I WANT MY MOJO BACK!

I found coconut oil after a shower every day way better than replens. I use about 1-1.5 grams of Estrace cream once a week. I no longer tear and bleed. Use Platinum Wet for lube, it doesn't get sticky feeling like KY. Initial entry must be done slowly. My female gyn said the feeling of tightening in the vagina, like a band around the middle, is due to having painful intercourse and fear it will hurt again. Over time that feeling has just about gone as intercourse has become more pleasurable. The libido isn't quite what it was, I do think that takes work to keep up, but I am willing to do that. I find I have to make a real effort to "stay in the moment", not let my mind wander from what is going on. After chemo I feel like I am ADD. The no ovaries, no orgasm is a load of shit, fat cells can make estrogen, that is why we take Femara or something like it

So I met with my MO Friday to discuss my options and see what her recommendations were for endocrine therapy... she suggested Tamoxifen and OS based on SOFT trial. She was okay with my choosing an AI instead - my family members who have used Tamoxifen have had to have hysterectomies eventually, so I'm staying away from that.

My question is, I was perimenopausal prior to chemo. Have been in chemopause since May (hot flashes every hour, night sweats, the whole deal)... Once I begin OS, do you think I'm going to experience any worse symptoms or am I already experiencing the worst of it? My hubby and I have resumed sex and it does feel a bit more snug (not a terrible thing! LOL), and I have never had a great libido...

I fired my last MO due to lack of empathy and caring - this new one was a little better, but when I asked her directly about sex and intimacy she suggested "more lube" and to see my gynecologist. So frustrating.

-Keely

May I join this conversation?

KB870, you can buy applicators from Amazon to use the coconut oil if it is solid. They are similar to the ones you get with Replens or Estrace. I have several tubes of Estrace from before BC. MO won't talk about sex problems other than his other patients don't have issues (hmmm). Said to see my gyn but he also said NO to Estrace. I have gotten desperate enough a few times to use a gram here and there. The last time DH and I had intercourse my labia was burning. The next morning I put a tiny bit of estrace on it and the burning went away. BTW, whoever mentioned Good, Clean Love lubricant. I like it but it stings me for a several seconds. I am rethinking it and probably will go back to Astroglide. I have been using KeyE vaginal suppositories and they work well but the dryness is getting too much for just that. I think I will add coconut oil to my routine as well.

I had my ovaries out in 2011. That has never stopped me from orgasms. I still can get there but working up the courage to actually do the deed is my problem. Poor DH has been patient.

I keep my bottle of coconut oil in the refrigerator so it stays solid. When I'm ready to use, I just use a knife to cut out a small hunk and then insert it as far up as I can in the vaginal canal simply using my fingers. I usually do this right before bed so as much of the coconut oil remains in the vaginal canal as possible. It's really quite easy.

I still can't get over the moron doctor who thought orgasms were dependent on the ovaries. I can't even begin to think how he got that lame idea.

I do the coconut oil once a day at night before bed. Or twice a day, if needed.

Here's some good news . I am going to be talking to my MO about it . Intravaginal Testosterone or Estradiol ring in women on AI's

Lamp it's saying it appears to be safe for ER + breast cancer patients to use vaginal testosterone or a estrogen ring

Molly I saw that study too and you beat me to posting it Let me know what your doc says. Mine is on maternity leave so I dont see her until February.

A little background on us. we have been together for 5 years . Sex life has never been off the charts because he believes his diabetes stops him from being like a typical guy and always having sex on the brain (unlike me). I am always down for fun with him. It makes me feel closer. Anyway my question is has anyone experience severe dryness that it could rub/cut skin raw? Basically when we do get it on he feels like I took tiny razer blades and cut him sometimes after I feel pain below but have always brushed it off on dryness. His pain and cuts lasts for days. which means we are on pause until his "friend " heals up. He is uncircumcised which traps my friend in it's shellbut cause it can not get out. It forms cuts or even yeast and it gets super red. Honestly don't know who to talk to. I'm embrassed and he is mortified. last time this happened they said he had a yeast infection . I'm/we are getting annoyed with all this. Was thinking of starting to use condoms but my husband is already hating that idea.

Sex can bring people together or can bring them apart. if this is a side effect and my fault I don't want him running to someone else for our spousal duties

Please help.... Or tell me who to talk to... Down for suggestions , tips, anything

I spoke to a sex psychologist a couple of weeks ago. I can't remember if I posted here or not about it. To answer some specific questions though based on what she said, the coconut oil should be used daily because it's not only being used for lube - it's great for that! - it's also to help repair the tissue.

She also recommended Hyalo Gyn as a lube that has a restorative effect on vaginal tissue. This is only once every 3 days, but it's more expensive than coconut oil - $30 a month. I bought some to check it out, but haven't been home yet to really test it. Anyway, this stuff has Hyaluronic Acid in it, which is great for my face so I figured it would be good for the other parts, too. Has anyone else tried this?

I use Gynatrof gel which has hyaluronic acid. I buy it online from Canada. Frill where do you get the Hyalo Gyn?

Ang7894, perhaps you can switch to something that your insurance will cover. I know that the vagifem, which I use, is minimally covered by insurance. But when I used Estrace cream, my copay was only $5. I found it to be very helpful, although a bit messy if I used too much.

It also might be worth your while to try calling the drug manufacturing company to see if you can get some type of a discount card.

I also find coconut oil extremely helpful. I actually put some in a little jar that I keep by the bedside, so that I can dip into it as needed. It doesn't burn like most of the commercial products that I've tried.

Frill, that's great! Hope it only gets better from here.

Frill, Puritan's Pride has it in various compounded supplements for joints or hair/skin/nails, but it also has it by itself, either in pill for or liquid

http://www.puritan.com/puritans-pride-brand-0102/hyaluronic-acid-50-mg-014860