"i don't know want to know anything until remission"
Hello, thank you for any guidance you can offer to me.
One of my closest friends' mother has been diagnosed with breast cancer, and is undergoing treatment.
I am close with them both, and myself life with a chronic illness since I was 2 years old, so am familiar with what it means to live daily with uncertainty.
When I have tried to offer resources to my friend, the response is
"Truly I don't think its a good idea for myself or mom to be watching or reading anything related to her illness, at least until she's in remission."
I want to respect and honor her decision, but I am concerned that in that decision, there is possibility for great harm.
Could anyone offer any guidance?
thank you so much.
-with Love and Solidarity.
Comments
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I would abide by your friend's wishes. People on this board generally do want to know about their cancers, but not everyone is like that. Some people get very anxious/queasy talking about the specifics of their illness and choose to leave everything up to their doctor. It may not be something you understand or agree with, but my own experience is to leave it be. You have offered your advice; if they want it, they will ask. I have a family member like that; she turns green thinking about anything medical. We are currently caring for another ill family member--green girl will happily make meals, provide company, run errands, etc, but does not want to hear anything about the medical stuff or be involved with decision making. We accept her gracious help in other areas, and do not involve her in the medical stuff--just isn't her thing.
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gracie22 said it very well. You could ask them other ways that you could support them, so as to be there, but respect their wishes.
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Thank you for your responses---
I wasn't offering medical advice/resources, but rather a documentary on a group of 9 women and their breast cancer experiences --This online community is a community of online peer support-- where you can turn to others who are going through what you are going through.
Do you find many others not wanting peer support in their breast dancer journey ?
Again, I myself have grown up living with a chronic illness.... I know how for 25 years I rejected peer support, and the community of others living with my condition... It was a major shift for me to embrace my condition, and the connection around it.
I am wondering how this plays out in the breast cancer community... the movement from isolation to connection.
thank you again.
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Support them as a friend, but do not assume that your way of handling your own health issues is a proper blueprint for them. As you said....it took you years to evolve to a different mindset...kindly respect that for someone else. I'm not saying you are wrong, but it is truly just your opinion.
Many people with cancer are bombarded with well intended advice and information, regardless if they ask for it or not. Her response to you might be trying to deflect all the well meant "noise", so they can focus on the advice/decisions they are getting from their doctors.
Don't view them as "friends with cancer", relate to them as friends. If and when they want to involve you deeper in their cancer scenario, they will, but maybe they value someone who lets them "rest awhile in a normal space" even more.
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I understand you mean well but people have to find their own path. It is likely that your friends are accessing information and resources. Cancer is much more than an illness with a sometimes uncertain prognosis. It is a whole other world with its own language, community, body of knowledge and experiences. Unless you have experienced cancer closely, you won't really understand fully what that world is.
One good thing you can do for your friends is to mention this website. Everything they will need to know can be found here, if/when they want it.
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I second the advice to respect her wishes. My sister was DX too but preferred to keep the gory details to herself. She considered any questions or advice as an invasion of her privacy well intentioned or not. She has always been close to the vest and that is her choice. On the other hand I reached out for support from the getgo. I was blessed to have a friend who was also DX and a nurse at St. Jude. She was a godsend.
We all deal with medical issues and the like our own way. You can imagine how upset and afraid she and her mother are. This despicable DX is one you have to go through to truly understand the pitfalls.
Just be there for them when they need you.
Diane
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I remember throwing that tote bag of information into the back of my closet. After sometime, I dug it out to look at my pathology. But it took a while until my mind settled down to be able to absorb things. I remember looking at reconstruction options still not fully grasping my mastectomy. Thankfully I did the DIEP, just walked in and did it.
I wanted the cancer out and everything fixed. Never once did I accept the idea of doing the recommended chemo. I did the AI though.
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Meow, your post brought back a memory and made me laugh at myself. There is still a tote bag with all the doctor/hospital stuff in it from my initial surgery that I still cannot make myself go through, jammed in the recesses of my closet. When I need to read things for insurance or other purposes, it is for some reason easier for me to look at the digital files in my patient portal rather than all the paper records and assorted crap provided by the hospital, including the ridiculous "breast cancer resources" book awash in pink ribbons and teddy bears. I remember one of the nurses i saw during the pre-op process trying to deal with me when i told her she could keep the breast cancer-ribbon be-decked water bottle and other cancer swag on offer. It still sets my teeth on edge (though the nurse was spectacularly kind and backed off with the consolation gifts immediately.) I was not interested in going to Breastcancerland! It is a strange country and we all have our own reactions.
