Starting Chemo in Nov 2016
Comments
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Welcome Latinmxy, how are you feeling? Are you on the AC/T infusions?
I woke up feeling pretty good this morning. Slept well last night. Trying to work through today and then will focus on my health through the weekend.
Gmmiph, how'd your injections go?
Love you ladies, thinking about you.
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I'm ok so far too. I slept well, but short. I woke up at 2:30, no idea why, was up until 5:30 then napped on and off until 6:30 when I heard my daughter leave. I've been up since 7. I feel rested though. Weird.
I go for my first neulasta shot at 3:30. After this one, I can do them myself. Nurse will be here after lunch to put me on a saline drip for 4-6 hours, but I'm mobile with it and she will just come back when it's done. It's as needed so I have this for the 3 days after each treatment if I want. I figured if it will help keep the nausea and other side effects away, why not? Especially since I won't be housebound while it goes on.
Wig shopping tomorrow....I'm ready!
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I'm back home from my first treatment! Went out to lunch with the hubby and then early voted before coming home
The treatment didn't seem bad at all. I was there for about 2.5 hours. Probably even shorter next time since they took time to explain everything to me today. Now I'm just waiting for SE to kick in. I too have a Neulasta self injector. Should go off around 2:30 pm tomorrow.
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Amyemn, Congrats on the first one down! I'm about 24 hours out from my first injection and still feeling really good. Virtually nothing so far. I've been filling my time with work as to not dwell on it. Been monitoring my temperature and eating well. Trying to stay about 100 oz of liquids every day. Good luck!! Our tumors and treatments are pretty spot on. Keep us updated on how you're doing.
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Hi I am so new!
I am triple positive, and I start chemo on Tuesday the 8th. I am so very overwhelmed and scared. I had my port put in on Halloween, I also had biopsy of the lymph nodes and that came back negative. I will go every 3 weeks with the first 6 treatments being the "worse" and then the remainder of the year after that will be still every 3 weeks but just the one chemo drug (not 4 like my first 6 will be).
You ladies seem like you know exactly what y'all are talking about. I am still in a cloud. I know I'm stage 2, high grade, and 2.3cm. I tried reading through my Path report but didn't see the actual grade listed.
XOXOXOXO
Shannon
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Nfullblume I'm trying to drink about that much water too. I found an app to track and send me reminders on my phone to drink, as I sometimes get caught up in work and forget.
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Hello To all November Chemoladies,
Thank you so much for the prayers and well wishes.
I am still in the hospital, 5 am nov. 4. all went well, it took about 5 hours for the actual administration of 2 pre-chemo meds and the FEC. the onco nurse said she slowed down the flow of the FEC so that it wont be too hard on my vein. i will be out in about 2-3 hrs. No side effects so far except for the red pee.
i am glad all those who went ahead of me are all doing well. for those about to go thru the process, I can tell you, the worrying is not worth it. i am speaking about the actual session itself, not the days to follow. take it one step at a time
ok i have to get ready for discharge now.
gmmiph
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Hey November friends! I'm TPN. I started AC on 11/1. I did 2 rounds of irinotecan + parp inhbitor (I am in a trial), but it wasn't working so my docs switched me. I found this out on 10/31 and was in the infusion at 8am on 11/1. I was really super freaked out about AC. The infusion went well. I don't have a port; I'm doing IV. I'll do 4 cycles over 8 weeks and then likely taxol. Right now I'm taking Prilosec, Clairitin, Zofran and Dexamethasone.
I didn't feel bad on 11/1 or 11/2. A little tired, but nothing much. Neulasta on-pro was fine. Today, I'm a little more nauseous. Main SE is constipation. I drink a ton of water, have taken miralax 2x, yet no BM. Oh the joys. Hoping things will get moving by tomorrow morning! Anyone drinking coffee?
I'm not planning on doing wigs. I'm in Chicago and with winter coming I think I'm going to go for hats/scarves/etc. Aside from that I'm trying to enjoy the Cubs while figuring this all out. I have 2 boys (6 & 8), so it's been a trip. Staying positive and moving forward. xoxo to all.
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Hi everyone. I'm 37 yrs old and was diagnosed couple months ago. I had my masectomy but now due to my high onco score I'm starting chemo treatment next week. I don't know what day yet. I will be doing T/C every 3weeks for 6 rounds. I will be doing the cold caps so hope it works. I'm scared and have not gotten any thing prepared. No wigs, scarves. Nothing. I will still be needekbg this since I i will still be loosing a large amount of hair so ive read. Glad to have others to share my experience with
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So glad to have found this thread/forum. I'm the same: AC/T started on Tuesday 11/2.
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I will be starting Nov 8th, weekly Paclitaxel for 12 weeks and possible study drug (Keytruda I believe). I find out on Monday if I am getting the study drug. Then I go for AC for 2 months.
