Rosevalley - this is for you!

Options
1424345474866

Comments

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited August 2016

    rose keeping your family in my prayers. When is the funeral? I imagine it makes death seem even more real to you and your family. Praying for peace and comfort

    Ruth :. Love the new grand puppy

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Thought this might interest you too, dear Rosevalley. I'm hereditarily hard of hearing, but only got hearing aids 6 years ago. Now I can hear the birds. :)

    much loving kindness always, Stephanie

    When 'The Talk' Is In Sign Language, There Is Clarity And Confusion


    August 24, 2016

    JACQUIE LEE

    Parents lead their daughter across a bridgeDaniel Fishel for NPR

    On a Saturday morning, a group of adults gather in a circle in an elementary school classroom on the campus of Gallaudet University. Each wears a name tag — and on that name tag is a common sexual term: "Ejaculation." "Orgasm." "Condom."

    One by one they introduce themselves by the name on their tag. Not in spoken words, but in American Sign Language (ASL).

    These are parents and caregivers who have — or work with — children who are deaf or hard of hearing. The moms and dads are bashful at first, but after signing for a few minutes, they're laughing at themselves.

    Let's face it: Talking about sex can be awkward. Having "the talk" is hard enough — but throw in ASL, and a lot of adults — whether it's a teacher in the classroom or mom and dad at home — can be completely stumped.

    While the speaking world has convenient euphemisms for much of this stuff, in ASL some of the signs are, to put it mildly, pretty graphic. And that can make teachers and parents very uncomfortable.

    "There's a fear of, especially in ASL, the signs being pretty explicit at times, so desensitization is really key,"

    continued at:

    http://www.npr.org/sections/ed/2016/08/24/46629954...


  • steelrose
    steelrose Member Posts: 3,798
    edited August 2016

    Rosevalley,

    I'm so sorry for the loss of your SIL. I follow you on different threads, mostly silently, but I'm always thinking of you! Love and peace to you and your dear family...

    (Another) Rose.

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited August 2016

    Sorry you didn't like the book Stephanie- Funny I didn't get the impression it was a thumbs up on the military machine as much as the mechanics of making a tribe. Under what circumstances do folks make a tribe- disasters coming together (earth quakes), war and conflict, economic collapse etc. What circumstances cause people to act collectively and not individually. Having adopted an older kid with clear PTSD from being abandoned multiple times before the age of 4, I appreciated the PTSD comments and how PTSD symptoms are hard wired to protect us. I thought the book was good as far as he went with it. I would like to learn more about Colonial men and women leaving society to stay with the Indians.

    We almost bought in to a co-housing situation here in Oregon in 2007. It is a big regret that I didn't go for it. I would have been much better off. I was so shocked by the advanced breast cancer diagnoses and it being the same side as my Grandmother that I figured why move- I would be dead. I ended up 10 years down the road. Who would have thought. I really wanted the community part of co-housing. We have no relatives here in Oregon, all family is East or in CA. The community was so popular that the wait list is years. I think we would have been better off as a family and certainly for DH as a single parent. What you give up in privacy and individuality you get back i n collective living, shared experiences, support and common purpose. We took the safest economic route which was to stay put in our ranch house in our neighbrhood. We have some friends here that are helpful but people by and large keep to themselves. Folks at DH's job have really helped us during times I have crashed.

    I think that is true of our society. There is this individual bent to modern society and not a collective mind set. I"t's not my business what so and so does. I would be intrusive and need to butt out." This isolates folks. I see it with older folks, single parents and families under going crisis - illness, job loss, mental illness etc... People are afraid to intervene, check up on folks- just pop in to connect. This contributes to high rates of disconnect and depression. Poorer more rural, less "advanced" societies are far more connected. They have to be to survive. Maybe next life time I will get to experience community. I lived the entire house in the burbs, garden and stuff... it's nice but you can't take it with you and it's very labor intensive. Funny but community costs more to buy in to collectively owned lands and gardens and buildings but you get more.

