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ganzgirl2010
ganzgirl2010 Member Posts: 235
edited October 2016 in ILC (Invasive Lobular Carcinoma)

Hello..I had ILC and a bmx in August 2014. The period following was a little rough bc of multiple surgeries but uneventful. Recently, I went to my spine dr bc I was having severe pain from the left side of my neck all the way down my left arm. He ordered a cervical mri and discovered two herniated discs that are pinching a bunch of nerves. The next morning he called me at work with a critical result he received later that night that found a nodule on my left thyroid. So my pcp sent me for an U/S which showed a 19 mm nodule on my left thyroid and a 6 mm nodule on my right thyroid. Both nodules showed internal flow and tons of microcalcifications. So of course now I'm scheduled for a biopsy on October 12th. I am scared...kinda bringing me back to the emotional hell I went thru two years ago.

My question is...has anyone heard of ILC spreading to the thyroid..even tho I had negative nodes on bmx biopsy ??

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Comments

  • pari143
    pari143 Member Posts: 33
    edited October 2016

    I feel sorry for u dear .I haven't heard ILC spreading to thyroid glands may be it's a benign nodule .I pray for u lots of hugs .

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  • 2timer
    2timer Member Posts: 590
    edited October 2016

    Nope, never heard of that before. Thyroid mets are extremely rare. I'm thinking it's probably something else but once you've had BC, *anything* that shows up on a scan we obsess about. Praying that you don't take this too seriously. Wait for the biopsy -- something tells me this is a false alarm.

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  • shoppygirl
    shoppygirl Member Posts: 694
    edited October 2016

    ganzgirl

    I know that it is very difficult to not be concerned at every incidental finding in a scan but thyroid nodules are very common

    Three years ago I had one found during my work up scans following my bc dx

    It was 2 cm's so I had it biopsied. The biopsy came back clear but I guess due to how it looked, they needed to keep watching it. That and also my thyroid levels were normal at the time.

    After 3 more ultrasounds and blood tests, my thyroid levels came back as hyperthyroid and continued to worsen over 8 months.

    I was sent to a endocrinologist and it was decided that I would go for a iodine scan. After that it was determined that I had a Hot Nodule that was expressing way too much thyroid hormone. The problem with that is that it can cause a calcium depletion and as I take letrozole , which does the same , the nodule had to go!

    Last Friday I went to the hospital and took a radioactive iodine treatment pill. I did have to take precautions at home to not interact with my family for the weekend too much but I returned to work on Monday. There were no side effects

    I have heard ILC can spread to places IDC doesn't spread to but Iike I said , thyroid issues are very common. Also that was one of the first questions I asked my specialist and without her even knowing the stats of my breast cancer , she advised that it would be a very rare thing for it to spread to the thyroid . She had never even heard of it!!

    Anyway , good luck and I am sure this will turn out just fine !!

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  • ganzgirl2010
    ganzgirl2010 Member Posts: 235
    edited October 2016

    Thanks for the advice ladies

    The US showed internal flow and micro calcifications and the nodule on my right thyroid has irregular borders, Ive always had a hyperactive thyroid...THIS IS WHAT SCARES ME. I have never heard of ILC going to the thyroid either, it was just a thought. Hoping its benign..but cant help but think its a new primary tumor. So stressful..I thought I was past all this crap

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  • shoppygirl
    shoppygirl Member Posts: 694
    edited October 2016

    Mine had irregular borders too and it was benign.

    Hugs and good luck

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