Anyone.Starting Chemo in October 2016?

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  • Al12
    Al12 Member Posts: 79
    edited November 2016

    Hi everyone, I'm feeling much better today. I'm having my 3rd infusion tomorrow and I wrote down all my questions for MO. I hope it' goes as well as it did last time but not looking forward to being more emotional then I am already. My sister in law came from NC to spend chemo day with me and she is staying until Sunday. That will be a nice distraction.

    I think a few of you had asked if anyone took a razor to their head and I wanted to say I did. After buzzing my hair twice It started to get patchy in spots so I shaved my head in the shower. At first I was nervous but it was just like shaving my legs.


  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Alla, are you liking that fresh bic'd feeling? I think I'll keep mine pretty clean too. I think I'll try to do it right after my second injection before my WBCs fall. I'm 24 hours out from injection 1 and still feeling pretty normal. Keeping myself distracted, and I think that makes a big difference.I hope you and your sister in law have some good laughs. My sister is coming into town on Dec 1, which should be my 3rd injection day. It'll be nice to have someone around for the laughs!

  • VLH
    VLH Member Posts: 1,258
    edited November 2016

    So you used a regular razor, Nfullblume? With my fine motor skill issues, that doesn't seem wise. =8-0

    I hope you enjoy your sister's visit.

    Lyn

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    I haven't yet, just saying I would be ok with it. My hair fallout date should be around Nov 16. I think I'd rather be Mr Clean than weird patchy stubble. Lo

  • VLH
    VLH Member Posts: 1,258
    edited November 2016

    I prefer to think of myself as an exotic creature from a Star Trek movie rather than Mr. Clean.

    Lyn

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited November 2016

    Help! I'm trapped in the hospital! I got a sudden fever yesterday and abdominal pain, and so off to the ER I went. They immediately put me in isolation (DH was with me, but only with mask, gloves and gown). After many tests and scans, they told me that it seems to be an infection of the abdominal wall (?), and put me on intravenous antibiotics.

    Fever is gone, I am not neutropenic, I am out of isolation, but they will not discharge me yet. I hope they figure this out soon. Also, after having an iv needle taped into my arm all night, I've come to the decision that I'm going to ask for a port ASAP ... I figure its good to hope for the best, and plan for the worst!

    Hope that you're all having a better day than me!

    Barb

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Oh no!! Praying for you Barb! Hopefully, you're released soon! Yuck! So sorry it took this turn

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited November 2016

    Hi Nfullblume!

    Thanks for your positive thoughts. I just hope that it's a minor thing, and that antibiotics will take care of it. Don't know why it is taking so long for the doctors to decide what to do ... one of the tests they did last night was a CT scan with contrast (they thought that I might have appendicitis at one point), and the emergency doctor said that the oncologist needed to review the CT scan to decide what to do. I'm sure that this is no big deal, but as time goes on I start to worry that maybe this IS a big deal.

  • chickdudefood
    chickdudefood Member Posts: 51
    edited November 2016

    Barb, hang in there, we are all with you in spirit! I can understand why you'd be worried, I'd probably be beside myself. Here's hoping it's a glitch and that you'll be home very soon.

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited November 2016

    Update: it seems that I was experiencing a diffuse inflammation of the bowel which sometimes happens as a result of chemo. Whew, I'll take it over some of the other things my mind was conjuring up! (I hear you, Kate!)

    Unfortunately, my neutrophils have been dropping (the numbers are a blur at this point), and so I have to stay and continue with the iv antibiotics and a WBC booster (like Neulasta). They are moving me from ER to a private room in the short stay unit until things stabilize. I'm feeling fine, though, and they are taking good care of me, so I shouldn't complain (ok .... maybe just a little?).

    Thanks again for your support!

    Barb

  • Hkuester
    Hkuester Member Posts: 27
    edited November 2016

    Barb- Praying for you. I hope they figure it out quick.


    Today I was shedding so bad and then after shower just clumps so I ran to Great Clips and she shaved me bald and no charge I left a big tip. Not as bad as I feared. Just waiting for my kids and husband to get home hopefully they'll take it as good as I did. I think I wasted more time worrying about it the last few weeks and now it's done and I survived😊

  • Julesbabe55
    Julesbabe55 Member Posts: 39
    edited November 2016

    Barb:

    Hang in there! Glad they figure it all out and you are able to go home soon. Stay strong!!

