Anyone.Starting Chemo in October 2016?
Comments
-
Morning, ladies! I'm out of the fog of #3. Moving the Neulasta to my belly did lessen the powerful headaches. I had more weird pains in my back and buttocks, which are much easier to tolerate.
I know we have a ton of dog lovers in this group. My Molly knows mama doesn't feel good on Friday nights. She couldn't get close enough to me. Isn't it funny how they know!?
-
Morning, Nfullblume! Three down ... yahoo! Interesting that moving the Neulasta changed the side effects ... just goes to show that you never know unless you try.
Molly looks very cuddlelicious! Max is a "floor dog" so he doesn't cuddle with me. He shows he cares by walking over and laying his head on my lap, or by lying down on my feet. Just knowing that they want to make you feel better melts your heart, doesn't it?
Poor old Max is having a hard time these days ... arthritis, and he seems to lose his balance and slip on our hardwood floors more and more. I found a temporary solution ... I cut the necks off some balloons, and made "balloon booties" for Max. They give him a little more grip, and he doesn't seem to mind. He certainly looks very festive! Oh, the things we do for our pets!
Barb
-
Al12thanks for the tidbit on whole foods if my grass fed beef connection doesn't work. My crock pot going on today as it's a wet rainy cool day in Houston. Good football watching weather. Glad to hear your doing well and wishes for smooth sailing the rest of the way .
Pleased my Saturday after lots of sleep/rest Friday, allowed for visit farmers market, holiday market visit, hangout with neighbors at local coffee house. Then a treat - a dinner date with my Beau. Very special as he's a professional Santa and I am often a Santa widow during the season. Two big nights this week sponsoring Santa for the neighbors, young and old and pups too. Fewer kiddo hugs this year being more careful with " germs " otherwise.will take in all for recharging energy.
Here's a little AHHHH for you this holiday season ..
HO HO HO from Santa Patrick as he knows you have all been good girls / ladies.
Nfullblumelove the comfort photo of your pup. Aren't they wonderful ? My two sense something is up on the days I am down. Funny what they pick up on. Their loving and cuddling is such great therapy. Love the hat with the darker framed glasses.....and your smile. Lots more of those ahead for all of use as we get closer to the end of the tunnel.
Terry ( aka whisltestop )
-
Terry and Barb, Molly is jack Russell terrier mix, so feistiness is in her blood. It makes the cuddly moments that much sweeter. She picks up on the change in smell the second I'm home from treatment.
Barb, I'm sorry Max is struggling. I'm sure he has had some amazing good times. They certainly are like children. A big hug to your baby! 🤗 I can just see the balloon dugz!! If you wanna see something that'll make you laugh..check out the video!
Terry and Alla, I love Pho soup. I crave it!! It's cooks for a day or two too. I have a recipe for bone broth in my Cancer Fighting Kitchen cookbook. I've been dying to cook it for myself. Let me know how yours turns out, Alla! We are expecting 30s here in Florida this week. Brrrrr!!! It may be time to cook some up!
-
Nfullblume - thanks for the video .... that is laugh-out-loud funny! Takes me right back to the first time we made Max wear boots ... winter can get really cold here in Quebec, and one winter Max's paws kept freezing when he went for his walks.
We bought him his boots and put them on him, then we cracked up when he started doing his Frankenstein dance. Yes, we have a ton of great memories with Max!
Terry - great photo ... really captures the magic of Christmas!
Barb
-
It sure is quiet here lately ... hope that everyone is feeling and doing well.
I finally went to a "Look Good, Feel Better" seminar this morning ... it was so much fun! I took off my headscarf to avoid getting makeup on it, and (I don't mean to brag, BUT ...) the organizer announced that I had the perfect head to be her model for the wig/scarf/turban portion of the workshop. I got to sit there and try out all kinds of different looks that I would normally never consider.
They served coffee and cookies ... all in all, an excellent morning!
Barb
-
Had tx 4 of 6 on 12/1. Been having a rough go as far as SE's are concerned. Sense of taste almost completely gone, trouble keeping food down and staying hydrated, gi issues, overly sensitive sense of smell, trouble sleeping more than a few hours at a time, etc.
-
Hello friends! Hope you're all doing well. I'm gearing up for infusion #4 this Thursday. I'm both excited and apprehensive about it. Just can't wait until it's over, I'm sure you all feel the exact same way!
On a brighter note here are a couple of pics of my grand girls. My grandson is a wiggle worm, I'll share a pic of him soon
-
Fighting ... I'm sorry to hear that you're having such a rough time. Hoping that you get relief from those horrible SEs soon. Sending best wishes and gentle hugs.
