May 2016 Surgeries

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  • raven4mi
    raven4mi Member Posts: 562
    edited November 2016

    myToyStory2, glad things are progressing well for you .Looking forward to hearing what the final result is once you get to see everything fully.

    SpecialK, sounds like your post-op today was uneventful – a good thing! I can totally related to lowering expectations at this point, that's for sure. Here's to continued good healing for you!

    Grandma3x, glad you're recovering from the physical and emotional toll from last week. It's still such a relief to me that everything came back benign for you – I can only imagine how you must feel!

    ~~~ Waves to everyone else! ~~~

    I had one last post-op appointment with the PS today after the fat-grafting. Everything looks great and at this point I don't have to go back for six weeks. Only time will tell if the fat-grafting "sticks" and how much of it is re-absorbed. (Honestly, even if it all gets reabsorbed I'm not sure I'd go through this FG procedure again.) The breast definitely looks loads better, that's for sure. Prior to the FG it was a hard, wrinkled, almost caved-in mess of scar tissue.Now there's some fullness again (which merely makes me look flat instead of caved-in), the wrinkling is all gone and the skin is soft and supple and the whole area looks so much better. There's some discoloration at the top of the breast where the hematoma was but he says that will fade in time. Frankly, I'm so scarred up from all the various procedures and multiple drain sites that I don't think my chest/sides/torso area will ever look good again but as I said above – I'm lowering my expectations appropriately at this point. When I go back in six weeks we'll discuss next steps; fingers crossed that I can move on to pre-pectoral TE replacement at the beginning of the new year.

  • GreyKat
    GreyKat Member Posts: 225
    edited November 2016

    Raven - wait, fat grafting can be reabsorbed? Why does no one mention these things? All my PS mentioned was the possibility of fatty necrosis, from what he explained of too much going in one spot and it just not "taking".

    Update for me: there is a small chance, which I don't want to jinx with hope or excitement, that the last two months of new, worsening, torturesome, nerve pain were the unintended side effect of one of the pills I was put on by one of my drs. It's a small chance but I quit taking it three days ago and I've noticed a difference already. Someone else please hope for me that it's a real difference and a real cause-effect relationship and not just a psychosomatic effect because I have a lot of sleep I'd like to catch up on and I could use a break. =)

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2016

    raven - glad your FG has provided benefit. Even if the fat re-absorbs to some degree, it may still be providing the integrity to the skin which can remain, which is the goal.

    greykat - yes, FG can be reabsorbed - up to 100%. Most lose at least some percentage, but that is factored in to your doc's decision about how much to graft. Certainly crossing my fingers that eliminating this med may also eliminate some of your difficult symptoms! How awesome would that be?

  • grandma3X
    grandma3X Member Posts: 759
    edited November 2016

    Oh, GreyKat - I hope it was the pill!! It's about time you caught a break!
  • raven4mi
    raven4mi Member Posts: 562
    edited November 2016

    Yes, GreyKat, as others have noted the FG can be reabsorbed, but I did already know that going in. It's the yummy stem cells that live in the fat that we want to do their magic, so fingers crossed I get the needed benefit from all this. At this point my attitude is totally "Well, it may not help. but it sure as hell can't hurt!"

    FINGERS CROSSED it's the medicine you were taking causing the nerve symptoms!

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited November 2016

    GreyKat - Hoping, hoping, hoping! Keep us updated....and fingers crossed you had sweet dreams and some quality sleep last night!

    Raven - Totally recognize that description - hard, shriveled, caved-in mess that's surrounded by scars. Yep - sounds familiar! Love that you're seeing progress now!

    SpecialK - You inspire me with your great attitude despite all you've been through. I've never once seen you complain about your circumstances. I need to take tips from you! ;)

    Grandma - Glad you were able to spend time with family! Let's keep telling our right sides to behave!

    Got a new article from BC.org in my email this morning about 1/3 of breast cancer patients not following up with imaging in the years after their treatments. Read the article and was surprised to see my BS is an author of the study. I have my 6 mo follow-up with her on Friday, so I'll have to give her props. (Bonus - I now know that annual follow-ups with her patients may be a priority of hers....cool!)

    Invited to attend the Breast Cancer Center's fundraiser over the weekend. Dress code is "Dressy Casual". Need to go shopping for something to wear today. Any hints? I'm assuming I should be shooting for a simple cocktail dress or cute skirt with fun accessories and heels....yes?

  • raven4mi
    raven4mi Member Posts: 562
    edited November 2016

    myToyStory2, I guess it all depends on what kind of style you prefer, but these would be MY idea of dressy casual:

    image

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited November 2016

    Thanks, Raven! :)

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited November 2016

    Hello All

    Went to my surgeon follow up appointment. He says all is well and to never hesitate to call him if I have an area especially on the scar line that is questionable,hard, mushy etc. If it recurs after mx he says it's usually at the scar line.

