Anyone.Starting Chemo in October 2016?

Options
Anonymous
Anonymous Member Posts: 1,376
Anyone.Starting Chemo in October 2016?
«13456742

Comments

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    After numerous delays, I finally have a chemo start date. Who else will begin chemo in October? If you haven't put details in your profile yet, it can be helpful for fellow forum members if you include information about which chemotherapy drugs you'll be getting in the weeks ahead.

    I'm scheduled for port insertion surgery on 10/3 with chemo beginning on 10/11. Let's support each other during our treatment!

    Lyn

  • Julesbabe55
    Julesbabe55 Member Posts: 39
    edited September 2016

    Hi Lyn:

    I'm with you. Start chemo October 4th - had my port placement last week. It wasn't too bad. I'm nervous, scared & trying to stay positive and prepare (especially the hair loss thing). This has been a roller coaster ride for me - who would have thought that at my age (61) this little bump in the road would happen. But there you go. If you haven't seen it yet, there is a "shopping list" thread that has a lot of good information & gave me some questions to ask my MO when I see her next. Certainly need a buddy over the next months.

    Julianne

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    Hi, Julesbabe55,

    I just turned 62 years old and this diagnosis came out of left field. I now know that many of us assign far too much protective power to not having relatives with breast cancer. One of the first questions people asked when they found out I had BC is whether I had family with the disease like that was the primary reason we get BC. I'm using my experience to let friends know that the proportion of women with BC who don't have BRCA, including me with triple negative BC, far exceeds those who do.

    Have you had a CT scan or echo yet? I got that done last week.

    I went to a "Look Good, Feel Better" session. Have you been? The volunteer was super nice & the donated items are great, but she focused on makeup with only brief mention about head wraps and wigs at the end of her presentation. I've been trying to see a volunteer that the chemo class nurse said is great with wig fittings, but neither the oncology center nor the American Cancer Society could tell me when she's on site. Now that I'm closer to start chemo, I may have to call every day to ask if she's there or just go tho the hospital that's closer to me. I've rarely worn makeup or earrings the last several years, but plan to do so since I think I'll look very masculine without hair. I think my ear holes may have closed. I'm always hot so will probably gravitate toward basketball caps & lightweight scarves. Hey, no bad hair days, right?

    I'm working on my shopping list. I already have Claritin, Immodium, an antacid (Costco's version of Pepcid, I think) and some tushie wipes. I confirmed that the infusion center will have ice, both for drinking and icing hands and feet. Where are you on your prep?

    We're doing the same chemo protocol. Mine will be AC every other week for 4 cycles followed by 12 weeks of Taxol. You?

    Lyn


  • Julesbabe55
    Julesbabe55 Member Posts: 39
    edited September 2016

    Hi Lyn:

    We're close in age - imagine that!! Totally agree with you about attaching family history to whether or not you will get this God awful disease. I still rack my brain with the "why me" but can't do that - need to stay positive to make it through this challenge.

    I haven't had an echo or CT scan - you've given me something to ask my MO when I see her tomorrow. HappyI did have a bone scan, chest x-ray & MRI before surgery - all negative outcomes

    I'm going to a Look Good/Feel Better session this coming Tuesday - my nurse coordinator says it's a good session & hopefully it will be. I need ideas about hats, scarves and make-up. Working full time, I've always worn make-up, earrings - the whole nine yards so very interested in what they will have to say/show - hopefully some good suggestions. I've been to a local salon that offered a free wig through the treatment center I go to. Going back next week to style the wig and try it on - that will be surreal.

    I haven't started shopping yet - though making my list. I still have some questions to ask my MO or the nurses based on what I've been reading. There's so much to absorb I find it overwhelming.

    My chemo schedule is AC every 3 weeks for 4 cycles and then 12 weeks of Taxol with Herceptin thrown in for good measure for a year.  I have on my list for my MO why not the every 2 week regimen that I've been reading about - just want to understand the difference between the two. 

