Starting Chemo in Nov 2016

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  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    thank you very much, gmmiph. I feel I am as ready as ever. Got my headcovers.com stuff in today. I'm thrilled, everything is really cute!

  • Nanpop
    Nanpop Member Posts: 75
    edited November 2016

    Hi. It looks like I will be starting chemo in November. OMG. I find out today which kind. I believe it AC-t. It will most likely be double dose over four months.

    How's is everyone doing?

    I heard put ice on hands and feet to prevent neuropathy. But. I don't know if that applies to this drug.

    Positive thoughts everyone and stay physically active and drink a lot.

  • Tunegrrl
    Tunegrrl Member Posts: 196
    edited November 2016

    Leslie, it is totally okay to do chemo infusions without a support person. I did three of my four that way and it was perfectly fine. Took a lot of bravery the first time i went alone, but really it was smooth sailing and the nurses were kind and lovely. I appreciated the time to just rest and read or whatever.

    Nanpop, icing hands and feet is for protecting finger nails and toenails from Taxotere. Much colder than scalp cooling, by far. Some people have mentioned icing to prevent neuropathy, but really it is just for keeping fingernails and toenails from turning black. B6 is for neuropathy according to these forums, so i took that sometimes. Not sure it worked, but i had no neuropathy.

    You gals that have had mastectomies, i think that is a much scarier thing to experience than chemo. I'm awaiting genetic test results and would gladly go completely through chemo twice more if would mean i can keep to my plan of lumpectomy + lift + radiation and not have mastectomy + reconstruction.

    Best of luck to everyone

  • pmevans50
    pmevans50 Member Posts: 54
    edited November 2016

    Hi Momandwife36 and anyone else who had their first treatment today - I hope today went well. If you're up to it, would like to hear about it.

    And to everyone starting tomorrow? Nothing but good thoughts!! :-)



  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    Tomorrow is my day. Can feel the stress moving up my back. Deep breaths. Onward....

  • Jenny22
    Jenny22 Member Posts: 1
    edited November 2016

    Hi all,

    Had my first chemo today. I'll be having Taxol/Herceptin once a week for 12 weeks then Herceptin alone for an additional 9 months.

    I felt like I made it way worse in my mind (did the same with my mastectomy and port placement too). Checked in and had my vitals taken, went back and they accessed my port for the first time. I used Lidacaine an hour before and didn't feel a thing upon injection. The only part that bothered me was the wiping of the area where the port was because it's still sore. Next, they ran the salene, the steroids, and the Benadryl. It was a weird feeling because the steroids made me awake and the Benadryl made me sleepy. I did fall asleep at some point but not for long, maybe 20 minutes? I did have to use the bathroom a million times...just remembered that.

    After all that, they started the taxol which took about an hour. I felt nothing with that. Finally, the Herceptin that took an hour and a half. Then they came over and flushed my port, monitored me for a few minutes and I was done. I came home and slept for a good 2 hours and so far, am feeling good.

    Wishing you all a non-eventful first time! I'll have to check back and see how everyone is doing. :)

    Jen

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi to all November Chemoladies,

    Wishing you all good luck in your chemo sessions. Try thinking of happy thoughts and focus on a bright future ahead of you. I'll be getting my chemo tomorrow and i have lots of soothing christian songs to go with it. I do have this particular song though,that keeps playing on my mind...

    Oh no, not I, I will survive
    Oh, as long as I know how to love, I know I'll stay alive
    I've got all my life to live
    And I've got all my love to give and I'll survive
    I will survive, hey, hey...

    All the best ladies and no goodbyes please.

    gmmiph

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    hey PMevans, I'm ready for tomorrow. Leslie, Stef,and I are gonna do great!

    Nanpop, welcome! I think a lot of this group is doing dose dense. I'm also going to be doing 4 months of AC/T.

    Jenny22, thank you for sharing. Hopefully ours will go as easy. I'm planning to drink a lot of water ahead of time, so I know I'll need to pee a bunch.

    I'll write tomorrow night and let you know how it goes!

    💕

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    ei Nfullblume, Hugs and prayers for you sis.

