Starting Chemo in Nov 2016

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  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    I'm glad to hear Thanksgiving, although maybe different than years past, has been good for all the Americans here. Java...having everything delivered sounds pretty cool!!! :)

    I'm holding up pretty good after my 2nd infusion. Meds are keeping side effects away. Waiting for nurse to come now for my hydration.

    I went to a Look Good, Feel Better workshop last night. Wow! I can't believe the amount of stuff they sent us home with!! It's amazing!! I learnt some tricks to use if I do lose my eyebrows/eyelashes, but also just in general too. I'm not a big makeup wearer, but at least now I know how to do everything! It was a good night, and I'm glad I did it. If any of you have access to one, you should go!!

  • amw5
    amw5 Member Posts: 189
    edited November 2016

    I feel so much better this morning. Thank God that awful bout of heartburn is over, and I hope it's gone for good. It began late Wednesday evening and ended late Thursday night. I didn't have much experience with heartburn (thankfully), so I was quite surprised when it came on (until I realized it was more than likely chemotherapy related). I'm so very, very glad we have this wonderful forum to share with others. Sharing is caring. I hope you all have an amazing, beautiful and blessed day. (((hugs)))

  • amw5
    amw5 Member Posts: 189
    edited November 2016

    I feel so much better this morning. Thank God that awful bout of indigestion is over, and I hope it's gone for good. It began late Wednesday evening and ended late Thursday night. I didn't have much experience with indigestion (thankfully), so I was quite surprised when it came on (until I realized it was more than likely chemotherapy related).

    I previously mentioned it was heartburn, but after looking it up, it seems to be indigestion. I had to see what the differences were between indigestion, heartburn and acid reflux. Heartburn is a symptom, whereas, whereas acid reflux and indigestion are both conditions.

    I'm so very, very glad we have this wonderful forum to share with others. Sharing is caring. I hope you all have an amazing, beautiful and blessed day. (((hugs)))

  • aterry
    aterry Member Posts: 290
    edited November 2016

    My hair started to go yesterday. Not in clumps, yet but my scalp is tingling so it's only a matter of hours. I wore a hair net to bed to catch it but it gave me a headache half-way through the night. My MO is so positive and upbeat about everything. She said on Wednesday that she thinks her patients look cute with patchy, baldy heads.

  • aterry
    aterry Member Posts: 290
    edited November 2016

    amw5, thanks for explaining the distinction among the stomach upsets.

  • amw5
    amw5 Member Posts: 189
    edited November 2016

    You're welcome aterry.

    My scalp has also been doing a lot of tingling. I had my hair cut two days before my first chemotherapy. I still have fuzz on my head that's grown a bit, but I expect it to start coming out soon. I have been enjoying pretty colorful scarfs and cute hats.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi November Chemoladies,

    Just popping in to say hi and thanks for the well wishers.

    I am done with my 2nd FEC infusion yesterday. It went for only 2 1/2 hours, much faster than before which was 5 hours. Except for a headache and tummy discomfort around midnight, everything about is ok. Same take-home meds as before. My MO told me to be ahead of the SEs this time. Gonna have my Filgrastim shots next week in anticipation for the low wbc.

    My hair is almost gone, only my humor remains. Lol

    I hope all the wonderful ladies here are fine. For those about to take their first infusion and those with follow up treatments, my prayers are with you.

    Hugs to all,

    Gina


  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    PS

    2blessed, i love your pics. Count me in on your prayer circle.

    Hugs,

    Gina


  • Hanging_in_there
    Hanging_in_there Member Posts: 226
    edited November 2016

    amw5 Here is what people are using Claritin for for cancer:

    https://community.breastcancer.org/forum/6/topics/...

  • Hanging_in_there
    Hanging_in_there Member Posts: 226
    edited November 2016

    amyemn, I'm doing chemo before surgery and I'm IDC. I'm just starting to read the November thread, yet I get my first chemo on 11/28. I'm guessing I'm going to learn a lot if I can get thru 22 pages.

  • Pamela23
    Pamela23 Member Posts: 510
    edited November 2016

    LatinMixy--what an awful thing to go through WITHOUT being a chemo patient. Sometimes it feels like your getting kicked when you are down--hang in there!

    I'm actually feeling back to normal EXCEPT that I finally lost all my taste this afternoon. Anyone else experience this? When I spoke to the nurse the other day she asked if my tongue felt like I had burned the top layer off. That's exactly how my mouth & throat feel. Kinda numb and taste changes, well, until I can taste no more. Thank goodness it was AFTER Thanksgiving! I was excited I was finally getting my appetite back and now the joy of eating is gone. Awesome...


