4 weeks out and still sore. Anyone else?
My Bi-lateral with tissue expanders was Oct 3. I'm still sore, mostly on the sides and more so on the side where the nodes were removed. I've always thought I had a fairly high tolerance for pain, but this is really getting to me. I also get exhausted. Everyone keeps saying that my body is using all its energy to heal. Is that true? Would PT help? I've tried to resume as much of my regular schedule as possible (walking, housework, etc). I've read on other posts how women return to work at 2 weeks, etc., etc., and I feel like I'm being a real baby with this surgery. Thanks for any advice!
Comments
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hi theresef
I'm new but wanted to post. I had double mastectomy w tissue expanders placed at same time 6/23/16. I swear I was exhausted for about 6 weeks!? I thought I'd go back to wk in two weeks!? What was I thinking !? I went back to half days in 4 weeks. Please don't try to do what you cannot. Take a deep breathe and let your body heal at its pace.
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Theresef, you are totally normal. I'm almost 7 months out from surgery and still have sore spots, especially where they did the SNB. I have the anchor type incisions and I've been using silicone strips to help with scarring and to give a little padding under the bra.
I've never been one to nap but I really suffered from fatigue. Any time I got close to the couch I had sleep for half an hour or so. That's finally gone away.
No need to push yourself hard to recover. Just set yourself gentle goals and you'll be back at full powein no time
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theresef - I know exactly how you feel. I had bmx with free flap surgery on 9/27 and still feel exhausted. I have heard that it takes all of 8 weeks to get back to normal but I am feeling the same as you. I do have skin sensitivity and pain - especially under arms and on sides of breasts. Everyone has said to take the time to heal and I understand that this is completely normal for this surgery so I am trying to be patient. I am so glad to be cancer free! Hang in there - we will get there!
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I read somewhere that you need to give yourself one month for every hour of anesthesia.
Im sure I was sore for way more than four weeks after my BMX with tissue expanders. everyone is different. go easyou on yourself.
Also, about "new normal", I prefer to call it "normal for now". you WILL feel like yourself again; I promise!
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I had my bilateral September 26. Still sore and get worn out easily. My doctor said 6 weeks before any vacuuming or lifting more than 10 pounds. I started chemo 2 weeks ago to so I'm blaming some of my issues from that too. I think it takes time. Lately finding anyway to sleep that's comfortable seems Impossible!
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thanks so much everyone! It's so reassuring to hear similar stories, I was under anesthesia for six hours because they put my port in the same time. I guess I'm just being impatient. I've never been a sickly person, only took calcium and I'm 57 years old.
Hkuester: I'm still sleeping on the couch. I tried the bed last night but it hurts to lay on my sides due to the TE. So it was back to the couch! I need that side "wall" of the couch. Maybe that would help you
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Theresef: I slept in a recliner. When I finally moved to my bed I had my husband build a wall of pillows for me. I promise you that will get better. I remember waking up one morning with my left arm over my head, something I had always done and figured I'd never do again. See! And, I also remember one morning waking up ON MY STOMACH!! It will get better. I promise!
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Hi Theresef
I am so glad you wrote about this. I had a delayed immediate mastectomy with reconstruction on 9/07/16 and 09/12/16. I have my expanders in place and will have my exchange on 12/02/16. I also, started on Arimidex on 11/17/16. There are some days I feel great and can do a 3 mile walk around the lake. There are some days I just sit in my chair with ice packs on my expanders. I also had a major surgery in April on my ACL. My doctor says I need to realize that my body has been thru a lot. Two back to back surgeries and then one in April. He says I need to deal with the emotional as well as physical effects that the cancer diagnosis has brought to my life.
Just going to the grocery store and cleaning house is a big goal. I feel like a baby also, I know I have a high threshold to pain, and I am hurting and exhausted. I am hoping to return to work within 6-8 weeks after the exchange. I have a very physical job as a international flight attendant. The airplane pressurization can be very dangerous while healing from surgery.
I am sorry you are in pain and also exhausted-I am right there with you sister!
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I didn't do recon, but even without that:
- I was easily exhausted for about 4-5 weeks after surgery. The first two weeks were the worst, I couldn't go more than 3-4 hours without needing a nap. I didn't stop feeling like I needed a nap after doing something 'strenuous' (and the threshold for what my body considered strenuous was pretty low, like, walking up the basement stairs was 'strenuous') until about 5-6 weeks.
- I was sore in general in the chest and shoulders for about 8 weeks before that started to lessen (I wore my compression garment 24/7 for 6 weeks as it helped with the soreness, then just at night until about 10 weeks). Had to sleep in a chair for probably 4 weeks, then with a wall of pillows in bed to make sure I didn't roll over for another couple weeks after that.
- I'm 4 months out now, and my chest is still tender where my breasts used to be; it's not noticeable for daily activities, but if someone presses on it too hard, I stretch, or when I massage the area it's still sore like a bruise.
My PS told me, without reconstruction, it'll take at least one full year to be considered fully healed and most people still have soreness and swelling for at least 6-8 months after the surgery. With recon, her outlook was the same, just from the date of the final reconstruction surgery instead of from the BMX.
I'd say being sore and uncomfortable 4 weeks out, especially with TEs, is pretty normal.
Frustrating, but normal.
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