Side effects of 4 major pills

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pacmum
pacmum Member Posts: 2
edited October 2016 in Hormonal Therapy - Before, During, and After

hi I am at my wits end, fmara made me like a speed demon, tomoxefin made me blind in my left eye, arimedex gave me trigger thumb now just this week extreme stance has given me major knee problem. Just got back from a cortisone shot to help, this is all in 2 years. I'm scared don't know where to go. My onco is an idio

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  • RobinLK
    RobinLK Member Posts: 840
    edited October 2016

    Sorry you are having difficulties.

    I have a similar situation. Different side effects, but unable to tolerate the meds.

    I made it just past 2 years on tamoxifen. Tinnitus, fatty liver, pre-diabetes, 45 pound weight gain, plantar fasciitis in right heel, muscle/joint/bone pain and a brain fog so bad I could no longer do simple math in my head. I was miserable and no one was listening. Threw it all away and fired my medical team.

    New team:

    Tried letrozole/femara next. Shortness of breath, muscle fatigue/weakness, neuropathy in hands,edema...to name a few. Discontinued.

    Currently on break from exemestane due to tinnitus, uncontrolled anger, felt like I was ready to jump out of my skin, severe fatigue, increased sugar numbers, 7 day migraine...now I have to decide whether to retry exemestane to see if SEs are gone or try Arimadex.

    I wish I could help with an answer, but wanted to share that you are not alone. I have no idea what to do next. All I keep hearing is I have to be on something because my risk of recurrence is too great.

    I just want quality of life.

    I hope you are able to find an answer.

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited October 2016

    Cataracts are a well-known and common side effect of tamoxifen. Is that what you mean by “blind” in that eye? If so, cataract surgery is practically painless and amazingly effective. My "de-cataracted" eye is now 20/20, when it was 20/80 with astigmatism before my cataracts developed.

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