Jenn ... What beautiful children .... something inside me just melts when I see such sweet little faces! Very cute!
Barb
-
JR74OMG....absolutely precious. The things that definitely fuel your fire. BTW noted you're a fellow Texas girl. From where if I may ask ?
FightingTheFightsending energy of comfort your way.....may you have more ease in the days ahead.
Abracadabrathe Look Better Feel Great sounds fab. They rescheduled the one from Dec 20th to Jan at Methodist. I was thinking of searching out another location as it so.
Al12first batch of bone broth turned out great.Long method and filled the house with great aroma.Going to drink in all the benefits.
A good week to all.......
Terry (aka whistlestop )
-
hi ladies,
We finally got a bit more than a sprinkling of snow today (the ground is pretty much covered) and a little more to come in the next days here in New Hampshire. It looks lovely- I love seeing the first snow.
Barb- I can imagine how much you were (NOT!) looking forward to dealing with Max's bloody mess. That blood from a claw cut too short has a way of making itself known. I am glad you liked the Look Good Feel Better. I am going tomorrow afternoon for mine. No "perfect head" here though. I look like Mr. Clean - really!
Alla- I have also had red face and hands. The face is much less of an issue now (as of week 4 maybe) but my hands- problematic. It started on the sides of my right hand, then to the other, and now creeping up my arms. It is hand and foot something. So far (and I'm really knocking on wood here) my feet are okay. Cold compresses help my hands to an extent. I just lay rung out cold facecloths over both hands for about 20 minutes and that's the only thing that has helped. I was prescribed two different cortisone creams and neither of them help. I will commiserate with you any time you want. I'm sorry you're suffering with this.
Terry- halfway done-hurray for you! And a nice tee shirt to boot!
Nfullblume- your Molly is so sweet. Love how she is cuddled up and protective over you. What a great smile you have in that pic.
Fighting the fight- I sympathize with your Taxol SEs. I can feel ya with the lost sense of taste. All I can taste is sweet or spicy.
Jenn- your grand girls are truly beautiful.
As I mentioned, I'm going to LGFB tomorrow, and then to Boston for chemo on Wednesday. A friend just dropped off dinner for us, which is heating in the oven. I have no desire to cook for the first time ever, so I'm really appreciating the dinners.
I hope everyone has a good night. I enjoy reading everyone's posts.
Nancie. (My name is spelled with an "ie" on the end, but even edited, it won't accept it! I will win this battle sooner or later
-
Hello everyone,
I've been quiet for awhile--just didn't feel well at all most days after chemo #3 two weeks ago and kept having low-grade fevers, and not-so-low grade over the weekend. This seems to be my pattern, to get fevers the weekend before chemo--but at least this time I didn't end up in the ER. Today was chemo #4 of 8, my last with the AC, and I can't believe I waited while they looked at the blood counts just praying that I could stay on schedule. Never thought I'd pray for chemo... All was well and we went ahead. I had a friend from Oregon visit me on her way to the airport to return home, which helped pass the time. Generally I go alone because I find it hard to be a "good patient" and chat for hours on end. But we hadn't seen each other in two years so there really was a lot to cover and catch up on. It seems that the only topics of conversation these days are my breast cancer (which I don't enjoy talking about) and politics (ditto) so it seems like work to have company. Shorter visits when I'm home--yes please, but I'd rather read/nap/snack during infusions.
Next up is Taxol, every other week. No Neulasta with the Taxol. I hear so many different things about the SEs with Taxol--some say it's easier, some say harder. I have been pretty lucky so far so I guess it's just wait and see.
We had a dusting of snow today in the outskirts of Boston--pretty, but I'm still tense from the winter we had two years ago. I'm hoping for a "normal" winter this year, which for me means the occasional storm but please not weekly blizzards.
I'm jealous of all your dogs. My beloved dachshund Heidi died 4 years ago, and I've contemplated getting another dog, but not a puppy, an adult rescue, and now is not a good time. For awhile I was working in a dog-friendly office--maybe I can find one again once I start looking for work when this is all over. "I'm a writer looking for work. Must haves: a flexible schedule, the ability to work from home on occasion, and a space for my dog at the office." Hmmm...the sound of silence? My housemates would all love to have a dog, that is, if I had a dog, so they could enjoy its company without having to be responsible for it! One housemate has a girlfriend who brings her dog over, so I do get doggy snuggle time a couple of days a week, but it's not the same, as you know.
Okay, I hear the siren call of the beef stew I made two days ago...
