Recurrence 18 years after breast cancer

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Well, it looks like the beast is back. In 1998 I had breast cancer with a lumpectomy, chemo and radiation. Five years later, I was found to have two additional primary cancers - uterine and fallopian cancers. I had hysterectomy followed by chemo - bald again - smile... Now 13 years after my last experience with cancer, my CA 15.3 tumor marker tests were elevated so my new oncology doc ordered MRI and PET scans - both showed a mass in same breast and near same area as first cancer. I tried to have an ultrasound guided biopsy but they were not able to see the spot with the ultrasound - it is below my surgical scarring from years ago. My oncologist has now ordered an MRI guided biopsy. I do not know how that will work as my recent MRI had me face down with my breasts falling out the bottom of the table... weird, huh? He further said that even a negative biopsy is not a clear indicator that there is no cancer as it may be hard to pinpoint the exact area and that a mastectomy would be the next step. I think I just want to go ahead with the mastectomy and get it over with though I suppose they may be able to get good diagnostic info from the biopsy - if they wind up with actual cancer cells.

The next thing is: Do I want to go ahead and get a full double mastectomy? Maybe... And: Do I want to consider reconstructive surgery either at the time of the initial mastectomy or later. I am 63 years old with a partner of 24+ years. My breasts were always important to me in the way that only a woman with a truly spectacular set can be - just joking but I have been a 46 G for years. My lumpectomy left me with a left breast that is half the size of my right but still a large DD size. My point is, I have adjusted to that with relatively few hiccups so should I just accept the new chest minus one or two breasts or should I go ahead with reconstruction? Another factor is that I am a type 2 diabetic who has a hard time fighting off any infection. I had almost two years of infection after my lumpectomy. I am leaning towards a left side mastectomy and just leave the right side alone and keep checking it like I have been doing for 18 years.

I am pretty comfortable with the fact of mortality. At 63, I fully understand that at some point I will die. What I will die of is the question. I want life so much that I am ready to have more chemo - bald for the third time... Is the less worry a palliative right mastectomy will provide worth the risk of more infections - to say nothing of the pain of surgery and recovery. I also do not heal well because of my diabetes...

I have a lot to think about. To further complicate things, my oncologist is new due to my previous oncologist moving to another hospital. I know yaw'll can understand what I am going through. I must say I am a bit more cranky than I was in 1998 - but aren't we all? Any feedback will be appreciated. There are probably many ways to look at this I have not considered. Your insights may be a huge help. Thanks for "listening".

Comments

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2016

    First of all, I am sorry you are dealing with this. Again. I had BMX right away, so I cannot speak from my experience, but my mom had a unilateral mastectomy in 1992. She had a new primary last year and had the other breast removed. The back pain she'd had from 20 years of being weighted unevenly disappeared and she feels better than she has in a while. Just adding that as a consideration because no one mentions back pain as a consequence of a uni. She does not however have diabetes. That definitely does complicate things. Perhaps you could get a couple opinions

  • Scarlett1
    Scarlett1 Member Posts: 23
    edited September 2016

    Thanks, KBeee! I had not considered the impact on my back this will have. I have degenerative disc disease on my back (sounds worse than it is - just have back pain and headaches more than most folks...). I am leaning towards just going "flat" having both breasts removed and no reconstruction. The more they mess around in there - the more likely it will be that I wind up with an infection. I may change my mind about this a few times between tonight and when I have to give a firm decision. I think I will try to speak to a couple of Doctors - both surgeons and Plastics folks... I do not knoe how agressive this thing is but I feel like I have time to research and make a good decision. Again, thanks for your input. You gave me something to think about. Regards -

  • wrenn
    wrenn Member Posts: 2,707
    edited September 2016

    I'm so sorry you are having to deal with this again. I wonder if it means that it is slow growing to show up this many years later? (I am curious). Just thinking that chemo (and all that) might be worth it.

    I am type 2 diabetic, turning 70 in a few months, and had a double mastectomy with issues because of drains (infections after each pulled) but incisions healed well. I didn't get reconstruction and it is amazing to me how comfortable life is without breasts. Mine were 48DD (not spectacular) so I don't miss them.

    You seem pretty calm which is good but I do hope you get answers soon and can get on with things if it is not benign. Best regards for easy decisions and smooth recovery.

    Hi KBeee. :-)

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • KBeee
    KBeee Member Posts: 5,109
    edited September 2016

    Tectonic, It sounds like you're getting some really good advice and have great resources.


    Hi Wrenn!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :)

  • Scarlett1
    Scarlett1 Member Posts: 23
    edited October 2016

    Update: My biopsy results are back. It is indeed more cancer. My oncologist says it is too early to tell if it is a new cancer or a recurrence of my old breast cancer. He also told me something very interesting. There is now the possibility to have additional radiation and maybe save the breast with just another lumpectomy. The Radiation Oncologist who does this is in my area and affiliated with my hospital. This procedure is brand spanking new. She actually goes into the surgery suite and does radiation right there then a surgeon does a lumpectomy... So - mastectomies may not be needed. I am going to see her in a week to see if I am a good candidate for this procedure. I am keeping my fingers and toes crossed...

  • KBeee
    KBeee Member Posts: 5,109
    edited October 2016

    I am sorry to hear it is more cancer, but glad to hear you have some different surgical options available to you.

  • juneping
    juneping Member Posts: 1,594
    edited October 2016

    i am sorry to read this....but it's kind of comforting to read it's more localized and you'll have less invasive surgery.

    i wish you the best luck!!

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