Why am I not scared?

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Carol_04
Carol_04 Member Posts: 8

Short story. Woke up to a painful lump on 9/27/2016.

Doctor appt 10/11 - Jeff (that's what I call my doctor...Jeff...he doesn't "look" like a Dr. Jones) felt it, too. Of course, it's kind of hard not to...it's just RIGHT THERE!)

Bilateral mammogram and left ultrasound on 10/13.

Ultrasound guided needle biopsy on 10/18.

10/28/2016: Results - IDC, Grade 2. Don't know much more at this point. Pathology report also states "no angiolymphatic or perineural invasion". Yep...not a CLUE what that really means. I'm assuming that means it's not in my lymph nodes, but how would they know that if they didn't biopsy at least one of those bad boys?

Everyone else is scared. My sister is a mess. My boys (grown, thank goodness) are scared. My tribe of women friends are concerned and hovering. They've changed their profile pictures to pictures of me and them.....good Lord....seriously?!? For Heaven's sake, I'm not dead, yet, peeps.

Why am I not scared?

Comments

  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited November 2016

    Sorry to find you here, but I feel the same as you. The first week of knowing the biopsy was positive, I was a wreck. I met medical oncologist and I felt like a weight had been lifted off me. I had my tears, and I am fine. Meeting Surgeon today, scared because I have never been sick, I don't take even a tylenol, and only in hospital for the birth of my kids. 35 and 32

  • inks
    inks Member Posts: 746
    edited November 2016

    Do you want to be scared?

  • Carol_04
    Carol_04 Member Posts: 8
    edited November 2016

    No. I just thought I would be. I was scared before I got the results, but as soon as he said it, I was surprisingly calm. I just find it weird, that's all. Does that make sense?

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited November 2016

    Carol,

    There's no ONE way to respond to receiving a breast cancer diagnosis. Before I was diagnosed, I hadn't really thought much about BC. But, the more I learned about it, the less freaked out I was about it. It's one of the more treatable cancers out there. So, yes, being calm about it is not that unusual. Best wishes to you!

  • inks
    inks Member Posts: 746
    edited November 2016

    People handle things differently and this is your way of handling things. I personally think it's better. It'll make it easier for people who are treating you.

  • etnasgrl
    etnasgrl Member Posts: 650
    edited November 2016

    Everyone reacts differently.
    Several ladies in my support group said that they were not scared at all when first diagnosed, yet after some time passed, it suddenly hit them like a ton of bricks and the fear set in.

  • Carol_04
    Carol_04 Member Posts: 8
    edited November 2016

    Friday was awful and I cried all day, but I cried for my family, my friends, the man in my life...not for me. The whole thing is just surreal.

  • poopysheep
    poopysheep Member Posts: 40
    edited November 2016

    HI Carol.. I think we both sort of reacted the same. I was DX in September and have had the lumpectomy now and meet with oncologist next week. I've had about 3 breakdown days but the rest of the time i've sort of forgotten i have cancer. It's a bit of an up and down... sort of like life. I also decided that i'm not going to let this define who i am or control my life. Just gonna keep going along living my life and dealing with this as things arise.


    good luck and much love

  • Carol_04
    Carol_04 Member Posts: 8
    edited November 2016

    @goincrazy8 I hope that meeting went well for you.

  • cive
    cive Member Posts: 709
    edited November 2016

    Carol, you are not alone, there was another thread recently started by someone who called it being apathetic toward the cancer thing. You have a plan so you move on.

  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited November 2016

    It didn't turn out how I wanted. I was hoping for lumpectomy, after he examined he felt it would leave a huge divet in my breast and there were some other dense areas he felt. He felt it would be best to remove the breast. Not what I wanted to hear. So today I am crying, because I have this coming up. I have never had surgery, or been in the hospital, except for chidbirth and I am 62.

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited November 2016

    Hi Carol_04:

    Re: "Pathology report also states "no angiolymphatic or perineural invasion". Yep...not a CLUE what that really means. I'm assuming that means it's not in my lymph nodes, but how would they know that if they didn't biopsy at least one of those bad boys?"

    You are correct. These observations do not provide information about lymph node status.

    "Angiolymphatic invasion" (also referred to as "lymphovascular invasion" or "LVI") and the separate phenomenon of "perineural invasion" may be observed in the breast in the vicinity of the tumor.

    My understanding is that the pathologist looks at the lymph vessels and the blood vessels in the vicinity of tumor for signs of lymphatic invasion (breaking into a nearby lymph vessel) or vascular invasion (breaking into a nearby blood vessel). If they don't see signs of either of these in the sample, they note "lymphovascular invasion" ("LVI") or "angiolymphatic invasion" is not identified or not observed.

