Sheryl Crow..Thanks for promoting breast cancer ignorance!

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voraciousreader
voraciousreader Member Posts: 7,496
edited September 2016 in Advocacy

People Magazine's interview of Sheryl Crow promoting 3D mammography tells us:


"The musician encourages women to go online, locate the closest Genius 3D machine and make an appointment. "Until we have a cure, prevention is really our cure," she says. "It's our best treatment."


I ask... who is more ignorant? People Magazine reporters and their editors? Or Ms.Crow?


Hmmmmm...getting a 3D mammography is going to PREVENT breast cancer???!!! Golly! Where do I sign up?


You be the judge!


http://www.people.com/article/sheryl-crow-early-de...


Comments

  • Molly50
    Molly50 Member Posts: 3,773
    edited September 2016

    This is the part that bothers me

    "The cure rate at five years is 100 percent with an early-detected breast cancer."

  • tangandchris
    tangandchris Member Posts: 1,855
    edited September 2016

    wow....just wow


    Early detection huh, what does that even mean? First time I had a mammogram was at age 39 after feeling a lump in the shower. I was dx'd stage 3, how's that for early detection??

    Is it me or does the pinktober crap seem to be starting early this year?

    Her quote about the 100% cure rate is outrageous.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2016

    Isn’t junk science wonderful? NOT. Yes, stage 1A grade 1 or 2 Luminal A bc without LVI has a better prognosis out to five years, compared to TN, HER2+ and node-positive &/or larger tumors. But for ER+ breast cancer, even with adjuvant hormone treatment, the risk NEVER disappears and with each year of disease-free survival, the likelihood of recurrence increases. True, the vast majority of women with these cancers will live long enough to die of other “natural causes,” when they’d normally be expected to, before the bc recurs. But there is no “cure.” And early detection doesn’t necessarily guarantee detection of earliest-stage cancer. Plenty of women discovered more advanced stage cancers at their first opportunity--whether by screening mammo or finding a lump or other anomaly. They cannot be blamed for not detecting their tumors “early” enough--there are too damn many variables (type, grade, hormone-receptor and HER2 status, etc.). Some of us found our cancers before they spread to the nodes and before they grew to >2cm.--but that’s not because we were more “vigilant.” Next, nothing “prevents” breast cancer. You can lower the risk with lifestyle changes, but only prophylactic mastectomy of healthy breasts will theoretically “prevent” breast cancer from developing. And a DFS rate of 100% at 5 years is NOT a “cure rate,” nor is the figure 100%.

    Look, I know Crow’s cancer was discovered via 3D mammogram, early-stage and apparently Luminal A--so she needed only lumpectomy, radiation (and presumably, endocrine therapy). But all of us need to educate ourselves as to proper terminology and hard science--and not let a paycheck from a medical-device or pharma mfr. blind us to the facts. Shame on the makers of the Genius 3D. Shame on the doctors who gave her bogus info or didn’t sufficiently explain the correct info. I can’t really say “shame on Crow” because she probably doesn’t have the level of knowledge of the disease that we do. Most celebrity spokes-patients don’t. But someone needs to set her...and People’s readers.....straight.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2016

    Yes, tangandchris, Pinktober has come early this year. Sheryl and People's readers need to check outour site: http://PinktoberSucks.com


  • Mominator
    Mominator Member Posts: 1,575
    edited September 2016

    Pinktober already started here, mid-August, with pink pens and pencil cases and notebooks in the back to school merchandise at Staples, KMart, etc.

    There was a big, pink, breast cancer awareness booth at the craft fair we attended yesterday. The booth will be at every craft fair up and down our state September through December.

    Also, we have the entire month of May for "Paint the Town Pink" sponsored by our local hospital system: https://www.meridianhealth.com/community/events/pa... "to raise awareness of the importance of annual mammography and to spread the word that early detection is a woman's best defense against breast cancer."

    Lots of awareness, not many facts (% of cancers that metastasize, % of cancers that start at stage IV). All hoopla and cheering.

  • mara51506
    mara51506 Member Posts: 5,088
    edited September 2016

    Stage 4 people would be too scary. No matter what stage or hormone status etc you are, you can go to stage 4. That headline would take away from the feel good pink crap

    I did not like pinktober last year and dislike it more as a metster this year


  • Beesie
    Beesie Member Posts: 12,240
    edited September 2016

    "I ask... who is more ignorant? People Magazine reporters and their editors? Or Ms.Crow?"