    Julianne

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    I didn't get a bone scan or MRI so you probably don't need the CT. My drug protocol is pretty typical for triple negative, but I'm not familiar with triple positive. Each oncologist undoubtedly has her own preferences within standard of care. The time between AC doses probably gives the body more time to recover plus you'll have access to Herceptin to specifically target the HER2 aspect of your cancer while neither targeted nor hormone therapies are available for triple negative. Let me know what your MO says.

    I'm really scared about what's ahead. With getting two opinions from oncology & plastic surgeons, two surgeries and a nasty infection that hung on forever, the process has dragged out far too long. I need to get started so I can get 'er done!

    I think you'll like the nice kit from the makeup presentation. I did the business suit attire for many years, but developed severe Fibromyalgia and had to cut back to part-time work that lets me dresses casually. I've gotten quite lazy about getting spiffied up. ;-)

    Lyn

  • Charlene1
    Charlene1 Member Posts: 72
    edited September 2016

    Hi everyone

    I start Chemo on October 6th, 12 rounds of Taxol

    not looking forward to the next 12 weeks


    Charlene

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    I know none of us is looking forward to the treatments ahead, but welcome, Charlene1! I didn't realize that Taxol was given alone. Is that perhaps because you previously had chemo? I'm so sorry about the throat cancer. Is that possibly related to the breast cancer or just a very unfortunate coincidence? Do you have any required testing out of the way?

    Lyn

  • Skiclaire
    Skiclaire Member Posts: 14
    edited September 2016

    Well I guess I'll join this little club none of us would like to be a part of! I was diagnosed last Tuesday with invasive ductile carcinoma, grade 3. Waiting in the results of the lymph node biopsy and will haveCT and bone scans tomorrow. So far double negative and my MO assumes the results of the fish test will be negative too. Scared to death to get these results and find out my staging and prognosis.

    This is all happening so quickly. Port being put in on Friday and chemo starts Monday 10/3. I will have 8 rounds over 16 weeks, followed by surgery and radiation.

    Looking forward to getting to know you all,

    Ellen

  • Charlene1
    Charlene1 Member Posts: 72
    edited September 2016

    VLH my BC is totally unrelated to my throat cancer seems I won the cancer lottery twice in a year. I have had all my testing done before surgery bone scan cat scan etc. I am confused about just Taxol as well When I asked my MO she at first said 2 drugs then when I asked her which drugs she said just Taxol but Chemo use said this morning a steroid would be added as well


    Hi Ellen the waiting is the hardest part of this I will be headed for rads after Chemo as well

    Char

  • sandybee
    sandybee Member Posts: 6
    edited September 2016

    I have been watching for this thread.........I start Thursday, October 6. Six treatments 3 weeks between each of TAC. scared but prepared :) I hope. I was diagnosed with ILC in August, had masectomy, right breast. High ocono score (36) so here I am doing chemo. 2.5 cm ER+ PR+ her2-. Gene testing negative.

    In 2003 I had DCIS grade 0 for which I had an immediate masectomy and trap flap reconstruction for left breast......thought I was oh so smart, never thought about the "other" breast.

    Not sure how to post my info in my post?

  • Charlene1
    Charlene1 Member Posts: 72
    edited September 2016

    Hi Sandy bee looks like we are starting Chemo the same day I have 12 fun filled treatments to look forward to, last one will be Dec 22nd. Hopefully I will be at home this xmas last year I was in the hospital which sucks?

    You can post your info by going to your profile and under diagnosis treatment etc. After you enter your info go to settings and make it public

    Char

  • Julesbabe55
    Julesbabe55 Member Posts: 39
    edited September 2016

    Hello ladies:

    I've been away from this thread for a while and see we've grown our group. I start chemo October 4th - 4 rounds of AC & then Taxol for 12 weeks. Still trying to get prepared and absorb all the information that is out there. One thing I decided to do was subscribe to one of those meal delivery services (Green Chef) - I won't have to worry about dinner 3 nights out of the week.

