Starting Chemo in Nov 2016

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  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    It will be ok whippetiggy. Go in there with your warrior hat on saying I've Got This!

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    I just had to giggle at myself. My best friend is coming today and we are going out to get some things and have a day together. I was just sitting here fiddling and thought, Oh! I better run and finish getting ready! I ran into the bathroom and immediately reached for the brush and hair dryer......looked in the mirror at my head and went, oh yeah! Then burst out laughing. Threw on some moisturizer and eye liner. Ready!

  • BG46TN
    BG46TN Member Posts: 286
    edited November 2016

    I"m definitely in for a FB group! I'm an addict LOL


    Becky

  • Pink91316
    Pink91316 Member Posts: 11
    edited November 2016

    Good morning Ladies!!!! I hope we all have a wonderful day. Just want to say you all are amazing!!! Super Heroes!!! Number 2 (10 more to go) for me tomorrow, I am having a little anxiety even though I promised myself I would not. I have a prescription for a wig, should I just go and get one? When should I expect my hair to really start coming out?

    I also am interested in Medical Marijuana. Is that something you have to ask for or is based on symptoms, that your Dr prescribes it? I leave in AZ, so I know they do dispense.

    Have a wonderful, chins up!!!!

  • natster
    natster Member Posts: 21
    edited November 2016

    For Medical Marijuana in Illinois, I fill out an application and my doctor/nurse do the rest. It takes 4-6 weeks to get everything approved. My nurse said a few patients have don't it, so they are supportive. I know it helps with nausea.

    I intended on doing it, but I actually don't think I need it. Having said that, I think it's a great option and I may get it just in case. Thanks for the reminder. Good luck!'

  • 2blessed2bestressed
    2blessed2bestressed Member Posts: 15
    edited November 2016

    My post from this morning was the first time I ever posted on this site. After posting I realized there where 100's of comments in the thread and so many amazing November ladies feeling just like I am! For those of you on your 1st and 2nd Treatments, I can't thank you enough for sharing your experiences!! I really feel like I can go into this more prepared and warrior-like!


  • aterry
    aterry Member Posts: 290
    edited November 2016

    Nfullblume, how long did your cold last? Did your Dr advise anything for it? The clinic told me to see my PC dr for my throat but I've decided to wait it out for a day, or so. If it's the beginning of a cold the dr can't do anything for it, anyway.

    Regarding the WB count. Would they delay an infusion if the count was too low?

  • javamama
    javamama Member Posts: 119
    edited November 2016

    Got my port in today. I think it was an easier procedure than I had thought it would be. For some reason, I thought they put you under for the install. Instead, my interventional radiology dept put me into twilight. Fentanyl and versed. I was conscious through most of it. And talkative. My social retardation comes through as chattiness. I overcompensate with being a talker in stress situations. So, that what I did. And my poor nurse kept pushing more drugs because she thought I wasn't sedated enough. I was. Anyway, I was far more worried about the port install than I should've been. Although, I have a feeling that once all the numbing agents wear off later today, I'm going to wish I had way more fentanyl and versed just lying around. lol

    My first chemo is Monday. And it's another stressful unknown. Not as much as the port install or the mastectomy. But I worry. More for the Side Effects than anything else. And not the normal side effects, but the dangerous ones. I would be okay with some nausea. I would not be okay with heart damage. And when I brought this up to the chemo nurse at chemo class, she told me that every side effect from chemo can be managed. Cancer can't. Cancer kills. So, that pretty much puts things into perspective and yet I am still apprehensive.

    Welcome to all the new ladies joining the thread. I've been reading it all. I haven't been able to respond, though. It's hard enough just trying to sit with my own fears that sometimes trying to type isn't the thing my brain can let me do. Watch stupid movies seems to be about the most strenuous mental thing I can manage on some days.

