After Mastectomy..when will I feel "not sore"???

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Luna52
Luna52 Member Posts: 147

Hi All,

Had my BMX on Sept 6, drains out 10 days later. All fine so far.

But I am so darn tender on both sides. Is that just normal.. or maybe some fluid building up? I don't hear any sloshing..

Still have a compression bra which feels okay.

I know everybody is different, but any general idea would help. How long did you rest up? When did you start things like grocery shopping or gardening?

My friends want to drive me around (we live at the shore) .. which reminds me of my childhood with my parents saying "go outside and get some fresh air".. LOL

But I mostly just feel like staying in the house and surfing the internet, watching Blue Bloods on Amazon and doing jigsaw puzzles. Should I be pushing myself more?

Luna



Comments

  • Denise-G
    Denise-G Member Posts: 1,777
    edited September 2016

    You are only 10 days out...be patient.  Do not push yourself more!   I remember at the 10 day mark post mastectomy, someone called me and asked me to go to lunch.  I said no, I am not up to it.  They proceeded to give me a big lecture on how I can't sit there and feel sorry for myself!!   Needless to say, I wasn't happy with them! 

    It took me 4 weeks to get out, but I was sore for a long time. 

    And enjoy those things like staying in the house and surfing the internet, watching Blue Bloods on Amazon and doing jigsaw puzzles.  That will end soon enough!!   Let your body rest!!

    Sending my best!

  • Luna52
    Luna52 Member Posts: 147
    edited September 2016

    Denise.. THANK YOU

    I feel so validated.. I am crying right now!

    I'm an overachiever...so I feel like a wuss that I don't even want to go for a car ride by the shore.

    Thank you so much for your encouragement

    Luna







  • xxyzed
    xxyzed Member Posts: 230
    edited September 2016

    I was in hospital for 8 days after my mastectomy and axillary clearance with no reconstruction. For the next week after I stayed at home surfing the net and watching Netflix. By the third week I started venturing out on short outings for groceries and the like. At one month after I was pretty much back to normal. So in my experience I would say give it a month

  • ravzari
    ravzari Member Posts: 277
    edited September 2016

    Yeah, you're still pretty early days.

    It was around 4 weeks for me before I started to feel normal normal while doing anything that required a lot of arm movement (ugh, seatbelts being put on...that was way harder than you assume, until you don't have full range of motion with your arms and shoulders) of physical activity more stressful than 'leisurely walk' and I still did a LOT of napping and super early bed times well into week 3, and about 6 weeks before I had full range of motion back and was back to normal activity & sleep levels.

    I'm 2 1/2 months out now and still wear my compression garment at night as I'm a side sleeper and the side I sleep on is always swollen in the morning if I don't, but that's normal for about the first 6 months.
    It's not painful, but it makes me hyper aware that there are still numb areas and makes that side feel a little 'stiff' until the swelling goes down on its own a few hours later. For me, it's just easier to sleep in the compression garment and avoid the extra, temporary swelling.

  • Chemist
    Chemist Member Posts: 33
    edited September 2016

    Luna, thank you for posting this message. I had BMX + AND 19 days ago and I'm asking the same question!--when will I feel better? I have one drain left in place. But my drain output, my pain level, my energy level--nothing has changed significantly for at least 10 days. I feel like I'm just stuck. The AND armpit is still extremely painful. My surgeon recommended a few mild stretching exercises twice a day, which I do, and I go for walks as my AND pain permits. Anyway, I guess I'm not asking a question here--just venting, and thanking you for starting the thread. The answers have been interesting.

    By the way: I had another major (open-abdomen) surgery 6 weeks before this one, to remove a pheochromocytoma--not directly related to the breast cancer. Maybe my BMX recovery is hampered by that.

  • Luna52
    Luna52 Member Posts: 147
    edited September 2016

    Thanks for all the responses. Sounds like 4 weeks is a more realistic timeframe for starting to be more myself.

    Leading up to my BMX, I had a lumpectomy and then a re-excision. I felt good enough after a week or so to resume working from home. (I'm a data analyst so its not physical), After the BMX, not only am I sore but my brain is in a fog some of the time. Even if I had the energy to work, I wouldn't trust the results!

    amw, I too am a side sleeper and the compression bra is helping with that. Interesting that you are still sleeping in yours.

    xxyzed, I was only kept in the hospital overnight. Was there any special reason you were in for 8 days or is that just a difference in our medical systems?

    chemist, I would think another recent major surgery would slow down recovery. That's a lot of stress on your body. My husband attributes most of my brain fog to having had 3 surgeries with anesthesia over a few month period.

    One thing I am enjoying is my new flat chest. I was never especially fond of my breasts and I am having a great time surfing the net/sales for new shirts. Nothing like fall sales and free shipping ;-)

    Luna


  • Chemist
    Chemist Member Posts: 33
    edited September 2016

    Luna, I join you in enjoying flatness! I think it's an uncommon perspective, though. I read these posts and marvel at the pain & suffering women endure for the sake of reconstruction. Of course, I respect everyone's right to make their own choices and I understand that we all have different perspectives.

    Also, I agree with you about the brain-fog effect of multiple anesthesias. One of the anesthesiologists told me that they actually give a drug that induces amnesia. That's to cover the possibility that you were conscious but immobile during the surgery--any memory of that gets erased. I wouldn't be surprised if that drug has a more far-reaching effect.

