December 2016 Surgeries

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  • Kattis894
    Kattis894 Member Posts: 218
    edited October 2016

    I am scheduled for surgery in December, also if nothing changes, however in my case things change all so not sure when it will happen..Have not yet discussed the operation with my doctor but if my tumor does not shrink (in neoadjuvant treatment) it will be a mastectomy in any case. If it grows during treatment I will have my operation earlier which would make sense. I am worried.

  • MyJourneys
    MyJourneys Member Posts: 143
    edited October 2016

    Kattis894, welcome! I'm glad to have someone hanging out here with me. Let me know how things go, and when your surgery date will be.

  • Kattis894
    Kattis894 Member Posts: 218
    edited October 2016

    As you I just do not know so much right now. It will all depend on what happens the next few months. I still have 9 weeks to go with chemo and antibodies. I am triple positive. If I will have a choice on removing some or all my breast I have no clue yet. Not sure if it would be better to remove both ( I have large breasts) I think I would feel strange having only one huge boob, but have no experience and do not know. The doctors have not yet discussed this with me.

  • doglover5646
    doglover5646 Member Posts: 3
    edited October 2016

    Hi. I'm scheduled for surgery Dec. 2. It will be mastectomy on the left side and either reduction or mastectomy on the right, depending on the results of the genetic test. I've never had surgery before, and right now that's where the fear is focused.

  • Tunegrrl
    Tunegrrl Member Posts: 196
    edited October 2016

    Hi Doglover, Kattis and Myjourneys,

    I'm doing neoadjuvant chemo now and will most likely have a lumpectomy and lift on my left side in early December. I met with the plastic surgeon last week and his clear recommendation was to do a lift at the time of the lumpectomy, so he could move things around and fill in the dent. Then six months after radiation finishes lift the right side to match. Lollipop incisions.

    I would not have chosen to do a lift if it were not for the lumpectomy. I really don't like the idea of having slightly reduced areolas plus vertical incisions from areola to crease...but sometimes i think maybe in five years i'll be happy i did it.

    PS says i'll likely lose a cup size. It would be nice if it is not more than that. Currently 32F. Radiation shrinkage being unpredictable, we won't know until we know.

    My priority of course is seeing the cancer go away. I'm awaiting genetic test results and hope i don't have to alter the current plans. It is maybe silly, but i want to be as unaltered as possible when this hell is over.

    Breast MRI next week, hoping for tumour shrinkage. Final chemo infusion this Thursday, and i really really hope i don't have to do more chemo after surgery. My BC surgeon told me after the first two infusions my tumour did not seem to have shown any response to treatment.

    Fear is the worst side-effect of this whole thing. Most of the time i'm peaceful and happy, but sometimes i'm not. Helps seeing i'm not alone.

    Melodie


  • MyJourneys
    MyJourneys Member Posts: 143
    edited October 2016

    Doglover, that's what I'm worried about, too. I've never been in the hospital except to give birth (and those were birthing centers more than hospitals), and am very rarely sick. I just don't know what to expect. I'm going to read all the articles here about surgery, and the posts about what to expect soon. I think I'll feel better knowing more about what to expect.


  • Tunegrrl
    Tunegrrl Member Posts: 196
    edited October 2016

    Kattis, you are fortunate to be getting Perjeta. I wish i could. I suspect you will have enough reduction in tumour size to have the option of a lumpectomy. Best of luck with your remaining chemo

  • MyJourneys
    MyJourneys Member Posts: 143
    edited October 2016

    Tunegrrl, you're definitely not alone! My BS is going to wait to do a lift on my right (lumpectomy) side after the left (mastectomy with immediate implant over the muscle) side heals and settles down. (If the pathology from the lumpectomy doesn't show more than the hyperplasia that's currently there).

    I understand about the fear. Most of the time I'm okay, now that I've had time to process things. But then the fear comes back.

  • MyJourneys
    MyJourneys Member Posts: 143
    edited October 2016

    Tunegrrl, did your surgeon say there wasn't a response because the MRI didn't show shrinkage?

  • Tunegrrl
    Tunegrrl Member Posts: 196
    edited October 2016

    It just felt unchanged to him after two rounds of chemo. He made sad faces at me and questioned the choice of chemo regimen. If i could have a do-over, i'd ask for Carboplatin instead of Cyclophosphamide with the Taxotere. The initial choice was between TC and AC-T, and we chose TC to protect my heart. My ejection fraction was 55.4 so it makes sense to protect my heart and remain eligible for Herceptin, which seems more important than chemo since i'm triple positive.

