Starting Chemo in Nov 2016

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  • amyemn
    amyemn Member Posts: 25
    edited November 2016

    Unfortunately yes, this is typical behavior from him. I guess I was just hoping against hope that the bright spot that would come out of this is that he would finally understand all the things I do around the house. Maybe a little bit too much wishful thinking. He has zero experience with sickness. In his family everyone just drops dead from heart attacks. No sickness to deal with. And I guess it doesn't help to make it real enough for him when I haven't had an major symptoms yet. He did sit with me during chemo this week but he was SO uncomfortable I almost wish he hadn't come and really do not know if I want him to come to any more. I'll admit I do like to do things myself, but I was really trying to back off and give myself a break this weekend. He did do the dishes so I guess that is a step in the right direction?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi ladies,

    Nfullblume, love the hat dear. i see that you and Leslie are beginning to have more side effects but are coping with them just fine. I'm on day 4 after chemo and i still feel fine, except for a little loss of appetite and i am always sleepy. Thanks for your comment about organic soya milk. It sort of alarmed me not to take it. I did a little research about soya and got mixed feedbacks, pros and cons alike. So being cautious, i'd better not drink it until I consult my MO next week. Were you required to take weekly complete blood counts? I was. I am not on Neulasta. Hope you and Leslie get better.

    Hi amyemn,

    my heart goes out for you. i have the same problem with my husband before. He is a bit irritable and insensitive at times. I can only think he behaves that way because of his chronic back pain and wonder that it may also be due to his andropause. But i kmow he loves me, and I've proven that. Now that i have this problem, he is showing attention and concern with my condition, medicines and everything. He does his share of the chores now, more than he used to before. Maybe your husband does not realize yet the gravity of your situation. Can you talk to him directly about your feelings? A calm honest talk may make him understand you better. Maybe he has been keeping a problem too. That's what couples should do. I hate to think that he does not love you, but you can have an idea by talking to him. It may also help to have a relative to assist you in the daily chores, if thats possible. I hope everything turns out better for you soon.

    To all November Chemoladies, i wish all of you better health and life.

    See ya,

    gmmiph

  • javamama
    javamama Member Posts: 119
    edited November 2016

    I couldn't stand it. The thought of losing my hair. I just ordered cold caps for my head. OMG. I think I'm way out there about losing my hair. But I cry everytime I read or see pictures of women who are a year post chemo and their hair is just at their ears or a tad longer. I can't stand it. I love my long hair. It's literally the one thing I care most about. Not my tits, not my belly, or my wrinkles or even my saggy ass. Just my long, shiny, straight hair.

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Javamama, I love your humor! We all have that line in the sand. There's a cold cap forum on this site. Good luck, I hope you keep those tresses!!!

  • Pink91316
    Pink91316 Member Posts: 11
    edited November 2016

    I keep hearing about cold caps, what are they and where do you order them?

  • javamama
    javamama Member Posts: 119
    edited November 2016

    Pink- there are a couple of different ones. I ordered the Polar Cold Caps. http://www.polarcoldcaps.com It's $395/mo to rent the whole kit with a $395 rental deposit that you get back when you return the kit.

    There are two or three huge threads about cold caps in the side effects forum. I spent the last few days reading through them. I think if you have short hair, it might be okay to lose it during chemo. But if you have one hair and it's going to take 2, maybe 3 years to grow it back that long, it might be worth cold caps vs. wigs and hair accessories.

  • connie64
    connie64 Member Posts: 1
    edited November 2016

    Hi- I started Chemo - paclitaxol on Friday, November 4th. I started Arctic Cold Caps, they supplied all except the Dry Ice. they did assist me with finding companies that even can provide discounts to patients as the dry ice can be quite expensive. I was lucky and was able to get .70 cents a pound as my treatments are weekly for 12 weeks. My concern now is how do I style my hair for work without using a blow dryer.....

    Some of the suppliers were up to 1.69 pound - I purchased 80 pounds the first week but now realize 50 should be fine.

