STEAM ROOM FOR ANGER

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  • Artista928
    Artista928 Member Posts: 2,753
    edited September 2016

    Maybe an fam emergency came up for that doc or something big. Either way, the manager could have gone through her pt list and generated a letter to her pts. Stuff like that really the office staff does it, not the actual doc.

  • april485
    april485 Member Posts: 3,257
    edited September 2016

    BagsSharon, you show amazing restraint not telling her to F@#k off to her face! That was AWFUL and I am glad your manager made her apologize but if I were you, I would make sure this person knew how I felt by giving her the cold shoulder and the stink-eye whenever I saw her. Hugs and hoping no one gives you grief from now on for the days you decide it is hard to go to the office.

    Artista, the OM told me they forbid them from letting people know by phone or mail, and were just told to schedule everyone with the two doctors who are taking new patients after telling them on the phone that she no longer was part of the practice. Why? I have no idea. All seems so strange to me including her abrupt departure.

  • Artista928
    Artista928 Member Posts: 2,753
    edited September 2016

    I've got a doozy for you all. Check out how my apt complex has treated me.

    Labour Day weekend. I'm not feeling well. Figure Mon office is closed so I'll give the check Tues am. Go to office and see a couple there looking at apt info with another guy waiting in line. This gal comes out and I give her my check and proceed to leave. Wait! We can't take your personal check. What? I'm an existing tenant (of 8.5 years). She repeated that line a total of 3 times. I was so pissed that I knew I had to leave or they'd be calling the police for disturbing the police. I took the check and said I'm a cancer pt, I don't have time for this bullshit!

    It's not a simple drive to the bank. My credit union is 25 miles away! That's a 50 mi round trip to get a bloody bank note! I'm on meds that really I shouldn't be driving, and map my life around cancer stuff. WTF??! But I decide fine, I'll go and attach a note about what they just did. Couldn't find paper in the car so wrote on back of a sticky that had an old grocery list on it basically what they made me do and stuck it to the bank note. Figured I dare them to contact me again.

    FF to this morning. Find a note taped to my door asking for the $50 late fee in money order or cashier check only. WTF??! You waited a week?? You could have told me when you handed my check back to me to add $50, which really I was an hour late not a day. Labour Day they're closed. No one gets in till 9 am. I went in at 10. Too bad I didn't go before 9 and just put it in the drop box! After 8.5 years not being late and being a good tenant, this is how you get treated. AND they know I have cancer!

    The manager had told me over the course of the year when we ran into each other, if there's anything they can do to help, let them know. Not once, a few times. Ok. 1) Rent? no 2) bringing up a heavy bag on these dreadful stairs? no 3) Taking my personal check that's an hour late? nope. So then wtf did you have in mind? I can't think of anything else! Maintenance? Everyone gets that!

    I'm so out of gas and with this... So I decided I'm not driving 50 mi total for this. I went to Safeway shopping and took $50 cash back. They will receive this in a letter to Terry the manager who made the help offer to me. I'm going to point out the ways they haven't helped me and to give them one last chance by accepting the $50 cash rather than the bank note form. If Casa Arroyo comes back with no can do then I'm in that office and it's face to face!

  • Lita57
    Lita57 Member Posts: 2,437
    edited September 2016

    Artista, that totally sucks. A lot of these little office peons are just "doing it by the book." You are in the right by writing them a letter. Try to keep it as professional as possible and just stick to the facts. Here in the Bay Area (I live the next city down from you), housing is at a premium. Because of the Facebook, Apple and Google campuses, there's not enuf housing and it's driven rents up. You certainly don't want to be labeled "difficult tennant w/attitude" and not have your lease renewed. It'll be more expensive to find alternative hsg. now than it was 8.5 years ago.

    Best wishes,

    Lita

  • april485
    april485 Member Posts: 3,257
    edited September 2016

    I commend you for not going insane on that woman! That person was on a power trip, pure and simple. I don't think it was a "by the book" thing (all due respect to Lita) but rather a chance to give you a hard time because she could. There are people that get off on that kind of behavior. They absolutely could have waived that late fee! Especially since you went out of your way to go get the bank check. I don't know what is happening to human decency anymore. I am at a loss. Hugs and hope that in the end, karma will give it back to the witch.

  • Artista928
    Artista928 Member Posts: 2,753
    edited September 2016

    Thanks ladies. The letter won't be anger filled. I'm doing what I'm told. I paid the rent money order. I know there's a chance they will say cash won't be ok and I'll ask why not as it's even better than bank notes. The point is they don't want personal check. If they say no to cash then I'll have to do it. If they stop and think about it, I'm being quite compliant under my circumstances.