    Lyn - I asked my MO about the CT scan and the echo. She thought she had ordered the echo so now a rush to get it done - appointment scheduled for tomorrow. Imagine if I didn't ask! You were right - the make-up bag from the Look Good Feel Better session was pretty neat. Some nice products. With working from home once I start chemo, I doubt that I'll use the products but good to have. Got some cute hats too.

    Welcome Charlene, sandybee, Ellen - we will get through this together

    Julianne

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    Welcome, Ellen / Skiclaire and Sandybee! I know you don't want to be here, but the sense of camaraderie can be helpful during this challenge.

    Ohmigosh, Ellen, what a whirlwind of activity! You'll already be in treatment before you've had a chance for the shock of the diagnosis to wear off, but I'm many weeks out and still can't quite believe I have cancer so that's probably a good thing. I'm a little surprised the oncologist scheduled you for chemo without knowing the HER2 status, but s/he probably plans to just tweak the drugs when the pathology work is complete in a few days.

    Sandy, is the T in TAC Taxotere or Taxol and is the C Cytoxan or Carboplatin? I'm too lazy to hunt down the abbreviations. ;-) Blasted cancer is so sneaky that it could show up in a mastectomy scar if you'd had both beasts removed. Grrrr! I hate this disease.

    Char, I think steroids are typical with Taxol or Taxotere. Two cancers shoo close together. Rats!!! With those odds, you couldn't win a nice cache of cash instead?

    Lyn

  • JR74
    JR74 Member Posts: 44
    edited September 2016

    Hi ladies! I guess I'll be joining you all over here. I'm getting my port placed next Monday and will likely start chemo next week as well. I added my diagnosis/treatment to my profile but I'm not sure if it's showing up??

    It will be great to have a support system here over the next few months! We will get through this together

  • Balbina
    Balbina Member Posts: 5
    edited September 2016

    Hi and nice to meet you, JR74! I am starting chemo tomorrow morning and even though it is technically in September, I think it makes sense for me to be joining your group.

    Good luck with your port procedure!

    I do not have a port for now, my doctor told me I have good veins and left it up to me. However, I already had my surgery (mastectomy right side, lymph nodes removed), so I am not supposed to use my right arm for sticks etc. Let me know how it goes with the port on Monday. Have a great evening!

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited September 2016

    hi ladies!

    I am reading through this thread and i love the support!

    I started chemo Oct 7 2015 and i just want to encourage each and every one of you - you can do this! Ask all the questions you need, and search these boards, they helped me so much. Our bodies are so resilient!

    My thoughts go with you ladies in the next days and weeks to come as you meet this challenge head on.

    If I can answer any questions feel free to reply on here or in a private message.

    Kim

  • JR74
    JR74 Member Posts: 44
    edited September 2016

    Balbina, I also had surgery already..( bilateral mastectomy) on September 1st. With tissue expanders placed at the same time. I was actually surprised when my MO recommended chemo. I thought that since they removed everything and my lymphnodes were negative that I was in the clear! Although they did get everything my IDC (8mm) was grade 3 as well as the DCIS. So that and also being her2 positive and with my age(42) chemo is recommended to lessen the chances of reoccurrence. I'm not looking forward to it! I know none of us are, but I also know it's doable! I'm ready to get started and get it over with so it can be put behind me!

    I went to our local ACA yesterday and received a wig free of charge. I'm still not too sure about it but greatly appreciate it. I think I'll go ahead and get a hair cut in the next couple of weeks. I'm so anxious about the hair loss, maybe cutting it will give me a sense of control when everything feels so out of control!

    I wish you luck in the morning!! Update when you're feeling up to it

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    Howdy & welcome, JR74! On your profile, I think you go to Diagnoses and you'll see a link to Settings, which needs to be changed to Public. Repeat for Treatments. There may be a quicker way, but I believe that's what I did.

    Lyn

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    Thanks so much for stopping by with the words of encouragement, Kim!

    Lyn

  • JR74
    JR74 Member Posts: 44
    edited September 2016

    VLH, thank you! I think I got it corrected

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    Looks good, JR74!