  • Pamela23
    Pamela23 Member Posts: 510
    edited November 2016

    Hi Everyone, I literally just joined the forum minutes ago because I'm trying to find answers to which cold cap to use. The Cold Cap thread seems to be last updated in 2009 unless I'm not going to the correct one. I'm still not sure how to navigate this site! Any suggestions where to look to join in the discussion about which ones work best? I've read about all of them from Rapunzel.com but I want to hear real testimonials! I start TC Nov. 16. Trying to get my ducks in a row!


    Javamama, can you please tell me the names of the other cold cap threads?


  • javamama
    javamama Member Posts: 119
    edited November 2016

    connie64- I am ever grateful my office job with lots of public appearances was traded in for an in home job with little to no outside contact unless I want it. Because I read that for a bit while your body gets used to the chemo and dries out, you look like a greasy hot mess. And you can't put it up or anything. But I think many ladies are using their fingers to basically "style" their hair. So I'm not sure how one goes about doing this.

    I have several very large surgical incisions which when coupled with long stringy, greasy hair is going to make me look heroin chic for a few weeks. Ha! You know, maybe some of the ladies on the cold caps thread have ideas. I would suggest those hair curler thingies, but you're also not suppose to put too much pressure on the scalp and hair ends so as not to pull them out.

  • javamama
    javamama Member Posts: 119
    edited November 2016

    Pamela- there are 3 cold caps threads that I've found. This one was started in 2009, but has lots of current activity. https://community.breastcancer.org/forum/6/topics/...

    This one was started n 2014. Also with current posts. https://community.breastcancer.org/forum/6/topics/...

    And this one with pictures of success stories, started in 2015 with current year posts. https://community.breastcancer.org/forum/6/topics/...


  • Pamela23
    Pamela23 Member Posts: 510
    edited November 2016

    I just realized the date means when the first thread was started! Thank you so much! There is so much to teach myself about this chemo thing in the next 10 days, but knowledge is power! I appreciate you steering me in the right direction!


  • Sorella
    Sorella Member Posts: 107
    edited November 2016

    Pamela23, I am on the same regimen starting tomorrow, port placement and first treatment of ACT. I don't remember ever being so scared!

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Pamela, the learning curve is pretty crazy. But it's so much better to be educated. You can make much better decisions for yourself.

    Sorella, you can do this!! We look forward to hearing from you tomorrow. Sending you prayers and tons of positivity

  • susicaldy
    susicaldy Member Posts: 2
    edited November 2016

    Hello Nfullblume, Thank you guys for the welcome! Currently I am on the medications I took before chemo. I was diagnose with fibromyalgia about 8 months ago but now I am wondering if it was symptoms of cancer. I will go see the rheumatologist later on this month and will have some serious questions for her. I take cymbalta and lyrica along with thyroid and blood pressure meds.

    I started to really loose my hair after the 2nd treatment so that Sunday I went to the salon and had it cut off. A week after I asked my husband to shave it off so now I completely bald!The hair all over my house, bed and clothes was driving me bananas! I am not bothered by it anymore. I have come to accept it. The woman at the salon said she has cancer survivors who's hair grew back totally different than what they had before. I'm hoping my grows back sandy gray! LOL I know I'm young but I love gray hair.

    Chemo has not made me too sick. Only nausea and sooo much weakness a few days after treatment. My aunt says I am strong and this is why but I think is just different for everyone. I crave so many foods. I cooked something that I really crave but then it doesn't taste good when I eat. Smells drive me crazy!

    Javamama, stay positive! It is super scary at 1st with so much info. I remember I was OK with all the info I was getting until I went to see the breast surgeon and her nurse handed me a binder. I had this overwhelming feeling and started to tear up. It gets better Javamama. I promise! Stay positive and like it was mentioned, take up a hobby. Keep you mind occupied with other things. Life goes on right!!!

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    Well today is Hair day for me. At 10:30, it all comes off. I've been ok with the thought, but today the thought of going grocery shopping after it's done is not something I want to do. I know me, and I know within a week I'll be saying screw it, not caring if others look at me funny. I can do this.

    People keep reminding me that I'm the strongest person they know in a lot of ways. I umpire men's baseball. I'm only 5' 1", and I've stood toe to toe with guys twice my size without flinching. My job involves helping people that have problems bigger than they should have to handle. What's a little hair?