    Lita, actually this place and others are having to lower the rent. Casa Arroyo Apts now on Craigslist has multiple listings with lower rents, and forecast is will get lower next year. They have openings here. No more waiting list or gone before you've packed your bags to move out. Not to say they are worried, but there is a shift now. And should they be shits and not renew my lease then I do have a place to go. My friend has a house with a room in there with my name on it. That's been in the plans for a couple years now. We're just waiting until mother settles in her assisted living home and not say I want to go home every other time before I make my downsizing move over. I'd just rather stay here for now cuz despite them I like it here, for now.

  • joyandpiece
    joyandpiece Member Posts: 72
    edited September 2016

    thanks April485 for kind words. I decided to share with my PCM my continued struggles with the office. She said she is forwarding all of my concerns to the medical director of her (very large) group. I had thought about going to the corporate office myself, but now I don't have to. I don't want to burn any bridges because this group encompasses many doctors in my area. In the meantime, still looking around....

  • Lita57
    Lita57 Member Posts: 2,437
    edited September 2016

    Artista: Wow, I didn't know that about Fremont. I'll have to let one of my friends know because her rent just went up in Dublin and she might want to move if it's a significant monthly savings :o). I do know that housing is tight on the Peninsula because another friend lives over there.

    Lita

  • Artista928
    Artista928 Member Posts: 2,753
    edited September 2016

    Yup. Today Casa Arroyo has ad for not only $1845 rent but $500 off first mo rent as well (latter part good through Sun). This place is cheaper and in good location and all in this area of Fremont. If she does look into this place, there is no bending under any circumstances as you can see from my rant. So far haven't heard about the $50 cash late fee v bank order but it's still very early. They like to communicate by notices so I'm not breathing relief just yet..

  • april485
    april485 Member Posts: 3,257
    edited September 2016

    Man you guys in CA pay high rents. If $1845 is a "reasonable" rent, I hate to see the normal one! In CT (also another pricey place in many areas) 1600 is plenty to pay for a nice place. Since my mortgage is not much more than your rent over there, I guess I will be grateful instead of groaning about the cost in the "tax you to death state" which is the nickname of CT and often seen on bumper stickers around here. Hope it all works out Artista

  • Artista928
    Artista928 Member Posts: 2,753
    edited September 2016

    Thanks April! $1845 is the cheapest rate I've seen for 630 sq ft 1 bd/1b apt. It's insane! I've been here for 8.5 years and I'm not getting much of a break for being a long time tenant. I pay $1775.

  • 7of9
    7of9 Member Posts: 833
    edited September 2016

    First diagnosis, 40 - stage 2b, 2nd diagnosis, 44 = stage 3c. Planning a trip to Disney next year and my asshole father in law wants to have a committee meeting about it. Screw off - we'll play for it ourselves and not be joined at the hip with his highness the king of self centered righteousness and my whack job of a mother in law. What the hell was I thinking even mentioning to them last week about the possibility of my husbands family all going together? We have done countless vacations with my side - so I guess I felt guilty (stupid emotion, why couldn't I have lost that instead of ALL my sex drive?!). Big difference is my family goes to the same place then "plans" on hanging out at the beach or maybe going to the same restaurant once or twice during the week. Grrrrr Stupid rant but seems stupid to blow 4 grand on a vacation with these nut jobs! I warned my husband to gear them down and get them underwraps or I have NO problem blowing off Disney for Vegas. My kid would love to stay at Excalibur and see the Volcano at the Mirage and waters at Bellagio....

  • Jumpship
    Jumpship Member Posts: 305
    edited March 2019

    Thanks for letting me vent.

    I'm not sure which pisses me off more....the fact that my cognition will forever be challenged and my physical state or the fact that my teens couldn't give a rip about "doing their part". Just lectured them on their lack of contribution. Cancer + teens just sucks.

  • hanley50
    hanley50 Member Posts: 146
    edited September 2016

    Ooooh Jumpship....I hear you! Not only do my teens not "do their part"....they have totally taken advantage of my situation (and not in a good way.) I don't even know what to say to them anymore.

    Maryann

  • hanley50
    hanley50 Member Posts: 146
    edited September 2016

    BTW....2 girls ages 13 and15.

  • Jumpship
    Jumpship Member Posts: 305
    edited March 2019

    Hanley- 12/15/16 here. Stuck between feeling like a bad "regular" parent for not training them to have compassion and do their part/take away privileges that matter so they will do something and feeling awful as a "cancer patient" that I need help beyond myself and then having days when I feel I have to choose between surviving (getting exercise, going to doctor, cooking healthy food), being a worker (pay those bills), and being a mom (drive here, take care of that sick kid, etc). Yesterday I was honestly angry at the teens. Who intentionally does nothing when there is work to be done? Who intentionally doesn't do "their" stuff so that the system that is set up for the cognitively challenged person (me) can always find her things (calendar and keys in this case)? Who does that? That is NOT how they were trained! My oldest was the first person people would go to for help right up until I got cancer. The burden then goes to the child-the 12 year old. I feel weak and she can see it. She'll help out or carry the groceries, etc, but honestly it really scares her when she sees that I'm not well...and I do try to hide it from her. I can see her wheels turning. What would life be like without mom? She carries the weight. She is the helper...but I want her to have a childhood free of fearing that mom will die before she is 18. Family pattern is 7 years...so she will not have graduated from high school. Yes, times and drugs and different and I need to have a positive outlook but days like yesterday when my teens come between me and living a "healthy" lifestyle so I can be here just piss me off. Now, I need to dump this negative energy so it doesn't turn into cancer.

