Brain MRI, Oh My!

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labelle
labelle Member Posts: 721
edited December 2016 in Waiting for Test Results

Actually I'm waiting for insurance to approve this test. I've had some disturbing problems that led to a referral to a neurologist-numbness in feet/legs, hands and forearms, right side of face. It's gone away now but lasted for several weeks. It took months to get the appt with the neurologist. She's looking for MS lesions and of course I'm worried about brain mets (what are the symptoms of brain mets anyway?) as well as MS (I know it would be a very bad thing to have). Hope to get the scan approved quickly, no contrast being given as she says she doesn't need it to find what she's looking for and insurance approves MRI w/o contrast more easily. Yes, my insurance gets to dictate what healthcare I do and do not get. Uh!

I know others on here have had brain MRI s. What can you tell me? How long does the procedure take? How scary is it? Will I need my Xanax again?! How long to get results? All things I forgot to ask the neurologist yesterday as I was pretty blown away by her suggestion that I might have MS and that I need a brain scan. Thanks.

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  • mara51506
    mara51506 Member Posts: 5,088
    edited December 2016

    Hi labelle. glad to share my experience.

    My brain met symptoms were morning nausea, vision problems. As it went on, would have seizures. These were caused by swelling of my brain. Brainmets cause symtomsmainly due to swelling or location in the brain. These symptoms can vary


    MRI for me is usually 45 minutes. Ask for ear plugs. Ask for pillow to put under your legs for comfort. Take Ativan if you do get claustrophobic.


  • Kicks
    Kicks Member Posts: 4,131
    edited December 2016

    I had to have a brain MRI in Nov. 2010. I don't remember how long it took but not very long -definately shorter than the fulll body scans I've had. It's basically just an MRI but to a limited area.

    It is my understanding that brain mets can be so varied in how they present - just as primary brain cancer can be. It depends on what part of the brain is involved.

    My results were to my PA later that day and she consulted with the Specialists.

    For me, my scare turned out to not be mets. I developed horrendous pain around and behind right eye (IBC side) literally overnight in Oct, 2010. I never get headaches but even oxy did nothing to it - dexamethasone would knock it out for 18 hrs. My PA was Staff at the Woman's Retreat I was was going to on Fri afternoon so was able to talk with her quicker than I could get an appt. She had me at Opthamology on Mon. morning to rule in/out potential eye issue and a brain MRI on Tue. Eye issue ruled out Mon. MRI showed nothing also so it was decided that I do Dex. for 3 weeks as the conclussion was that for some unknown reason, a nerve had gotten aggravated/irritated.That was 6 yrs ago and still no problems.

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2016

    For my brain MRI, they put this box thing around my head. My advice is dont open your eyes and all will go fine. I opened mine for a second and was staring at a white wall a few inches from my eyes so I didn't do that again

  • exercise_guru
    exercise_guru Member Posts: 716
    edited December 2016

    I had a brain MRI without contrast for 20 minutes then contrast foe 20 minutes. It was all approved by my insurance because my MO got involved in the process along with my neurologist.

    The biggest stress is not knowing the results. Yes I took a ativan. Also they called me two hours later foe the results. I have been forever grateful for them.doing that.

  • exercise_guru
    exercise_guru Member Posts: 716
    edited December 2016

    also they played music in headphones for me and I put earplugs under the headphones because the machine is loud.


    Also they put a mirror in front of me so I could see out past my feet. Also the room was freezing so I had them put a warm blanket on me.


  • gracie22
    gracie22 Member Posts: 229
    edited December 2016

    I had one but with contrast; it was fine and took about a half hour so and earplugs were provided, but really didn't do much to drown out the noise. Maybe ask about the contrast though? My understanding is that it's needed when looking for brain mets. Your post indicates that your doc is looking for MS lesions, so evidently contrast not needed for that, but if you also want to be checked for mets, ask if that can be accomplished without contrast. I mention it because my oncologist said that the contrast was needed when I asked if I could do it without (IVs are always a hassle for me--tiny uncooperative veins) and he said it was necessary. if it's any consolation, brain mets are pretty unusual for er+ early stage. They do happen much more frequently in her2+ cancer (I am her2+++).

    Unrelated to MRI stuff, I had a similar situation with numbness in multiple sites for a couple of months many years (20+) ago; it resolved and did not return. No idea what it was, but I remember being very worried that it was MS. Hope you get good news.

  • labelle
    labelle Member Posts: 721
    edited December 2016

    Completed my brain MRI today . Ended up doing it both with and without contrast so it should show everything I might or might not want to see. Not bad-I went with the Xanex option, but Italychick was right-it's better to just keep your eyes closed! Yikes. Thanks to all for the feedback;-) helped to make me a bit less anxious about the procedure. They said my Neuro would get results in a couple of days. So now the whole waiting thing is all that is left to get thru. Uh!

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2016

    fingers crossed everything comes back normal. They saying a lot of us use is "in your pocket"


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