    Here is a brief explanation and illustration from this site about LVI:

    http://www.breastcancer.org/symptoms/diagnosis/vasc_lymph_inv

    This website mentions includes both terms (angiolymphatic / lymphovascular invasion):

    http://www.hopkinsmedicine.org/breast_center/treatments_services/breast_cancer_diagnosis/breast_pathology/breast_cancer_faq.html

    "Perineural invasion" refers to invasion of a nearby nerve by tumor cells. Many pathology reports do not mention it at all. Here is an older, very general article with an illustration (Figure 1):

    Liebig (2009): Perineural invasion in cancer: A Review of the Literature

    http://onlinelibrary.wiley.com/doi/10.1002/cncr.24396/abstract

    (A complete PDF version is available for free via link at upper left, and breast cancer is mentioned.)

    The absence of these phenomena is a favorable pathology finding. However, neither the presence nor absence of these phenomena addresses the question of whether or not there is any axillary lymph node involvement, which is a regional phenomenon. For those with invasive breast cancer and clinically negative lymph nodes, the question of lymph node involvement will be definitively determined by sentinel node biopsy, which includes location and removal of sentinel node(s) and pathologic examination of the nodes themselves for evidence of tumor cells.

    For those whose pathology report indicates that angiovascular (lymphovascular) invasion or perineural invasion is present, they should seek accurate, current, case-specific, expert professional advice from their surgeon and medical oncologist regarding the clinical significance (if any).

    BarredOwl

  • Carol_04
    Carol_04 Member Posts: 8
    edited November 2016

    @BarredOwl - thank you. I needed that. Google is freaking me out. But I've read so much in the last 4 days I'm just a little overwhelmed by it all. And I can seem to remember much. I'm taking a lot of notes.

  • KarenAus
    KarenAus Member Posts: 94
    edited November 2016

    I was diagnosed March 2015 and I to was not scared. I wasn't scared until chemo and it was the chemo scared me. Nearly 1 year out from finishing that I am more worried about recurrance but what has scared me most has been the changes brought on by the treatment and what long term damage it has done.


    KarenAus

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited November 2016

    Carol, I felt the same way. I got my results while on a vacation trip we had waited for 35 years. I was really surprised at my reaction. My DH and I cried a few tears and then I made a determination that I would not let cancer take over my longed-for vacation.

    When i got home I just continued on that path. Now, did I never have fearful thoughts? No, if course not. I thought about cancer every day. But I didn't allow it to ruin my life. Even when I developed PTSD , I got with my doctor to get meds and make a plan.

    Now my BC treatment is behind me. All I have left is reconstruction . Cancer no longer dominates my thoughts and my PTSD is in remission. It's hard to believe that I was strong enough to get through this annus horribilus, but I was.

    As my MO said to me, " This is going to be an awful year, but you will get through it." And i did. I hope the same for you.

  • Mojo56
    Mojo56 Member Posts: 9
    edited November 2016

    I wasn't scared at first either. I needed to have my fight face on so I could deal with all the information gathering and questions and decisions. I am angry to go through this and also sad. So sometimes I cry and sometimes I lash out when people are not sensitive about all the losses that go along with all this. You don't need to be scared. Let everyone else be scared for you.

    I am not scared because I know that I will get through this. I guess I have faith. take care

  • Kruise
    Kruise Member Posts: 330
    edited November 2016

    Hi, sometimes when things are a bit surreal for us, it's like we detach ourselves. Often through my treatment I felt like I was watching everything from a third party point of view, like my soul had detached from my body if that makes sense. I coped with everything and was always positive - until I was just about through my chemo and I got home one day and just started crying and didn't stop!! Maybe a release of sorts.

    As others have said, don't assume anything in this journey. Just keep going but be prepared for the shell shock reaction if and when it comes. Xx

  • Silvertop
    Silvertop Member Posts: 2
    edited November 2016

    Dear Carol,

    It is also normal not to be scared (this was my case so that constitutes normal to me!). It was so too for a good friend of mine, and although we are very different in character, our approach to life has this in common: we love and enjoy life with a passion; we believe that shit happens; we just get on with the job.

    I got diagnosed in 2012 with a very aggressive HER2 positive tumor that had grown to 4 cm between two annual checks. I remember crying once, with relief, when I got the results that showed no distant metastasis, but otherwise I have not had a day of fear or depression, nor did I have a backlash when it was all over. The year in therapy was a challenge: I had everything under the sun, or at least it felt so. But on the day I finished the radiotherapy I went to ski with my colleagues. I lasted one hour on wobbly legs on the nursery slope and fell on my operated/irradiated breast, probably giving myself a little edema. Unwise, but, the joy of it!

    I am now 57, feeling fit, and with no bad long term effect.

    So don't let anyone scare you, or unwittingly convince you that you should be scared: they mean well, but they are not the protagonists of this story. You are. And being scared will not bring any added benefit. I have written all this, because most things you read in these blogs are understandably by people worried by a problem. Those of us lucky enough not to have problems tend to write a lot less, but there are a lot of us!

