

    https://www.facebook.com/groups/604831976364120/

    Becky

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  • javamama
    javamama Member Posts: 119
    edited December 2016

    Thanks, Becky. Ignore the PM I sent you with a direct link to my page. I just requested to join.

    Chemo went well today. Chemo days are long days because of cold capping. I feel a little more tired than I did for my first. I can feel the steroids more as well. I got the neulasta on my arm. My belly isn't suitable for the appliance because of the DIEP reconstruction. My belly feels a little edgy as well.

    I might be able to write more later. My head is still frozen and it's really hard to think.

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  • pmevans50
    pmevans50 Member Posts: 54
    edited December 2016

    Oh my Lord! I can not keep up with you Ladies. :-) a FB page sounds like a great idea!

    Living-on-a-prayer - You're welcome! :-)




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  • LatinMixy
    LatinMixy Member Posts: 31
    edited January 2017

    Becky!

    I sent a request to join, i am Zue Vesov. I have no profile picture. working on it. LOL!

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  • SleeplessinCO
    SleeplessinCO Member Posts: 36
    edited December 2016

    Becky,

    I just sent a request to join. Cindy (Ryan) Schreiber, profile pic is me with a Denver Broncos hat.

    Thank you for creating the page.

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  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Posting the FB address again for anyone that wants to join...click and request to join group...you will be added right away.

    We will continue to post here also, but FB is soo much easier to follow and comment on specific posts from people.

    https://www.facebook.com/groups/604831976364120/


    Becky

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  • Nfullblume
    Nfullblume Member Posts: 171
    edited December 2016

    I friended everyone and joined the group! Wahoo. I have the day off. Going to enjoy my sister and niece for the day before they head back to Michigan.

    Have a great day, ladies!

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  • Coupon
    Coupon Member Posts: 29
    edited December 2016

    Hi Becky.

    I sent my request to join and my username is Applekfc Rogers without a profile picture.

    Thanks for creating the group.

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  • javamama
    javamama Member Posts: 119
    edited December 2016

    Please feel free to friend me. But be aware, I'm a total pinko commie liberal. So friend me and then unfollow me if me posting way too many political posts will drive you mad. ;)

    Dawn

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  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    coupon you've been added :-)

    I try to check throughout the day, so if you request to join, it shouldn't be too long before I see it and add you guy :-)


    Becky

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  • fromtritotam
    fromtritotam Member Posts: 29
    edited December 2016

    Thanks for all of the C suggestions, ladies! I have the flax and will try prune juice.

    Javamama- you just made me LOL :)

    I hope everyone is having a good day and I will check the FB group later!


    Kelly


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  • BG46TN
    BG46TN Member Posts: 286
    edited December 2016

    Anyone else who is using their veins have some pain in their arm/veins? My 2nd infusion was Friday and it felt a little sore but the nurse said it looked fine...today its still sore, not red or swollen or anything but when I press on my vein it hurts....is this common? should I call the dr?

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  • Coupon
    Coupon Member Posts: 29
    edited December 2016

    Hi Becky,

    I had my 2nd infusion yesterday through vein. Like last time, my right arm sore whole night and it fades away this morning. On top of that, I also experienced tingling on both legs and arms couple hours after infusion. I mentioned to my MO and he said this is not a huge concern.

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  • Sorella
    Sorella Member Posts: 107
    edited December 2016

    My only reservation about a closed facebook group is that people can actually see who is in the group though they cannot see their posts. I am friends with many former students on facebook and am not eager for them to know about my cancer. I think I might have to make a new facebook page in order to be included with a spin on my real name

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  • javamama
    javamama Member Posts: 119
    edited December 2016

    This is why I suggested it be secret. The FB group that is. I think currently it is closed so that we can all join. Then Becky is going to change the setting back to secret.

    But please do what you feel most comfortable doing, Sorella.


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  • Sorella
    Sorella Member Posts: 107
    edited December 2016

    I made a new facebook so I could join you all. I am Steffi Paul. I think I sent a request.

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