  • Kattis894
    Kattis894 Member Posts: 218
    edited October 2016

    Melodie (tunegrrl), It seems treatment varies a lot between certainly different type of cancers, cases, ages etc but also different clinics and countries. I am getting treated in Stockholm, Sweden and the standard treatment for triple positive patiens (as I see you are that too) is in my signature. My tumor was much larger than yours when it was found but here it seems FEC is the type of chemo that is given first followed by rounds of taxol, perjeta and herceptin before operation. It is a long run before surgery for me, months. I am more worried about the tumor not shrinking at this point than what my breasts will look like after surgery, I just have not had the time in my mind to even start thinking about the surgery. It is maybe the least of my worries being more concerned about spreading and just letting the fact that I will live with this for a very long time even after surgery slowly sink in. This is not going away any time soon and I certainly hope I am one of the lucky ones that are in it for the long haul. That being said, of course I would like my breasts to somewhat look ok but think the plastic surgeons nowadays can do miracles for us too.

  • Kattis894
    Kattis894 Member Posts: 218
    edited October 2016

    Melodie,

    Reading your signature I believe the size of your tumour might be too small for perjeta before the surgery. (at least according to the information on the perjeta website)

  • doglover5646
    doglover5646 Member Posts: 3
    edited October 2016

    MyJourneys, I'm going to lobby for the hospital to let my husband stay with me over night

  • Tunegrrl
    Tunegrrl Member Posts: 196
    edited October 2016

    Kattis, you are quite right about the size of my tumour making me less eligible for Perjeta. I think in the states it is 2cm minimum to have it. Here in Canada oncologists have to ask for special permission to use it in cases 4cm+. I haven't heard of anyone in Canada having it yet.

    I was at a very informative breast reconstruction information session today, with four surgeons presenting to an audience of about 100, followed by a show-and-tell in a more private room, with a dozen topless women answering questions about their experience, in a sort of cocktail-party format. It was quite extraordinary. All reconstructions followed mastectomy. Many with nipple tattoos, some with simple diagonal scars, and a range of ages and sizes. I think every one of those women probably look exceptionally beautiful in summer dresses. Most i spoke to said they rarely or never wear a bra. And they all will likely age better than women with unaltered breasts. Still, they had a lot of work to do, and some mentioned lasting pain from the mastectomy, years later. I don't think anyone would choose it unless it was the best choice for medical reasons. A very brave and beautiful group of women.

    Going for my last chemo infusion tomorrow :) hope hope hope it is the last i ever do.

  • doglover5646
    doglover5646 Member Posts: 3
    edited November 2016

    i found out that the surgery center has tours on Wednesday evenings. I think I'll feel better once I see the place. Does your hospital have such a thing

  • jcn16
    jcn16 Member Posts: 128
    edited November 2016

    Hi everyone, I'm having a mastectomy and reconstruction (DIEP) early December - right side only. Left breast is clear. Surgery will be at Penn in Philadelphia. Shopping this weekend for post-surgery bras and comfy sweatpants since I'll have a big incision on my abdomen. Any suggestions on the type of bra that's best for DIEP reconstruction? I've heard a soft, front-closure sports bra.....

  • MyJourneys
    MyJourneys Member Posts: 143
    edited November 2016

    I hadn't thought about a tour of where I'm having my surgery. I bet that would help. I can ask questions about how far in the process my husband can accompany me, etc. I'm starting to get scared, and I don't want to be scared.

  • MyJourneys
    MyJourneys Member Posts: 143
    edited November 2016

    I need to read about what to buy for surgery, and post-surgery. I'm feeling very unprepared.

  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited November 2016

    I am 62 and having left side mx, not going to be doing recon as like a few others never been in hospital except for my kids. I dont get sick but I get cancer. No clue what happens after mx hoping the nodes are clear, will be on hormone therapy, hoping for no chemo but I have no choice. I have grandkids I need to see grow up.


  • SPECTER55
    SPECTER55 Member Posts: 77
    edited November 2016

    Hi Sisters,

    I have a mastectomy recovery shirt (HEAL IN COMFORT) that really makes recovery a tad bit easier. It has Velcro button front with internal pockets to hold drains. It also comes with an individual apron to hold drains also. My exchange was complete last month and I no longer need it. It is an extra large. I paid $58 for it. If anyone is interested in having it for FREE please let me know. All I ask is that you return to this site after you have healed and pass it on to someone preparing for surgery like you were.



    image

  • SPECTER55
    SPECTER55 Member Posts: 77
    edited November 2016

    Yay, I have a taker for the "HEAL IN COMFORT" shirt.

