Newly diagnosed

Menero
Menero Member Posts: 1
edited October 2016 in Triple-Negative Breast Cancer

hi.

New to forum. I'm 33yrs old with a 5yr old and 2yr old. I am currently going through the channels and found out day my diagnosis.

I have a lumpectomy and 2 sential nodes removed 2 weeks ago. I meet my oncologist next week for a formal diagnosis and plan of action.

I was told to have IDC, triple negative, score 3.


Im scared shitless....

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2016

    Menero,

    We're so sorry for the reason that brings you here, but we're really glad you found us. You're sure to find great support here. Our Community is very welcoming, informative, and full of great advice.

    While you wait for the ever-helpful responses of our incredible members, you may want to visit the main Breastcancer.org's extensive pages on IDC, Triple-Negative Breast Cancer, and the helpful section Your Breast Cancer Diagnosis.

    We hope this helps, and that we continue to hear from you. We're all here to support you!

    --The Mods


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  • Jojobird
    Jojobird Member Posts: 203
    edited October 2016

    I am so sorry to hear this. I was dx in late March and have an 11 year old. Mine was stage 3c with 21 nodes. I empathize with your fear. This is the hardest time, after the diagnosis. Shock, fear, terror, grief--/ let your body grieve and run through the emotions it needs.

    This board has been an immense support to me. You are not alone. Please come back and let us know how you are doing.

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  • BevSue
    BevSue Member Posts: 12
    edited October 2016

    Hi, sorry we all have to meet like this. I was diagnosed in September. These boards are a great place to gather information and support.

    Sometimes it all seems overwhelming but hang in there.

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  • Romers143
    Romers143 Member Posts: 8
    edited October 2016

    Hi Menero, Sorry you're here but it's a great place. I was dx August 4th with TNBC - Stage 2B, grade 3 Invasive Ductal Carcinoma (IDC). I have a 15 year old, 11 year old and an 11 month old. This is a great place to be and the ladies around here are wonderful with questions. I'm having a double mastectomy after I finish chemo. I have round 4 of AC (the red devil) today and then I'll do 12 rounds of weekly taxol finishing Jan 5th. Surgery in Feb. Please don't hesitate to ask questions, that's what we are all here for!

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  • blamoms
    blamoms Member Posts: 113
    edited October 2016

    Hi Menro

    So sorry for your diagnosis. I second what everyone says this group is amazing. You read so much info on triple negative and it gets overwhelming. I was diagnosed in dec had my lumpectomy dec 30 with chemo and radiation. I finished it all end of Aug and I am going back to work Nov 1. You can do this there are going to be parts that are hard but it can be done. Any questions just ask we are all here for everyone.

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  • KellyAnne13
    KellyAnne13 Member Posts: 63
    edited October 2016

    I just had to reply to all of you. When I was diagnosed I was devastated. My life changed forever. Treatment was a very very long road and all-consuming. Once the majority of treatment was over was when it all really hit me. I nearly lost my mind. Well, here I am 14 months after chemo and several surgeries and support groups later and I am good. Cancer is no longer the focus of my life. I did all the treatment I possibly could and I can honestly say I just don't worry every day any more. Life has gone on, although it is forever changed. There is hope. Try to find the good in the bad whenever you can and keep moving forward.

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  • ChattyKat
    ChattyKat Member Posts: 28
    edited October 2016

    I was diagnosed in June with stage 1a TNBC, grade 3 1.5 cm tumor. Had lumpectomy and currently going through chemotherapy. Had 4 treatments of AC every 2 weeks and now on weekly Paclitaxol weekly for 12 weeks. What a surprise considering I had a mammogram 8 months before I was diagnosed and there was nothing there. My first chemo was horrible, I was given Neulasta to build up my white blood counts and I was sick most of the time to the point I couldn't get off the couch. Paclitaxol has been easier and even though I have to get shots to keep up my blood counts, they are not Neulasta and don't seem to bother me, at least not yet. The only thing left to worry about is getting Neuropathy which I'm hoping I don't get. I finish this chemo a week before Christmas and then I'll have 3 or 4 weeks off before I start radiation. Not sure how long I will need radiation but I am hoping that I can convince the oncologist to only do 3 weeks of higher dose radiation like they do in Europe and Canada. Clinicial trials have shown the results are the same as doing it for 6 - 8 weeks and the side effects are less when done for shorter period of time. Anybody out there that was stage 1a, how long did you do radiation?

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