Starting Chemo in Nov 2016

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited November 2016

    Nfullblume- I would love to take a bath but can't because I have a naphostomy bag for my right kidney. Maybe I can mix up a small batch and washup with it. Hopefully this chemo shrinks the cancer so I can be free of the tube and bag.

  • BG46TN
    BG46TN Member Posts: 286
    edited November 2016

    Nanpop I have been taking Zofran and it has been amazing! no nausea at all for me!

    Its been busy here for the past couple days!

    Welcome Hope88!! I am also a teacher (but HS) I'm hoping to keep working through all of this...

    Nextstorm your hair looks great!!!

    I went wig shopping today and picked out one that I love and one that is a baseball hat with hair attached (for easier...throw on days) I haven't lost any hair yet but I want to be totally prepared when that happens...and I had to drive over an hour to the closest wig shop.

    here is my regular wig I bought:

    image

    Hat one with the hair attached :-)

    image

    I actually can't wait for my 2nd chemo (is that weird?) I've felt so good that I just want to get it moving so I can be done LOL next one is Friday...

  • Nanpop
    Nanpop Member Posts: 75
    edited November 2016

    I really like the wig on you. The color is great. I wanted to cut my hair off already because I don't want to deal with the shedding. That's great that you had no nausea. It hit me hard today. I guess I should have stayed on something. But i was trying to avoid the big C. I can't seem to drink enough.

    Anyone know tricks to drinking more

  • BG46TN
    BG46TN Member Posts: 286
    edited November 2016

    I put orange slices in my water to make it taste better, then I drink more...I'm not really a fan of just "plain water" so I never drink enough of it...you can put other fruits in too depending on what you like.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hello November Chemoladies,

    Just saying hi and reading the posts. Nothing much to say about me. Just a nasty headache that went away overnight after my 2nd treatment.

    Nextstorm, nice short hair!

    BG, the wig looks great on you.

    I havent tried out my wig and headscarves in public yet. I still have a lot of hair left but maybe I will ask my hubby to shave it in a day or two.

    Almost everybody seem to be ok here except for some minor SEs. Hope we all continue to heal quickly.

    image

    Hugs,

    Gina


  • amw5
    amw5 Member Posts: 189
    edited November 2016

    Hanging_in_There - You will learn so much from this awesome forum. I absolutely love it.

    Next Storm - I love your hair short.

    I go in Tuesday for second round of chemotherapy (a/c). I notice on the non-chemotherapy week, I felt pretty good. I'm hoping the non-chemotherapy week will remain that way, but I shall see.

    I hope everyone is doing well.

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Bed, Bath and Beyond EO diffuser

    On the essential oils, if you have a Bed Bath and Beyond near you, they have something similar. They sell the essential oils too. My little diffuser will run for 8 hours straight and only takes 4-5 drops of oil, so they are potent.

    My family sells the Do Terra brand. The one I'm using is called "On Guard." It's a mixture of Wild Orange Peel, Clove Bud, Cinnamon Leaf, Cinnamon Bark and Eucalyptus Leaf.

    https://doterra.com/US/en/p/on-guard-oil

    Here's a link, so you can read more. I have the electric diffuser. I also use Lemon, Peppermint, Lavender, and Immortale pretty regularly.

    For those having nausea issues, essential oils can help with that too. It is nice to be able to use natural remedies rather than drugs for everything. image

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Fruit infuser water bottle

    Nanpop, I drank a lot of water before cancer, so I don't know how much it'll help, but I have a 28 oz jug. It has a center attachment that will let you infuse fruit if you need it. (Papaya and pineapple help with sore mouths.)But I know I need 3.5 of these a day. So it's the only cup I use. I know by 10am I should be done with the first one, then by 2 pm the second...so I'm pacing myself all day. Fruit does help a little, but keeping it in front of you helps me.


  • Frodriguez
    Frodriguez Member Posts: 4
    edited November 2016

    Nfullblume

    Love the oils! I use my Young Living oils religiously. Lemon seems to help me with tthe bad smells as well as neaseau. And purification runs throughout the house on most all days. To help with insomnia I use lavender and stress away which is an amazing blend of vanilla lavendar lime and cedarwood. Tranquility (lavendar, cedarwood, Roman camomile,and coconut oil) goes on before treatments to ease the anxiety.

    There is something about using something natural to help fight off some of the side effects. I've never been good about to taking medicine and with all the steroids, chemo, neaseau, and otc meds it's nice to add in the oils for a balance.

    I haven't posted in while so it's good to see everyone is doing as well as they can be. The sores and burning sensation on my scalp just got to be unbearable so last weekend I let me daughter cut my hair. She is truly my strength through out all this. After bringing up shaving it with her and shedding a few tears she held my hand and said well you know I've been practicing using scissors (she's 4 and in prek) so I let her have it! The next day my husband buzzed it down even which I think was more of a shock seeing so many patches. I don't mean to sound vein but the loss of the hair was harder than I expected and extremely self conscious about it. I'll be sticking with scarfs and hats though. I wore a wig for a day and with our southern heat it was just to hot and uncomfortable.