  • Pamela23
    Pamela23 Member Posts: 510
    edited November 2016

    Welcome Hope88

    Javamama-- I love your quote, cancer won't let me be me this year. Exactly how I feel. Everyone keeps talking about "your new normal", now I get it.


  • aterry
    aterry Member Posts: 290
    edited November 2016

    Good luck, next week, Haninging_In_There. Reading through the whole thread takes time but there is a lot of good information. And in the top threads, too.

  • aterry
    aterry Member Posts: 290
    edited November 2016

    This is day 4 or the second cycle for me. So far it has been about the same as the first round. I know more about managing SE's, especially food intake (with help from many of you!) Last round I strayed too far from my normal healthy diet to a fairly strict cancer diet and the change was too much. And, of course as other's have mentioned, the taste buds change. I normally love the cruciform vegetables and now, when they would be so helpful, I find it hard to choke them down. The clinic's dietician said that chemo is hard enough w/o big food changes. So now I'm half & half and feel better, I'm eating cruciform vegetables every other day, for instance, rather than everyday.

  • 2blessed2bestressed
    2blessed2bestressed Member Posts: 15
    edited November 2016

    Hey All,

    I'm on day 5 after round one and feeling pretty good. Fatigue kicked in yesterday for a bit in the afternoon and passed quickly. Last night before bed my jaw was sensitive and neck a little stiff. I'm attributing that to the Nuelastra and thankful it's mild so far. I think I'm going to stop taking the meds for nausea & ease up on collace and miralax a bit today. I'll keep the ibuprofen handy and stick with the Claritin.

    Pamela - I'm sorry to hear about your loss of taste. Hopefully it will be temporary! As for me, I can really relate to Javamamas "cancer won't let me be me this year'. I shed a few tears yesterday missing my day to day normal life. I'm a go go go type and this new pace makes me a little sad. But again, this is temporary and shall pass!!


  • Dianarose
    Dianarose Member Posts: 2,407
    edited November 2016

    hi, I started three weeks ago. Hair is gone now. Made my scalp really sore during the process. Side effects have not been too bad other then white count dropped to 2.3. The other weird side effect is this horrible body odor. I smell like a dam skunk. My pee smells the strongest. I have tried everything from dial odor blocking soap, lotions, body sprays etc... It's a vet strong smell radiating out of my pores. Someone suggested Gold Bond medicated powdered so it's on the shopping list. My other side effect is not being able to sleep even with Med's. I've crocheted a lot of scarves at 3 in the morning lol. Haven't had to take any nausea pills just some gas-x in the morning.

    If anyone gets this odor issue and finds something that works please let me know. Hugs Dian

  • Dianarose
    Dianarose Member Posts: 2,407
    edited November 2016

    Pamela-eat popsickles during your infusion so you don't lose your taste. Sort of works like the cold caps for hair.

  • 2blessed2bestressed
    2blessed2bestressed Member Posts: 15
    edited November 2016

    hanging in there - this list helped me get ready and it's a quick read.


    https://community.breastcancer.org/forum/69/topics...


    (Scroll to the top of the page which has a shopping list to prep for Chemo. It was posted in 08 but still helpful



  • natster
    natster Member Posts: 21
    edited November 2016

    dianarose: I smell too! My left armpit just stinks. I haven't noticed my pee, but I definitely have different Body odor.

  • aterry
    aterry Member Posts: 290
    edited November 2016

    dianarose, are you on CMF for this round, too? I have been on the lookout regarding body ordors because most deodorants/anti-perspirants make my skin breakout. So far no worse than usual. I can only use power--I mix baby powder w baking soda. Not very effective, alas, but it's all my skin can take. I need to wash & reapply a couple of times a day.

  • NextStorm
    NextStorm Member Posts: 13
    edited November 2016

    Hi everyone,

    Wow, yesterday was a big day for me - it started with a visit to my MO, where I found out that my scans (CT and bone) were clear!!! That was the biggest relief - I've been waiting literally months to find out just what we're dealing with. Now we know, and it all feels a bit more manageable. I got my chemo start date - this coming Monday! Pretty scary, but it's got to be done, and the sooner it starts the sooner it will be over. I'm so glad to have all of your tips to help me through.

    Hanging_in_there - you and I are starting our treatment the same day - I'll be thinking of you!