  • BG46TN
    BG46TN Member Posts: 286
    edited November 2016

    aterry the nurse at my education appt yesterday said that yes they would postpone treatment if your counts are too low. I would call them and ask what you should take to knock it out before it starts.


    2blessed2b... I just started posting in the past couple days too, this looks like a great bunch of ladies! We will all get through this together!!


    Becky

  • pmevans50
    pmevans50 Member Posts: 54
    edited November 2016

    SleeplessinCO, Last night I simply drank a cup of chamomile and lavender tea in the evening not long before I went sleep. I still woke up way too early, and I also woke up when my alarm went off, which means I fell back to sleep, again. Yay! It's the little things. I'll try tea, again, tonight and will ask my MO Thursday if she has any other ideas.

    How did your first chemo session go? Well, I hope!! And for anyone else who had a session today, 1st, 2nd, or 8th, whichever. I hope it went well!!

    Fight on Warriors!

  • Frodriguez
    Frodriguez Member Posts: 4
    edited November 2016

    Hello ladies!

    So I found this thread on a whim and very thankful I did! I was diagnosed October 5th and had my port placed a week later. The port placement went extremely smooth but underestimated how sore I would be the days following. Thankfully the sore and tender feeling cleared up just in time for my first treatment of taxol, perjeta and herceptin November 7th. I am a 27 year old mom to two beautiful little ones. So needless to say I don't know any one who has gone through something this scary. It's been so nice to go through and read many of your posts and see so much of what I have felt in the past few month and relate. It's been a week after my first treatment and I feel like I am finally on the rise up. Praying everyone is in good spirits after their first treatments!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Welcome Frodriguez, 2blessed,

    You will find this thread very useful. Read the posts here and you will pick up lots of tips and info.

    Congrats javamama and natster!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited November 2016

    Hello Ladies

    Just wanted to pop in and give you encouragement. I finished up dose dense AC and Taxol 4/18, then surgery and rads. I'm 3 months post all treatment and everyday I feel better and better. You can do this. The most important thing is hydration in my opinion and always if you get a side effect let your MO know, they have an arsenal of things and there is no need to suffer. Fortified waters like aqua hydrate are very good because during chemo your electrolytes get stripped.

    I was never in bed a complete day, not saying it was a cake walk, but I was amazingly able to do just about anything I wanted, and when I couldn't Netflix was my best friend.

  • SleeplessinCO
    SleeplessinCO Member Posts: 36
    edited November 2016

    I apparently already have chemo brain because I swear I posted about an hour ago and now I don't see it. I had my first chemo today and it wasn't bad at all. Now I'm just waiting for the side effects but they gave me plenty of drugs for just about everything. I also got the marijuana script, so I'll let you all know how that works when I try it. They gave me steroids in the IV and I will take pills for 3 days. Neulasta shot tomorrow. The fun never ends.

    Pmevans50, I've never liked tea for some reason but I wish I did. I may have to try it again.

    Javamama, I was awake thru my port install too. Kind of weird but no pain and no nausea so I was happy about that. It hurt for a couple of days but not unbearable. It is scary when they mention possible heart damage but they won't do chemo if your heart's not strong enough. I've had to put my faith in the docs and hope for the best. My sister is a 23 year survivor, so I'm optimistic.

    I'm feeling more like a warrior today. Thank you ladies! And if I already posted all this, forgive me for being a little loopy. I hope everyone else who started today did well!

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    SleeplessinCo, glad it went smoothly today!

    Javamama, my port was sore for day or two and now I forget I have it. Good luck on your first injection!

    Aterry, they will push back chemo if your WBC are too low. My MO prescribed antibiotics on day 1 of chemo. It's such a dumb baby cold, I can tell my body isn't fighting it as well. This would've been a 1 day cold before. Instead this thing has nagged at me for 2 weeks. My energy is still good, so fingers crossed no delay on injection 2 tomorrow.

    I went to the Look Good, Feel Better class today. I had a lot of fun and got the feisty wig below! Some amazingly good makeup in my kit too.