    Still limping along. Getting more stamina each day.

  • raven4mi
    raven4mi Member Posts: 562
    edited November 2016

    Hi, Val! Glad to hear the surgeon said everything looked good. Baby steps on getting back up and going, girl! You don't want to do too much too soon but I'm sure you're anxious to get back to your old self. {{{hugs!}}}

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2016

    valstim - slow and steady wins the race!

    mytoystory - I realized that whatever reaction or feeling I have about anything that has happened so far in this process doesn't change it - so I decided to just take it as it comes! Also, it is important to note that my original diagnosis was in 2010 - I have had a lot of time to arrive at that mindset!

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited November 2016

    Glad things are looking up, Valstim!

    Great outlook, SpecialK!

    Steri-strips are off and I can report that the scars aren't better than I was hoping, but probably aren't worse than I was expecting. ;)

    The "dressy casual" dress code for this weekend's cancer center event has flummoxed lots of us. This is the first year of the event, so outfits can't be based off last year's experience. Don't want to show up over/under dressed. Found a couple of things on Tuesday, but I think I'll go shopping for cute shoes today. As someone who once attended a Go Red event very last-minute, didn't own any red at the time, was the only one there without red on (yep), then ended up in a picture that was put on the front of the brochure the following year (naturally), I've become more sensitive to the dress codes...ha!

    Have I mentioned lately how much I appreciate the May board? So glad we've kept it going!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2016

    mytoystory - my dressy casual go to is straight leg cropped black pants, a cute dressy top, bigger earrings than I usually wear, and killer shoes.

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited November 2016

    Basically what I purchased on Tuesday.... :)

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2016

    Great minds, lol!

  • GreyKat
    GreyKat Member Posts: 225
    edited November 2016

    Here is your daily stupid: My fabulous PT is technically and legally titled "Dr", and has whatever national provider number that goes along with that. BECAUSE he's technically titled "Dr" and his provider number popped up in their billing database, my insurance company has rejected his prior approval request for more PT visits because he's not an in-network doctor.

    Never mind that he's staff, not an independent contractor, at the hospital PT clinic which bills as the hospital, not by individual therapists' names, and of course the hospital and its rehab clinic is in-network; never mind that he doesn't use his billing number with this job; never mind that he's not THAT kind of doctor and he's - as I kept trying to explain to insurance - a physical therapist with a doctorate in his field, not a physician; and never mind that I've been going to the hospital rehab center since June/July with zero problems until now - nope. He is an unapproved, out-of-network MD-doctor and that's the truth they're going with.

    So I unhappily get an unneeded PT vacation while his office tries to fix this.

    Still in a notable amount of pain with lost hand ability & weakness, and hard to sleep, but the pain level did come down from an unbearable, torturesome 10 from stopping that drug. So I guess we can all add that to the list of things I won't be taking again because of nasty side effects. That list is becoming laughably long.

    Seriously though, insurance. Hung up on a technicality so I can't get PT where I'm already established and mid-treatment. Thanks guys. Thanks.

  • raven4mi
    raven4mi Member Posts: 562
    edited November 2016

    Oh, lord, GreyKat, doesn't the insurance crap just make you so mad??? There's no comprehension of common sense or urgency with them at all, it seems.

    I just read someone's post on FB today discussing insurance that said "This is an "industry" that needs to be disallowed from making a profit. Any time one group of people can profit off human suffering, it's just wrong. And I've about had it with insurance companies referring to insurance as a "product." At best, it's a service. At worst, it's more like a protection racket."

    How's that for some raw truth? Sorry you're having to jump through these new hoops now, but it's good that stopping that med has reduced some of the pain.

  • GreyKat
    GreyKat Member Posts: 225
    edited November 2016

    Raven - that's an interesting point of view. I just think it's sad that if my PT was actually less qualified and less educated, this wouldn't have been an issue. How utterly backwards is that?

    ETA: Actually, I got to tell the PT that my insurance reviewed his case notes and was happy to authorize more PT for me as necessary - they aren't disputing that, thankfully - but it just can't be with him. Because he's personally out-of-network. Because he's a "Dr". Because *AARGGHH*

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited November 2016

    So sorry to read this update, GreyKat!

    It's ridiculous....

    💲💲💲

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited November 2016

    Had my 6-mo follow-up appt with my BS on Friday. Am still considered a high-risk patient due to the strong family history and my young-ish age, so I will continue to be seen every 6 months. Gave her kudos on her recently published study and we chatted about it a bit. She was also quite impressed with the work my PS has done....she checked on me a few times while hospitalized for the infection this summer and knew what a mess my chest was.