    Yesterday afternoon, I went for the big haircut. It was pretty weird... I've worn my hair long for most of my life and had no idea what a short cut would look like on me. Figured I'd better find out, though, since it's gonna be short for a long time after I get through the bald phase! :-) Here are my before and after shots. I think the cat (Frank) isn't quite sure what to make of this!

    image

    image

    Hope you're all having the best weekend possible!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited November 2016

    nextstorm- I love it short !

  • LatinMixy
    LatinMixy Member Posts: 31
    edited November 2016

    Yes! For a few seconds I felt defeated. But I hate that negative mental state. I concentrated in the blessing of discovering the issue while it was manageable, that I have a terrific medical team, that I have an incredible supportive and loving husband, that my BC was caught on early stages, that my mom is still healthy and is also with us helping... I counted my blessings one by one, and got over the shock and sadness. LOL! Unfortunately, my dad was not so lucky, and when his colon cancer was detected, he had only 3-4 months to live. Those few months were horrible. Watching your love one just dying in front of you... and nothing can't be done. He passed in April 2015. I miss him every day. I was given a better chance and I will take full advantage of it. :)

    Round 3 is quickly approaching! Tuesday it is!

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    nextstorm, wow!!! Did you donate it? What a huge change!? You'll do great on Monday.

    Aterry, check out Native deodorant. You can only buy it in their website. It's baking side based and has none of the bad stuff in it. I use the lavender rose and I absolutely love it. I've been using it for 3 months it's the best natural deodorant out there, I've tried a ton of them. I started it because of cancer in my armpit lymph node, but also because I know I can't use deodorant with metals when I'm doing radiation. The baking soda controls perspiration.

    Natalie and Diana, have you guys tried epsom salt baths? That may encourage the meds to exit your system faster. I saw a lymphedema specialist a few weeks ago and she said to use half of a bag per bath (4-5 cups) and lemon slices. I'm sure your sense of smell is keyed up, so that's making it worse too.

    My family is huge into essential oils. They bought me a diffuser and some "on guard" blend. It purifies the air and reduces bacteria. It smells heavenly. I've plugged that diffuser in my kitchen, bathroom, and toilet room. I may have formed a new obsession.

    I go back in Wednesday for #3. Getting my liquids intake back up for a few days in preparation. Very ready to get the AC meds behind me. image

  • aterry
    aterry Member Posts: 290
    edited November 2016

    Thank you Nfullblume. I will check out Native deodorant. I've started to use epsom salts during the chemo cycles. My daughter, who is a dancer, uses it a lot

  • NextStorm
    NextStorm Member Posts: 13
    edited November 2016

    Thanks for the kind words, folks.

    Nfullblume - yes, I'm donating it. The cut-off ponytail is a foot long! Funny to think that the hair I've lost due to cancer will be going on the head of someone who's lost their hair due to cancer. :-)

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Nextstorm, that has to feel good!! If you go to your closest American Cancer Society office, you can reap the benefits of someone who did the same for you! A couple of the ladies got free human hair wigs from their local offices. I got a monofilament one. My local chapter actually gives out two for free for those with cancer.

  • NextStorm
    NextStorm Member Posts: 13
    edited November 2016

    Nfullblume, yes, there is a program locally that I can access for free wigs (and other head coverings). I'm in Canada, not the USA, but I think a lot of the programs are the same. I'll probably stick with a synthetic wig as well - this seems like a nice time to take a break from having to take care of real hair! ;-)

  • Hope88
    Hope88 Member Posts: 55
    edited November 2016

    Hey Nfullbloom, I will like more information about those essential oil's. Where do you get them from and what was the exact name of the oil you used with the pleasant smell?I am having some difficulty with smells and would love something that smells nice.

    Thanks!

  • Nanpop
    Nanpop Member Posts: 75
    edited November 2016

    Day 9 after treatment #1 was a challenge. I was extremely nauseous. I have been off all prescribed men's, thinking that I just had to wait for the next treatment. Boy I was wrong. My. MO called in Zofran. It helped. Is anyone staying on Zofran or do u use it when you get that feeling?

    I started wondering how I'm going to work full-time. I need to stay employed or my benefits will be gone. I'm using salt water to help with my sore tongue. My friend who is a dentist prescribed "😫Magic mouthwash". I didn't try it yet. It made of lidocaine etc....

    I also would like to know about those oils. My perfume doesn't work. Arethe oils like a moisturizer?

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