Allergic Again!

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Ok, Ladies and Gents, I need your thoughts. I may cross-post this, because it's so specific and such an intractable problem. I had my first chemo/perjeta/herceptin combo Thursday. I reacted with something called the rigors to the herceptin, but that wasn't bad. But there was more in store. I had yet another allergic reaction to a taxane. This time, it was Taxol. Nearly two years ago, I reacted to Taxotere. I almost died. This time, on the so-called gentler treatment, I got really sick this weekend on Taxol. I began to itch as soon as the decamethasone wore off, and it was getting worse. When I went in my lips were swelling, but it hadn't gotten that bad yet..

My doctor wants to rerun another trial of Taxol. (She hasn't seen me. She's out of town. This is coming in via nurse.) "We aren't sure it's the Taxol," the nurse said.

I am. I've been here before. It was exactly the same as the Taxotere, except that I hopped on it faster and got into the ER. Now, I'm getting the woman treatment. (They didn't see hives, so they don't believe me.)

I'm refusing to ever have Taxol again. But I'm stage IV!!! Now what?

Comments

  • KBeee
    KBeee Member Posts: 5,109
    edited October 2016

    most people are allergic not to the taxol or Taxotere, but to the solvent it is dissolved in. Abraxane is a Taxane that does not use that solvent. Most who cannot tolerate Taxotere and taxol can tolerate abraxane

  • Ojttocs
    Ojttocs Member Posts: 24
    edited October 2016

    And I did well on it last time, although the metal mouth was annoying. Why is she trying to keep me on the killer? Ok, being dramatic, but I truly am afraid of the Taxol.

  • Ojttocs
    Ojttocs Member Posts: 24
    edited November 2016

    Thought you might appreciate an update: I'm on Navelbine now. It's ok. It has it charms, too, but they seem more manageable. Hoorraayyy!

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