Cording and hand pain

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tsoebbin
tsoebbin Member Posts: 474
edited September 2016 in Lymphedema

I have cording and both my right and left arms and just got sleeves this last week. I'm still feeling cording in my arms and I have pain in my thumb and my first finger on my right hand. Do the sleeves usually help with the cording? Does the hand pain usually go away when the cording goes away?

I've been seeing a lymphedema specialist for PT and they showedd my husband how to help me try to work on the cords. It's been a couple of weeks and it's just making me crazy. We see the specialist again on Tuesday and hopefully he'll have some answers to my questions, but I was wondering what everybody else's experiences are???

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2016

    Traci, the sleeves didn’t help with the thumb pain, but the gauntlets did. I also found squeezing beanbag balls helped. My LE therapist suggested I get a thumb splint for sleep, but it didn’t help--the pain (at the base of the thumb) disappeared on its own.

  • tsoebbin
    tsoebbin Member Posts: 474
    edited September 2016

    I appreciate you sharing your experience Sandy! It's so helpful. How long did your cording last? My issue is thumb and index finger, hope they get better soon. I'll ask about the bean bag balls!

    Hope your eye is improving!

    T

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2016

    My cording comes and goes, but the forearm cording was gone within a week. (I get it in the armpit sometimes). My eye continues to improve, though it’s still bloodshot from the subconjunctival hemorrhage; and if I look in a highly-magnifying mirror in bright light, I can see the suture necessary to close the incision made to remove the emulsified old lens and insert the new one (apparently, not folding), as well as a bit of a milky streak along one edge of the iris. But I have also discovered that close up, my eyes aren’t brown (like my sister’s and mom’s), but rather green-and-amber hazel! (mostly green). Turns out that my unusually large pupils made my eyes look brown from a normal distance, and the cataract only amplified that. (I can see a slight difference in my left eye, which looks more amber than green).

  • tsoebbin
    tsoebbin Member Posts: 474
    edited September 2016

    did you have any lymphedema flare-ups from having your eye surgery? Everytime I see someone with LE having surgery I always wonder if they have a flare up?


  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2016

    No LE flareups whatsoever, Traci. My I.V. was in my L hand, and they didn’t do anything below eye level. A bit more nervous about the trigger-thumb surgery coming up Tuesday--first, because it’s on my LE arm (though I had no problem with the cortisone shot, and both the surgeon and Dr. Feldman, “the Lymph Whisperer,” who actually founded LANA and is an advisor for StepUpSpeakOut.org, say the surgery will not cause a flare or cellulitis--they’ll be incredibly careful about infection control and you can bet that until the sutures come out and the scar heals, so will I); and second, because the triggering has gotten milder when it appears at all, so I feel weird going through with it. I was going to back out of it, especially since I have an important music conference in Iowa with concerts to play at the end of Oct., and was nervous about whether that’s enough time to heal (but when I had my L thumb done years ago, I was playing again w/in a month). The surgeon’s NP talked to him and he says that because it took 8 weeks for the shot to have any effect (and it made things worse for the first 6 weeks), if I ditch the surgery the cortisone might wear off before my concerts and a new shot might not kick in in time. So I’m gonna swallow hard and do this. Worst comes to worst, there is an on-site LE therapist they can bring up to Recovery to wrap my arm if it swells.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited September 2016

    image

    Sorry for the weird format. Started writing late last night and finished it this am. Got booted out and had to log back in.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited September 2016

    Sorry I am not able to find the video for you :( PM me and we can compare note on the massage techniques.

    Edit: just noticed that most of your pain is in your hand and not in the arm. Mine was mostly in the arm and armpit.

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