MIDDLE-AGED WOMEN 40-60ish

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited October 2016

    In doing the math, my Mom was an old 22 in the picture. Same exact age as my single, footloose, world traveling daughter-so glad she didn't fall into early marriage.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited October 2016

    I really should look into Hospice here. I have my oncs on Wednesday and will find out results of my recent brain and lung CT.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    Eph-so sorry about your brother. I am very close to my 3 brothers so I can't imagine 😥.

    Got to hospital at 8:30 as told and surgery was scheduled for ten. At 9:45 was told she was running an hour behind. When they did get me in they couldn't get the IV in. Took three tries 😆. Port is in now and two cuts to the belly. The gas they put in my belly caused severe neck and shoulder pain. Still hurts this morning. Surgeon told hubby she found two big spots of lobular and took a lot of tissue from there. They are doing the chemo sensitivity test on it. Does anyone know how long it takes to come back? When we asked her about the latest scan her reply was her consentration was on the belly. Made us feel like she was leaving something out. I am sure the oncologist will tell me if it showed up somewhere else. 😆. She couldn't find the right tubing or person to change out the naphostomy.

    We had the worst thunder storm here last night in years. Very weird this time of year. Hope everyone has a great weekend

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited October 2016

    Did they take the whole lobular area out while they were in there??

  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    Barb-she took out the big areas but there is a lot of areas that look like someone sprinkled sugar that the chemo is going to have to get. I don't have as much pain so she had to have taken quite a bit. Love this doc❤️. Old oncologist didn't want them to take any. He wanted to pull a chemo out of his ass and see if it helped. With the tissue samples they can test and know they are giving me a chemo that will kill the cancer
  • MameMe
    MameMe Member Posts: 425
    edited October 2016

    I am so glad you have this onc, and that she was willing to get down to business and reduce the obstructive stuff right away. Chemo can definitely calm down the remaining bits. Finding out the best chemo for the job is worth waiting for, I think. Meanwhile, here's to building yourself back up a bit and winning big at the casino again...🎺🎺🎺!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    Mame- hubby and I were just talking about going to casino on Tuesday. We like going in the day when's it's less crowded.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited October 2016

    Wow!! Sounds like this new onc is really working for you!!! So glad you can feel the difference already. It can only get better from here. Still annoyed for you that they didn't have the right size of tube though.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    Barbe- the dam valve leaks too. Nothing like being in the store and you look down and your leg is soaked

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited October 2016
  • elimar86861
    elimar86861 Member Posts: 7,416
    edited October 2016

    Dianarose, Bummer about the naph. tube. A bit of poor planning to go into the surgery without all the needed supplies, eh? All in all, it sounds like you are at least on the right track now. Thank goodness that they won't just "guinea pig" you through a chemo or two, but are actually testing it for effectiveness first. Nothing worse than trying out a chemo, getting the accompanying SEs, only to be told it's not doing much for you. My interpretation of this new doc "concentrating on the belly" is that nothing else you may have going on would be as major as this, so first get over this hurdle and deal with the rest later as needed. She has to get you out of that pain and eating solid foods. Even if you get the chemo sensitivity results back quick, you may have to wait a short time to heal from the surgery anyway SO enjoy that window where food will still taste good and chow down ('cause you know chemo is likely to change that.) I seriously want to know when you can go on real food again, so let me know when AND what you choose for that first real meal.

    Lita57, Right, they are similar but different because Hospice can be palliative, but palliative care does not have to be hospice care. When my mom was in the ICU, extremely sick and immobilized by strong sedation, nobody was talking "hospice" but they sent a palliative case worker to talk to me. I am not even sure what she was thinking to do for my mom, who was oblivious to just about everything so how much palliation did she even need? Both hospice and palliative care may work with family members but hospice is for terminal illnesses when active treatment ceases, and palliative is more for chronic pain/chronic illness and you can still be getting active treatments. Both aim to improve a patient's quality of life.

    Barbe, you may have different terminology up in Canada. While you can certainly find out more about hospice at any time even if you are a long way off from needing it, your health provider may offer services or counseling from a palliative care worker for you right now if you are having pain or issues that lower your quality of life.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    El- when I was put on this diet I was starving 24/7 and now I force myself to eat something. I hope I get my appetite back soon. Felt sore all over today plus so bored.

  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    El...you're right about the differences between palliative and hospice care.

    Lita


  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    pain is so much better today now that the gas they put in my belly worked its way out

  • Loral
    Loral Member Posts: 932
    edited October 2016

    Diana..glad you are finally feeling better...

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited October 2016

    SO glad to hear your pain is easing!!! I've had the good drugs for years now. All the way up to Fentanyl patches.

  • Positive2strong
    Positive2strong Member Posts: 316
    edited October 2016

    hi elimar,

    I am post surgery and I made it. I have t had much pain and wondering if I will need 3 or 6 weeks radiation.

    My surgery doc said maybe it will be 3.5 weeks. I had clear margins, nodes clear and waiting on my onotype

    I am a.so hoping the anti estrogen drugs will be ok for me. When you say 6 months I hope rads are not that long.

    So happy you are 7 yrs out. What pills did you take I am prog neg so I am not sure how that affects what drugs you get

    Take care and very good to hear from a survivor

  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    positive 2- radiation is about six weeks. Glad that you got clean margins and nodes 👍.

    Blood work on Thursday and chemo next week. Hopefully I will be able to get rid of this naphostomy tube out someday. It's a pain in the ass

  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    Can I just go back to being a little kid again? Lita gets her picture taken with Thomas the Tank Engine at Roaring Camp Narrow Gauge Railroad, Felton, CA. CHECK this off the bucket list.

