Calling all TNs

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  • rlk58
    rlk58 Member Posts: 155
    edited November 2016

    Hi Peggy,

    I was scheduled for dose dense and after reading I suggested weekly to my oncologist.She said she preferred weekly but I don't know why she didn't suggest it.Maybe because of the distance-I am 2 hours away.

    Also she suggested adding Carboplatin to thenTaxol.That has another whole set of side effects including problems with white blood cells.She said if I didn't like Carbo I could discontinue it.My center supports icing so I will be doing that. I just spent 4 days after my past AC I never the hospital with neutropenia.I had a fever but they didn't find any specific infection.Thank you for your suggestion.

    Rhond

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  • georgie61
    georgie61 Member Posts: 95
    edited November 2016

    Oh my goodness, all of these posts - especially yours Annie are so touching and poignant. Imagine if none of us were ever diagnosed and brought together, would we be blissfully ignorant of our mortality and just blindly going on expecting to live forever? If anything, I think there's a small part of this all that's a gift because it has allowed us to face these inevitabilities and love more, embrace our loved ones more, and be grateful for more. I will be thinking of you Cocker on Tuesday. I am having my hand surgery Tuesday - still dealing with the bike accident that nearly killed me with no notice or awareness whatsoever. Blissfully minding my own business and wake up to find out you nearly didn't make it. Granted, that would have been an easier way for ME to go, but it would have completely blindsided my family. Sorry if I'm rambling, just can't help but feel tender and sentimental right now.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    image

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    GINNA..love the quote and agree 200%‼️

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited November 2016

    Rhonda, did you use neulasta or neupogen for AC? I have chronic neutropenia and chemo makes it even lower. I used nuelasta shots during AC, and 3 shots a week of neupogen for Taxol. It did help with my neutrophils.

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    Annie...sending prayers to you for tomorrow.❤️


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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited November 2016

    cocker in your pocket tomorrow and sending love from philly!

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  • 6feetover
    6feetover Member Posts: 320
    edited November 2016

    Cocker: your pocket's going to be awfully crowded, because I'm snuggling myself in there as well! Love from New England, USA!

    {{{ANNIE}}}

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  • Meadow
    Meadow Member Posts: 2,007
    edited November 2016

    yes, Cocker, in your pocket


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  • JAN69
    JAN69 Member Posts: 947
    edited November 2016

    Annie, I think your Tuesday is already over and your procedure has been completed. I want to say that all the good wishes on the previous pages speak for me as well. These tough days for you make me want to remember the good times we have had on this thread. To me, you feel like family from all the stories you've shared over the years. Sending you strength and love to face this challenge. Jan

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  • Spica16
    Spica16 Member Posts: 130
    edited November 2016

    Annie, dear friend ~ Jan69 said it beautifully...you have made us feel like family, with your sharing and caring...lifting our spirits, calming our fears, and sometimes wickedly poking at our funny bones!

    You might have to dump this rowdy family out of your pocket for a few hours to get some rest...but don't worry... we won't go far.

    More love and ((hugs)) coming your way ~ Shar

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited November 2016

    Cocker, I haven't forgot about your tests! My hubby had surgery for an anal fistula yesterday so I've been busy taking care of him and our dog's. They know daddy doesn't feel too good so it's been a lil crazy! Anyway, I echo what Jan and spica said. ((((Hugging you tight and praying)))))

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited November 2016

    Annie, - I'm in that crowded pocket, too! (Reminds me of the story The Mitten by Alvin Tresselt , where many animals invite others to squeeze into a mitten to keep warm and safe!) We are all here to keep you safe!

    Hugs and BE WELL wishes from NYC

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2016

    Thinking about you, Cocker! Lots of love from Montana. You can do this. 💚💚💚

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  • ALHusband
    ALHusband Member Posts: 344
    edited November 2016

    Hope there's room somewhere in that pocket for a big ol' fat guy like me.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Madam Cocker,

    I think this is already an emergency. With so many wellwishers for you, your pocket might not be enough.

    Here, you might need this...

    image


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  • MomMom
    MomMom Member Posts: 523
    edited November 2016

    Dear Annie,

    You lovely lady you! Prayers always that you will get the best of advice and treatment. You are such a joy of a person who radiates light, love and humor. May it come back to you a thousand times over.

    Love, Paula

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  • greenae
    greenae Member Posts: 540
    edited November 2016

    dearest annie

    I am thinking, hoping and praying for you. I want to send you the strength you gave to me with all of your kind and sage words, funny stories and thoughtful advice. Move over please, friends, I need to jump in that pocket, too. Sending you hugs, Cocker!