  • fromtritotam
    fromtritotam Member Posts: 29
    edited November 2016

    Glad the 11/1 ladies did well and good luck to the 11/2 ladies! Keep us posted and I hope the side effects are not too bad. I got my port today and am ready for Thursday.


    It's interesting that most of us are dose dense and there are quite a few late 30's/early 40's ladies- I guess my MO was correct when he told me that cancer is usually more aggressive in younger women.


  • Nanpop
    Nanpop Member Posts: 75
    edited November 2016

    Hi Ladies,

    My MO said I will have AC-T dose dense for four months. He said my hair will fall out. Does that mean all of it? He also said the T causes neuropathy. So I will up my vitamin b-6.

    Any other tips?

    Do I need a port?

    He also told me to exercise for 30 minutes a day just enough to break a sweat. Anyone ever heard of that

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Kelly, I think you'll start seeing more of the younger folks because of how good mammograms are getting. 1 in 8 is a staggering ratio! I'll let you know how it goes tomorrow.

    Nanpop, all of your hair will fall out on AC/T, as in all of it. Lol! ;)You need to ask the MO on B6, I'm not allowed to take it during the AC cycles. Excercise is a great way to feel better and metabolize that crap out faster. I'm definitely planning on walks. Adriamycin is really tough on the veins, so it seems most doctors recommend the port. My veins are little and elastic, so it was a no brainier for me.


  • fromtritotam
    fromtritotam Member Posts: 29
    edited November 2016

    Nanpop- yes, most of your head hair will be gone in10-14 days after first treatment. Slow growing hair takes a little longer. I'm excited about not having to shave my legs :). Will you have a "chemo chat" with one of the nurses at your cancer center?


    Rachel- there are 3 ladies in my office at work (125 people) and I am the 3rd mom in my 9 year old daughter's class! We are all in different stages of treatment and suppprting each other as much as we can.

    I agree on the exercise- it's my goal to walk at least 2 miles a day. Hold me accountable :).
  • Nanpop
    Nanpop Member Posts: 75
    edited November 2016

    How about cold gloves, booties, and caps, anyone using those?

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Kelly, wow, the 3rd mom? That's crazy! Thank goodness you have them forsupport. I love this group; being able to talk about it is so comforting.

  • susicaldy
    susicaldy Member Posts: 2
    edited November 2016

    Hello, I started Chemo 3 weeks ago. I go in every 2 weeks for 2 months and then every week after that thru April. Surgery was suggested last due to fear of lymphedema. I really wanted to continue working but that did not happen since I work at a grocery store. Who was I kidding right?! I cut my hair this past Sunday because it made me cry every time my long hair fell off. I feel sick most days and start to feel much better closer to the next treatment and the cycle begins!! I try to stay positive since I have an 11 year old daughter and you know, life goes on right?

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    You can do this susicaldy. I can do this. I truly believe positive thoughts are more important than anything else. I WILL beat this.We can do it together.

  • javamama
    javamama Member Posts: 119
    edited November 2016

    They have me slated to start the chemo during the week of the 14th. Monday is a CT full body scan, bone density, and echocardiogram. I go to chemo class the day after. The docs talks to me about my tests the day after that. And then literally the next week, I start chemo.

    I feel like my brain is going to explode. I found out I had cancer in August. We thought it was a small tumor and no node involvement. But when they opened me up for my UMX last month, big tumor and positive nodes. I'm in a full on tailspin. My very doable surgery/recon/tamoxifen plan was completely blown to smithereens.

    I don't want chemo and to lose all my hair. I don't want radiation and to have skin/fat damage. Jesus. I feel like screaming and crying and just hiding. And I am PISSED that I didn't find this earlier. Like seriously. Ugh.

    AC/T are my poisons. AC for 8 weeks, given every 2 weeks. Then T for 4 weeks (I think). Maybe it's 8 weeks. I know it's not the one every week for 12 weeks. It's the shorter course with the higher dose. Double Ugh.

    Shit. Shit. Shit.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi javamama, welcome.

    I am sorry to hear your experience. I guess we all have gone thru anxious moments when we find out that we have this nasty disease. I fully understand youranger, confusion and anxiety. I myself is in disbelief. Ive tried to be healthy throughout my life, but still cancer found its way to me. Its miserable and this feeling is shared by most if not all of us here.

