Best reconstruction option for the highly athletic?

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Carini
Carini Member Posts: 4
edited December 2016 in Breast Reconstruction

Hello all,

I am 24 and very active. I ski, bike, rock climb, swim, golf, and I do all of these activities very regularly. For those who have had reconstruction and are extremely active, is there a type of reconstruction that worked well for you after a uni mastectomy? It is likely that I will need radiation so implants are out. It seemed like my PS was pushing for the LD reconstruction, but I wasn't as clear as I should have been about how active I am. Giving up these activities is just not an option for me. I don't feel willing to compromise muscle strength. Has anyone had a similar experience and can lend some insight? Thank you all!

Edit: Excuse my lack of proper terminology. I am pretty unfamiliar with this board thus far...

Comments

  • NancyHB
    NancyHB Member Posts: 1,512
    edited October 2016

    I'm not as young nor highly athletic as you are, but I do run (half-marathon training) practice/teach yoga, and am in the early days of becoming a TRX fan, so those activities informed my recon choices. I knew I didn't want implants under my muscles so my PS suggested autologous tissue recon. I had enough belly to create one breast (only had a UMX), and three months later I'm back to my old routines and feeling great (even with a few bumps in the road of recovery). Frankly, I sometimes forget I've had reconstruction - it feels so natural and allows me to do the activities I love. The only challenge has been re-stretching the muscles after the mastectomy, which with time are coming back to where they were before.

    DIEP was a good choice for me, too, even having had previous radiation to the breast four years ago. I believe tissue recon can be completed after radiation, not prior to, but I could be mistaken. The other drawback is that tissue recon is a speciality, and not every PS is capable of doing it so you may have to cast your net a little wider to find a good PS.

  • Carini
    Carini Member Posts: 4
    edited October 2016

    Thank you for your response Nancy! That definitely sounds like a great option for me. I have another appointment with my PS next week. I do have a slight concern though, I already have a tissue expander placed, which I think went under my chest wall. I guess I am sort of at fault here because I never mentioned to them that I was as active as I am, but they made it seem like that was my only option for reconstruction. Does that mean that muscle is compromised now? At my initial consult they mentioned that it wouldn't restrict me in any way from doing any activity that I normally do. Now I am thinking that might now be the case? I don't mind the TE at all. It hasn't bothered me. However, I am not quite back to climbing yet....

  • nash
    nash Member Posts: 2,600
    edited October 2016

    I have been a competitive figure skater for 40 years, and have had all sorts of issues with my unilateral LD flap reconstruction. I have an implant in with my flap. Most LD flaps need an implant so the foob has enough volume.

    My chest, side and back have spasms and tightness issues from the surgery. While I don't notice a loss of strength when I skate, I think I would notice if I rock climbed. I feel like I am in an iron corset, or that I have a rock duct taped to my chest, with the duct tape going around my side and across my midback. The tightness is sometimes so bad it's hard to breath. My ribs and spine don't move properly anymore on the surgery side, I have ribs that keep popping out of place, and although my shoulder has functional ROM, my PT says I do not have normal ROM.

    I can function in daily living, and I can skate, but I am extremely uncomfortable 24/7.

    That being said, my case is a very rare one, and it's unclear if my problems are due to the mastectomy or to the LD flap. But when it comes down to it, I think my problems stem from the fact that there wasn't a whole lot of meat on my back to move. I feel like there isn't enough room in my body anymore. For what it's worth, my PS's nurse told me that their younger, fitter patients have the most trouble with the LD flap. And the few women I've met online with problems similar to mine are all on the thinner, active side of things. I've also heard that moving the LD muscle can affect one's golf swing, b/c it affects one's ability to twist side to side. I've definitely notice that issue when I skate and have to check my shoulders against my hips to stop rotation on the ice.

    I'm sorry you have to deal with this at such a young age. I was 38 at original diagnosis, 46 when I recurred and had the reconstruction.

  • Lillypoppy
    Lillypoppy Member Posts: 68
    edited October 2016

    Hi Carini

    You may want to have a read of the forum regarding implants over muscle using a matrix for support. Some ladies on there discuss returning to exercise. Not sure if it's suitable for you but may be worth researching a bit more. I will find it and post for you.

    Lilly

  • LAstar
    LAstar Member Posts: 1,574
    edited October 2016

    Note that your plastic surgeon will only suggest the procedures that s/he can do, so if you want a different type of reconstruction you will have to shop around for a different surgeon. It's not too late to remove the implant if you want to do a free flap procedure like DIEP. I didn't find anyone nearby that seemed to be using the more current procedures, so I traveled to New Orleans and Charleston for my procedures. Given that you are so active and assuming that you had lymph nodes removed, you might choose to be fitted for a lymphedema (LE) sleeve to protect your arm when you are working out. I only had 3 nodes removed, but my LE pops up now and then. Having a well-fitting sleeve on hand and knowing how to do lymphatic drainage massage will help you manage any developments without them worsening. Best of luck in your decisions!

  • Carini
    Carini Member Posts: 4
    edited October 2016

    Thank you all for the replies! My plastic surgeon has suggested several procedures to me. He is extremely well qualified, so I know that wont be an issue. I have spoke with a few more people regarding my concerns, and they have provided useful insight. I am starting to feel more comfortable with all this!