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Good morning, dear Rosevalley!

    You raise several interesting points about Tribe and I'm in agreement with you that I too appreciate others' perspectives on topics of mutual interest. Yes, I want to believe we will draw together into new tribes in the face of natural and man-made disasters. I think this is going to become ever more important as systems continue to collapse in face of global climate change and continued population explosion. Can we grow as human beings to embrace even the rejected as our own?

    Or will we stick to our cultural tribes, preferring always and only to support those who are like us and to fight against those who aren't?

    "We are all tattooed in our cradles with the beliefs of our tribe; the record may seem superficial, but it is indelible." ~ Oliver Wendell Holmes Sr.

    Maybe we can get beyond our tribes of birth - you and I have certainly devoted substantial life energy to living/being the change we wish to see in the world.

    In this time of ecological, economic, social and cultural upheaval, will we resort to tribal ways? There are certainly huge political and religious movements that seek solutions in us-vs.-them and even war and walls.

    My surprise over the book was that while I agreed with many of Junger's points/assumptions, I didn't like how he argued for his conclusions. Yes, banding together is better than breaking apart in crisis, but are war and disaster our best guides and inspirations?

    It doesn't help at all that I'm unfamiliar with men/males/masculine archetypes and the military!

    Well, Rosevalley, it doesn't really matter to me if I like what life brings. Nor if I agree with it. Can I still find a way to appreciate what challenges me (evokes a response)? Can I be interested in process - the author's and my own?

    You know me, I don't wait around to be a victim. I'm fully capable of putting down a book if I don't want to spend time with the topic, tone, author, characters or poor writing (I just put a different book down this morning). But Tribe was short enough to keep my attention.

    Will it gain my appreciation?

    Yesterday, I gave Tribe to my friend who was in the military and is now a philosopher/physicist. He's super-smart and had read a recent book review that had piqued his interest. Plus, his former country erupted into civil war after he left in the late 1980s - so he can see/feel war from a distance of time, but not of tribe/family, region.

    So, I've already gained a book club with you, a good conversation with a good friend and hope of another good conversation with him.

    What could be better than that!

    Just a thought about how this relates to cancer? I do think bco and my other online and in-person cancer and disease support groups are often strengthened by adversity - a shared diagnosis has united me with many I'd not otherwise know. And there are many times cancer feels like a war (you know I loathe that metaphor!), because conditions can be so brutal and there seems to be so little freedom of choice.

    I don't like cancer and serious illness - that doesn't matter. Nor do I always agree with it - though gratitude practice helps me accept the things I cannot change. Yet, I appreciate the wholly different opportunities for learning and growth that they've brought to life.

    I feel similarly about this book - I appreciate it, without liking it!

    And that's just fine. Really. :)

    Thanks for starting this book club and keeping me engaged, Rosevalley. It's lovely to noodle while reclining.

    warmest of loving kindness for you and everyone too, Stephanie

    PS, The future might take many different directions, besides militarization and polarization, as systems continue to fail. Just a couple are:

    A Fortress against Fear

    And Resilience


  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited August 2016

    It is very good to read and dust off the cob webs in the grey matter! I miss having a good conversation with another adult about ideas and topics. Even listening to bantering back and forth like on PBS gives me food for thought. Sometimes with chemo brain and electrolyte shifts from draining and being low.. back up... low... etc.. makes me a little stupid.

    I am grateful for this last 6 days. I got the Gemzar chemo and while it made me tired I did not crash Friday and puke. I have been able to eat and do most things. I am tired and my legs seem weak, hips sore, but I can putter along. So this week has been pretty doable. It will be interesting to see where my markers are and how the cancer is responding. I guess I just take it week by week and see how it goes. It is life lived in the moment.

    This is such a strange ride isn't it? Never know where you stand it's just take it day by day. Lovingkindness to all.