Love to all,
Kate
-
Ladies,
I've been hearing a lot about the beef broth. Can anyone refresh my memory on what it's for and how to cook it?
-
Hope88here's some info on bone broth......via a link : feel free to google bone broth and you will find more.
http://www.theholisticingredient.com/blogs/wholesome-food/10370710-the-health-benefits-of-bone-broth-and-a-recipe A friend with a slightly lowered immune system drinks a cup a day. Plus with these winter months it tastes good. Soothing. I did beef bones most recently but many say to save thinks like your turkey / chicken carcasses etc. as well.
this is the recipe I used this weekend : http://wellnessmama.com/5888/how-to-make-bone-broth/
Terry ( aka whistlestop )
-
Terry, I read through the list of ingredients again. I think this may be my weekend project!! I make all my own broth anyway, I love to cook. I'm calling my grocer and seeing if they would give me their organic bones. I had some wonton soup on Friday, my bad day....it was a game changers I love simple clear broths. They can really lift your spirits! I think I will use spice packets on mine so it's more of a pho.
Alla, how did yours turn out
-
Terry, I am in Orange about 10-15 minutes from the Texas/Louisiana border. How about you?
It has been a nasty rainy mess here the last few days. I have an appointment to have my tissue expanders filled this morning, and I woke up at 3 and haven't been able to get back to sleep.
Since several
If you have been posting pics of your dogs I thought I would share mine as well. Please ignore the boxes in the back ground we are preparing to move soon..
-
Good Morning!
Nancie - Isn't it lovely to have someone else prepare a hot meal? I'm happy that you have such good support. Enjoy LGFB today, and good luck with the chemo tomorrow.
Kate - Congratulations ... AC is done! Hoping that the Taxol will be easier for you.
Montreal had a lot of snow yesterday, and despite the fact that most of us have winter tires on our cars (required by law by Dec 15), the city was full of fender benders. Any streets with significant hills seems to have cars which managed to slide sideways and bring traffic to a stop.
There was a video clip on the news from a street downtown that showed a car stopped at a stop-sign, which was then hit by a sliding city bus, which was then hit by another sliding car, which was then hit by a sliding police car, which was then hit by a sliding tow-truck. All within seconds. Glad I didn't have to go downtown yesterday!
Jenn - Your dogs are adorable! What are their names?
Have a great day ladies!
Barb
-
Luwusu, So far I experianced red face the day after I did taxol and thank god it only lasted one day. My hands got red too and they are still dry and red, not itchy though. I moisturize daily but neglect my hands. I wash hands so much at work that I forget to moisturize afterwords. My itchiness on my feet went away too. My second taxol is this Friday and I hope I don't get red faced or something popping up the next day because I will attempt to go to dinner with my husband Saturday night and afterwords a night out on the town (kids are sleeping over their friends house) I hope I will be ok. other then the bit of redness I have def experienced more bone pain or joint pain then I did when I was on AC. It's def managable. The good thing about Taxol so far is that I have not had any brain fog and that is good. I am also experiencing hot flashes or so I think they are hot flashes. I still don't know what they really feel like. I thought I had gotten my period last week on Monday but I was spotting everyday until now. Doc said I'm starting a pre chemo menopause. I'm not complaining.
Nfullblume & Terry, My bone broth came out so so good. I'm bringing it to work and feels so good. I cooked mine from 2pm and left it on stove on low heat over night until around 11 am. I put 1/4" cup apple cider vinegar and veggies I would put in when making stock and added thyme, dill and parsley. Long time ago I visited a holistic doctor for my psoriasis and he always pushed me to drink bone broth to heal but I never did it. It doesn't hurt to start now.
have a great day!
-
Ladies, I have been just a mess and they can't figure out what's going on with me. It's really quite the saga and I'm not going to,do a blow by blow or day by day but this is now day 10 that I have been sick. My fever has been crazy so I started the antibiotics...didn't help....went to ER and everything came back normal but fever remained out of sight. Went yesterday for first taxol/carboplatin infusion and when she heard what my fever had been doing, she cancelled that and scheduled a bunch more tests. Everything except the cultures is back and normal but still woke up with fever of 103.1 this morning. I don't even know that this is chemo related since yesterday marked 2 weeks since AC ended. I don't think I have ever been this sick for this long
-
Connie - I am so sorry to hear that you are having such a rough time. That is a long time to have a fever ... it's so strange that they can't figure out what is going on. Are you taking anything for the fever? I hope you shake this thing off soon ... sending you positive energy and gentle hugs!
