What led to your diagnosis?

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Kcabrera
Kcabrera Member Posts: 44
edited November 2016 in LCIS (Lobular Carcinoma In Situ)

I'm curious what led to your diagnosis of LCIS. I've read it is very rarely detected by a self exam. Thanks for any info you may have

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited September 2016

    Indeterminate calcifications on a screening mammogram. Turns out the calcifications were associated with benign sclerosing adenosis. The ALH an incidental finding on the core biopsy, so I had an excisional biopsy that confirmed LCIS. Nothing palpable.

    It seems you are trying very hard to convince yourself you have lobular neoplasia or cancer because of thickening in your breast which your doctor seems to think are just fibrocystic changes. Have you got an MRI scheduled?

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  • Kcabrera
    Kcabrera Member Posts: 44
    edited September 2016

    I'm still waiting on the insurance for the MRI. My doctor put it as an ASAP order which doesn't help my anxiety but I'm certainly glad she is on top of it. I'm not trying to convince myself I have it. I'm just scared.

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  • Lisa123456
    Lisa123456 Member Posts: 56
    edited September 2016

    My LCIS was found through a mammogram that I requested to check a lump I found. Turned out the lamp was a cyst, but the mammo picked up microcalcifications in a different spot. It was core-needle biopsied and LCIS was diagnosed. Now, there was also extensive sclerosis adenosis in the same area, so I'm not sure what caused calcifications.

    After the diagnosis, my BS sent me for an MRI which defined my LCIS at 2.5 cm across and also highlighted a couple of areas in my "good" breast. They wanted to perform a mammo-guided or US-guided biopsy of these two spots, but neither mammo nor US could detect anything. Finally, they decided to do an MRI-guided biopsy of one of the areas that looked more suspicious than the other. This turned out to be an ALH.

    I don't believe lobular neoplasia can be detected by any sort of physical exam: my LCIS-harboring breast was examined by two physicians, two surgeons (one with extensive experience in treating lobular cancers), and an oncologist, and none of them could feel anything.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited September 2016

    ALH and LCIS are almost always incidental findings on a biopsy for something else.

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  • muska
    muska Member Posts: 1,195
    edited September 2016

    My LCIS - in both breasts - were discovered by post-BMX pathology.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2016

    mine was discovered after tightly clustered microcalcifications were seen on mammo.

    Anne

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  • marketingmama
    marketingmama Member Posts: 161
    edited September 2016

    MIne was discovered after a breast reduction. It's standard to send the breast tissue that is removed to pathology. My mammos had all been normal with the exception of being told I had extremely dense breasts. Ultimate irony.

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  • leaf
    leaf Member Posts: 8,188
    edited September 2016

    Suspicious microcalcifications on a routine annual mammogram.

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  • OG56
    OG56 Member Posts: 897
    edited October 2016

    My LCIS+PLCIS was found with MRI Biopsies, 1 year after I had IDC. I did Arimidex 5 years and close monitoring for 8 years. I recently was found to have a small ILC. As things progress in science it may be that they will be approaching this disease differently. I was very comfortable with my choice of close observation, so though I have had a new primary it was caught early!

    Linda

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  • Strawberry8
    Strawberry8 Member Posts: 35
    edited October 2016

    My first screening mammo at 40 found pleomorphic microcalcifications which spurred the diagnostic mammo. Had another diagnostic mammo 6 months later (2 months after hysterectomy) and the radiologist recommended core biopsy.

    The core biopsy found the LCIS. Then I had an excisional biopsy which found more LCIS but nothing else. So now I am 41 1/2 and 6 months into 5 years of tamoxifen. I am pretty sure it has put me into early menopause so I am just dealing with some minor symptoms.

    I had my 6 month follow up with my breast surgeon and he did an ultrasound. He couldn't find anything new which is good! So now I wait with fingers crossedfor my next screening mammo in 6 months.

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  • Khaleesi
    Khaleesi Member Posts: 10
    edited November 2016

    Same here. Went every year for exams and mammos. Never anything unusual. Had mammo 3/2012 showing microcalcifications and radiologist suggested I see a breast surgeon. Went to surgeon, she view that mammo and all others from past years and saw nothing disturbing. Then she did physical exam, said "I dont like the feel of this L breast", she immediately did ultrasound in her office and she found a lobular tumor the size of a lime. SURPRISE! Turns out after all biopsies, tests and labs it was determined I'd had this tumor for approximately 4 years....

    So ladies, if anyone you know is questioning diagnosis or having discomfort demand an Ultrasound!


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