  • Lita57
    Lita57 Member Posts: 2,437
    edited September 2016

    Jumpship and Hanley: Here's the deal HIDE NOTHING FROM YOUR PRETEENS/TEENS!!! This isn't the 1960s or 1970s anymore. THEY CAN HANDLE IT.

    Why am I saying this? I AM LIVING PROOF THAT YOU CAN SURVIVE AFTER YOUR MOM DIES OF CANCER WHEN YOU'RE A TEENAGER. My mom got cancer (soft tissue sarcoma) when I was in the sixth grade...being the ONLY girl in a family of 5 kids, I WAS THE ONE who had to take care of her at the tender age of eleven/twelve. There were no shenanigans. If I didn't cook, the family didn't eat. If I didn't help w/the laundry, the family didn't have clothes to wear. I got so good at taking care of a household, that by the time my mom's cancer came back (when I was in high school), I was hired by other families to help them with housework, childcare, washing windows, etc.

    My mom died from her cancer when I was seventeen years old.

    Because I was already trained as a preteen to take care of the household (and grocery shop with my father), Mom's death wasn't as earth shatteringly traumatic as it could have been.

    Kids today (yeah, I sound like an old fogey now, even tho I'm only in my 50s) don't give a shit anymore. Our society wrings the compassion and empathy out of everyone, especially kids. [Exhibit A: Cyber bullying; Exhibit B: Teachers can't really discipline and impart good citizenship anymore or they'll be sued by the parents.] How do you remedy that? Crack down at home, and crack down HARD! You gotta do it or they will walk all over your sick, sorry asses. And your partner/spouse HAS to be on the same page as you.

    My daughter was a major C U Next Tuesday because my husband UNDERMINED EVERYTHING I did to train her to help around the house in her preteen/teen years. I withheld privileges, withheld allowances, you name it; but Daddy Dearest would buy her everything she asked for (so she didn't give a damn whether she got an allowance or not). He wouldn't enforce the "clean your room," "help with the dishes," "fold your clothes," etc. So I ended up with a surly, indifferent monster. [No, she's not a total devil-spawn child...she graduated summa cum laude from high school, was co-captain of the swim team, is an A student in college.] But if I had come down with STAGE IV cancer ten years ago (when daughter was 12), I would have left home and moved in with a caring, compassionate friend rather than deal with her whiny bullshit. She lives in the college dorms now, so when I was first Dx'd, husband took care of me and the house. With all the compression fractures in my spine, and the tumors compressing my spinal cord, I couldn't even dress myself, let alone drive myself to radiation and dr appts.

    Once again, don't hide it from your kids - they're not pre-schoolers or third graders. At my last cancer support group mtg, one patient emphasized that when one family member gets Dx'd w/cancer EVERYONE in the household has to deal with it. You have to explain to them the REALITY that you may not be here in five years. My own mother died within five years. Thank God I wasn't spared the truth and was able to carry on after she was gone (of course, I mourned, and I miss her every day...she didn't get to see me graduate from high school or college; she wasn't at my wedding; she didn't get to cuddle her granddaughter, etc., and NOW I'm going to start crying because my daughter is probably going to have to go thru the same deal, but at least she'll be older than I was).

    Sit the kids down, make a list of what you expect regarding chores, etc., and also list consequences. It's THEIR home, THEIR clothes, THEIR meals. Most importantly, make sure both parents stick to it and ENFORCE those consequences! I'm still pissed at DH for not backing me up all those years ago.

    If worse comes to worse, go on STRIKE, like I did when daughter was in high school. You just tell 'em, "Okay, you asked for it. You're on your own now." I just washed my own clothes, made food just for me, and let the toilet get a big nasty, fuzzy ring in it, and said, "To hell with it." Eventually, daughter got tired of eating frozen pizza, PB&J sandwiches, or a bowl of cold cereal for dinner (she became constipated, ha ha), wearing dirty clothes to school, and sleeping in stinky sheets. As mothers, WE HAVE TO RAISE/TRAIN THEM TO TAKE CARE OF THEMSELVES. I tried to instill this in my husband. "You're not doing her any favors by letting her just slide by. She won't be able to take care of her own apartment when she's an adult," I'd yell at him.

    Good luck to you, ladies. Sorry for my big harangue here.