    So, I'm going to find the positives each day, and hold on to those positives. Since I mentioned my umpiring, I'll start with a positive there. I've been an umpire about 22 years. I umpired all summer, stopping after the first week of playoffs because of my diagnosis. Heck, I umpired 4 games the night I was diagnosed! After so many years of proving myself, having others make comments that I couldn't umpire high level ball because a woman couldn't keep up with the men and proving them all wrong, of just wanting to be seen as an umpire, not a female umpire...my crew of guys rock. They haven't had their end of season party yet. They told the boss that they would delay and make it an end of season/Christmas party, and that I must be there. This wonderful group of guys, many of which I've trained over the years are picking me up and holding me tight through this. How can I not succeed with a bunch of men crazy enough to be yelled at for fun each week behind me? Today when my hair goes, I will will just remind myself that with or without hair, I can rock with the best of them. Right? Remind me later, when the tears come.

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    So cool to know the stories behind the women! A 5'1" spitfire. Love it!! Bald is beautiful! Susicaldy is rocking the look proudly!!So many of us will be right there with ya, Leslie. I think God knows what He is doing when He picks the pistols as the ones fighting this crazy disease. The weak would fail. You rock it at the grocery store!! I can't wait to hear the stories!! How cool are those umpires too!?

    To the ladies starting soon, the first of November ladies are feeling feisty today!! I'm up for work and ready to kick ass!! You can do it!


  • SleeplessinCO
    SleeplessinCO Member Posts: 36
    edited November 2016

    So glad I found this thread. I get my port this Friday and start AC/T chemo 11/16, every two weeks. I've held up pretty well after bilateral and tissue expanders, but going bald seems the scariest. (How crazy is that?) My cancer center provides free wigs, but the one I got is just not me so I'm hoping to find a better one at a wig shop this week. I have so much to be grateful for - my boys are grown, my husband has been amazing, and I work from home. I wish I could embrace going bald and "rock it" like my husband says I can. Maybe I'll surprise myself. Thank you all for your posts.

  • amw5
    amw5 Member Posts: 189
    edited November 2016

    I hope everyone had a good weekend.

    My hair stylist will be cutting my hair on Sunday (since I start chemotherapy on November 15). I've always had long hair, but I'm ok with getting it cut (as I would rather not be traumatized from it coming out). I remember telling my husband (a couple of years ago), that I would like to experience short hair. Well, I'm going to get that experience soon (not the way I intended, but I must do what I must do).

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    Hair gone. Wig on, went grocery shopping, picked myself up Wendy's for a treat. Burger eaten, wig off, cap on...but I haven't looked in the mirror yet without the wig/cap. Maybe later. Just happy it's done and I can stop stressing about it.

  • marigoldgirl
    marigoldgirl Member Posts: 15
    edited November 2016

    Glad to hear from everyone. SleeplessinCO we have the same start date 11/16. I got my port already two weeks ago. I have been making my list and plan to get everything I need to combat SE this week.

  • DBear
    DBear Member Posts: 9
    edited November 2016

    i went this weekend to pick out a wig. I was overwhelmed with the possibilities. The lady that ran the shop was so wonderful! Honestly, when I first got the dx I thought I would just go with scarves, I couldn't imagine wearing a wig. Since I am going to try to keep working, I thought I should consider one, not just for me but for the people I work with. I can't stress enough what a surprise the experience was! I almost can't wait to start using it! I have my first round of AC on Thursday so I probably have a few weeks. Thanks for the updates from those who started last week. I will have neulasta also and will try taking claritan before and after. Here is a picture of me with my new wig...

    image

  • natster
    natster Member Posts: 21
    edited November 2016

    You look amazing! I haven't wanted a wig, but this really makes me give it a second thought.

    I'm feeling good 6 days out. My next treatment is in a week. Figure that the hair will go soon.

    Stay strong all!

  • amw5
    amw5 Member Posts: 189
    edited November 2016

    DBear - I love it. I was only going to do scarfs and hats, but seeing you in your wig has me rethinking things.

  • Pamela23
    Pamela23 Member Posts: 510
    edited November 2016

    Just got back from my chemo orientation. Holy Shit! I know we hear all the side effects of chemo but when they are in front of you on the consent form compiled on 1 list instead of spread out over many websites, it's SCARY stuff! All you can do is laugh, right?

