Feel scared, and too shy, please read

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Momandwife36
Momandwife36 Member Posts: 15

I have an invasive ductal carcinoma. My scans showed nothing in my pits but the lymph nodes biopsies showed the cancer had moved there. Then they tell me, that I have her2neu and tell me that my risk for recurrency goes way up but that there's a drug to take for it? Now I'm waiting on a ct and pet scan that I feel I know is going tell me that I have stage four cancer. And while all of this is going on, I have chemo starting in November, and am at this very moment still healing from a double mastectomy and another surgery because one of my spacers became infected. I'm 36 years old with an 11 and a 12 year old. I have a loving husband and my little brother died 5 years ago, wrecking my mom and dad and sisters. I am frantically searching the internet for information about the cancer, trying to find someone near me who knows what this is like, but I'm so shy I don't want to call a random phone number or just show up at a hospital conference room. When I get discouraged that I can't find people who live near me that I can chat with online, in hopes of maybe becoming friends and meeting in person, then I start frantically searching for the most painless way to kill myself....just so I know I have a way out that won't involve having my husband and children watch me die. I just don't know what to do, I'm floundering.

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  • xxyzed
    xxyzed Member Posts: 230
    edited October 2016

    Firstly, scanxiety is the worst. Fortunately for us there is now medication that is effective for her2+ cancer. Yes it is very scary knowing that we have a high risk for recurrence but we are also fortunate in knowing that beacause of this risk we will receive aggressive treatment and being young your body will be strong enough to handle it. You don't know that your cancer has spread beyond your lymph nodes yet and while it will suck if it has many people even with stage 4 go on to have successful treatment but it does mean that you will likely be having treatment for a very long time rather than a set time.

    With regards to other people join your chemo month group here and call your oncologists office and ask if they can tell you about support groups and charities in your local area. Then you can go to support group meetings and get to know people over time. They will also have counsellors you can talk to.

    Your wounds will heal. It is not likely you will die from this any time soon, if at all and it may be worth seeing your local doctor for anxiety medication to get you through this incredibly difficult, scary period. Yes having cancer does suck, the her 2 positive high risk of recurrence is scary, it does feel very lonely sometimes but when you get your full scan results, your treatment plan gets finalised and started you will start to feel better and might even sometimes think you can do this

  • reflect
    reflect Member Posts: 576
    edited October 2016

    Oh, momandwife, you are in the right place here. I'm giving you a big gentle hug right now. Please, please, try not to worry in advance about the scans. I had one before I started chemo too. It's standard if there is cancer in the lymph nodes. "Dr. Google" is not your friend, there is a lot of outdated and false information there. Read around on this board and you will learn about HER+ treatments. Most importantly, you need to talk with your Medical Oncologist (MO) and ask all your questions and say how you are feeling. You might benefit from an antidepressant or anti-anxiety medication as many of us do. It's a shocking diagnosis and you need lots of support. Please let us know how you are doing.

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2016

    Momandwife,

    First, welcome to Breastcancer.org. We know it's not the place you want to be, but it is surely the best place for support, information, advice, and a place to ask questions, rant, celebrate, and find comfort. We're all here for you, as you can already see by the posts from the wonderful members above!

    We know a breast cancer diagnosis and the treatment planning that goes along with it is extremely overwhelming, and it's hard to sort out your feelings and not jump to conclusions. First things first, you need to gather all of the information about your diagnosis first, before making any decisions at all. And that might even mean getting a second opinion. NO MATTER the diagnosis, you're sure to find other inspiring members here who are living a very fulfilling, worthwhile, and rewarding life after their diagnosis. There's no need to give up when you have amazing, inspirational friends here to lift you up. Again, we're all here for you. Please, if you are having thoughts of harming yourself or suicide, please seek immediate, professional assistance. You may call 911 (or, if not in the United States, the comparable emergency number in your country), visit a hospital emergency room, or call the National Suicide Prevention Hotline at 800-273-TALK (800-273-8255).

    You ask about the drug that can treat HER2/neu positive disease and that is a targeted drug called Herceptin. You can read all about what HER2 status means for your diagnosis and how it's treated on the main Breastcancer.org site's page on HER2 Status. Also, there's a wonderful forum here for HER2+ (Positive) members where you can ask lots of questions and get great information.

    Again, we're all here for you. Please come back often, ask lots of questions, get support and you're sure to gain strength in the knowledge you acquire.

    We hope this helps. Sending big hugs,

    --The Mods


  • Meadow
    Meadow Member Posts: 2,007
    edited October 2016

    mom and wife, you have so much living to do, so much ahead of you, please do not despair over this diagnosis. You can regain your good health, and one day cancer will not be the first thing you think of when waking in the morning. I know That is hard to believe, but true. Did you struggle with depression prior to this diagnosis? Something tells me, perhaps yes? Please let a medical professional help you with that, the above people's posts give great advice. You can do this! Joshua 1:9 "Have I not commanded you? Do not be discouraged, do not despair, for the Lord your God will be with you wherever you go."

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited October 2016

    Hi!

    I was diagnosed with HER2+ breast cancer two years ago. Yes, it is an aggressive breast cancer, but with the development of targeted therapies like Herceptin and Perjeta, it is highly treatable, even after it has moved to the lymph nodes.