It's about an hour drive from where I live, but my mom is driving me so that's helpful, and I get to spend more time with her. My son will be going with us as well (he's 13 and homeschooled) so they will hang out those days as well, which is great.
My half-sister works in another building of the medical center where I will be, and I have a few other relatives in some of the buildings so that is sort of comforting.
Glad to know there are others starting at the same time.
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holy smokes! Welcome all new additions. You've found a great place for tips, ideas, and just a great place to vent. There are a few of us who just started and are in the early days after. I'm continually floored at how many young folks we have this month. A lot of 30s and 40s!
Grannemama, how are you feeling? I think there were 3 of us that started that day?
Kelly, how are you doing?
Hopfull2 don't forget to call your local American Cancer Society chapter. They give out free wigs. I ordered some scarves and hats from headovers.com and they're super cute!
Natster, my MO told me to limit caffeine, but if I experience C, I may have a cup to see if it'll get things moving! 👍 I take one more Emend pill tomorrow and then go to the Zofrans every 8 hours. So far no nausea. Praying that'll keep up!
Gmmiph, sleep well tonight
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Yes, starting right along with you. AC and T. 4 treatments of each every 2 weeks. 16 weeks total and all before surgery just like you! Hope you are hanging tough today.
Felt nausea this morning, took some medicine and went back to bed. Was good by noon.
The worst part of starting this week was menstruating too. Thus, feel achy, sweats and can't sort the side effects from the period. Worried about all the side effects and how to report to the doctor. For instance, I had chills and sweats last night, but no fever.
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Nfullbloom, while you are taking Zofran, be sure to take something like senekot to help keep things moving. Digestive health makes such a difference to feeling well.
After my second infusion of TC, i had 21 rounds of vomitting over 30 hours. Popped a gasket in my eye and landed in hospital overnight for iv fluids and tests. Only then did they start me on Zofran. I love that stuff. Saved my hide after subsequent infusions. The wild dogs of upchuck chased me but never caught me. A much smoother experience, and i bounced back much more quickly.
Best of luck to everyone
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Had my first chemo treatment today so got that over and done with. I still have steri-strips on my port. The MO wants them to come off on their own so there was a little pain when connecting to the port. I had felt so good all week long I forgot there could be underlying bruising from the port placement, but that was the worst for the day.
I also have a Neulasta patch on my arm and even though I knew it was coming I was still a little startled when the tube was pushed into my arm. lol The woman next to me got a good laugh from that one. :-)
My head feels a little weird. It's feels as if I've had too much water intake. Hmmm
Other than that, all is good.
Nfullblume - thanks so much for your Claritin mention. I asked my MO about the Benadryl I take, and I'm now taking Claritin, killing two birds with one stone. :-)
Kellly, anyone else who started today. I hope it went well!!
Again, nothing but good thoughts!!
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Tunegrrl, did you have the Emend pills? I'm feeling really good and don't know if I should start the Zofran proactively yet. I have 1 more Emend pill tomorrow and these actually work well. I think I'll start the Zofran later tomorrow night and then take them every 8 hours. I do have Senekot ready. Great tip! Praying to stay away from the nausea and vomiting.
Pmevans50, I had my steristrips still in place too. The steroids and Adriamycin burned a little going in, but I think it was just the flesh under my port, I don't have any bruising though. I'm letting that strip stay on as long as it'll hang on so my incision doesn't bulge. My Neulasta patch is actually injecting me as I type. No pain at all after that initial snap. I felt a little mediciney too last night, but exaggerated because I was put in antibiotics too.
I see a lot of folks who are taking steroids even at home, but I feel like that may be a Canadian thing. No roids for me!
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Nfullblume, if you can master the side-effect management right from the first round, you are rocking out. It sounds like you're doing great. Emend is something i've only heard of, and was never offered for whatever reason. My oncologist is excellent, but side-effect management is reputedly not her strong suit. (I should have been offered Zofran after telling her i'd had 13 hours of nausea and vomiting following the first infusion. My 21 rounds of vomitting after the second infusion were unnecessary suffering. And i was alone at home, no one taking care of me. So glad that crap is over.)
Don't skimp on the senekot! Seriously, even with two a night before bed, it was like the wall of china in there for three days.
Time to go inject myself with Neupogen! Four vials left.
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I'm sorry you had to suffer so greatly. Ugh!! I accepted a job promotion in the middle of this diagnosis. I attribute that as a great distraction, that and a lot of praying. I'm waking up feeling good this morning, so going to work from home again today. Today is my last Emend pill, so we shall see where it goes from there. I am prone to tummy troubles already, so I'll keep up on the anti-C meds!