    Javamama, I am where you are mentally on the hair thing. Researching cold caps because 2 oncologists suggested them, but the nurse that did my orientation made them sound like they were a waste of money. I was a bit surprised with her negativity about it. I guess i"ll know if it works after the first try, right? I saw you just ordered yours the other day, you using Penguin?

    I must say that seeing DBear makes me a little excited to go wig shopping!!

  • javamama
    javamama Member Posts: 119
    edited November 2016

    Dbear- that wig looks awesome!

    Done with all the stupid tests today. I'm am so tired from the stress of undergoing so many medical tests and seeing doctors and doing all the things. Ugh.

    Tomorrow, I'm off to chemo class. Oh, joy. Not.

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Dbear, uh-mazing!!

    SleeplessinCO, welcome to the group! There are a lot of us this month on AC/T, so plenty of sharing in the future!

    Pamela23, they list everything imagineable. They won't all happen to you though. Seems like the doctors are getting much better at managing the SEs.

    Leslie, love the reward. I'd kill for a Wendy's burger right now!

    Natster, so happy you're feeling good. Today is day 6 for me too. Haven't had any nausea meds since yesterday afternoon and I'm still feeling good.

    Amw5, I was too chicken to do a pixie cut too. Once I chopped mine off, I don't know if I'll ever go long again. So much easier! Not to mention it takes a few pounds off me! Um yes please!!

    Thinking about you guys

  • pmevans50
    pmevans50 Member Posts: 54
    edited November 2016

    Hello Ladies,

    Had 1st chemo treatment Thursday. Friday was a good day. Saturday and Sunday - very nauseated; ended up taking one of the anti-nausea meds this morning since I got sick last night (too much water). It helped. I'm curious if Neulasta can affect previous injuries. I had a bulging disk and surgery and man! oh man! has that lower back area been bothering me. Since Saturday. Could be just a coincidence and that I tweaked it somehow. I am taking the Claritin. After seeing Nfullblume's post I asked my MO about it because I usually take Benadryl. Taking Claritin helps in more ways than one. :-)

    How is everyone dealing with the nausea? I found simply not eating helps and I know that is definitely the wrong way to go. Tea and crackers have gone down well. I found that later in the day the worse it is and I've had headaches to varying degrees; although, not life-interfering, since my first treatment.

    Anyway.....I hope everyone is well!!

    DBear! That wig suits you! Absolutely lovely!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016


    Here's 10 good reasons why Bald is Awesome

    #10: Blonde jokes no longer apply to you.

    #9: Increased aerodynamics.
    (important for runners, sky divers, human
    projectiles)

    #8: You can finally drive your convertible to work. (no more 'wind-tunnel'
    hair-dos)

    #7: You've got a blank canvas for new tattoos.

    #6: You're now ready to audition for the Blue Man Group.
    #5: Time to get a new driver's license...Hair Color: Invisible. (see how
    that one goes over with the cop the next time you're pulled over)

    #4: Think of the money you'll save...no more barber/hairdresser,
    shampoo, hairspray, dandruff medication, hair dye, etc.

    #3: Everyone knows that bald people make better lovers.
    (and if they
    don't, perhaps it's time that you showed them)

    #2: It distracts attention from your face. (alright, that was completely
    uncalled for)

    And the #1 reason that chemo-induced baldness is awesome:

    Bald = Sexy
    (just look at Bruce Willis, Vin Diesel, Natalie Portman and Britney
    Spears...ok, she's hot in a bald and crazy kind of way)
  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Pmevans50, what nausea meds did they prescribe you? Today is the first day I haven't taken meds proactively. I had the Emend pills for day 1-3 and they worked perfectly. Then on day 4-5, I took Zofran every 8 hours like clockwork. I had some very light dizziness, but no nausea at all. I bought a bunch of ginger candies and chews just in case. I had a herniated disc in my neck recently and felt like there was more Neulasta pain there too.

  • SleeplessinCO
    SleeplessinCO Member Posts: 36
    edited November 2016

    Dbear your wig looks great! Now I'm actually excited to shop for my wig this week. Thank you for posting the pic. Very encouraging

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