  • Skiclaire
    Skiclaire Member Posts: 14
    edited September 2016

    Thanks for the warm welcome. After what feltlike days on end of bad news, I got some really good news. Bone and CT scans came back clear; no evidence that the disease has spread! I cried like a baby when I learned this. I'm sure the Her2 results are in but I was so overwhelmed I forgot to ask. Meeting with the surgeon tomorrow and should finally get the exact details of the staging.

    Port goes in on Friday and chemo starts Monday morning. Nervous about how I'll do but also anxious to get on with it and kill this cancer!

    Looking forward to getting to know you all better and cheering you on over the coming months.

    Ellen

  • JR74
    JR74 Member Posts: 44
    edited September 2016

    Skiclaire, so glad you got good news today! Any little bit of good news is huge these days! Good luck with port placement and chemo on Monday. Praying you have minimal side effects. I'll be right behind you as I get my port on Monday and start chemo Thursday of next week.

  • ecarrie
    ecarrie Member Posts: 1
    edited September 2016

    Hi, All. This is my first post here - but I've been reading through a lot. It seems like a great place. I was diagnosed on 8/15; had a lumpectomy and AND (1/5 positive) on 8/29, and starting chemo on 10/3. Doing the first dose peripheral and port placement is scheduled prior to 2nd dose. I'm nervous about many things, but after 2 different opinions - I really am struggling most with whether or not I made the right one. I'll have 4 doses (one every 3 weeks) of taxotere/cytoxan. The other MO recommended an 8 session dose dense schedule. OncotypeDX is pending. Aside from being anxious about whether or not I made the right decision...I'm ready to get this started and nip it in the bud!! Otherwise, I'm 41 and have an incredible husband, 14 and 11 year-old boys, a deaf boxer (who we have trained with sign language), an English bulldog, and a mini schnauzer!

    I do hate that any of us are on this journey, but I'm super glad to find that I'm going to be in awesome company along the way!

    Cheers to each of you!! We all got this!

  • JR74
    JR74 Member Posts: 44
    edited September 2016

    Welcome ecarrie! You're in the right place for support and information. I am fairly new here as well. I look forward to getting to know you and sharing our experiences! And I agree with you, this may not be the path we chose but we will handle it as it comes! We (definitely) got this

  • Jackster51
    Jackster51 Member Posts: 357
    edited September 2016

    check out www.aheadofourtime.org

  • BevSue
    BevSue Member Posts: 12
    edited September 2016

    Hi Everyone,

    Well wishes to all starting chemo in October. I will be starting chemo on October 20. Kind of scary. Not looking forward to the next few months. Hang in there everyone.

  • VLH
    VLH Member Posts: 1,258
    edited September 2016

    Hi, BevSue,

    Welcome to the group, BevSue. Our diagnoses are very similar, but I'm taking AC followed by weekly Taxol.

    Lyn

  • Miles
    Miles Member Posts: 62
    edited September 2016

    Hello everyone,

    I am going to be getting my port put in on Tuesday Oct 4. I have my 2nd visit to my MO on Friday Oct 7. I am not sure if I will be getting my first Chemo treatment that same day or not. When I asked the lady that scheduled my appointment; she said that she wasn't sure. I guess I will be playing it by ear.... and finding out the chemo meds when they tell me or I remember to ask.


  • Melindawv
    Melindawv Member Posts: 19
    edited September 2016

    Hello Everyone,

    Just like everyone here It has been a whirlwind time so far. I have done nothing but read all I can and these forums have been very helpful for me.

    I was diagnosed Sept.13 and will have test Oct 3 and a prot the 12th and Chemo starts the 13th.

    I am having 6 rounds 21 days apart then surgery and then possible radiation and more Chemo. My Chemo will be :

    Taxotere, Carboplatin, Herceptin, Perjeta and Neulasta shot the next day.

    Being from a small town and not even knowing any Oncologist from the near by towns it has been a lot of learn as we go, but I like my Drs and they seem to be very intelligent.

    I think we will all be on different routines but reading and replying on here will probably be a wonderful thing, especially since we will be going through this together.

    Melinda


Categories