Feeling "normal" again

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Notmyself
Notmyself Member Posts: 30

This is my first post. I had a mastectomy (no reconstruction) 4 weeks ago. I am exhausted. I am so sad over losing my breast (2 surgeries that didn't achieve clean margins made mastectomy necessary). Under my arm feels like it is pulling (and the dog ears under there are so uncomfortable) and also feels numb at the same time. I don't know how to get back to feeling like myself again. I feel out of place and awkward in places that I used to be so comfortable. I am a early childhood teacher and have to go back to work soon and that is stressing me out. I am also a mom of 2 and a wife and have a wonderful husband and support system at church. I don't know if the above is "normal". Any thoughts?

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  • LAstar
    LAstar Member Posts: 1,574
    edited September 2016

    Yes, it's very normal to not feel normal! You've gone through several surgeries in a row, and it takes a while to recover from the anesthesia and pain meds. The entire process from mammogram to biopsy to diagnosis to surgeries felt to me like I'd been hit by a bus and was just sitting in the road trying to figure out what happened. You spend so much time researching and making decisions and recovering from surgeries, that you can come out on the other side realizing that there hasn't been much time to process it all. Also, there is a hormonal component to losing a breast. I felt very moody after my MX for a good 8 months. Sadness & rage would come out of nowhere and it was very upsetting to feel so out of control. I don't know the details really, but someone explained that I had lost tissue containing estrogen and that was impacting my mood swings. Be patient with yourself. You will get back to the "new normal" and life will feel really sweet. I found that I didn't sweat the small stuff as much. I also decided there was no reason to wait to use the good china or wear my favorite dress! I was worried about getting back to work too, but it ended up helping to feel productive again. My daughter was also a great distraction and helped me focus on why I was doing all this crazy stuff. Your body will continue to heal, and the numbness will go away in some places and you'll just get used to the rest. Once in a while, you will feel some pain zinging through your breast that is likely nerve regeneration. Take it easy when you can. You still need lots of rest, and one day you will notice that you are turning the corner and getting your mojo back. It won't be long!

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2016

    First, welcome Notmyself, and thank you for sharing what you are going through. Indeed, it is normal not to feel normal as LAstar says. It take time to find your new normal, both mentally and physically. We all get where you are! Hang in there!

  • Notmyself
    Notmyself Member Posts: 30
    edited September 2016

    Thank you for that encouragement!! It is all so strange and i definitely feel like I haven't had time until now to start to process all that has happened

  • Crystalp
    Crystalp Member Posts: 5
    edited September 2016

    just had my mastectomy 1 week ago and found on this community 10 min ago and laying in bed , recovering in pain, scared, unable to operate computers /phones etc very well but found this- and you!! I wish I could help you because I know that's what you were looking for but thank you for your being here- your post helping me!!! In time may someone reach out on here and have exactly what you just gave me- enough "quietness" to sleep for an hour or two cuz I found a place of hopeful answers for now and later- after I rest. Good hope for you too!

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2016

    Crystalp, we are so happy you found us. We welcome you warmly


  • AZ85048
    AZ85048 Member Posts: 2,613
    edited September 2016

    Notmyself and Crystalp - Welcome to 'the club'. Take heart because we've all been exactly where you are - and we've all spent innumerable hours searching for our 'normal'; new or otherwise. Everything you're feeling is 'normal'. It just takes a while to get your bearings - because immediately after diagnosis, your life becomes a whirlwind of tests and appointments. Then comes the surgery and the new you in the mirror, and eventually you'll get to the other side.

    It all takes some getting used to, and time - lots of time; but you've just found about 100,000 other women who 'get it'. So give yourself a break because you've just been through one hell of a surgery, and there's probably more to come. You'll both get through this, but it absolutely takes a while - and it's nothing you can hurry,

    Just know that eventually you'll awake one day to find that the new you isn't quite as strange as she was yesterday. You'll come to terms with the physical changes and someday be able to say it's just who you are now. Good luck to both of you!

  • Yaniza
    Yaniza Member Posts: 140
    edited September 2016

    This is a good place to be in the middle of the night when sleep is elusive. I am really comforted by the heart and wisdom that I find.

  • Notmyself
    Notmyself Member Posts: 30
    edited September 2016

    crystalp, i feel so much better than I did 1 week after...I drove my car and blow dried my hair this week...yay!!! Wishing u some small victories this week as u continue to heal

  • Notmyself
    Notmyself Member Posts: 30
    edited September 2016

    thank u AZ85048 and Yaniza!! ❤️❤️

  • Bluebirdgirl
    Bluebirdgirl Member Posts: 115
    edited September 2016

    I had a bilateral mastectomy four weeks and two days ago. I feel your pain, Notmyself. Your strength will slowly come. This past week I started taking short walks, it made me feel better, although it also felt like a marathon! I am finding myself crying now for no reason and feeling moody. Like LAStar said, it is most likely hormones. Looking in the mirror is hard, but I am getting used to that too, and so will you! Hang in there. We are all strong women and we will get through it!

