Opinion regarding radiation
First, I understand that we're not medical experts here but I thought I would ask women who have experienced this. From my history, you can see that I had IDC and a very large tumor of approx. 7 cm. At the time of my biopsy, my BS aspirated one of my lymph nodes and did not find any cancer cells. Of course, this doesn't mean that there weren't any but none were found. The PET scan was hazy as to the lymph nodes. I had neoadjuvant TCH therapy and a complete pathologic response. Pathology after my BMX showed dead tumor cells in the breast and no evidence that there was cancer in the two sentinel lymph nodes. My MO and BS believed I did not require radiation. I had tissue expanders placed and had a first fill. What fun that was! Anyway my MO, as is his habit, still referred me to the RO for a consultation. I had that this past Monday. The RO said that he recommends everyone have radiation with the size tumor I had regardless of lymph nodes. I understand that there is a protocol for radiation in any tumor greater than 5 cm but I am uncomfortable with this given that there was no evidence of cancer in the lymph nodes and that I had a complete pathologic response.
He said that there was a study wherein 50% of women who had a positive lymph node received radiation and 50% did not. I could not join that study because I had no positive lymph nodes. So, I asked him if there are 50% of women who are in a worse place than I am are not receiving radiation, does it make sense for me to? I would prefer, if possible, to keep radiation in my back pocket in case something happens in the future. He told me to get a second opinion which I'm doing.
I also understand that there is a conference next week where a situation like mine is being presented with data. I would love to see what the data is on my situation.
Any thoughts?
Jennifer
Comments
-
I didn't do rads the first time so I was able to use it when I recurred. Would I have recurred if I'd done it the first time? Who knows. But I did get 7 years out of surgery alone and that is pretty good. No chemo either which means when I recurred I could try an AI before I'll have to move to an IV chemo.
Rads is pretty serious and I now have radiation pneumonitis which is being treated with steroids which is pretty serious too.
If you could avoid it that would be better of course. My tumour was at 6 o'clock right over my heart and lung and with no breast to help absorb some of the rays damage was inevitable.
Are you getting a second opinion?
-
Hi, barbe,
I am getting a second opinion on Monday but frankly, I felt like the last RO recommends radiation to everyone because that's what he does. I don't know if it will be any different with a new RO.
I just get the feeling that the docs look at radiation as no big deal compared to chemo and surgery so why not get it? Well, i don't feel that way. I have reconstruction going so I know that may be compromised which is important to me.
-
Hi Jennj!
I also had neoadjuvant chemo which wiped out all my active cancer, and my lump had been 5 cm+. My MO and RO strongly recommended radiation, regardless of whether I had a lumpectomy or mastectomy. Like you, I was HER2+, and worse, my cancer was Grade 3. Unlike you, one node did test positive prior to chemo. So, they considered my cancer to be very aggressive, and I received whole breast radiation as well as radiation in the armpit. Of course, because I chose a lumpectomy, I wasn't in the middle of reconstruction, so there's that.
There is indeed the possibility of recurrence, and it is true that once you've radiated an area, you can't radiate it again. I asked my RO about that and he said that if I had a local recurrence then maybe radiation wasn't be best solution for my particular variant of cancer.
Good luck with your second opinion! Maybe you can get that RO to better explain the advantages/disadvantages of radiation in your situation.
-
Jenn - as Elaine says.. I was HER2+ and all 3 of my docs recommended rads for that reason. Since you are hormone positive, maybe they're thinking the hormonal therapy will be enough? I agree about getting a second opinion.
-
Thanks for the information. I am definitely interested in hearing what the next RO says.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team