    Arlene

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  • SA8PG
    SA8PG Member Posts: 371
    edited November 2016

    Thinking of you Annie!!!! In your pocket and lifting you up continually in prayer. Xoxo

    image

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  • Batesburg
    Batesburg Member Posts: 199
    edited November 2016

    Prayers for you, Annie.

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  • rlk58
    rlk58 Member Posts: 155
    edited November 2016

    I used neulasta with AC and counts were good until

    After 4th AC.I was going to get Carboplatin wit her Taxol

    But my doctor decided to wait 3 weeks and just do Taxol

    Alone, First Taxol today.

    Rhonda


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  • Stupidboob
    Stupidboob Member Posts: 345
    edited November 2016

    Annie you are not a baby............you are human.   It is hard to go through what we have to in order to fight this horrible disease.   It is your choice, but you know when one passes on (which we hope will be a long time for us all) your family will never be left with the "what if she had just tried" would she still be here and etc.  Until a person goes through it, they will never understand and I hope you and your family can find peace in this all.   I hope that God will bless you with gentleness as you fight this for your family and give you the will to go on.  Fear is a terrible thing that keeps us from getting the help we need.   I know exactly how it feels to fight this with all the fear.   I am sending comfort hugs to you.  


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  • ScotBird
    ScotBird Member Posts: 650
    edited November 2016

    Dear Annie, Everything that everyone has already said, me too. We are all sending positive energy, cosmic hugs, sitting in your pocket and cheering you on. Hope you are feeling OK and have a good plan which is one YOU want to follow. I agree with Janet too.

    I finally got my nuclear bone scan result. All clear, so my sore stiff back/hips/pelvis is due to chemo/radiotherapy, or old age (50),but not cancer. So that's good!

    Loving kindness to you all. Can you believe it's nearly Christmas? Next week it will be exactly a year since I noticed my lump, does that count as a cancerversary? XX

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  • TulipsAndDaffodils
    TulipsAndDaffodils Member Posts: 80
    edited November 2016

    Hi All,

    Annie, of course, even more love coming your way!!

    StupidBoob (ok, I don't like calling anyone, "Stupid"!!), your story appears very inspirational! It looks like you have been with TNBC mets for almost 4 years! We all love to see that. How are you feeling/doing? What treatment are you on? Of course, please only answer if you want to.

    Scotbird, that's great news! Thanks for sharing. Everyone loves to hear those stories!!!!

    Happy holidays to all!

    Tulips

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2016

    Thank you to each and every one of you for being in my pocket, wasn't heavy at all. Mike there will always be room in my pocket for you and these ladies. Well I managed to get through the day but it was an awfully long one. Nothing to eat or drink from 7am and the test didn't happen until 2pm so I was very dehydrated and could have drank a well dry. The stuff they sprayed on my throat at the beginning was darn awful. She told me it tasted like chilli bananas before she gave it to me, yea right! Three times she sprayed my throat, I'm sure I didn't need that much. My throat felt like it had cotton wool in it and I couldn't swallow but she assured me I could lol, which was a bonus. After that I didn't remember much until I opened my eyes and it was all over. She said they had some trouble getting the scope down because of the mass being in the way. Then I had to wait for two further hours before I could try sips of water. If a lake had been handy there would have been no water left ! Because I have an allergy to latex and the balloon at the end of the scope was latex she gave me a ten day course of Dexamethasone which I forgot that when I had them for my last chemo they kept me awake all night and they did the same thing so the next morning they went in the rubbish bin. The results of course were highly suspicious of cancer so I'm hoping they aren't very good at their job lol. Final results come next Tuesday and any treatment plans available.

    Regardless of all this I am thinking of all of you ladies going through new treatment, those that are worried, stressed and those trying to live as though it never had happened but whatever happens please don't think about recurrence because believe me it rarely happens and you WON'T get one. As time goes on you will start to live as you once did again. So remember to laugh as much as you can and take delight in each and every day.

    I love you all and I need you all in my life. xx00xx

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Love you Cocker!!!

    Even when you are down and are trying to tell serious stories like this, I couldn't stop smiling. You've got magic in you!

    Simple words and humor can surely drown all of life's miseries.

    I really really wish you'll get well soon. You're tough

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    image

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  • JAN69
    JAN69 Member Posts: 947
    edited November 2016

    Holding your hand, my dear, holding your hand. Jan

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2016

    Annie,

    You are so wonderful. I am so sorry that today was so long and uncomfortable for you.

    BE WELL!!

    Hugs to you, and of course, to all others here, too.


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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2016

    Love this group of women, and men.

    Love you Cocker

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