    Lita


  • xxyzed
    xxyzed Member Posts: 230
    edited September 2016

    Jumpship - you expressed so well those conflicting emotions emotions a parent with cancer has. My boys are 9 and 11 and our family cancer death pattern is 2 years. My kids mostly pull their weight but only because they like to eat and wear clean clothes and they know I won't be doing it for them. It doesn't stop them from complaining about having the worst mum in the world and a sucky family where everyone dies from cancer. Continue the juggle. Hopefully today brings your teens a better attitude

  • 7of9
    7of9 Member Posts: 833
    edited September 2016

    Lita 57 & XXYzed....great posts. Thank you. My son is seven has has to grow up fast. I just tell myself he's already two years older than my cousin was when she lost her mom at 5. It sucks but it's our reality. Deal with it or ....there really is no or.

  • Beaglemama
    Beaglemama Member Posts: 16
    edited October 2016

    getting BC costs money that I would have loved to spend on a vacation or a down payment for a new car or saving for ,my kids' college...people don't realize this, and the sick and tired and scared. They just want to tell you stories about their friend/relative/neighbor/coworker who just sailed right through treatments. Are people really so stupid they don't realize that 80% of what we say is keeping a game face on so others don't judge. Feeling very cynical...

  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    Yeah, Beagle, it's hella expensive. And it's gonna be worse for me because with Stage IV and all my mets, I've been forced into an early retirement. I've filed for Social Security disability, but it doesn't even amount to HALF of what I used to take home.

    Sadly, no more vacations, or going out to dinner once a week, or new cars for us.

    Cancer sucks!

    Lita


  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited October 2016

    After fighting real hard to get to some semblance of normal, I finally had to accept that I was disabled. Due to the fact that at the time of my diagnosis I had been in the US for only 10 years, of course I didn't have a lot gathered in terms of quarters of work/income. So yes, forget about vacations or anything else, welcome to counting every penny to make things work. At least when it happened I had already paid off my house and car, so that makes things just a tad easier.

  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    Yeah, seachain, it totally sucks. Do you have problems with neuropathy from the Tx? I know they can linger for quite a while.

    Lita


  • natstar
    natstar Member Posts: 16
    edited October 2016

    1) I know that my friend is trying to be supportive but I don't need someone laughing, stating "well, at least you get a boob job," as a source of comfort. I know she is trying to cheer me up but honestly I would take my once saggy non cancerous boobs over cancer and now soon to be reconstructed boobs any day. I just wish people would read others and the situation and act appropriately.


    2) Some people should NOT be in healthcare. I don't care who you are or what you look like, patients should be treated with care and respect. Treat people the way you want to be treated. Simple yet so hard for ppl to grasp. I work in healthcare and even with this cancer looming over me I still have to keep it together. I think now I have more empathy at times.


  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited October 2016

    Lita57, yes, among others. Also chemo caused fibromyalgia, AIs caused fast advancing osteoarthritis with cervical stenosis of the spinal cord and nerves, I have generalized costochondritis, post-mastectomy pain syndrome, the lower half of my back is scar tissue from the LD reconstruction, and a few more things.

  • hanley50
    hanley50 Member Posts: 146
    edited October 2016

    Hi natstar - I've had more than a few comments from people who think they are funny. "OOOOH FREE BOOB JOB!!" If they could only see what has happen to my chest. Idiots!! Free my ass!! I feel like I am in prison with no chance of parole anytime soon. I guess they don't get it until they get it.

    Maryann

  • hanley50
    hanley50 Member Posts: 146
    edited October 2016

    And I wouldn't wish this shit on anyone so I hope they don't get it.

  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    Seachain, that's why I dread going on AIs. Endless hell.

    Lita


  • tangandchris
    tangandchris Member Posts: 1,855
    edited October 2016

    I'm angry and a little sad...

    3 years ago this week marks the first time I felt the lump in my breast and then went in for my diagnostic mammogram. I was told right then and there by the radiologist that he believed I had cancer. My life has never been the same and I am now understanding that it never will be.

    I'm still angry that I wasn't given enough information about reconstruction and the risk of infection, I'm angry that I went thru an already terrible mastectomy then to have further complications of Pseudomonas. I was in hell for months, had a terrible PS and just a terrible time. I'm still picking up the pieces and while I'm doing better it is still a struggle.

    I miss my breasts...I miss my sex life. I'm 41 and feel ancient.


    There it is...thank you for letting me vent.

  • april485
    april485 Member Posts: 3,257
    edited October 2016

    ((((tangandchris))) Vent away sweetie. You are much too young (everyone is too young but 20-50 is REALLY terrible in my opinion to deal with this disease) to have to deal with loss of so much in your life. I am angry for you! Hugs and may the pieces that seem to have fallen away return one by one until you have some semblance of normal again.

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