    Maybe what you can do is to release your emotions somewhere where nobody could see you, if that would make you feel better afterwards. You can have support groups such as here on BCO, where you can find many nice ladies willing to help you thru their own personal experiences. You can learn a lot from them, from their medications, to diets, to releasing stress and controlling emotions. Really a big help.

    Then try to focus on your future, by setting a goal or having an inspiration from someone here who has survived this disease for so long. Like maybe think that you will be the first one in your family to beat this, i do this coz we have a long family history of cancer, no survivors, and i am determined to be the first.

    Relax thru music or hobbies. Reflect thru prayers, gain friends, reconcile with your loved ones, etc.

    Wouldnt you be happy and proud to beat the odds? Yes, of course. and all of us here willl try and support you.

    Dont accept defeat without a fight. You can get thru this. We all can.

    Wishing you well and praying for you and your loved ones,

    gmmiph

  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    I'm home from my injection. Not too shabby! I woke up with a sore throat today and thought they may delay me. Doctor put me on a Zpack and told me if I felt like it, I could say go. I definitely wanted to start. Nurses were amazing, port access was easy. Took about 3 hours since I saw the MO too. I've got the Neulasta self injector, so that'll go off tomorrow around 8pm. Had some good chicken broccoli penne and now time to relax.

    I got the brow gel in today too, so I've slathered that on

    How did everyone else fare?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    hi nfullblume,

    I am glad you're ok with your chemo. i am three hours away from mine. Praying for you.

    gmmiph


  • Leslie2016
    Leslie2016 Member Posts: 316
    edited November 2016

    Good luck gmmiph! Positive vibes coming your way!.

    Glad yours was good Nfullblume!!! Nice you can do your Neulasta yourself tomorrow...I have to go to the hospital again tomorrow for the first one, but will be able to do the next 5 for myself.

    Mine was ok too. Was told 3 hours, only took 2, then talked with dietitian, looked at wigs donated to the hospital and stuck around for the pre-chemo workshop as I didn't get to go before since everything was such a rush in this past week. Just made for a long day.

    Little annoyed...doctor gave an order for 3 days of hydration at home by nurse for 3 days after chemo...talked to the agency that runs it on Sunday, said yes, I wanted it as I had no clue how I would feel so wanted to do everything that I can to feel good. They delivered all the "hardware" today, but I still haven't heard from whatever agency is going to come, so I have no idea what time. It takes 4-6 hours...I CAN go out while it's happening, but I can't plan anything when I don't know when they are coming. There's a phone call as soon as I'm up and moving.

    Nothing major so far though. Hope it continues like this.


  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    Gmmiph, you're going to do great! Thinking of you.

    Leslie, glad yours went well too. The Neulasta is a self injector, it's a little cartridge that is stuck to the back of my arm. I hate needles, so happy I don't have to inject myself. They've told me if I need fluids, that I'll need to come back on Friday by 12pm or go to the Saturday clinic and they could call someone in. Hoping to keep enough liquids in me that it's not an issue.

    I'm already peeing some of the red devil out. Happy about that! Do your duty, and then get out of my body! LOL!

    Susicaldy, welcome to our fun little group. HEHE! What medications are you on? It'll be nice to hear how you're doing since you're 3 weeks in. My 16 year stepdaughter lives with my husband and I, so I'm doing my best to teach her it's ok to feel down and to kick ass fighting! I am definitely struggling a bit with that communication though. I can't imagine having a young kid around. Tough!

    Have a great night ladies.

  • DBear
    DBear Member Posts: 9
    edited November 2016

    I am so glad to hear from all of you! I was wondering all day how it was going. Please update when the neulasta injects. I will be getting the same thing starting next Thursday. My port is still so sore. It has been a week since they put it in I hope it feels better soon. I am going to get my hair cut short tomorrow, then Friday I have chemo training. Saturday - wig shopping. Just want to get started so that I can be done with this!

  • fromtritotam
    fromtritotam Member Posts: 29
    edited November 2016

    Leslie and Rachel- glad all went well! Hoping you don't get nausea and need the fluids. My coworker said the neulasts autoinject is not bad at all- it feels like a rubber band snapping your skin.