    I'm quite sure this is TMI, but ya gotta laugh....started my period today. Hopefully this is the last one. I went to change my panty liner tonight....hmmm....apparently that hair is the first to go. I was like, "whoa!! Wasn't expecting that!" Today is day 14 and my head hair is still hanging in there. Still planning to shave it on Thursday.

    Hope you sexy ladies have a great night!!

    image

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    That's a cute wig on you Nfullblume!! I'm glad you found the Look Good, Feel Better workshop worth it; mine is next week. I hope the stupid cold doesn't make you have to wait tomorrow!!! Feel better.

  • javamama
    javamama Member Posts: 119
    edited November 2016

    blume- LOVE the wig.

    Ladies- thanks for all your kind words. Cancer has sucked so bad, I feel like I whine all the time about the crap I'm going through. So I've vowed to try and not express such negative thoughts- but once you get cancer it's like you can't HELP but think the worst of everything- in my real life. My family is scared shitless. And not that I think more of them than of me, I really don't want to add to their apprehensions. Well, my hubby really since my kiddos are off at college. Bu they FaceTime to check in on me. Anyway, I've noticed that I'm whining way more on here than I would normally. But I don't think it's a bad thing if it helps relieve some of the real life lamentations. Not that y'all should be the only ones to hear my fears. But seriously, who else would understand them anyway? ;)

    I'm about to take another tylenol and try and get some sleep. Hopefully in a day or two the port will stop hurting and I, too, will forget it's there.

  • SleeplessinCO
    SleeplessinCO Member Posts: 36
    edited November 2016

    nfullblume - You look great and thank you for the funny TMI story! I guess that will be a shocker.

    Javamama - no need to apologize. I think this is the best place to vent. We all understand. One thing that helps me is reminding myself how lucky I am that I have the cancer and not one of my kids (21 and 23 year old boys). I know there are parents out there that have children with cancer and they wish they could trade places with them. I'm glad I'm not one of them. I'm thankful my boys are happy and healthy, and I will beat this so I can be a grandma someday like my sister did.

    Now when is this friggin chemo headache going to go away?!!! 😩 So annoying!



  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Nfullblume,

    Your wig really suits your nick.

    You are In Full Bloom!


  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Sleepless,

    Congrats on your successful chemo!

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    Glad it went well Sleepless!!! Take some tylenol for that stupid headache! Tell it enough!

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Javamama, we totally get it. And you're more than welcome to vent as long as it takes to get to the point that you're ok with it. Every woman has to get to that. I agree that sparing our hubbies or loved ones the whining is a good thing. Good luck with the port. Where did they place it? I would bet it's different with mastectomy than lumpectomy.

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    Absolutely what they said Javamama. I called my best friend, who lives 2 hours north of me, to come down today because I needed someone to whine to and throw my thoughts at in person. I won't say some things to my mom or sister because of their reactions. I can't deal with their feelings right now; I'm trying to manage mine and make some decisions based on what I want, not their reactions!! My bestie was the person to go to. I've also asked some things here in different threads about different things, and it really does help. Sometimes being single and going through this really sucks, but I'm pretty independant, and that's part of why I need to make some decisions and ask some questions without my mom or sister on my shoulder. My dad is taking me for my port next week..will be nice to spend some time with him. He does ask questions, but also gets that I'll tell what I want when I'm ready. I love them all, but sometimes the outside person is best!

  • Pamela23
    Pamela23 Member Posts: 510
    edited November 2016

    Javamama, I was told to never apologize for how I feel during this time in my life. We get it!

    Nfullblume, you have a great shaped face, anything would look great on you!

    One down, SleeplessinCO, I go tomorrow for my first treatment. I'm surprisingly calm although I did make sure I could take a Xanax if needed!

    Welcome Frodriguez!

    Good luck to everyone who starts tomorrow!