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited August 2016

    rose. Doable is good. Right. ? Glad to hear

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited August 2016

    PattyPeppermint - Why are teenagers so icky?? My 15 year old happily confided that she had been yacking for a long time on FB to a boy. I said nice what's his name? She refused to answer. Shook her head no and signed None of my business. I said it is my business and I need to know. SHe refused to sign or write his name. I took her phone away. Not everyone on FB or the internet is what they seem and needy lonely teens are prime targets. I told her if she didn't like the rules feel free to live some where else. She sat on the front porch. Came in for dinner, no apology, no name. I said no outing tomorrow with your friend, if you can not cooperate. Refusal. Oh well so sad for you. Poor choice. It is your choice to cooperate. Drama.. it's a good thing she has me to deal with and not my Dad... whew the butt would have been tanned! So rude and disrespectful. I would never have refused to answer. I still have the phone too. She might be the most stubborn 15 year old in the Pacific Northwest. It wears me out.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2016

    I have no idea if this book is any good at all, but the title intrigues me:

    Get Out of My Life, but First Could You Drive Me & Cheryl to the Mall: A Parent's Guide to the New Teenager

    by Antony E. Wolf

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited August 2016

    I love the title... could be my life. Teenagers suck.

    I asked my college age kid when she was staying with a friend at a hotel in Seattle and going to a concert for the address and cell phone number of her friend. She was taken back. I said out of respect for me and how much I love you; Please give me the information so if you go missing I can help the police find you. She thought I was insane and silly. I said humor me. No one loves you as much as I do and will go looking for you the minute you are late. I am not following or checking up I just care about you. There are lots of creepy people out there. Now she tells me where she will stay. We watch her cat. :-)

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited August 2016

    ruth. Book sounds interesting

    Rose. Aww teens and hormones. Both wanting to be independent but still not reasy. Stuck inbetween growing up and staying young. I wouldn't want to walk back thru it. Stand your ground. Some crazy people out there for sure

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Dang it, Rosevalley,

    I was just about to ask what book you wanted to read next for our mini book club and whether others would like to join us when Ruth popped up with a book on parenting. Parenting, like war and mental illness are untrod territories for me. I feel competent only to read and take mental notes about life in these zones. I can sympathize, but not empathize and don't feel I can comment - except in a literary way.

    To mix metaphors from land-based to water - I'm out of my element and in over my head when trying to get a gut sense of the author's orientation and intent.

    Still, I'm absolutely with you about reading and dusting out the cobwebs in the gray matter. I'm isolated for different reasons and so treasure every meaningful, in depth connection with others.

    Maybe that's part of what draws me to being with others who know they're dying?

    We can cut right through the bullshit to the chase.

    Like eating the heart of a watermelon.

    Am really mixing metaphors now - better stop while I'm ahead.

    Rosevalley, am just delighted that this cycle is easier on you and continued healing meditations that it kicks back the cancer.

    You truly have ninety-nine lives!

    Loving kindness for all, Stephanie


  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited August 2016

    Hi Rose, so sorry to hear of the sudden death of your SIL. I hope your DH and family are doing ok. We would not wish a long illness on anyone but sudden death is such additional shock for the bereaved.

    Glad you got a great day for the Lion KIng.

    XXX

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Good morning, dear Rosevalley!

    No book reports yet, though I'm reading a good one, Mark Nepo's Inside the Miracle: Enduring Suffering, Approaching Wholeness

    I used to read everything Nepo wrote with great devotion - he suffered aggressive cancer and treatment over 30 years ago - but found he became repetitive after a while and began skipping books. Am so grateful that I requested this one from the library! We've both changed and though his themes aren't new to me, his poetic style is quite refreshing and further open my mind and heart. I so enjoy relaxing into the mystery!

    When it's the right book at the right time, my whole body gives a big sigh and smiles.