    There's no way to know for sure what your CT and PET scans will show ahead of time. But, no matter what they show, they will provide you and your doctors with more information so that they can help you find the best treatment options for you. Even if you are Stage IV, your cancer will still be treatable. There are many women on this message board who have lived several years with metastatic breast cancer; Longtermsurvivor has lived for 25 years with MBC!

    In the meantime, I echo what others have said here. There's no shame in asking for an anti-depressant or anti-anxiety medication after being diagnosed with breast cancer. I'm on Celexa, and have a stash of Ativan for scanxiety. (Better living through chemistry!) Please call your doctor and explain how you've been floundering. He/she could refer you to a counselor or prescribe medication, whatever you think will help you. ((Hugs)) and best wishes!

  • Momandwife36
    Momandwife36 Member Posts: 15
    edited October 2016

    Meadow, I have not had depression every before, I am a generally happy, busy, sing sing kinda girl. Also, I am not religious, but I appreciate that you just mean well and will take that stuff as such, so thanks. And based on what you and everybody else has suggested (strangely enough, my husband has already suggested it) I think I will ask about the anxiety meds. Thank you

  • Momandwife36
    Momandwife36 Member Posts: 15
    edited October 2016

    I appreciate everyone's response, I will talk to my doctor on Monday about some anxiety meds and give that a chance. I appreciate this as an area where I can vent the many conflicting thoughts and ideas going through my head at any given moment, lately. I also genuinely hope you all are also doing ok with your struggle.

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2016

    So many people survive Her+ bc! It probably has the best targeted treatment out there, IF you follow the doctors' recommendations. I got the impression that my surgeon actually wanted me to have Her+ because of that. And, regarding metastasis, there is absolutely no reason to worry about things you can't possibly know, and have no control over, anyway. I had 2 positive nodes and am living large almost 5 years post diagnosis! Best wishes!

  • Meadow
    Meadow Member Posts: 2,007
    edited October 2016

    Momand wife, good to know, and glad you are seeking some help. It is there, you can and will feel better soon. My best to you always, of course! Hugs

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited October 2016

    Hey Chica, Im 36 and about 2 years out. I totally hear you about considering suicide during the diagnosis period. Its totally normal. I know I did to save my family any more pain. But, let me tell you this, and listen close, because I am a wizard. Ask anyone in my chemo group lol. You have to pull up your big girl panties, draw your sword, and effing walk into battle with your head held high. Suicide will not save your family pain. This is a pain in the ass, but totally treatable and beatable. Better living thru chemistry, get some effexor and ativan to get you thru the dark times. It wont be forever. Right now, you hace to use every tool at your disposal to win this war and teach your kid what a real warrior woman is. Pm me if you ever need to chat! No one is ever always positive- sometimes you just have to gut it out. Love and hugs!

    image

  • EmilywithHope27
    EmilywithHope27 Member Posts: 5
    edited November 2016

    dear mama! i hear your heart and want to reach thru this screen with a huge hug! your feelings are so normal and make so much senes, AND ... there is hope. i'd love to write more here but with just a quick moment, would love to share my experience as i've blogged thru much of my journey. www.home2learn.wordpress.com

    big hugs!!

  • chinookmom
    chinookmom Member Posts: 45
    edited November 2016

    Hi. I finish my treatment for Her2+ breast caner 11/16. It does get better. This community is wonderful and so helpful. Also i looked in your area and found through Providence Hospital and found the following in your area:

    Cancer Counseling

    Description: For individuals diagnosed with cancer. Offered by a licensed oncology social worker. Free. For information: (360) 493-7960

    Enhancing Life Through the Cancer Journey

    When: Thursdays, twice per month, 6:30 p.m-8 p.m.Where: Lobby of Providence Regional Cancer System-Lacey, 4525 Third Ave. SE, Suite 200

    Description: A diagnosis of cancer is life-transforming. It can make you feel frightened and isolated. This support group is a safe place to talk about feelings that may be difficult to discuss with family and friends.Contact: Cobie Whitten, PhD, (360) 789-7576

    Cancer Support Group for Patients and Caregivers Radiant Care

    2015 Cooks Hill Rd., Centralia Third Tuesday of every month, 5:30pm - 6:30pm

    Facilitator: Judy Batsko, RN*
    (360) 878-2580

    *Also runs a separate monthly BREAST CANCER support group for both Patients and Caregivers


    Check out this link as well:

    http://www.seattlecca.org/node/2843


    Reach out to this group for free chemo beanies.. Nice ones too!

    Contact us

    Knots of Love, Inc.
    2973 Harbor Blvd. #822
    Costa Mesa, CA 92626

    info@knotsoflove.org
    949.933.7000

    I'm rarely on this site anymore as 16 women from my original started chemo in 12/15 discussion group now have a private Facebook group we keep in touch daily on. I just felt like checking in tonight. Please know there is lots of love and support out there. This website is wonderful.

  • Why2015
    Why2015 Member Posts: 38
    edited November 2016

    Hi,

    I understand you are feeling extrememly overwhelmed. Please reach out for a support group or counselor as you go through this process. You are not alone, and there will be many there to support you. Take things day by day and wishing you strength and good medical care so you can see your children grow up! Wishing you strength and healing!

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