  • Notmyself
    Notmyself Member Posts: 30
    edited September 2016

    thanks bluebirdgirl! It is calming to know that how I feel is normal! I too started taking walks this past week, and though it felt good to be out, it was also exhausting!! Stay strong❤️ And keep moving forward.

  • radaro
    radaro Member Posts: 11
    edited September 2016

    Im new here and so happy to have found this forum. I am 8 weeks post bilateral mastectomies and feeling physically good but the emotional aspect of things has me a little surprised all of a sudden. Feeling a little sad and sorry when Im always optimistic and strong. Its nice to be here...my family and friends just think Im always strong (which is great ) ...but seriously this has been a derailing experience that Ive made light of for my sake and my kids sake and all. sheeesh :)

  • Notmyself
    Notmyself Member Posts: 30
    edited September 2016

    hi radaro,

    Everyone thinks I am so strong too, but I don't feel that strong. I find dealing with my emotions at this point to be difficult...I appreciate what u mean when u say u feel sad. It is a sad thing. I really thought because it was "early and fully treatable" it would be less traumatic than it has been. My closest friend keeps telling me that I need to be more patient with myself and let myself grieve It's tough

  • Sunnyskies2016
    Sunnyskies2016 Member Posts: 5
    edited September 2016

    Hello to all! I am about a month out from surgery and started rads last week.

    I can relate so much to this post!!

    I was an emotional wreck last night and that is not my style. I think everything has moved so quickly from mammogram to second mammogram, to biopsy to meeting with all the docs and all the tests to surgery and recovery and now radiation i haven't had time to process and its all starting to hit me..... its been such a whirlwind of ... okay, you have cancer. okay, you now meet with this doc. okay, go to this test. okay, now go to that scan. you spend your nights researching ALL the scary stuff on the internet, meet with more docs, more tests, waiting, another appointment, trying to balance work and family and everything else, throw surgery in there and keep smiling on the outside and focus on staying afloat. Now that I know what is ahead and there is a plan, its like my brain has had time to slow down (finally!) and process what the heck I've been going through these last few weeks. and its scary.

    It will be, it is, the new normal. Slowly things are starting to make sense, sort of, and I am trying to live in the moment and enjoy each day. I will be okay. I am grateful for how far I have come, scared for what could be and hopeful for the future. This forum and group of ladies has helped me tremendously. Thank you for that!


  • Crystalp
    Crystalp Member Posts: 5
    edited September 2016

    it's another brand new morning and so many of your posted words have rang true- thank you! The small tear falling from my eyes at moment is because i kow that there are those of you ahead of me in this journey- and I am so grateful for your encouraging and guiding words . And for those who are not right where I am at- I kindly invite you to come along and share what wisdom or even frustration and fears you do have. Because out of the many hours I searched- this is where I belong!!! I got my first tissue expander fill a couple days ago. My surgeon says healing great and I did make her smile when stated my expander fill is like my "little garden " watch it grow now as we water it!!! Tho no chemo my hair seems to be falling out when I shampoo. But I will come back later, growing tired, so please have awesome day!

  • Notmyself
    Notmyself Member Posts: 30
    edited October 2016

    Sunnyskies2- I have found that after the whirlwind u talk about with tests, appointments, and procedures settle down, then the processing of everything starts to come more to the forefront. Being able to express myself with people who understand is so helpful

    CrystalP- Hope you got some rest today. Being tired out so easily seems to be a huge issue for me right now. It's frustrating because I have never experienced this kind of tired before! Yay that your surgeon said u r healing well. It is so nice to get good news

  • KentRunner
    KentRunner Member Posts: 25
    edited October 2016

    So glad to find you all! I had a single mastectomy 3.5 weeks ago on September 7. My story is a bit different. I was diagnosed mid July, so I had almost two full months to process everything that was going on before surgery. I spent many hours grieving over the fact that I was going to lose my breast and that my family had to watch me go through this. I have two children ages 13 and 9, and the scariest part was knowing they had no choice but to watch their mother fight cancer. Once my surgery date was set, it was a countdown in my head that was very difficult. Honestly, the moment I woke up from surgery I was filled with relief and a calm that has surprisingly remained. It was so nice to finally have it done! I had spent so much time being scared and sad that I was ready to be happy again. I'm pretty sure that if I had surgery quickly after diagnosis, I would be spending more time grieving now and having to process everything. The tears that come to me now are typically brought on by the kindness and support of my friends and family. My goal now has been to get back to normal life as quickly as possible. Notmyself, you may find it easier once you return to work and are able to occupy your mind with something other than what you've just gone through. Getting back into a routine will hopefully help in bringing back your feeling of normal. I went back to work this week, and it felt wonderful. I'm still limited in some mobility, but I'm getting better quickly. Give yourself time to be sad, but know that it won't last forever. There is light at the end of the tunnel!