    Finally made it out to the garden with a camera and while the plant photos were a bust, here's Mabel, my landladies' dog friend. She's still under two years old, not quite a puppy, but knows how to frisk and have fun with a bit of bone. Right after this pose, she rolled over onto her back and asked to have her tummy rubbed. Her energetic, youthful, playful spirit is always refreshing!


    image

    Rosevalley, I hope your good days continue to unfold and that you're around just as long as the life force and your spirit conspire (breathe together) to keep you here.

    And may we too encourage you to stay the course until it's time to travel on.

    Great loving kindness for you and everyone, Stephanie

    This song came to mind. I never saw the film, but the music plays on my sound track every year when the big leaves are blowing off the trees and down the streets:



  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Interesting NYT commentary on Junger's book Tribe:

    The Great Affluence Fallacy

    David Brooks AUG. 9, 2016

    excerpt:

    In 18th-century America, colonial society and Native American society sat side by side. The former was buddingly commercial; the latter was communal and tribal. As time went by, the settlers from Europe noticed something: No Indians were defecting to join colonial society, but many whites were defecting to live in the Native American one.

    This struck them as strange. Colonial society was richer and more advanced. And yet people were voting with their feet the other way.

    The colonials occasionally tried to welcome Native American children into their midst, but they couldn't persuade them to stay. Benjamin Franklin observed the phenomenon in 1753, writing, "When an Indian child has been brought up among us, taught our language and habituated to our customs, yet if he goes to see his relations and make one Indian ramble with them, there is no persuading him ever to return."

    During the wars with the Indians, many European settlers were taken prisoner and held within Indian tribes. After a while, they had plenty of chances to escape and return, and yet they did not. In fact, when they were "rescued," they fled and hid from their rescuers.

    Sometimes the Indians tried to forcibly return the colonials in a prisoner swap, and still the colonials refused to go. In one case, the Shawanese Indians were compelled to tie up some European women in order to ship them back. After they were returned, the women escaped the colonial towns and ran back to the Indians.

    Even as late as 1782, the pattern was still going strong. Hector de Crèvecoeur wrote, "Thousands of Europeans are Indians, and we have no examples of even one of those aborigines having from choice become European."

    I first read about this history several months ago in Sebastian Junger's excellent book "Tribe." It has haunted me since. It raises the possibility that our culture is built on some fundamental error about what makes people happy and fulfilled.

    The native cultures were more communal. As Junger writes, "They would have practiced extremely close and involved child care. And they would have done almost everything in the company of others. They would have almost never been alone."

    If colonial culture was relatively atomized, imagine American culture of today. As we've gotten richer, we've used wealth to buy space: bigger homes, bigger yards, separate bedrooms, private cars, autonomous lifestyles. Each individual choice makes sense, but the overall atomizing trajectory sometimes seems to backfire. According to the World Health Organization, people in wealthy countries suffer depression by as much as eight times the rate as people in poor countries.

    There might be a Great Affluence Fallacy going on — we want privacy in individual instances, but often this makes life generally worse.

    Every generation faces the challenge of how to reconcile freedom and community — "On the Road" versus "It's a Wonderful Life." But I'm not sure any generation has faced it as acutely as millennials.

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited August 2016

    rose. Big hugs today.

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited August 2016

    I got chemo yesterday and steroids.. slept lousy last night. Got my tumor markers and they only went down 40 points still in the 800.. sucks. The cancer is working around the gemzar. Then because of the holiday they pushed my chemo from Tuesday to Thursday even further and making my hardest day (2nd after) to land on Saturday. Sucks.. What's the point of that?

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited September 2016
  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited September 2016

    Wishing you more good times and good days, dear Rosevalley.

    It's hard not to feel the slump, when one's in it, but I remember that you recently recounted your blessings.

    May you again be blessed with less cancer symptoms and fewer unwanted treatment effects.

    It's September first!

    You're making it to yet another goal, dear Rosevalley!