    Nash - I appreciate your comments about the LD flap procedure. I have heard from many that they feel fatigue after it that doesn't quite go away. I am not sure it is something I am ready or ok with compromising. My biggest fear is compromising my rock climbing.

    Lilly - I will absolutely look into what you posted and appreciate it so much!

    Thank you all again. I was pretty ok with my diagnosis, but now that everything is nearing the end I do worry about how I will be affected long term. From the sound of it though I have options that involve returning to all of my same activities.

  • raven4mi
    raven4mi Member Posts: 562
    edited October 2016

    Hi, Carini. Check out this other thread about pre-pectoral (over the chest wall) implants as well. The poster who started the thread replaced under-the-chest-wall muscles with over and was able to return to all her normal athletic activities. Plus the thread has a list of surgeons and locations who are doing pre-pectoral. Good luck with whatever you decide to do.

    https://community.breastcancer.org/forum/44/topics...


  • Carini
    Carini Member Posts: 4
    edited October 2016

    Raven,

    I read into that a little, thank you! I don't think any of those providers are in my insurance range (I am pretty limited to my state). However, I do wonder if I have already gone too far by getting the TE placed under my chest wall. They're cut now so can they ever heal back from that? I don't mind them being there too much. However, I have yet to go climbing or exercise as i am only two weeks out of surgery.

  • Lillypoppy
    Lillypoppy Member Posts: 68
    edited October 2016

    Carini

    The fact you have had tissue expanders already under the muscle has no bearing on having over the muscle implants put in at a later date. For me personally I have had under the muscle implants in for 3 years. I had a good cosmetic result however I have had very little upper body strength and unable to do sports and gardening I enjoyed previously as well as having something called "animation deformity". I am due to have the muscle layed back down and above muscle (called prepectoral) implants with ADM mesh for support in November. My surgeon told me the muscle should return to pretty much normal. Muscle has good memory apparently! Please read Macob4 story on the thread - it mirrors mine

    Good luck with your decisions - you have plenty of time to research the right choice for you.

    Lilly x

  • argynis
    argynis Member Posts: 123
    edited October 2016

    I am just going through the same decision - I rock climb and ski a lot too and just had a DCIS diagnosis in my healthy breast so I have to get the breast removed.

    My other breast is already gone since my mastectomy about 4 years ago. I stayed flat on that side after having a tissue expanded implanted that I just totally hated. It is really not a good decision to have something implanted under a muscle if you climb...

    Do not compromise any muscle for your reconstruction if it is not totally unavoidable - especially do not get a latissimus or TRAM flap.

    I am now leaning towards a DIEP/SIEA flap, but my preference was a PAP flap, which my PS doesn't really want to do. He prefers TMG-gracillis flaps, but I do not want to sacrifice any muscles at all even if the gracillis is not very important. He did not want/could not promise me to not take the muscle during the surgery so I decided against it. Check out Dr. Allen for PAP flaps.

    I do not have a lot of belly fat, but I can live with having small breasts as long as I am able to climb. This is why I am prpbaply getting DIEP/SIEA flaps with some additional fat grafting.

    Send me a PM if you want to connect - would be great to climb together someday :)

  • macb04
    macb04 Member Posts: 1,433
    edited November 2016

    Hi Carini, I amthe woman whocreated the Over Pectoral reconstruction thread. I had a TE put initially under my pectoral. I absolutely hated the miserable tightness. Finally, long story, got my implant put over my Pectoral. My Pectoral strength is back to about 90 to 95% of normal . So don't worry , your Pectoral will recover almost to normal.

  • SkiQueen
    SkiQueen Member Posts: 10
    edited November 2016

    Carini,

    Sorry, I saw this just now. I am also a "uni" and a serious cross-country marathon racer. Did not want to mess with my muscles. My PS was going to do over the muscle implant with a matrix. But because my healthy Breast is small (34AA) and because I didn't care if the recon was a little smaller (lots of women naturally don't have matching breast sizes) we did fat graft of the entire breast. We both knew it was risky because my BMI a is an 18, there is not an ounce of extra fatty fat on me. We did stomach and flanks this summer which produc d a little 'bump', 90cc's. I was surprised how much that helped me psychologically. Last month we did my thighs and knees. Again, everyone was shaking their heads that there is so little fat. Surprise! He managed to get 155cc's (the nurse said "Who knew your thighs were so chubby?") Athletic women have beautiful golden fat that has more 'staying' power. So, right now my recon side is bigger than the natural, but you always lose some and he predicts I will lose right about to the natural one's size. I already LOVE it! It feels and looks completely real (cuz basically it is), it feels almost exactly like me before the mastectomy. This choice will only work for you if you are either naturally small on your healthy side or not concerned about total symmetry, and if you have a PS that really knows how to do this.

    SkiQuee


  • Honeybadger
    Honeybadger Member Posts: 64
    edited December 2016

    Hello Skiqueen! That's amazing. I'm so happy for you, plus your story gives me hope. As much as I might have liked to get bigger boobs out of this awful situation, fat grafting sounds like the best option since my body rejected the TE on the radiated side. By any chance was your PS in NY?

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