Newly diagnosed. So much to consider.

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Grannemama
Grannemama Member Posts: 10
edited October 2016 in Just Diagnosed

Hi everyone. I'm newly diagnosed with stage 2 breast cancer. We've been watching the lump for a while. Had an ultrasound June 2015. Told ok. Ultrasound and mammogram September 2016. Biopsy 10/3/16 of lump and lymph node. Both positive. Invasive ductile and lobular carcinoma. Grade 2. ER+ 95% and PR+ 70%. HER2 1+ so negative. Ki-67 15-20%. I'm 39 mother of 2 boys 9 and 6.

My mother had breast cancer at 57 so we're doing a genetic test to see. My mother didn't have a test done. She's 5 years cancer free this year. Same diagnosis. Same breast!

I quit smoking this week. I'm also scheduled for a breast MRI. I have small breasts so talk so far has been about mastectomy. But we're considering neoadjuvent chemo before surgery, for lymph nodes. Really like the MO, like the BS, but everyone is putting in their 2 cents about where to go

Any thoughts would be appreciated. So much to think about. Not afraid of surgery or treatment, afraid of being sick and tired. Love to exercise, sad about lifestyle changes or not being able to care for my boys.

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2016

    Hi Grannemama, and welcome to Breastcancer.org!

    We're so sorry for the reason that brings you here, but really happy you've found us. You're sure to find this amazing Community an incredible source of information, support, and advice.

    You may want to check out the main Breastcancer.org site's pages on Your Diagnosis, to help explain what each piece of your pathology means. Of course, you can always ask your questions here!

    Also, there's a wonderful Stop Smoking Support Thread where you can get support and encourage others who have decided to kick the habit! You can do it!

    We hope this helps and we look forward to hearing more from you soon.

    --The Mods

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  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited October 2016

    Hi Grannemama!

    I did neoadjuvant chemo, and it wiped out the active cancer in my breast and lymph node. But, my lump was 5 cm., and my cancer was really aggressive (triple positive). My boob is/was C-cup, so I was able to avoid a mastectomy and had a lumpectomy. That possibility does seem likely in your case, but neoadjuvant chemo does show whether or not chemo works. For example, my doctors were able to compare my MRI and PET scans from "before chemo" to the MRI and PET scans from "after chemo," and they clearly revealed that the active cancer was gone.

    Hope you get your genetic test back soon! I tested negative for BRCA 1 and 2, but if I had tested positive, I probably would have opted for a bilateral mastectomy and oopherectomy.

    Good luck with the smoking! I've cut my alcohol intake by two thirds, but I'm still working on quitting all together.

    ((Hugs))

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  • Niggles
    Niggles Member Posts: 2
    edited October 2016

    Hi, Newly diagnosed - last week. No information of any use to hand. Biopsy confirmed 99% certain diagnosis from mammogram and ultrasound. Without thinking quickly enough I agreed to biopsy before they checked the bookings for consultation with surgeon. So biopsy has 'woken' the monster as it were, but Thursday appointment requested stretched to Tuesday (tomorrow) to meet surgeon. Why don't they think before they open their mouths? Radiologist said he would call but then "if I don't call you call me..." Seriously?? When I am over this I will give them some handy hints, but having said that, they are very kind and I feel in good hands. Big day tomorrow I think. Spending most of the morning on a 'make over' treat so I will rock up to appointment looking the best ever. I feel like I need a 'before' image, and it will give me something to aim for 'after'. Adult sons proof that no-one listens after the "I've got cancer" words. One rang at 2:00am to wish me well for surgery not yet even scheduled. I said I would take the love he sent and please send more next week. Partner - kind of downplaying this. Difference of approach - I want information and to mull over the 'what if's' he thinks it is just a lump will be removed and on we go. I hope he is right. May find out tomorrow. Thanks for the website. When I tell the clinic how to improve their client interaction I will suggest a sheet of helpful websites. Breastcancer.org might be at the top!

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2016

    Niggles,

    We're so sorry you're here, but welcome -- we're glad you found us! We'll be thinking of you and sending our love right along with you today. Good for you, getting a makeover -- whatever works to make you feel good and confident as you begin this journey.

    We're here for you,whenever you need. Please stop by often, share, and ask questions.

    Looking forward to hearing more from you soon!

    --The Mods

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  • MyJourneys
    MyJourneys Member Posts: 143
    edited October 2016

    There's an ILC forum here that I recommend you to read when you get a chance. Lobular is so different and sneaky that the current recommendation is to get a mastectomy right off the back. It's hard to find on mammograms, US, and MRI's even, so they're moving away from recommending lumpectomies until the patient really understands how Lobular cancer works.

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