Reoccurrence of breast cancer in lung

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TerriJo
TerriJo Member Posts: 25
edited January 2017 in Just Diagnosed With a Recurrence or Metastasis

In late July I had blood in my urine and my primary thought I might have kidney stones so he ordered a cat scan of my abdomen - no stones just very bad UTI. The scan did show a nodule in my right lung, so he ordered a chest X-ray followed by another cat scan of my chest. This showed two nodules in my right lung. Got referred to my oncologist and thoracic surgeon, had biopsy and results show reoccurrence of breast cancer in my right lung. (2009 IDC stage 1, grade 3, lumpectomy, IORT and chemo) Had a pet scan which showed only the lung spot and a couple of lightly lit up lymph nodes in my left shoulder and some in my lungs. So this Thursday I will be having surgery to remove the nodule, hopefully get clear margins and not sure what else. This has thrown my world upside down. I can't see past this and am worry for my family. I'm a single mother of two children one in college, a senior in high school, a grandson and another grandchild due in December. My one sister has told everyone that I'm terminal which really irritates me. Can someone offer some advice or what I might expect to happen next? Sorry this is so long but I need a little reassurance that it's not as hopeless as she has made me feel. Thanks so much

Terrijo



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  • KBeee
    KBeee Member Posts: 5,109
    edited September 2016

    Uuuugh. I am sorry you are dealing with this. Breathe. First of all, tell your sister to pipe down. It is not her place to be telling anyone anything. Hopefully there is someone other than her you can bring to appointments and such. The next few weeks will probably bring more answers and a plan. Friends locally that have a single site of metastatsis have done well for years (and continue to), so tell yourself this is how you will do until proven otherwise. You had a long gap between your initial diagnosis and this one, which means that though the cancer is sneaky and went where it shouldn't, it took it's sweet time in doing so. That tends to bode very well. There are some very good threads on the stage IV forum, and I encourage you to go there, introduce yourself, and get more tips on what to expect. I'd also encourage you to seek multiple opinions.

    Keep us posted on how you're doing. ((((HUGS)))) I hate this disease, and hate that it hit you in this way.

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  • bevin
    bevin Member Posts: 1,902
    edited September 2016

    I am so sorry that you're going through this. I don't have experience with your situation but wanted to stop by and give support. I know others who have similar situations will be by soon to provide their input and guidance. wishing you the best.

    Bevin

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited September 2016

    Hi TerriJo,

    First off, I want to slap your sister [figuratively.] Not her story. SHUT UP! And then, I want to offer you my heartfelt support. I have mets to several spots, but not my lungs. We first found those pesky tumors in 2010. Yes, 6 years ago!

    Come over to the Metastatic Forum and join us. You will find people with your diagnosis who can help you navigate this scary world.

    PM me if you think I can be of any help,

    *susan*

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  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited September 2016

    TerriJo- KBeee is right...breathe...there are many here who have had mets and who have lived many years.  Agree with KB- is there someone else who can go to your doc appts....sending healing mercies and hugs your way.

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  • TerriJo
    TerriJo Member Posts: 25
    edited September 2016

    Thanks for the words of encouragement. I do have two other sisters who can and will be there for me. One has a medical background so she knows what kinds of questions to ask. It's just the initial shock of it all that threw me for a loop. I know that I'm in one of the best medical hospital and have a wonderful oncologist. I just didn't want to be doing this again. So I'll get ready to fight for myself and see what happens next. I will be checking out the other forum soon. Thanks again

    Terrijo

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  • Prettymix26
    Prettymix26 Member Posts: 1
    edited October 2016

    I'm going through the same thing I have triple negative breast cancer I had surgery and aster that it spread to my lymph nodes and I had another surgery and now it's in my lung they seen a few nobles and they did another CT and now they see even a few more in my lung I have 3 kids and my cancer is spreading fast I just turn 37 years old on the 2ND and I'm scared.

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  • Molly50
    Molly50 Member Posts: 3,773
    edited October 2016

    Welcome to BCO Prettymix26, I am so sorry you find yourself here at such a young age. There is a triple negative forum you might find helpful Triple Negative Forum and a mets to lung thread you might also find helpful. I will be praying for you!

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  • WendyB51
    WendyB51 Member Posts: 6
    edited November 2016

    Going through the same thing .... I knew that Triple Negative had a higher rate of metastasis, but I was feeling so much better I really thought I was doing okay until I had a CT/PET scan and I have two nodules ... one on each lung. Right now I don't know which I am more scared of the cancer or the treatment.

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  • Bright55
    Bright55 Member Posts: 176
    edited January 2017

    hi terrjo and group


    I hope that threatment for mets has been well organised and med

    care is keeping the mets at bay

    All the best

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