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Well, my steriod dexamethasone knocked me out of sleep again last night from about 2:30-5:30. Thank goodness I only take them for 3 days after chemo!! The combination of them and the other anti-nausea drugs are doing the trick, but I really would like a full nights sleep. The dog was interested when I came downstairs at 3:30am tho.
I'm a little nauseous this morning, but not bad. Took a gravol, and I'll take my dexamethasone and emend in about an hour. Nurse is coming at about 9:45 to hook up my hydration for the day. Hopefully that will stave it all off for another day.
Had my first neulasta yesterday...interesting that you guys are talking about a patch on your arm that auto injects. I got an actual needle that I will have to give myself in the stomach. Wonder why the difference? Don't seem to have any aches from it yet. Hope that lasts too.
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Hi Ladies-
Sorry for the delay in my update. Session went fine, we were there for about 4 hours. They gave me emend iv before the infusion. After, we ran an errand and I went for a walk when we got home. Around 5:30 the nausea and diarrhea hit. It was like a stomach virus times a million. I took a perchlorperazine and slept until the next round. This morning isn't too bad, I'm going to try to get some fluids in and go to work. My neulatsa will inject around 5:30.
I hope you are all doing well. We can do this!
Have a good day,
Kelly
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Hi Everyone,
I get my port next week. I am very anxious when I wake up in the morning. I usually wake up at 4 and try to go back to sleep. This is all so overwhelming. I get nauseous easily so I'm not sure what going to happen with the chemo AC/T. I am working a new job so I am hoping SE are not too bad.
Grandmama your diagnosis seems similar to mine. Is anyone going on hormonal medication during chemo or perhaps started them already?
Are you getting much support from you friends? Some of mine have not even called.
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Leslie, hang in there. Hopefully sleep will find you soon!
Kelly, ick on the D so early on day 1. Good luck with the Neulasta, it's easy since you don't really feel it.
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So far so good this morning! Didn't get much sleep, despite taking a melatonin. I was up every 2 hours going to the bathroom. It was like being pregnant again! I guess I drank a lot of water yesterday lol. No nausea at all so far.
That's too bad about your friends Nanpop. I unfortunately have friends and family who have been through this before and they understand how much it means just to get a text that they are thinking about you. I find a lot of people who have not had to deal with a friend or family member having cancer just do not know how to help and may be counting on you to ask for it.
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I get my port placed on November 9. I start chemotherapy on November 15. I will also have AC + T (Taxol) every two weeks for eight cycles (four for AC and four for T (Taxol)).
If there's a thread with information on items one may need or want for chemotherapy, please point me in the direction of it. Thx so much.
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hey y'all:) I had my first chemo treatment on Nov 1st. Every 3 weeks for 6 cycles. I'm also on the neupogen shot for 6 days straight after each treatment. Anyone else doing this? Just wondering how youre handling the bone and muscle pain bc so far that is much biggest side effect :
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amw5- In this chemo section up at the top is a thread that has one master list for chemo stuff. I printed it out for myself because I can't remember anything ever. I'm looking it over and figuring out what will work for me and what won't. In any event, it's a good place to start! I hope that helps.
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javamama
Thx so much.
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No problem, amw5. We need to stick together and be as helpful as possible!
On another note... anyone got their wig yet? How the HELL does one go about figuring out how to even pick one? I've never even looked at one before. So, it's be nice if I knew what I needed and all that.
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Just got home from buying mine Java! Tried on about 10, but the very first one she put on me is what I bought...it looked exactly like me, style and all. Not very adventurous. lol
I have a store in my town that caters to ladies that have had mastectomies or other cancer treatments. She has wigs, caps, scarves, hats etc for hair and all the bras that can hold a "fake" if needed, other stuff. Nice store. Had a fitting room in the back; she tried the wigs on until we decided and off I went! It was painless.
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Javamama, I would google wig shops in your area, because you really do need to try them on first. Plus if you still have hair now, it will fit differently when you don't. So you'll need to wear some cap that will hold the hair down now.
Amyemn, yay for still feeling good! I'm on day 3 and still feel good as well. No nausea at all and no stomach problems yet either. My scalp is tingly though, kinda weird. I'm wondering if it's the Neualasta in my skull. I'll definitely take it, if this is all I have to deal with right now.
Leslie, glad to see you find a wig and that you're well enough to be out and about!
Amw5, welcome to this crazy group of warriors!
Country3223, I think a few of us are on the Neulasta self injector patch and some are giving themselves the shots. Taking Claritin (yes, an allergy pill) can help with the bone pain, as well as Alleve. I started Claritin 4 days prior to the Neulasta injection and will take it another few days after too. Check with your MO on the Alleve though. Some MO's want you to take Tylenol since your liver is already taxed from the chemo meds. Which meds are you on?
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