    Saw my PS today. Got the all-clear for the next 3 months....woohoo! He thinks a revision on leftie is in my future - he'll see how things look at the next appt. It's pulling down and out a bit he thinks he can tighten it up to match rightie better. But I'm healing great, so all of my lifting and movement restrictions were lifted; I can choose any type of bra to wear - unwire or no underwire - my choice; and he feels fairly confident I'm past the point of being at serious risk of the pseudomonas acting up. That's a pretty good appt.

    Had a lovely time at the cancer center fundraiser! And my outfit was 'on point'....dressy casual definitely slid way over toward the dressy side of the scale at the event. Thanks for your clothing advice, ladies!


  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2016

    mytoystory - all good things! Yay!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited November 2016

    mytoystory, yippee for good news all the way around and kudos on your outfit.

  • grandma3X
    grandma3X Member Posts: 759
    edited November 2016
    Hi everyone! i hope you all had a great Thanksgiving :)

    I'm now 4 weeks post op and things seem to be healing well. I have a knot of tissue at the end of one incision that is still a little painful. I read somewhere about massaging scars to help break up scar tissue. Does anyone know anything about this?

    MyToyStory- so good to hear that you are healing well and that your appointments with the BS and PS were uneventful! The cancer event sounds like it was fun! It's always nice to get dressed up once in a while :)

    GreyKat - I hope you are still feeling better after going off that medication. Has your insurance company figured things out yet? Its not right that you have to forgo treatment because of this mixup!

    Raven - How is your fat holding up (and did ever think that would be a good thing :))?

    Val, good to hear that you are making progress. It's been a rough year, to say the least! Here's hoping for a much better 2017!

  • raven4mi
    raven4mi Member Posts: 562
    edited November 2016

    myToyStory, great news all around. I'm happy for you! Glad the dressy-casual worked out for you!

    Grandma, I'm at 4-1/2 weeks post FG and I'd estimate that at least 50% of the fat has already re-absorbed. But that means there's still 50% sitting in there with all its yummy stem cells doing it's thing (I hope.)

    I've kind of been in a big vicious cycle of bad-attitude-ness lately: "supposed" to be feeling thankful >>> feeling guilty because I'm not >>> feeling sad because I feel guilty for how I feel >>> feeling mad because I should get to feel however I want >>> feeling guilty again because I really don't have it so bad compared to others >>> trying to be thankful again >>> lather, rinse, repeat - and, really, no one wants to hear it.

    I'll get there. Just not feeling it right now.

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited November 2016

    Raven - I think you nailed the description of how so many of us feel at times throughout this journey. It definitely comes in waves, and it feels so personal and hard to describe to others. Sorry you're going through it, and know that we totally get it. Feel what you need to feel....no judgment here!

    My PS encourages massaging, Grandma. He encouraged me to do it several times a day. It's not something that I would do naturally, so I do my massage when I remember to do it, but not as regularly as he suggested.

    Hope everyone had a lovely Thanksgiving with family and friends, and that your Black Friday shopping was a success!

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited December 2016

    Was surprised to get an email yesterday letting me know I had a new test result in my online hospital chart. I've only had check ups for the past few appointments, so I didn't know what that was referring to. Intrigued, I went to the page and found out that I had suspicious skin removed from my cancer-side breast during my exchange surgery. Good news - it's benign. Wait....what?? First I've heard of this!

    Suddenly suffering from a case of "ignorance was bliss"....but grateful that the results were in my favor!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited December 2016

    One year ago, I knew I had cancer. This is also my birthday. I can now say time has flown. I went out with friends, walked and did many mundane things that I used to take for granted.

    I would not be sane without the support of you ladies this past year. I am truly grateful to you all.

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited December 2016

    Happy birthday, Valstim! Glad you were feeling good enough to go out and enjoy your day!

    Grateful for you, too!

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2016
    Valstim - happy birthday! I hope you have a great year and continue to make progress in your recovery!

    I just found out that a long lost friend was diagnosed with BC last Feb. She moved to FL several years ago and we kind of lost touch. Her cancer was ER/PR- Her2+ and had grown into her chest wall. A PET scan also showed a hot node in her neck. She's been through some very aggressive treatments in the past 10 months and was just declared cancer free. I'm so glad that she is starting to get her energy back but it bothers me a great deal that I did not know she was going through this. I feel so grateful to have the support of all of you here on BCO - it made surgery and recovery much easier knowing that I could talk to someone who knew what I was going through. I just wish I could have done the same for her.
  • tsoebbin
    tsoebbin Member Posts: 474
    edited December 2016

    Happy Birthday Valstim. Glad to hear you're doing well. I agree... Thank God for BCO!

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