    Julianne

  • JR74
    JR74 Member Posts: 44
    edited November 2016

    Hello everyone! Sorry I've been out of the loop for a few days! Overall my 2nd infusion was a bit better than the first. On day 6 I felt a bit weird and ended up scaring myself into a panic attack.. my husband brought me to the ER they ran tests and gave me some fluids and I felt better. All of my tests came back good considering. I've been feeling more fatigued this round but I guess that's to be expected! I am constantly expecting too much out of myself, it's one of my biggest downfalls! I hope you all have a great weekend! Xoxo Jenn

  • VLH
    VLH Member Posts: 1,258
    edited November 2016

    Ohmigosh, Barb! I'm so sorry that you had to be hospitalized. And how scary to be left in limbo wondering if it could be something even scarier than the ultimate diagnosis. I don't recall seeing that inflammatory condition mention as a side effect of chemo before . Now we can be on the alert for it. I hope your next infusion goes great and no more problems!

    Jenn, please take care of you! Remember that your body is dealing with a toxic cocktail. I hope you'll be gentle with yourself and lower your expectations for now.

    Hkuester, I think I'll be right behind you on the head shaving. What I have left is looking quite sparse . It's still it's cooler here but still warm enough that I would prefer a bare head , but can't rock the mangy look.

    I played around a little with my look good feel better make up bag today before I went to vote . There were only eight people in line ahead of me & they had a chair at the both so it went smoothly. After my dramatic sinking-to-the-floor episode at Target recently, I reluctantly used an electric cart. I'm very sore and stiff without my Ibuprofen and find that problem more challenging than my chemo side effects to date. The cart was so slow that it was torture. I got some Amy's organic meals to cancel out the Hagen Daz (that works, right?) and I fear everything was half thawed by the time we crept to the cash register.

    Tuesday is Chemo #3. A number of ladies on earlier boards found that session especially difficult so fingers crossed that I...and all of us facing it... will have minimal issues. Other than severe fatigue & the sporadic nausea at some point every day since my first treatment, I feel that I've been lucky with side effects and hope that will continue.

    Lyn



  • FightingTheFight
    FightingTheFight Member Posts: 75
    edited November 2016

    Dee & Al12 - I hope your infusions went well and that you're having no/minimal SEs.

    Hkuester - I'm glad that doing the big shave wasn't as bad as you were fearing. I hope your family takes it just as well.

    Barb - I'm sorry about what you've been going through. But I'm glad it sounds like they're getting things figured out. Hopefully you get to go home soon. I'll say a prayer right now on that.

    JR74 - I definitely experienced more fatigue after my second infusion and had to remind myself to be gentle with myself at times. I'm sorry you had to go to the ER but am glad you're feeling better.

    Lyn - I'm glad you used a cart at the store this past time, just in case. Too bad it didn't have a little more pick up to it. Probably to prevent people from racing through the store and accidentally hitting someone. I too think infusion three can be when the SEs really start to have a cumulative effect. I hope everyone who's on number 3, or about to have it, does ok.

    I went out for lunch with my sister-in-law today and it was really nice. Esp. since my taste buds started to go back towards normal a few days ago. If things continue at this pace, I'll be back to feeling normal just in time for my 3rd infusion next Thursday. I've mostly been putting that out of my mind though. I don't want to develop an aversion or mental block around going to treatment. But on the other hand, I look forward to my infusions, just so I can have another one behind me. I'll be half way done after my next one and I'm looking forward to that milestone.

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited November 2016

    Hi Lyn,

    Apparently what I may have is called neutropenic enterocolitis ... it only happens 5% of the time, so its not common. But there is still a theory that I may have appendicitis. Either way, I'm stuck here for at least another day or two, back in isolation (so anyone who comes into my room has to don full protective gear on my behalf).

    My belly still aches, and I was horrified earlier today when a nurse told me that she had to give me a shot to prevent blood clots in my legs, and that the injection site was my belly! Arghhhhhhh .... that's just sick! Ok, thanks for letting me get that off my chest ... I feel better.