    The past week I have felt amazing and even woke up a couple of times forgetting I was fighting cancer. Just in time to start the cycle again Monday.

    Praying constantly for everyone!

  • pmevans50
    pmevans50 Member Posts: 54
    edited November 2016

    Wow, gone for the holiday and have pages and pages of updates I can't keep up with. :-/

    I hope you're all doing well!!!

    Nextstorm - you are rocking that short hair cut. It looks great on you!!


  • aterry
    aterry Member Posts: 290
    edited November 2016

    Nanpop, I'm sorry day 9 was hard for you. Last round, day 9 was the day I started to feel closer to normal. I'm glad you got the Zofran and that it's helping. I have Omeprazole that I take first thing in the morning and other than the IV anti-nausea drugs, which I think last 72 hours, I haven't needed much. One Compazine each cycle, so far. I eat small bits of food almost all day. And sips of water. If I fill my stomach or let it go empty, either/both bring a bit of nauseousness. I'm hope the salt water helps your mouth. I'm using baking soda rinses this cycle and they seem to be better than the Biotene. I have Magic mouthwash but so far I haven't needed it. I also have a prescription for Nystatin because last cycle my mouth sores were fungal.

  • IronMom3
    IronMom3 Member Posts: 26
    edited November 2016

    Hi ladies. I'm new here, starting my AC + T treatment on Nov 30.

  • NextStorm
    NextStorm Member Posts: 13
    edited November 2016

    Welcome to the November group, IronMom3! I'm new here too, starting FEC-D tomorrow morning (yikes!) Based on your avatar pic and user name, I'm guessing that you are going to be one of those powerhouses who keeps on exercising all through treatment... If that's true, I'm hoping your activity will inspire me to keep moving too! :-) Hope all goes well for you this week.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Welcome Ironmom. i hope you find yourself at home with this group thread. There's lots of info and tips here for you with the same chemo regimen. Good luck.

    Hi Nextstorm. Good luck on your chemo tomorrow. I just finished my second FEC two days ago. You're going to do great too. Just keep hydrated, rest whever you feel tired or sleepy, use baking soda and salt with water for gargle to prevent mouth sores, eat prunes for constipation, and take all your meds on time. Always tell your MO promptly if you have any problem. Positive thoughts and prayers for you.

    Take care,

    Gina


  • Hope88
    Hope88 Member Posts: 55
    edited November 2016

    Thanks Nfullblume for the essential oil's and all your information. I am going to try it as soon as possible.

    Nan, I can't believe you got sick on day nine. I decided to keep a journal of all my side effects and hopefully can avoid any pitfalls for second chemo treatment. I stopped taking my anti-nausea medicine on day five and didn't have any problems, except now I have pretty constant acid reflux. I am also on day nine and going for my second chemo on this Friday. Hope the anti-nausea medicine they prescribed works for you.

    BG, love the wig and hat wig...very clever. I may be rethinking taking off work, but I kind of want to see how I do with the 2nd chemo treatment. I want to save the time for surgery. Do you wear a mask at work with your students?

    Welcome to all the new warriors!!


  • aterry
    aterry Member Posts: 290
    edited November 2016

    Do any of you have favorite foods that are helping you through chemo? For me it's cantaloupe, even though it's not in season. I do my best to find a decent one at Fairway. I think it's the mouth feel. So many things taste and feel different but I find the cool melon texture to be soothing. Also there's fiber, and vitamin A & C, I think. Also mashed sweet potatoes. Probably for same reasons.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Aterry,

    Those are exactly what i am eating after a chemo treatment. After chemo, usually i have a metallic taste and loss of appetite during thr first week. The cantaloupes here are in season and they are so sweet and refreshing. I also prepare mashed potatoes with lots of roasted garlic, non-fat cream and fresh peppercorns for me and my boy. I also eat boiled sweet potatoes. No salt for me coz that is what worsens my metallic taste

  • Coupon
    Coupon Member Posts: 29
    edited November 2016

    IronMom3 & NextStorm, I am sending you all my positive energy and best of luck on your 1st treatment.

    BG46TN, I love your wig and I got a similar one too. Today is day 13 after 1st FEC and my hair started shredding when I washed it this morning. My scalp is so itchy now and will get it shaved tomorrow. My wig will be with me for the next little while.

    Nanpop, hope you feel better soon.

    Take care everybody and hugs.

  • BG46TN
    BG46TN Member Posts: 286
    edited November 2016

    Hope, no I'm not wearing a mask, just lots and lots of hand washing and antibacterial lotion...I teach HS so its not the same as elementary school with snotty noses LOL

    My nose has been getting very dry lately...it was actually bleeding when I blew it, so I bought some saline nose spray and it seems to be helping..