  • thekeensheep
    thekeensheep Member Posts: 24
    edited November 2016

    I am scheduled for a BMX on December 14. They have me coming in on the 13th for my sentinel node mapping, then check in on the 14th, and check out on the 15th. I have my mother coming in, my son coming, my boyfriend and a myriad of friends - all thank goodness. I am having no reconstruction. Today was my pre-op appointment, and I am now on call if there is a cancellation between now and my set date. In the mean time, I am starting my probiotics, my arnica, keeping up with my veggie smoothies, continuing my yoga, and trying to hit the gym. I am going to try to get a few more hikes in if I can. Its going to get cold here in Michigan real soon. I am rearranging the house for all my helpers coming to stay, cooking a lot of food - both my freezers are now full! I am thankful that I am able to spend my first thanksgiving with my boyfriends family this year, and uninterrupted by drains and what not. Christmas won't be so lucky but that is okay. I think I should be mobile by then and I will be working to have my drains out by then hopefully!

    How are you all prepping for this endeavor? Nice to meet you all!

  • Tunegrrl
    Tunegrrl Member Posts: 196
    edited November 2016

    thekeensheep, you sound wonderfully well-prepared! And fortunate to be surrounded by the love and care of people close to you.

    I'm having a lumpectomy + lift December 1st. My son will be staying with his dad for a week, and i'll have my best friend with me the day of surgery and the night after. My dad is eager to help, but lives in Toronto and i'd rather have the simplicity of being alone than hosting a guest. Knowing it is my choice gives me peace and i know the love is there. I would like to have my dad come for xmas instead, when i'll be feeling better.

    Best of luck to all.

  • RedemptiveSufferer
    RedemptiveSufferer Member Posts: 242
    edited November 2016

    Hi, all! I'm glad that I stumbled upon this group. I plan to have a mastectomy on my left side w/TE placed Dec. 6th. I haven't met w/my MO yet, that is scheduled for Tues. I don't know if there's any testing she could possibly conduct that would change the date of my surgery or that would change my desire for a single vs. double MX. Not that my right is a major candidate, but I AM looking forward to the lift "she'll" get once the left reconstruction is complete. :-) Sometimes you just got to focus on what makes you thankful, lol!

  • tlgio17
    tlgio17 Member Posts: 191
    edited November 2016

    Hi RedemptiveSufferer, I am also scheduled for UMX with TE (right side) on Dec 6th. I feel better knowing my surgery date now, but also nervous! I am thankful for this post and all of the tips/hints, etc so we can prepare for this part of our fight.

    Thinking of all these brave ladies on here!!

    Hugs!

    Traci

  • RedemptiveSufferer
    RedemptiveSufferer Member Posts: 242
    edited November 2016

    Thank you, Traci! Dec. 6th will be a date that together we'll remember forever. Just started researching what kind of wardrobe I'll need afterwards and realized I own practically no button up tops whatsoever. I think I need to start doing a little shopping! Have you purchased anything special, like the belt for drains or shirts w/inside pockets for drains? I feel like I'm a little behind. Hugs back atcha ~ Kim

  • tlgio17
    tlgio17 Member Posts: 191
    edited November 2016

    Hi Kim! Yes we will definitely remember this date forever.  We will have to keep in touch so we can compare war stories and keep each other positive on the healing. And oh my gosh, now that I know my date my mind is all over the place with what I need to get done. I don't own one button up shirt either!!  I was just looking at website of a store in my city that sells camisoles w drain pockets, etc.  I guess I need to get going too!  Do you think you will try and sleep in a recliner afterwards?  I have one downstairs we might move upstairs in case.  So much to think about!!  This website has been awesome w tips/check lists, etc.   Still so overwhelming tho!

    Hugs!

    Traci

  • RedemptiveSufferer
    RedemptiveSufferer Member Posts: 242
    edited November 2016

    How great that you live in a city w/access to some much needed essentials. I'll need to order any and everything online, so I need to get started. As for sleeping, my husband started looking at recliners for me, but then sprung and bought a hospital bed! I'm SO thankful! He planned on renting one from a local medical supply company, but then looked on Craigslist and found a near new fully motorized bed w/new in-the-box mattress for less that $250. Total it sells for $1,000 new. The guy even brought it and set it up for us in our bedroom! But friends I know who've gone through this before all had a recliner and it worked well. Happy we're in touch.

  • tlgio17
    tlgio17 Member Posts: 191
    edited November 2016

    Oh that is wonderful about the bed, you will heal in comfort for sure! Did your surgeon say how long you stay in hospital? Mine mentioned overnight but wanted to see if that is the usual for others too. G luck w your shopping spree! Glad we are in touch as well!


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