    ALL OF THE ABOVE


  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2016

    Sandy - I'm wondering about the statement that our recurrence % actually increases over time. That one made me take a big gulp. I'm not scientist, nor do I do much research, however I did plug in my stats to the cancermath conditional outcome calculator and the recurrence goes down each year to year nine which is as far out as it calculates. Please say it ain't so. . .

    Also the five year survival stat quoted by all the studies really sticks in my craw. Five years, harump, I want 10, 20, 30 year guarantees. I know, I know, there are no guarantees.

    Yeah prophylactic mxs all around ladies and (gentlemen!), that would be the only prevention. Maybe we should start a new style trend.

    Oh wait, been there done that. Nope, that doesn't necessarily work either.

  • Maya15
    Maya15 Member Posts: 323
    edited September 2016

    Well here's my rant on this topic. In New York they are running an ad campaign on buses and subways called "Breast cancer: early detection is the best prevention". And I'm thinking that's nice, since "early detection" isn't available to women like me (I'm 36, no BC in family etc). My first (and last) mammogram was AFTER I was already diagnosed with BC. By the time I reach 40, if I'm that lucky, the breasts will be long gone.

    I hate the pink stuff. I read a post on this website about a lady who was turned away from a pink fundraising photo op because she still had hair...because she was stage IV and not having chemo. That for me says it all

    It's reading news like this that makes some of my well-meaning friends tell me how "very treatable" BC is these days. My response is to describe what a year of the "poison, cut and burn" regimen is really like, not to mention the fact that even after all that, no matter what stage you are, it could come back any time.


  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2016

    Pinktober should be about raising awareness not of mammograms and early detection, but of the extent of bc, the need for better insurance coverage for essential tests & treatments, lower prices for cancer drugs (especially for those on Medicare unable to use co-pay cards & discount coupons because it's against the law), and better treatments and the search for a cure for metastatic bc. Everyone loves the feelgood stories about brave women who endured mastectomy, chemo and radiation to achieve a “cure" (more accurately, DFS so long that it exceeds life expectancy); but too often the movement kicks our Stage IV sisters to the curb because it's too depressing to realize that this disease can kill.

    Farmerlucy, it is true that those of us with appropriately treated Stage IA Luminal A bc have low recurrence rates out to year 9 or 10, but there's a reason the survival calculators don't go past that: the tests and AIs are have been “standard-of-care” only that long; and the data increasingly show that ER+ tumor cells can develop resistance to estrogen-suppression-and-deprivation, and it can happen 10, 15, 20, even 30 years out. For many if not a majority of us, that's long after typical diseases of aging will have claimed us, but unlike HER2+ tumors, there is no targeted therapy for Luminal A, just endocrine therapy which is a stopgap measure--long-term stopgap but stopgap nonetheless. And slow-dividing Luminal A cells don't respond well to chemo, which goes after rapidly-dividing cells (and would kill far more “innocent bystander" hair, bone marrow, nerve and epithelial cells than it would tumor cells). The flip side of that is more aggressive breast cancers tend to recur within the first five years if they recur at all. But nobody is truly “cured." The closest to a “cure" we have is for those with purely non-invasive in situ tumors who get mastectomies and can skip chemo & radiation (and have hormone-neg. tumors so they can skip endocrine therapy as well).

    But to keep things in perspective, we all have to go sometime. How many of us here are panicking “OMG--I have only 25 years to live before I'll die of a heart attack, COPD, CHF, pneumonia or stroke?" So a recurrence 20, 25, 30 years down the line needs to be considered in context.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2016

    Breast cancer charities have learned a few things over the years. One is to feature young bc women with a couple of kids in their advertising, even though women under 30 with this disease make up less than one per cent of new cases. This is the same percentage as men getting bc and have you ever seen a guy feature in the ads? Women who get bc are typically in their fifties or older, men in their sixties or older. And advocacy for the sort of things that ChiSandy mentions turns donors off, just like featuring Stage IV people.

    When it comes to cancer charities, there is no charity as successful as a bc charity. To achieve these results, they have high overheads due to bloated marketing staff numbers. Sure they can raise big bucks, but the money is not spent effectively and if people knew the ratio of overheads to money raised they would be horrified at how little of their donation was spent effectively.



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