    Take one day at a time, pamper yourself, and enjoy the love and support your tribe is lavishing on you. I wish you all the best

  • Marimucho
    Marimucho Member Posts: 25
    edited November 2016

    On Nov. 3, I had a mammogram and sonogram and showed a suspicious mass on the left side. The right side had some growths also. On the 10th, I had core biopsies. Today I was given verbal results. I have IDC on the left side. The right side is benign. I won't know the stage until Thursday when I meet my surgeon. Seven members of my family have had cancer. I assume the cancer has spread through the ducts because the sonogram showed 5 or 6 small tumors that were biopsied. The radiologist said my nodes look clear, but you never know. My left groin area aches.I am also not afraid.

  • Marimucho
    Marimucho Member Posts: 25
    edited November 2016

    That makes so much sense. Thank you.

  • deevee903
    deevee903 Member Posts: 24
    edited November 2016

    Hi Carol

    The scariest thing for me was telling my daughter. (she's a young mother and I knew what it would be like for her thinking she may loose her mom when she needed me most.....it happened to me, I lost my mom when she was 50 to colon cancer and my kids were 3 yrs and 4 months)

    My biopsy, surgery and chemo was easy next to that. I'm finished with chemo and will have Herceptin treatments until July 2017.

    Thank God it looks like I will have dodged this bullet. I'm glad you aren't scared....and one other thing I learned during this journey....try not to Google everything. I did that and it was almost always inaccurate for me.

    Good Luck to you.

    Dee

  • Carol_04
    Carol_04 Member Posts: 8
    edited November 2016

    Thank you. I guess I just thought I was losing it. I'm still not scared. Surgery is scheduled for December 6, then based on lymph node biopsy results, my oncologist and I will discuss radiation, chemo, hormone therapy or a combo of the three. I feel bad for my family and friends who are worried and scared, but I'm still not there. I might be fur a minute one day, but I've been thinking about that too. I've never been a "scared" person. I just kind of roll with things as they come. I usually have a mini-breakdown at some point or another in really stressful situations, but I guess I've always been the one who makes a plan and deals with it. I'm in my comfort zone "doing" something.

  • Carol_04
    Carol_04 Member Posts: 8
    edited November 2016

    Okay I have to admit, I freaked for a minute when I googled. I stopped. 😳

  • Carol_04
    Carol_04 Member Posts: 8
    edited November 2016

    I wish nothing but the best for you.

  • Tmscott60
    Tmscott60 Member Posts: 2
    edited November 2016

    Hi Carol_04

    I was also recently diagnosed on 10/31/2016 with IDC Stage 1. Your not the only one I too was also calm when I received my DX. I guess I had already prepared myself for the worst because having a family history of BC I wasn't really surprised. I was scheduled to have a Lumpectomy on 11/17 but thanks to a very very persistent radiologist who was on duty that day insisted that i should have an MRI done because I have such dense breast tissue. I decided to postpone the surgery and had my MRI the next day. Well with that being said i received a call from my doctors office today 11/21 saying that they found another lump in the same breast. All I can say is thank God for her! I realize now that the research i had previously done and discovered that mammograms cannot detected some tumors in women that have very dense breast tissue. Even though i've been going rhrough a whirlwind of emotions I am still calm and at peace. I draw my strength from God and of course family and i know I am a fighter and will be a survivor and I know you will too. I wish you all the best in your journey!

  • Tmscott60
    Tmscott60 Member Posts: 2
    edited November 2016

    Hi Carol_04

    I was also recently diagnosed on 10/31/2016 with IDC Stage 1. Your not the only one I too was also calm when I received my DX. I guess I had already prepared myself for the worst because having a family history of BC I wasn't really surprised. I was scheduled to have a Lumpectomy on 11/17 but thanks to a very very persistent radiologist who was on duty that day insisted that i should have an MRI done because I have such dense breast tissue. I decided to postpone the surgery and had my MRI the next day. Well with that being said i received a call from my doctors office today 11/21 saying that they found another lump in the same breast. All I can say is thank God for her! I realize now that the research i had previously done and discovered that mammograms cannot detected some tumors in women that have very dense breast tissue. Even though i've been going rhrough a whirlwind of emotions I am still calm and at peace. I draw my strength from God and of course family and i know I am a fighter and will be a survivor and I know you will too. I wish you all the best in your journey!

  • Janeypoos
    Janeypoos Member Posts: 7
    edited November 2016

    I'm the same, I was an absolute wreck during the 2 weeks I waited for my biopsy results but as soon as I got my diagnosis I've been much calmer while everyone else around me is losing their heads! Normally I am a terrible worrier but for some reason this isn't fazing me at all. I was a bit teary just as I was taken into surgery as I didn't want to say goodbye to my husband and I got a moist eye last week when told that chemo was on the cards but that's it 😐 I'm not going to lie and say it's never on my mind...it's never off my mind but I'm calm, clear headed and in control. Maybe just for now? Chemo starts next week so I'll most likely be a bit fearful for that but who knows??

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