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I also say to respect their wishes and let them have a little peace. If I'd had anyone leaning into me or suggesting or anything like that it would have freaked me out. We all handle issues differently.
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You can be the most informed person going and make a good or bad decision. The truth is there is no correct answers to treatment. The kitchen sink approach or the leave it alone approach or anywhere in between, who knows. If we knew we'd have a cure.
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My mom was diagnosed last month and started chemo on the 28th of November. I have a lot of friends who are homeopaths who have tried to be helpful by offering me articles about how deodorant caused my mom's cancer (her mother also died of breast cancer in 1974, so I'm thinking there's more of a genetic link than a deodorant link), how sugar can spread her cancer (her one vice is soda, and I'm gonna let her have it), how essential oils are better than chemo, how juicing is better than chemo, how probiotics are better than chemo... well, you get the idea. I know they mean well. But we have faith in her doctor, so we're relying on him and his recommendations. I know you mean well too, but I would say from the daughter perspective, respect their wishes to not want to read articles or stuff about it. They're still getting information about her cancer when she goes in to see her doctor, but sometimes reading other things can be scary or overwhelming. There's also so many different types of breast cancers, it's just easier to focus only on what battle you know you're fighting (or what we know our moms are fighting). You sound like a very good friend, and it's good that they have you to lean on.
K
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Lol Meow13, after our initial visit with the oncologist, my mom and I were SO overwhelmed, and scared. I had a SPLITTING head ache. We had been at the doc's since 8, and it was 2:30. We hadn't eaten lunch. We left the hospital finally and went to get some lunch, and when we sat down at the table, I looked down at my mom's hand, and she had her cancer swag bag! (That's what I call the bag they gave her of information books and pamphlets.) I said, "Mom! You brought in the swag bag!?? WHY!??" I didn't want to even think about that thing. I wanted to throw it as far away from me as I possibly could. But she felt more empowered by pulling out each and every single thing and reading over it all right then and there. Everyone is different. You made me laugh when you said you threw yours in the closet, because that's what I wanted to do with my mom's!
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Thanks to Nihai and the rest of you who advised Betes to let it go. When I was diagnosed I wanted to do my own research. I did not want to share my diagnosis or the details with anyone. I did not want any neighbors or friends to be calling & knocking on my door or bringing food I couldn't eat, etc. So I only told two people who were sworn not to tell anyone else. Each of us is different. I reached out when I was ready.
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I just went through a terrible ordeal with my neighbor. She is over 20 years older than I am and we both got breast cancer. I look to her for spiritual support, she is very religious and appreciated her support. Well I hate to say anything negative but my mother was ill and we couldn't figure out what was wrong. My mother is a private person. I told my neighbor that we were going to go to a cardiologist and get an opinion on my mother's health. My neighbor drops in on me constantly but my mother really values her privacy and would never tolerate that. She has not seen or talked to my mother in quite sometime. The next evening my neighbor leaves a message on my mother's answering machine saying I heard you had a heart attack, blah blah.. My mother was horrified and had a stroke that evening. We had to have her taken to the emergency room and they were able to get her blood clot to pass getting blood to her brain. I was so upset we stayed at the hospital in intensive care. Who calls me while I am at the hospital my neighbor. My husband asked her to please stop calling we will call her when we know more. It has been a hard month but Mom is better. My neighbor had told other neighbors luckily they are not invasive people. I felt like moving to get away. It is one thing to share willing my health info but not my mothers.
Her pushiness even though not malicious is destroying our relationship. My mom said her phone message really upset her that evening. My mom said I don't want any visitors showing up at my door. I realized that I had been putting up with the intrusions for many years because I believe she means well but enough is enough. She is my neighbor not my mother.
I would hate for anyone else to lose a dear friend over being too aggressive. We are still friends but I can't trust her to respect us and our wishes.
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