23 Lung Mets?

Hi Everyone, it's my first post and I'm panicked. Age 39, just got married in March, and diagnosed with BC in July, I had a double mastectomy, reconstruction, and hysterectomy. Extremely ER+/PR+, but HER2- with a low oncotype DX score (11). It was called a Grade 2 tumor. My margins were clear and very wide (15 mm to the nearest cancer). I had 1 micrometasis (2 mm) out of 9 lymph nodes taken and I was told that I was all clear, take tamoxifen, and to go enjoy my life. They said I had a 9% chance of recurrence in the next 10 years.

Before I left the oncologist, I said "My friend had a full body scan. Why didn't I get one?" So, they ordered a PET scan. It came back with a result of 14 spots on my lungs ranging from 2 mm to 8 mm. It said there was no metabolic uptake, but that was just probably because of the small size of the spots. Please notice that every single one of these spots was either the same size or larger than the micromet in my single lymph node. The document said the radiologist thought it was probably Atelectasis (or collapsed parts of my lung from the surgery).

They sent me back for an urgent CT scan just 1 day later and said I had 23 spots ... again 2 mm to 8 mm. This document said "worrisome for metastatic deposits." An accompanying ultrasound also said that I had several new nodules on my thyroid. This has been an 11 year journey with the thyroid, but my 3rd biopsy came back negative. The oncologist said it was unfortunate, because he can treat thyroid cancer in the lungs much more easily than breast cancer in the lungs.

The infectious disease specialist said he thought it looked like histoplasmosis and I tested negative for that and about 100 infectious diseases. He said I could have had it in the past, and the scans were just scarring from a previous event.

The pulmonologist said it looked like lung mets, but he can't prove it because it's all too small to biopsy. Instead, we have to wait until January for another CT scan. If anything grows, then it's cancer. If nothing grows, then we keep doing this every 3 months for two years.

The radiologist and the oncologist said this would be an extremely rare case if it turned out to be lung mets and they can't figure out how lung mets are bigger than my lymph node met.

Is there anyone else who had this happen to them at such an early stage? They are making me think I'm going to die.