Confused, Questions

whippetiggy
whippetiggy Member Posts: 49

Hi. I was recently diagnosed as TN. 1 node tested positive so far.

Onc has 40+ yrs experience and said he doesn't suspect any other positive nodes or mets. He said twice that TN responds very well to neoadjuvant therapy and that he considers me curable.

Then I Googled. The stuff on there is completely opposite what the doctor said.

Last night I was so positive and hopeful. Now I'm scared. Any thoughts?

Thanks,

Heather


Comments

  • yodez75
    yodez75 Member Posts: 35
    edited November 2016

    Hi Heather. I was diagnosed in June with TNBC. I had a 4.5 cm tumor in my left breast, nodes negative. The best advice I can give you is to stay away from "Dr Google". Google is full of old out of date information. My onc tells me I have an excellent prognosis and I choose to believe her. The information you'll find on this site is very recent and very encouraging. Ive read and been told that TN responds really well to chemo. I have chemo # 10 tomorrow....6 more to go. Lean on your family and friends...ill be Praying for you to find peace during this difficult time

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    Thank you for your response. I love my onc. He's great. Very smart and to the point. I wish I'd never Googled. You're right, a lot of it's out of date. There's so much info out there but not necessarily good info. I start chemo probably late next week

  • blamoms
    blamoms Member Posts: 113
    edited November 2016

    I was diagnosed last dec 2015 with triple negative. My onc. said do not google because you will drive yourself crazy. I had a lumpectomy last dec then chemo and radiation.She said it responds very well to neoadjuvant therapy. my tumour was 3.5cm and my nodes were clear. You can drive yourself batty with all the bad info on triple negative.Go with your oncologist they know what they are talking about. Hang in there we are all here if you have any questions

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    No one told me not to Google so I did, thinking I'd find positive info. Well, it was quite the opposite. It scared me 1/2 to death. My onc. seems to think I have a good prognosis and I would like to focus on him and stay positive.

  • blamoms
    blamoms Member Posts: 113
    edited November 2016

    My onc. said the same thing my prognosis is good. Positive attitude always helps. Its a scary enough situation being positive helps.

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    I was so positive - until I Googled. Now the positivity is faltering.


  • blamoms
    blamoms Member Posts: 113
    edited November 2016

    I have had my moments. You can do this. Just repeat it when you feel your worst I can do this. Its going to be tough at times I'm not going to lie to you. Let all of us be there for you when you have your tough times or have questions. We all have or are going through this with you. I wanted to know everything about triple negative but everytime I would go crazy I found this website and it has been a blessing.

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    I'm fluctuating between numbness (mentally also) and pain all over. I think I worry so much that I get tense to the point of pain, I guess. I can't find any other explanation for the muscle pains all over. Then I get kind of numb and just feel like I'm going through the motions. I know I have to do it and I have to keep going, it still seems surreal sometimes.


  • blamoms
    blamoms Member Posts: 113
    edited November 2016

    I was the same way when I was diagnosed. I cried the day I was diagnosed and then was numb like it was someone elses story if that makes sense. Its part of the process of going through this lovely cancer. Its normal. Once your treatment plan is completed and you start it will become routine. Hang in there

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    That's EXACTLY how I feel - like it's someone else's story! My friend that goes with me had in situ BC 22 yrs ago. She said the same thing, that once I get my plan in place and start going, it'll just be a routine and it'll sink in and I'll just go with the flow. I hope so. This constant testing and appts is driving me nuts. I want to see results. I want to see dead cancer cells and shrinking tumor.

  • LifeAloft
    LifeAloft Member Posts: 150
    edited November 2016

    Heather, I was diagnosed this past New Years Eve, I just finished treatment about 3 weeks ago and I feel great!! I had a 3.5cm tumor and one node positive. Neoadjuvant chemo totally cleared my node and all but 2mm of my tumor. It's a long road but you will get through it!! We all understand how scary it is, but yes, stay off of google.

    I wish you the best!! Sending hugs.

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    You sound like me with the larger tumor and 1 node. I'm glad to hear that you feel great. This is scary. I just want to be "well" again.

  • LifeAloft
    LifeAloft Member Posts: 150
    edited November 2016

    You will get there, you will feel well again...maybe not the same, but you will get there. I understand about feeling numb and all of the appointments, even just a few weeks out it feels like a bad dream.

    Feel free to pm me if you'd like to chat.

    ~Kelly

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    Thanks Kell. I'm using this as a learning experience. Already I feel like I'm a better person in my heart and head. I'm hoping that when I come out the other side of this that I actually feel better than before.

  • LifeAloft
    LifeAloft Member Posts: 150
    edited November 2016

    "Funny" you mention that, it's definitely an eye opening experience. I've learned a ton about myself and others. I've taken this as a time to make improvements, trying to make a career change that I've always wanted, etc. I promised myself that when treatment was over that I would really live, and that's exactly what I'm doing.

  • yodez75
    yodez75 Member Posts: 35
    edited November 2016

    I was a nervous wreck when I was diagnosed. I cried everyday thinking I was going to die. Once I had my surgery date and a chemo plan in place it got easier. My onc gave me an excellent prognosis. I just finished treatment #10 of 16. It does get easier, but I have my moments when I 'get inside my head' and start thinking about the what if's. I have to take a step back and tell myself I'm alive today and I'm going to live in the moment and fight this with everything I have.

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    I keep going between scared, depressed and hopeful. The onc gave me an excellent prognosis but I still worry myself sick.

  • blamoms
    blamoms Member Posts: 113
    edited November 2016

    whippetiggy


    We all make ourselves sick with worry. Just take it one day at a time. We are all here for you. I love this board because there are others going through the same thing. I find it's sometimes harder to talk to family or friends about it because A they haven't gone through it but on the same boat I don't always want the conversations to always be about cancer. If that makes any sense.


    I still worry now that I am done treatment and back to work. Will it come back? I try not to worry too much and just live life to the fulllest each day

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi Whippet,

    My advice is to follow your doctor for conventional medicine and try to research for complimentary holistic nutrition on the net. The knowledge of both conventional and holistic medicine would give you better decisions later.

    Holistic includes natural food nutrition (basicall vegetarian and vegan diets) and meditation. Dont forget Laughter, which is still the best medicine. Whippet Good!

    image


  • peyton3
    peyton3 Member Posts: 43
    edited November 2016

    Hi Whippetiggy, I was diagnosed with TN Breast cancer in July of 2015, and yes there is a lot of negative stuff out there about it and I was scared and confused and just could not understand why I needed to have aggressive chemo and then a double mastectomy when my tumors were small and had not spread to lymph nodes. However I did 16 chemo treatments first then the mastectomy and the chemo got it all, so yes TN does respond well with chemo. My oncologist showed me the pathology report because he knew I wanted to know if going through all that chemo was worth it and it was!!! So hang in there it will get better.

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    I start chemo today. Very nervous! I should also get my staging number today. The results still weren't back yesterday from my last 2 tests. Waiting for test results is horrible!

    I've got super high hopes this will respond well to chemo.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Whippet,

    You can do it! Praying for you!

    image

  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

Categories