  • radaro
    radaro Member Posts: 11
    edited October 2016

    Thank you notmyself ;) Its nice to be able to say "Im tired of being strong" . We are...but hells bells ! I have a wicked sense of humour that spares me and my loved ones through all things hideous and beyond...but all joking aside this shite is real. We were all likely going along and we all got blindsided with variations and extremes of BC with black and white and grey choices . Its a bit rattling ...and Im glad we can come together to share and care . :) big hug

  • radaro
    radaro Member Posts: 11
    edited October 2016

    it is wonderful to be able to share. I am so grateful for the connection :) Reading each persons journey leaves me a little speechless and very proud of how strong we have all had to be for ourselves, our kids ,our spouses. Im blown away :)

  • calidancer
    calidancer Member Posts: 88
    edited October 2016

    I love this thread! So much encouragement and hope!

    It does get better! I'm 11 months out from my exchange surgery and honestly today I didn't think about breast cancer at all until a friend told me her friend was diagnosed. When I'm naked I do ponder how a revision might make my mastectomy side look better, but usually shrug it off...I'm not much one for pain. Looks pretty good I think to myself, considering all that was.

    The scars are like other scars I have. When I look at them I don't always consider all that went into getting them. It doesn't all come flooding back every time. It has all become a part of me.

    All that intense fear and immense dread has subsided, replaced for me with a lingering, um, sense of uneasy. Sometimes I wonder about it all. I'm a cancer survivor? I'm a cancer patient? That didn't really all happen? I'm the same as I was before?

    💕💕💕

  • Crystalp
    Crystalp Member Posts: 5
    edited October 2016

    I am still learning how to use this forum so please forgive me if I do it in error. My reconstructive mastectomy was sept 15 . My first full wast two weeks ago and I thought I was doing so well- especially with choosing to elect not to restart any estrogen hormone daily therapy treatment. I have learned more about my body since being diagnosed with DCIS and I guess I am grateful for the healthier benefits in that way- but now this minute? My tears are falling and I'm trying to gag my cries with a wash rag. My dear loving husband is at work and asked me to write on here- until he can get home in 2 hours- since I really have no other outlet. If you don't mind then does anyone else just all of a sudden stop and wonder- did the dr clear all my cancer? Is there cancer in the other places of my body- as the same hot flash symptoms appear? I fortunately am blessed with faith where God says "do not fear" yet I do- where I can not even breath a full deep breath. Does anyone else ever feel this?and how do we improve please

  • Crystalp
    Crystalp Member Posts: 5
    edited October 2016

    To AZ 85048I wanted to take a moment to say thank you for posting words that for me - at this moment- are heart healing words. Thank you - may the kindness you delivered be returned to you, especially when needed or surprised with goodness!!!

  • LAstar
    LAstar Member Posts: 1,574
    edited October 2016

    I definitely felt that way! It's very normal to come through treatment with all of these worries. Little by little, you think about cancer less and life more. Don't underestimate the physical, psychological, emotional, and hormonal impacts of a cancer diagnosis! Having a good therapist and survivor group to talk with is really helpful too. Sometimes there is just no substitute for a good cleansing cry. Just let it out, and let yourself know it is okay to feel scared, mad, frustrated, and tired. It just takes some time to process all that you've been through. One of my dear friends who was diagnosed last year could not get her mojo back and found that antidepressants really helped her get back into the swing of things. Exercise helped me a lot, just a little at first, but getting some fresh air and moving around helped me sleep better and feel more myself. Be kind to yourself. Be patient with yourself. Spoil yourself a little with something special. You've been through a lot and you are still dealing with the physical and emotional effects. {{hugs}} to you!

  • radaro
    radaro Member Posts: 11
    edited October 2016

    Thank you Notmyself for your kind words-sorry it took me awhile to get back on. I had my exchange surgery last Tuesday and I'm doing well. How are you?


  • Notmyself
    Notmyself Member Posts: 30
    edited October 2016

    Radaro,

    Glad u r doing well. I went back to work (I am a teacher) a week and a half ago. I am dog tired. Just totally wiped out. And tomorrow is Monday and Halloween. Ahhhhh. But it is mentally good to be back also! Have a good wee

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