    I actually had a great weekend and felt awesome!! If all my chemos go like number 1 did I will be VERY happy!! I also have number 2 on Friday!

    Good Luck to everyone who has chemo this week!!! We are some tough chicks and WILL get through this together!!

    Becky

  • Nanpop
    Nanpop Member Posts: 75
    edited November 2016

    I am feeling better. Thank you for the warm wishes. The Zofran worked well. Today I feel almost normal.

    My favorite food are watermelon and sweet potatoes. I read somewhere that you should not eat your favorites on chemo day because you will soon hate them. The watermelon helps hydrates me.

    I've been picking out scarves and hats to wear. Any good web sites you can recommend

    Well, back to work tomorrow. My next treatment is Thursday. Hopefully it will go smoothly.


  • amw5
    amw5 Member Posts: 189
    edited November 2016

    aterry - Mashed potatoes have been very consistent (in their taste) for me. I also keep up with my daily fiber, and I have not had any issues with constipation (but I have always made sure I was regular).

    I purchased to hats (nice warm ones) from Macy's yesterday. I love my pretty scarfs, but sometimes they are not warm enough for my head.

    This picture is from my fist chemotherapy on November 15, 2016. My second one is tomorrow.

    image

  • aterry
    aterry Member Posts: 290
    edited November 2016

    amw5, you can get a head warmer to wear under scarves from TLC: http://www.tlcdirect.org/Hair-Loss-Products-for-Ca... As others have mentioned, it's amazing how chilly the head is once the insulation of hair is gone.

    Nanpop, the site has a wide selection of hats & scarves. I only found 2 that worked for me but I don't look good in hats, alas, even under normal circumstances.

  • NextStorm
    NextStorm Member Posts: 13
    edited November 2016

    Whew. Here we go. Just put Emla cream on the skin over my port in preparation for my first tx. Looking at that weird little round thing on my chest, I was reminded of this Tolkien passage:

    "No one answered. The noon-bell rang. Still no one spoke. Frodo glanced at all the faces, but they were not turned to him. All the Council sat with downcast eyes, as if in deep thought. A great dread fell on him, as if he was awaiting the pronouncement of some doom that he had long foreseen and vainly hoped might after all never be spoken. An overwhelming longing to rest and remain at peace by Bilbo's side in Rivendell filled all his heart. At last with an effort he spoke, and wondered to hear his own words, as if some other will was using his small voice. 'I will take the Ring,' he said, 'though I do not know the way.'"


  • amw5
    amw5 Member Posts: 189
    edited November 2016

    aterry - Thx for that website.

  • Twinsmawmaw
    Twinsmawmaw Member Posts: 39
    edited November 2016

    Can anyone tell me how they felt the first day of receiving adriamycin?

  • pmevans50
    pmevans50 Member Posts: 54
    edited November 2016

    Twinsmawmaw - I felt fine the first day of receiving adriamycin. Actually getting the adriamycin - I didn't feel a thing. I get AC every two weeks. Chemo day is a good day because I'm given steroids and anti-nausea meds. The following day is a good day, too. After that I start taking anti-nausea meds and I'm good to go.

    I hope you are/will be, too!!

  • Sjsparks
    Sjsparks Member Posts: 20
    edited November 2016

    I had my first infusion on November 8th. It knocked me down pretty hard. I ended up going in for fluids and being put on opium to stop my diarrhea. I was able to manage the body aches with ibuprofen but they told me to limit the intake in fear of more liver damage. Tomorrow is infusion number 2 and I am so anxious and nervous. I guess mainly due to how my body responded last time. Those of you that have had a couple rounds already, did your side effects get worse? My hair has fallen out around the front part of my crown, so I just decided to shave it. I have been fine but I have some family members that are not handling it well (me with no hair).

    Any advice on how to make future infusions easier?


    Thanks,

    Shannon

  • pmevans50
    pmevans50 Member Posts: 54
    edited November 2016

    Sjsparks - Is it the actual infusion you're worried about, or the side affects after the infusion? I feel like infusion day is one of my best days because I don't feel anything and I have steroids and anti-nausea meds in me. My MO said (other than fatigue) my symptoms should not worsen as treatments go on, and in fact, after my second treatment and managing the expected side affects better, my experience was definitely better the second time around.

    Always talk to your MO and knowing what you side affects are you may be better able to manage them this next go around.

    I hope it goes better for you!!

  • stephilosphy00
    stephilosphy00 Member Posts: 386
    edited November 2016

    On weekly Taxol now, today I start having some discomfort at liver area. Should I be concerned about it? Thanks!

  • aterry
    aterry Member Posts: 290
    edited November 2016

    Stephilosphy00, I would ask your MO about the discomfort in the liver area. When did you start the Taxol?

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