    Gmmiph- hope its going well!

    Tomorrow is my day! Hope I can sleep tonight, my port is sore and forcing me to sleep on my back. Today at lunch I picked up my wig and ordered some more scarves. Let's do this :)

    I hope everyone has a great evening,

    Kelly






  • pmevans50
    pmevans50 Member Posts: 54
    edited November 2016

    So it turns out I'll be doing AC every 2 weeks for two months then T (not sure which T until tomorrow) once a week for 18 weeks. I start tomorrow and am ready to begin the fight of 'kicking cancer's A$$! :-)


    Nfullblume - so glad today went well. Question: Can you tell me about this 'brow gel'?


    Kelly - I'm with you. My treadmill has been thoroughly dusted off. :-) I'm just going to eat what I can as healthy as I can and do some form of exercise each day to keep the blood flowing. Who knows what will happen?! Everyone has a different experience. Although, the nurse called today and during the call she mentioned she will be calling in 3 prescriptions for me. 2 of them are for anti-nausea, and I thought, "Hooolyyyy crap! How sick am I going to get", but, again, who knows?! Just hoping for the best.


    My sister-in-law suggested I look into using the cold cap. There is one approved by the FDA, but it has to be worn before, during, and after chemo. I'm okay with beanies and caps, and have quite a few. I have a ball cap to break the ice on my first day 'bald' day back to work. It says, "My Oncologist does my hair!" I have to find humor where I can.


    Good luck tomorrow for everyone get their 1st or already subsequent treatment. Thoughts and prayers!!




  • Nfullblume
    Nfullblume Member Posts: 171
    edited November 2016

    When I left today, they attached the Neulasta patch. When they install it, within 3 minutes, it injects you with the needle and leaves a small catheter in you. So the "snap" is already done. It will inject the meds through the little catheter. I've been taking Claritin since Sunday, so hopefully, I'll skirt around the bone pain. By tomorrow at 9pm, I can take the patch off. A best practice to share..I wore a long sleeved shirt with fitted cuffs today and I basically had to strip for them to put the Neulasta patch on. You can't knock it off, so they didn't want me to pull my sleeve back down. I had my sweater, so I just put that on and closed the front. So you will want to wear something that will allow them to access the port and access the back of your arm (opposite side of your surgery.)

    Also, the lidocaine cream works well. I used a qtip to apply about a pea size. I'll use more next time and won't use a qtip that soaks up some of the meds. I used a small square of cling wrap over the site for the hours prior to my labs. That also allows the nurse to touch and feel where the port is, without rubbing off the meds.

    I have a lot of allergies, so I consider today a success that I didn't have a reaction to any of the meds. Injection #1 done. 7 more to go. I'm intentionally not allowing myself to "wait" for the SEs. I'm keeping busy and when they kick in, they do. I don't want to be like "what was that? or that gurgle." I think that will just amplify the anxiety.

    Oh yeah..liquids.. I've had about 84 oz so far, shooting for another 28 oz before bedtime. The nurses made a great point that I hadn't thought about...drink it while you can, because if you do vomit or have the big D..you can't replace as fast as it's coming out. She also said that if you're not feeling great, you may not be able to force yourself to drink. So, I'm trying to stay ahead of it.

    I heard the steroids made a lot of folks jumpy and wired, but I'm not really getting that effect. I stay really busy, so it was kind of nice sitting still for 2 hours today. I'm heading to the couch for more!

    Good lucky, Kelly! I'll be thinking about you tomorrow.

  • javamama
    javamama Member Posts: 119
    edited November 2016

    gmmiph- thank you for your kind words. I'm just thrown for a loop. I thought one thing and another is what's happening. The out-of-control feeling is too much.

    I'm glad you ladies are doing so well. I hope I do half as well.

  • marigoldgirl
    marigoldgirl Member Posts: 15
    edited November 2016

    Glad to hear things are going okay for you ladies. Thanks Nfullblume for the info about the Neulasta patch, my MO told me I would be getting that. I didn't think about them needing to get to my arm.

  • LatinMixy
    LatinMixy Member Posts: 31
    edited November 2016

    I started the same regime on November 1st

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