    Barb

  • Ella22
    Ella22 Member Posts: 39
    edited November 2016

    Barb- Sorry to hear your having such a rough time. It's not bad enough with all the SE that we have to go through, you have to get something that only happens 5%!!! Sending my love and prayer! Hope you feel better and get home soon. I

  • BevSue
    BevSue Member Posts: 12
    edited November 2016

    Barb hope you feel better soon, hang in there

    Hugs😊

  • KLNiss
    KLNiss Member Posts: 40
    edited November 2016

    Hi - I started 10/14. Gone through two rounds so far. Happy to converse!

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited November 2016

    KLNiss - welcome to the group! That's great that you have 2 down already ... which chemo treatment are you on? How many to go?

    I'm on AC+T, with the AC 4x3weeks and the Taxol 12x1week. How did your first 2 sessions go? Hoping to hear about your experiences!

    Barb

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    thinking about you, Barb! Neulasta headache kicked in pretty hard last night. Slept well, but still dealing with it this morning. Still no nausea though, I'll take the headaches over that any day!

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited November 2016

    Good morning my sisters!

    Thank you for all of your prayers and good wishes ... I can't tell you how uplifting it was for me to read your messages. I'm still in the hospital, feeling ok but waiting for some decision about what I have and what they plan to do about it.

    A funny thing happened yesterday ... the on-call oncologist came to see me ... a lovely young man I had never met before. He came into the room, introduced himself, then surveyed me (pale, no makeup, bald head), and asked me if we had already met, as I looked familiar. I thought to myself "Seriously, Dude? I'll bet I look familiar ... you are an oncologist ... probably half the people you interact with are bald women!"

    Anyway, it struck me as funny.

    Stayed tuned for more riveting hospital anecdotes .....

    Barb

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited November 2016

    Hey Nfullblume! I totally agree ... a headache is more manageable than nausea. I hope that the headache is temporary, or at least that you can get relief with Tylenol. You sound like your usual positive self ... you always make me smile! Have a great day.

    Barb

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    I'm waiting with baited breath for more riveting hospital stories!!! Lmao. I think today will be more like my 20s when I stayed out til 4am on Fridays: a whole lot of flip flopping on the couch! I don't ever allow myself this luxury anymore; I think I'll quite enjoy it!

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited November 2016

    We're in survival mode ... you gotta do what you gotta do!

    I'm getting through this hospital experience by amusing myself with the bed-goes-up and bed-goes-down button on my bed, staying glued to the internet at all times, and eating my way through a bag of caramel toffees that some well-intentioned person gave to me as part of a chemo care-bag. It's time to throw normal rules out the window!

    Loopy

  • DogwoodPos
    DogwoodPos Member Posts: 9
    edited November 2016

    Hi everyone!

    I started Chemo on October 21, so thought I would join the group. My cancer is triple positive. I will follow a TCH protocol every 3 weeks for 18 weeks followed by radiation for 6 weeks.

    My hair just started falling out today. Is it a good idea to shave the head right away?

  • DogwoodPos
    DogwoodPos Member Posts: 9
    edited November 2016

    Hi everyone!

    I started Chemo on October 21, so thought I would join the group. My cancer is triple positive. I will follow a TCH protocol every 3 weeks for 18 weeks followed by radiation for 6 weeks.

    My hair just started falling out today. Is it a good idea to shave the head right away?


    I don't see how to include my diagnosis, etc at the end of the post.

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    hey Dogwoodpos! You can add your details in the My Profile section.

  • VLH
    VLH Member Posts: 1,258
    edited November 2016

    Welcome, Dogwoodpos! My friend gave me a short buzz cut, but now that I've lost quite a bit of hair, I think I'll shave off the remaining hair within the next day or two.

    I'm starting to have the runny nose that a number of you have mentioned. Very annoying!!

    Barb, time to pamper yourself with zero guilt! I hope you get discharged soon.

    Lyn

  • KLNiss
    KLNiss Member Posts: 40
    edited November 2016

    Hi Abracadabra - love that comment about the on-call onco! that is pretty funny. My week after first chemo was not great - I hadn't finished some procedures -biopsies and chemo don't mix - and had to go to UC for a fever. Very happy to report that second treatment went waaayyyyyy better. I hibernated and got through without much more than the usual nausea and fatigue. Actually started listening to music again! Thinking I can handle it now. So glad I found this group. It's great to have friends and family who are supportive, but there is something about this sisterhood that I can already tell will be essential.

    sending strength!!

    Kathy

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