    Holding you in loving, healing light always, Stephanie

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited September 2016

    I am tired and sooo cold today. It is overcast, drizzling and maybe 68 degrees. I have jeans, sweater and fleece and a hat on my fuzzy head. I am still cold. It was a good day until my DD3 started talking about next summer. I politely said honey Mom won't be here next summer. She started to cry. She said, " I will miss you." I said," I will miss you too." I said, " it sucks and I am sorry but cancer decides not me." Why lie. I have been laying low and having constant bone pain twinges in my hips and back. I took a pain pill. Of course day 2 I always feel kind of slammed. They moved my chemo up a day and I will most likely have to decide if I add carboplatin and trudge on. Still pulling off liters of ascites.

    I can't believe it's September 1st and I have the space heater on and turned the heat back on. Where did summer go already?? My tomatoes finally turned red just a few days ago..

    You know honestly I get so much support and love from your encouragement and well wishes that when I feel down and struggle it gives me hope and strength to read your kind words. Things will be hard, as this is a hard path we must tread, but through the kindness of family, friends and fellow cancer patients like you all the path is so much less hard. I am grateful for each of you and your kindness. Blessings on us all. Thank you Thank you Thank you.

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited September 2016

    rose. Oh. What a hard conversation. I've got tears just thinking about it. Honesty is the choice we make with our boys as well. Hurts like hell. But who knows you may be here next year. We've seen you make and meet many goals. Hugs

  • ruthbru
    ruthbru Member Posts: 57,235
    edited September 2016

    Flannel pajamas? Electronic blanket? Sending WARM thoughts.

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited September 2016

    image


    Rose this is our garden. See that green poly-tunnel in the corner - full of tomatoes! DH loves them like children (except we don't eat our children)

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited September 2016

    Hot tea? I've been so cold that I drank soup or hot tea in the bath. Losing your hair really makes you cold. Fuzzy socks help. Not cotton ones.

    I practice honesty with my children too. However a young mom with kids my age just passed away from colon mets to her liver. Her daughter is a classmate of my son. I found myself asking school not to use the c word. I'm not ready for that much honesty.

    Hope you feel warmer today.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited September 2016

    Rosevally- have not been here for awhile, but wanted to say hello and let you know I am thinking of you every day. I am so sorry about the sudden passing of your DH's sister. I am glad she had a good life and did not suffer, but know those sudden deaths are so shocking and hard to cope with.

    You mentioned in a post that you won't be here to vote for Hillary. I am working for her campaign as a volunteer and made me smile to know she has your vote in your heart.

    Will pop in again soon. Blessings to you sister.

  • Brendatrue
    Brendatrue Member Posts: 1,830
    edited September 2016

    Rose, I'm still keeping you close, in my thoughts and in my heart. I'm still holding hope for your peace of mind, body, and spirit. In lovingkindness always, Brenda

    image

  • Bestbird
    Bestbird Member Posts: 2,818
    edited September 2016

    Rose, I hope today has warmed up with a bit of sunshine and more balmy temperatures! Indeed, the autumn fruits are abundant, and the tomatoes are hard to miss! Here's some fruit I found on the ground nearby our houseimage, and oh, are they delicious! Please share!

  • lalady1
    lalady1 Member Posts: 618
    edited September 2016

    Rose - here's some Tiramisu at the Four Seasons!

    image

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited September 2016

    Best Bird- When we lived in CA we had plum trees that put out the most delicious fruit. We just gorged on it. Even our dogs would eat it!! Gave them diarrhea. haha.. We had an orange tree in one location that gave boxes and boxes of fruit to co workers, plentyleft over for us. Amazing how one tree can put out. Right now we have soo many apples and are just waiting to make apple sauce and freeze it.

    For those of you who have kids, there is the cutest article in the New York Times called "Back to School in a New Country." This poor Arab Dad tries to go school shopping at Target. Hilarious... it really made me laugh. Seeing things through others eyes is so fun. School starts on Tuesday yippee!!!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited September 2016

    I am visiting family in Minneapolis. Yesterday my SIL took us out to thr best brunch ever. The restaurant was set up like an English Country House.

    image

Categories