Bone Mets Thread

Wow Babs you are one beautiful lady🤓 What a great celebration you all look so happy he is one lucky father. Making memories for all is a wonderful thing. Thanks for sharing made my day😊.

I'm still waiting on the last scan results, since we had a holiday on Friday I can wait till next week. It's so crazy where our minds go during these times. The possibilities are so daunting and scary and since I still have my tumor I'm grabbing it all the time to see if it's bigger smaller or what! Is it in my liver , lungs or brain arghhhhh! I feel really good so I will concentrate on that.

Patty how are you doing I hope your comfort levels are way up.🤗

Cat great news stable is wonderful

Wendy

Gracie, NED stands for No Evidence Of Disease -- so yes, if you had, for example, a liver lesion or a lung lesion, it no longer appears on a scan.

NEAD stands for No Evidence of Active Disease, a term more commonly used with bone mets when the mbc cells cease being active, so show little or no update on a Bone Scan. But because there's been damage to the bone(s), which doesn't heal the way soft tissue does, the damage (evidence) is still visible.

STABLE means just that -- no change from previous scan(s). Whatever regimen we're on is preventing the mbc cells from proliferating -- a very good thing! -- but hasn't knocked them back enough to look any different than our most recent scan(s).

Sometimes how much disease we have can be a factor. A stable report for diffuse & extensive bone mets, which many us have, is very positive.

Deanna thanks for the explanation. That helps a lot! Kaption, I hope and pray that all of us reach Ned.... even if it's just for a little bit

Hi Dee.

Congratulations on stable scans

Wendy - hoping for great scans. Let us know.

>Z<

MomATT, I am feeling a bit better, though I'm still having a hard time coming to BCO & seeing Hope's name at the top of the Ibrance thread. So I'm taking longer breaks from here & trying not to get as emotionally involved as I was. Having said that I do worry about Dani & hope that her new treatment is going ok. hugs to you, you've always been so supportive, like everyone else on this thread.

>Z< thanks.

cheers, dee

babs. I love what you did for your dad. That rocks. !ay I say, you are beautiful. ! Looking healthy and full of life.

Lita. Stable. Yea !!! I too am on X 7 on 7 off. It's been kind to me hoping your tummy issues have resolved.

Dee. Good to see you and stable !!!

Momatt. Haven't heard how Dani's doing ? Prayers always with y'all

Lindae. Looks like pushed doing good. So happy for you

Deanna. How are you ?

My original Mo said 2-3 yearsafter I pressed him hard. Ugh. Had that in my brain for 3 years. Wish e hadn't told me. My current Mo said many many years. Even if I quit tx he guesses several years. Who knows. Living for the day. I am 3 1\2 years out so everyday feels like a bonus.

I've been miserably I'll again. Thought for sure Friday was hospital time. Dh took excellent care of me. The whole diahrea, vomiting til dehydration and then pain that is unreal. Dh kept pumping me with meds. Way more than prescribed but I simply would rather die then go back to hospital. At least that's how I felt then. Of course, now I don't feel that way. Amazing how the physical rules the mental. Ugh. Dh massaged me for literally hours. Finally stopped the vomiting and fell asleep. Starting to feel better. Just so very weak. So scared dss again. Wondering how many times they can go thru it without permanently scarring them. Damn cancer.

Hugs

Thinking of you Patty - Hope your tummy feels better soon and we totally understand you wanting to stay out of the hospital!!

Patty thanks for sharing what your mo told you. I'm so sorry that you've been so sick again! Your husband is an angel ! I hope you feel a lot better very soon, and that you get better all the way around, it must be absolutely miserable to be so sick! I remember being that way when I was on chemo I would like in the recliner for hours and not dare move a muscle because I know if I knew if I moved I was going to get sick! Hugs to you

Patty- so sorry you have been so sick!

Patty, sorry to hear you have not been feeling well! We miss you and worry when you don't post. I am also interested in medical marijuana. I am not a smoker but I understand it comes in edibles and even topicals. Not legal in PA. Also wonder how it works with employment, still working. But I hear it is very beneficial for pain relief.

Thank you Lindalou she is who I thought of first. Great to here she is doing fine. Patty I'm sorry you are feeling crappyi wish for a quick turnaround for you. Yeah to MJ. Being legalized. I sometimes think I'm the stage four poster girl for MJ and cancer. I take so much of it in all forms will get my ct scan result so today hopefully. I'll let everyone know if it's working.

Wendy

patty - I have two girls 10 and 13. I use the cannabis medicinally and very openly with them about why and the effects, etc. It's an opportunity to discuss these things with them and for me it's important to have the channels of communication on all topics open. It is great parenting opportunity. They are very careful and thoughtful about cannabis. Much more concerned about the effects than I am.

I finally took a dose last night that gave me something you might call a "high". It takes quite a bit. I take it just before I sleep. I sensed the spaced out feeling, but I slept through it. Alcohol is a much stronger drug.

>Z<

Beatrix - Awesome scan results! Congratulations.

>Z<

So I just got off the phone with the clinical trial nurse. No new mets no soft tissue involvement I am stable. The sun just came out here after a week of rain😊 I'll take it.. I have to say it again ladies get yourselves some CBD . Can't hurt you🤓.

Lindalou come on up😊

Wendy

Great news, Beatrix! And more great news, Wendy! So happy for you both!

Patty, I hope you're feeling much better by today!