    (Cross posted this on another thread, too.)

    image


    And of course, we can't forget Percy! (BTW, their little mouths MOVE, and the engines talked, too.)

    image

    And I had to bring my little Giants mascot, Lou Seal and his pal, Mini Olaf. I would have been in HEAVEN if they had had Thomas and his friends around when I was a little kid. DD and DH went with me, too, and we had a fun afternoon. The train ride thru the old Redwood trees was relaxing.

    Lita


  • MameMe
    MameMe Member Posts: 425
    edited October 2016

    Its fun to see pics of Fun! Also great to hear of progress in healing and appetites! Hope this trend affects Pos2 also, since recent surgery. Cancer is tough. We are tough, back. Sometimes. 🐘🐘🐘🐘🐘🐘 Time to put the circle of elephant mothers around Diana and Pos2, I bet its nice in the middle of all that protective energy...just mind you don't get squished

    Hugs to all, Mame

  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    Ok, I need to find help with this naphostomy bag!! Up at 4:30 because it leaked all in our bed!!! It leaks all the dam time. I even taped it. So long and bulky that I now have a sore on my leg

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited October 2016

    Dianarose--call your clinic and tell them you need to see the Ostomy nurse. If they don't have one that can get you in today call your local hospitals. And be sure to call whoever is managing the tube every day to say it's leaking and you need help. You should be able to see someone today for help.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited October 2016

    Positive2strong, Glad your surgery went well! I am replying to your post. First, I mentioned the 6th month period not for 6 months of rads but just as an average time that surgery, rads, and sometimes chemo imposes itself on your life. Sometimes it's a bit shorter; sometimes it's a bit longer (I'm excluding Stage IV here) and I am not including the duration of the anti-hormonals. From DX to finishing rads was about 4 1/2 mos. for me, but I easily spent the next mo. healing from the rads, etc.

    With rads, the shorter is more convenient timewise and if it was offered to me I probably would have taken it; but either way you will get roughly the same dosage. With the shorter duration your fractionated dosage will be larger. I have heard that the longer duration might be tolerated better, but I don't know. Rads is cumulative so, either way, expect some SEs. Two-thirds of women do pretty well, just getting a tolerable skinburn and some tiredness. You have fair skin---but that does not matter for rads, so don't worry about that. Good Luck with it.

    Me, I had Tamoxifen for 3 years. Stopped early due to clotting risk when I had to have surgery for a different cancer and then have chemo for that cancer. After all that, I just could not bring myself to finish off theTamoxifen. As my case got more individualized, I just stepped off the customary path. My MO felt that the benefit I had gotten from 3 years of Tamox. was probably adequate in my case. I think you will have the same selection of anti-hormonal drugs, just based on the ER+ part of your pathology.

    I know you posted more elsewhere, but I don;t get around to all the other threads these days so I appreciate you coming back to fill us in on your progress. Drop in whenever and let us know your rads decision. Taking the next step, moving forward, is always good.

    ------------------

    Dianarose, Agree with NativeM that there should be an ostomy nurse for you to call and get some assistance. I actually got the business card of an ostomy nurse on hospital staff, when I wore my ileostomy pouch, in case I encountered trouble. I am so sorry it has been such a struggle for you to get the help you need.

    Lita57, Those cannot be the actual trains used on the t.v. show, or can they be? Looks fun! Btw, that red lipstick was just made for you.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited October 2016

    Yes, Momine, the BC saga is like the "old school" fairy tales, I mean those grisly ones! You painted a realistic picture of what goes on and used no pink in it at all.

  • Momine
    Momine Member Posts: 7,859
    edited October 2016

    Eli, thanks for reading

  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    Elimar: No, those aren't the REAL Thomas trains that they film on TV....but, shhh, don't tell the children that! And thank you for the complement - I usually wear an off-red shade of lipstick, with more rusty/brick red tones. A true blood-red doesn't look that good on me.

    Positive2Strong: I had 10 sessions of 300 rads (total of 3,000) on my mid spine, T3 vertebrae to shrink that tumor down. SEs weren't too bad. I did have the swallowing issue because the beam goes thru the esophagus. That soreness lasted maybe a week or two. Didn't show up until I was just about thru w/rads. Fatigue wasn't bad at all, but as Elimar said, rads ARE cumulative. I know some people who've had to go every day (not weekends) for six or seven weeks. They got VERY tired.

    Lita


  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited October 2016

    I was Mon-Fri for 6 weeks total I think. I actually felt better energy wise through rads because I was recovering from the fatigue and side effects of the chemo and as those dissappated, I was still doing rads and was feeling better. I got a pretty gnarly burn by the end of it, and have some scarring because of it, but hey, no one but my doctors have seen me shirtless since before the whole cancer thing, so it doesn't much matter! I then did 5 yrs of Femara/Letrozole-glad it's over, but all in all, the whole experience was crappy, but do-able and I am extremely glad it's over!!!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited October 2016

    success 😆 Found the interventional radiology nurse I had fr both tubes. She went and found the right bag and tube and changed them both. She also changed my dressing 👍 No charge either. Bonus❤️.

    Talked to oncologist and start chemo on Tuesday. She said I will probably feel better on chemo then I have the past 5 months. There is a lot of cancer but she is upbeat and says we have a lot of choices. What a difference she is from the old oncologist

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited October 2016

    YAYAYAYAYAYA-that sounds GREAT!

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