Ibrance (Palbociclib)

Shetland, I'm wishing you will get all the answers you need for this current stressful event and that a scan will show you results that will ease your mind. I have to say that 17 points could easily be just a little inflammation for whatever reason. Mine have risen by as much as 150 before with a good scan then corrected later. I think it may have been Rosevalley that has had TM numbers over a thousand....And never ever beat yourself up over not being vigilant on diet or exercise (or whatever). None of us is perfect on any front and the last thing we need is guilt. It is impossible to control all the possible elements in our lives.

With that said, I too am a person who has always needed to be in control, so this whole ride I will admit is making me a bit of a basket case. The least control I have ever had in my life for the most serious event and not much I can do to change it. I am trying to find acceptance of what will be will be. But I sometimes doubt if I will ever get there....

Deanna, I am going to take your advice and recommit to more exercise. I've been a slug now that I a back to work behind my desk. Been feeling stiff and slow and know how badly I need to just move.

Claire, I hope the met gets resolved without the rads, but if not I hope it goes easy, zaps that sucker and leaves no crummy SE's. Ringo and his All Stars sounded like a fun concert! I considered going to see them in Reno. Nothing better the front row at a concert. Great picture!

Thank you, Faith, airlinegal, and Artist. Since my last three scans have been ambiguous, it is hard to know what to think. After the second one of these my onc said, "This scan was supposed to tell us everything." The steady upward TM trend is concerning. But at least nothing big and dramatic has happened.

Lalalady, I'm so glad you got to go to the concert and had such good seats. Take that, stupid cancer!

Yes, the spelling should be corrected so people can find the thread. Also, perhaps we should add "2016" so people know it is a current thread and not an old, inactive one. Like this: Ibrance 2015, 2016 (Palbociclib)

Tonight I take a last anastrozole. Yea, I suppose, too bad it did not work. Off to Ibrance/Faslodex. We shall see what's next. I am glad I am not in control. I go to God with all this overwhelming load and leave it in His hands.

Roosarider, so sorry to hear the anastrozole did not work. I am hoping the Ibrance/Faslodex is the drugs that will knock you into NED. All the best and with God's guidance I am hopeful that NED is on its way to you.

Shetland - No, I didn't. Thanks!

Oh, how fun, LALady1!!! Ringo is such a sweet baby! We're going to see Ron Howard's Beatles doc this Saturday followed by dinner at an English Pub, can't wait. Can't buy me love, but you can buy me dinner!

So I was wondering if you ladies are continuing to have mammograms. With BC Mets, I just don't know if it is necessary. I will be having a pet ct in a couple of weeks and it seems to me that if I were to have cancer in my breast now along with my lung and bones the new breast cancer would show up in that test. Your thought please.

I just found out that with this latest rise in TMs, my doctor has finally switched into something is (might be?) going on and we have to try to find it mode. ILC can be hard to detect, and my recent PET/CTs are not helping us. So I have orders for CT with contrast, bone scan, and breast MRI. Waiting on insurance and schedulers, which means I get to make lots of phone calls to keep things moving. Of course this happens with a big dance performance coming up. I don't have time for this. Of course I am thankful that I have access to these tests. But grrr.

Roosarider, NED is our favorite guy, but he has a reputation for being fickle. We like his friend the Stable Boy, too. (NED=No Evidence of Disease)

cherylking, no mammos for me (per both UCLA and my local onc). The idea is that once our bc has metastasized beyond our breasts and lymph nodes, it doesn't make any difference what's going on in our breast(s); CTs or PETs will divulge anything in the chest area; and hopefully whatever meds we're on for bones or other mets will also attack anything new or remaining in the breast(s). Some situations may call for a different approach, but no need for mammos probably applies to most of us.

Thanks you Cherylking2 for the nice kudos encouragement. And I wish you the same!

I know, right? If we add up the time required for all the things we should be doing, it's at least a part-time job if not a full-time one.

I'd have to say that ILC sometimes shows on scans and sometimes doesn't, and sometimes shows only to the well-trained eye.

lalady, how wa your appointmenttoday with the radiation oncologist for your jaw met?

please don't use my name. Thx. Brixton do not want my name on these replies.

hi all,

took a break from BCO & I see that I've missed alot in the past few weeks. It's particularly hard for me to come to this thread & see Hope's lovely face, her passing hit me hard & I'm reminded of everyone we've lost.

I was on 125 mg, but my counts fell too far, so now on 100mg. But had my 1/2 cycle labs done today & they are pretty low, not sure if they will keep me on it or whether I'll go to 75mg. Otherwise I feel ok, though I find I don't have the stamina for yard work etc that I had not long ago.

so hello to all the new faces here & hugs to all, cheers, dee