  • amyemn
    amyemn Member Posts: 25
    edited November 2016

    Nfullblume - I actually came to the board to see if anyone would mention losing hair there first! LOL Also, I had my period last week for 4 days then it took a break for a few days and started up again. Not sure if that is normal. I will ask my MO.

    This past month has been so surreal. I still have to remind myself that I have cancer, because I honestly don't feel like I do. I'm sure that will change quickly, but for now...

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    thank you guys for the compliments!

    Valstim, thanks for the positivity! We love hearing when someone else got through the journey easily.

    Frodriguez, I'm sorry you're dealing with this at such a young age. We have a fair number of youngerfolks in November. Good luck! Keep us in the loop on how it goes!

    Pamela23, you're gonna rock it! Good luck tomorrow.

    Leslie, the makeup they give from the class is worth like 400 bucks. Lancôme, Estée Lauder, Clinique. Very high end stuff. Learned some great tips on scarves and wigs. But I loved talking to the other ladies in the class. We had 4 with breast cancer and 2 with lung cancer. The 4 breast cancer ladies were bald. It was very comforting being around them with their wigs off. It helped me to learn my new normal.

    Amyemn, Leslie and Amw5 have shaved their heads. Gmmiph, are you getting close to shaving yours? Latinmxy, I think you're a day ahead of me, you close? I think I might have a day or two before it's coming out heavily on my head. I think Thursday is d-day for my locks!!

  • Pink91316
    Pink91316 Member Posts: 11
    edited November 2016

    Ughhhhh, can't sleep. I even took an ambien, slept 4 hours. Maybe I will get some sleep during treatment today! Thinking of getting a flu shot, any opinions? Would it make chemo S/E worse?

    Nfullbloom- you crack me up, thanks for the smile. You look amazing in your wig. Kind of scared going to look for one. I told my husband I was getting a long blonde wig and changing my name to Bambi 😊

    Sleepless-chemo brain is real!!! The forgetfulness, sense of confusion, it's crazy. My family did not believe me when I told them there was such a thing, they are now convinced.

    Hope everyone has a great day!! Warrior on!!!

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Pink, I don't believe your MO will let you get a flu shot now. I waited too long as well and had my husband and stepdaughter get one instead.

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    That's it Pink! I like that, Warrior On!!! As with anything else, check with your doctor/nurses today about the flu shot. Something tells me, but I could be wrong, that someone said it's too late after you have started treatment to get one.

    Yep, I shaved my head. I may have jumped the gun and done mine too early, as I still have a full head of stubble, but I'm not complaining. I didn't have to watch any of it fall out, and that's ok by me. I do notice that it seems to be slowing down on my legs and under my arms. Not gone, but not growing in as fast.

    I go for bloodwork today for my port and check something out with my Onc. Nurse. That's it for this week! Next week seems to be about this stupid cancer every day of the week. That's ok...I'll take one week of the hospital out of every 3 at this point!

    Pink, I'm up and down all the time now. During my treatment for the 3 days I was taking the steroid, I was up like clockwork from 2:30-5:30. That sucked, and is one of the things I'm going to talk to them about at my pre chemo appt next tues.

  • amw5
    amw5 Member Posts: 189
    edited November 2016

    Good morning my dear sweet pink sisters. Thanks for all of the prayers and the love that you gave and showed me on my first day of chemotherapy. I truly appreciate each one of you. I was quite tired afterwards and a wee bit nauseous. Plenty of anti nausea meds were given to me (through my port) before chemotherapy started. Once my chemotherapy drugs (ac) were administered to me, I began to get so tired. Once I got home, I began my resting. I've always drank plenty of water, and I still do (along with a some ginger ale here and there as needed). My taste buds are gone for now, but I will still eat foods that are kind to my tummy, get in a great amount of water and sip on some ginger ale as needed) I will also take my prescribed meds. I believe in God. He's been so good to me. I will continue to pray for all of us. Please stay strong. (((hugs)))

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