Just diagnosed and confused.

Nanpop
Nanpop Member Posts: 75
edited September 2016 in Just Diagnosed

I was just diagnosed with invasive lobular carcinoma last week. I had a mammo, sono, and biopsy all in one day. I was told I was stage 2. One axillary node and lump was biopsied. The lymph node had macrometastic carcinoma and was 8mm. I went to three breast surgeons this week. One was from Mount Sinai the other from Sloan. The third was a private practice. The first said it was easy to fix. One told me it can be cured with surgery and chemo. The other said it can only be cured if it's in a beginning stage (0 or 1). She also said the stage can't be confirmed until I have the MRI and CAT scan.

I am confusedand scared.

How do you begin to determine How to find really good doctors? And how do you choose one?

Since at least 1 node is infected, does that make the treatment more intense

· Share on FacebookShare on Twitter

Comments

  • Shimmymoo
    Shimmymoo Member Posts: 8
    edited September 2016

    nanpop,

    I was treated at mount Sinai and had a very good experience. I had idc stage 1a so my diagnosis was different

    My BS was kind explained everything in an easy to understand fashion and I felt comfortable with her. I think that is most important. Obviously experience is also important but you were seen at two of the best hospitals in NYC so I doubt experience is an issue.

    If you have questions don't hesitate to ask.


    · Share on FacebookShare on Twitter
  • dtad
    dtad Member Posts: 2,323
    edited September 2016

    Nanpop...I'm also being treated at a major NYC teaching hospital. IMO we are very fortunate to have these exceptional hospitals close by. I agree you need a breast MRI. You really can't be staged until after surgery. However I have been reading that staging is becoming less and less important. The word cured is seldom used in breast cancer. Unfortunately its something we have to stay on top of for the rest of our lives. Do you know what your hormone receptors are? How big was the ILC tumor? All these things must be considered when looking at recurrence rates. My advice is to decide where you want to be treated, wait until you have all the information needed to make a well informed decision about treatment options. We are all here for you. Breast cancer is very complicated and there is a learning curve. Please feel free to private message me if you want to talk more. Good luck and keep us posted.

    · Share on FacebookShare on Twitter
  • Aysh1005
    Aysh1005 Member Posts: 12
    edited September 2016

    hi everyone

    I was diagnosed last Wednesday with invasive ductal cancer. My mother in law was diagnosed with the same thing 8 weeks ago which made me check myself.... I found a lump so went to gp who said it felt like a cyst (I had a mommogram 3 years ago which turned out to be cysts) went to breast clinic had mammogram and ultra sound from there had a biopsy they told me it was classed as 'probably benign' and the nurse told me I had nothing to worry about.... telephone call the following week to ask me to come in same afternoon where I was told my results.

    Life has been a roller coaster of emotions since then more so for my family..... I've had a couple of meltdowns but trying to live on humour at the moment. There are so many unknowns at the moment which I'm finding is the hardest part to deal with.

    I'll be having a lumpectomy on the 29th September, I'm so glad I have found this site as I have found so much information helpful already.

    Love to you all


    · Share on FacebookShare on Twitter

Categories