Barb
-
Connie - I too have persistent fever between 99.9 to 100.3. Went Through a few courses of antibiotics. Blood tests also came back negative. I suspect the tissue expander that's causing the unexplained fever.
My last two weekly chemo went ahead even with the fever.
-
Thank you to everyone for the kind words wishing me well. I am feeling better. I think I'd gotten into a spiral of not feeling well, then not eating or drinking enough, which caused me not to feel good. I never fully appreciated my taste buds before chemo and can only hope not to become a glutton when this is all done. And I've always loved drinking water, but even I will have a new appreciation. Because drinking enough has been the hardest thing for me. B/c it's not regular thirst I've been feeling. But like I'm being chemically dried from the inside out, so that no matter what I drink my throat feels bone dry and like I can't get enough liquids.
Connie1230, I'm so sorry to hear that you've been suffering without answers for so long. I'll definitely be praying (for you and everyone else on this thread). Unless someone has gone through it themselves, there's really no way to explain to someone how it feels (physically and emotionally) to feel bad day after day. And I'm sorry you're going through that. Hopefully your fever goes away and you get to feeling much, much better. Also, I understand your impulse not to rehash everything that's happened. I keep the details brief when talking to family and friends. It feels like no one would be able to handle the true explanation of all that's been happening. But hopefully you, or anyone else, would be able to lament here, if nowhere else (if you want to that is).
JR74 - Thanks for the dog pics. I don't have any pets but seeing people's pics of their own never fails to lift my spirits. Maybe I'll get myself a dog when this is all done. Why not? Something to look forward to.
-
Hello everyone... I have been sick and have missed 891 posts.... yeah... I'm not going to try and read them all... Just want to check in and say hello and I hope everyone finds Joy somewhere today.
A friend of mine shared this with me:
Dear every cancer patient I ever took care of, I'm sorry. I didn't get it.
"Artista928wrote:
https://herecomesthesun927.com/2016/11/14/dear-eve...
Great read."
-
Miles - Thanks for the link. She gets it! Hope that this day finds you feeling a little better.
The snow is falling again here in Montreal. Very pretty to look at, but a pain in the butt for most other things. (Sorry ... I think I'm turning into the Grinch!). It's the little things ... yesterday I went grocery shopping and bought lots of stuff, but when I tried to wheel my shopping cart across the parking lot to my car, the wheels kept getting stuck in the snow and I was huffing and puffing to keep the darned thing moving. (It's essential to be wearing boots with good treads for this activity, or it's game over!).
Anyhow ... I'm finding excuses to stay inside and drink tea and putter today. I'm feeling well, my port incision has healed nicely, and I'm looking forward to trying out the port for chemo #4 on Monday.
Question: when I go for my blood-work before chemo, can they do the blood draw from the port? I have it done at the hospital "blood-work center", which feels almost like going through an assembly line.
Sending out hugs and best wishes to all, especially those of you who are struggling.
Barb
-
Abracadabra - My friends infusion center does draw her blood through her port, however mine doesn't. They do it the old fashion way through the vein. Not sure why, never remember to ask.
-
Connie1230 - so sorry to hear about your situation. I have been keeping any eye out for your posts since we seem to be on the same schedule. Its so difficult to know what is going on. Sending you hugs - Kathy
-
kshorten- Thanks for your reply. I guess I'll find out on Monday!
-
Hi all - I finished my AC. Starting Taxol+Carbo on Friday. I always get nervous with the first infusion.
MIles - a friend forwarded me that same article. It was a great read - sent it to my husband.
on the good news side: My daughter got accepted to Tulane University - early decision. She is very excited. And, my mother-in-law is coming to visit tomorrow! Excited to see her and have the extra set of hands.
I will post after T+C.
strength to you all - Kathy
-
barb- yes they draw blood for labs through your port. That's one of the port perks! If you use the prescription lidocaine cream you probably won't feel the needle used to access your port. Without cream you feel a stick but very quick- a second or less. No biggy. Remember to wear something that you can either unbutton or pull a bit to the side while the "stick" is being done. I was told to put the cream on an hour before labs, but that didn't work for me so now I put it while still at home (a good three hours before lab she are scheduled) and am, as PinkFloyd would say, comfortably numb. I am having my 8/12 infusion as I type this. If you have any more questions, re the portask away.
Nancie
-
Kathy - Congratulations on getting the AC done! And that's great about your daughter!!!! Love hearing your good news!
Nancie - I like the idea of comfortably numb! My MO didn't give me a prescription for a numbing agent, though, so I'll probably just tough it out for the first time. If it's uncomfortable, I'll ask for the cream. Thanks!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team