    Question: Doesn't the compression bra stick to your scars? It did to mine. I hated having to peel it off. Stopped wearing it.

  • Imkopy2
    Imkopy2 Member Posts: 265
    edited September 2016

    Luna,

    I had a BMX with tissue expeanders April 13th & I agree a good four weeks past before I was up for anything. You underwent major surgery both physical and psychological....you need to heal. I am also an overachiever and felt very helpless, one day someone told me my job was to heal and get better, she was right! I opened the window and listened to the birds, the breeze and relaxed for probably the first time in my life. You'll know when you're ready... Hugs to,you <

  • ravzari
    ravzari Member Posts: 277
    edited September 2016

    Luna52 I'm starting to kind of try to wean off of it as my suspicion is my 'need' for it is mostly psychological as the side I lay on swells a bit and I kind of mildly panic and think, "Oh no! Swelling, better put the compression top back on!" when all I really need to do is just settle down because even without compression on it, the extra swelling is gone within 30 minutes. I even asked my PS about it and she said that's 100% normal for side sleepers to experience the first 6 months or so as you're still healing. She said if it's painful to call her, but if it's just a little extra swollen for awhile in the morning that's normal and fine, and it's not painful at all, it's just...a little more swollen in the morning. :D

    When I sleep with the top on, it keeps me from 'squishing' that side of my chest, which means there's not that extra morning swelling, and that leads to me not mentally having the, "Swelling means I need compression again!" thoughts.

  • xxyzed
    xxyzed Member Posts: 230
    edited September 2016

    Luna52 - I think my extended hospital stay was due to differences in our medical systems. My surgeon prefers patients to go home with only one drain. I had both sides draining large output and as a single mother with two kids at home to care for it was felt I would recover faster with fewer problems in the hospital than at home.

    I'm 3 months out and am still pretty happy with the flatness. I'm also a side sleeper and don't notice any difference whether I sleep on my lymph node side or my other side. I am still wearing a compression vest during the day but only because it is winter still and easily covered by long clothes. I have bought some bras and camisoles for spring as I need some type of undergarment to hold the swell spots down over my mastectomy scar lines to keep the tissue soft

  • Luna52
    Luna52 Member Posts: 147
    edited September 2016

    So far the compression bra is not sticking to my scars. But the steri strips are still on my chest so it might be a different situation when those begin to peel off.

    also, I have a very cuddly small dog who likes to snuggle with me. The compression bra gives me some 'armor" - she was trashing around in her sleep the other night and gave me a small kick. That was a treat!



  • nbarkach
    nbarkach Member Posts: 16
    edited September 2016

    I'm getting a double mastectomy in December. I'm a hair stylist. I am worried about how much time I'll need to take off work. I was thinking 2 weeks, but the more I look into it, I think a month is more realistic. I see my plastic surgeon next week to set up a surgery date. I'll see what he thinks also.

  • Bonniebleu
    Bonniebleu Member Posts: 71
    edited September 2016

    just thought I'd chime in to add my experience...i had BMX May 12th, with TE's put in. It took a good 4 weeks to not feel "sore". Like somebody said before, just putting a seatbelt on, or reaching for things, that you'd never notice before become very painful/uncomfortable. Its the breast area PLUS the armpits, and underneath the armpits, upper arms, torso, you name it. I was so tender it hurt just when my arms would lightly brush my side. Definitely have some pillows ready to rest your arms on AWAY from your body. I've had gallbladder, hysterectomy surgery, the BMX was a lot harder.

  • 123abc1611
    123abc1611 Member Posts: 29
    edited September 2016

    i have a desk job and was wondering how long I should plan on staying home after my double mx? I work for an attorney and my job is really not that strenuous. I'm his only secretary/assistant and it woyld be impossible to train someone else, I've worked for him for about 40 years, Also my office is not far from home. I keep thinking that if I can make it to my desk that I should be able to work a few hours a day. Am I dreaming the impossible dream?

  • 123abc1611
    123abc1611 Member Posts: 29
    edited September 2016

    i have a desk job and was wondering how long I should plan on staying home after my double mx? I work for an attorney and my job is really not that strenuous. I'm his only secretary/assistant and it would be impossible to train someone else, I've worked for him for about 40 years, Also my office is not far from home. I keep thinking that if I can make it to my desk that I should be able to work a few hours a day. Am I dreaming the impossible dream?

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2016

    I was able to do limited computer work immediately afterward. I wasn't able (or allowed) to lift my arms more that shoulder-height for several weeks, so cutting hair in 2 weeks may not be feasible.

  • ravzari
    ravzari Member Posts: 277
    edited September 2016

    I was back at work after 2 weeks with my BMX; I have a desk job that doesn't require a lot of lifting or moving, and I didn't have reconstruction so there was no increased heal time or having to deal with TEs, so that likely helped on that front.


    Technically, I was back after 1 week, but I did 1 week off, 1 week working from home, then was back in the office at the start of the 3rd week.

  • LAstar
    LAstar Member Posts: 1,574
    edited September 2016

    No one gets to tell you when it's time! But when you are ready for that car ride, bring a pillow to put under the seatbelt -- ouch.

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