Pain and Other Things

1468910

Comments

  • april485
    april485 Member Posts: 3,257
    edited September 2016

    Sas, I did read it. I agree with you. I initially thought it was interesting but lacked any credibility due to size being too small but truly, it is a flawed study period. I know how crappy I feel from this drug and I highly doubt it is the 'nocebo' effect they cite. Tell that to my horrible knee pain that is so crippling, I have to use a cane much of the time. And, what is worse, it did not go away much during my "planned vacation with onc approval) which tells me some of the damage from the AI can be permanent or exacerbate already crippling arthritis which I have. ugh! Thanks again. We don't need docs believing that chit! (cut and pasted from the steam room thread)

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    April, bless you for C&P, but please get this post to the other thread. Read my last post there and you will understand why :)

  • Sara536
    Sara536 Member Posts: 7,032
    edited September 2016

    No content here

  • Lita57
    Lita57 Member Posts: 2,437
    edited September 2016

    As a St IV newbie, was anyone put on Aromatase Inhibitors for bone mets? I'm still on Madame X, but they will be taking me off in 2017 and putting me on some hormone treatment. From what I've read about AI's, I do NOT want to go on them since I already have degenerative arthritis in my spine and some joints.


  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Well, totally bummed, Sara has deleted her posts from this thread. She identified one of the most egregious pieces of study publications that I have seen in years. No clue, why she deleted, I sent her a PM. Maybe she will respond.

    As a result of her first post, I went on a mission. The study she posted that was on the main board of BCO was the subject. The main board name is now altered b/c the Community raised objections to the BCO bosses. The Medical Director. Dr. W is willing to make a statement. I have been her 7 years and never have I seen a statement where the Med. Dr. was willing to make a statement............Tells me allot............lot's of discussions behind the scenes. Sit down discussions as to what should be said. Careful wording. MD Director had final say.

    That statement may not be enough. But discussion is a process.

    I know Sara's words were significant. She cited as a newbie, they were some of the first words she saw on BCO. How she got to my thread. No clue, but it caused me to take action. I thought I gave her enough support to understand the value of her words. But came here today and her posts are blued/deleted. No clue. I wrote a PM.

    But what I can remember of her first post to me was "she came to BCO see's this main board page which she linked and said she didn't expect to be made to feel it was her fault"

    This is a tough scenario for me right now. Just realized I might have been used. I'm known for being the chaser of windmills. Was this an instigation to chase that windmill b/c there was a need and they needed someone to do it. Chit, I feel like I'm back at work. The cause is good, the way of use is not. Not sure if I'm being used, but at this point we are beyond that.

    I will continue, and repost this to the other thread.

  • Sara536
    Sara536 Member Posts: 7,032
    edited September 2016

    Here you go, Sas-Schatzi...complete with the original headline as copied from BCO:

    I opened up BC.org this morning hoping to find some support for the pain I'm experiencing and what hits me in the face? Breaking news about current breast cancer research: "If You Expect Hormonal Therapy Side Effects to Be Bad, They Will Be" So, based on a study including all of 111 people, my pain is my fault! This is not helpful. Maybe even a little bit irresponsible.

    PS: I don't see how changing the headline makes the study any better. It's still a bone thrown to the "Publish or Perish" monster. Remember the old saying: BS= Bull Sh!t, MS= More of the Same, and PhD= Piled High and Deep

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Oh Thank, you so much Sara, for bringing back your post. As you know from my PM I am on a mission b/c of your original post.

    Please, consider posting on the other thread. Please, expand on what it meant to you to find that title and information as as newbie here.

    The study is AWFUL. Very subjective. So weak, but has received wide publication. In the world of hard science, no publication would have given it a second glance.

    Thanks for coming back, very much appreciated.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Hi friends, I just wrote this response on a thread that's not likely in your favs. But the safety angle is a useful concept to get medical folks to do what you want. The OP is getting a port removed and had lot's of anxiety. My goal was to give her strategies to get it done the way she wanted.

    ////////////////////////////////////////////////////////////

    member name deleted, , Multiple thoughts. Possibility of delay till you get your answers squared away. If you take the ativan, just make sure they know it.

    First I'll describe, the radiology part. They will be in sterile gear with tech doing instruments and an RN running things. Radiologists do these procedures all the time and have for many years. It started as the importance of fluoroscopy/ CT guided therapy was identified as the safest way to do many procedures. You will have a monitor, BP, likely an oximeter. Varies on O2 when it's local.

    On a risk level local is the best, but you are also a heart patient with an implantable defib. You could ask for Anesthesia b/c of your concerns about your heart. They may blow you off at first, you just need to be insistent. Anesthesia can use Diprivan which is a very good drug for short term use and light anesthesia. Once they stop the drip you wake up with in minutes.

    In situations where what I want differs than what they what, I play the safety card. Medical folks have safety drilled into their brains. This is the time to use the heart problem to your advantage. Saying something like " With the significant heart history, there is a greater risk that under local that my body will react enough that my heart may not work right. This puts me at a higher risk for something happening, by having an Anesthesiologist monitoring my vital signs and heart and using medications that will not allow my body to be putting out lot's of adrenaline b/c of fear, I will be safer going through this." Keep stressing the safety factor, if they still resist, keep repeating the above example in several ways. The key is to interject the word safety. Once they hear that several times, it should trip them into doing it. Remember they are programmed to respond to that word.

    Make sure insurance is preapproved for Anesthesia coverage, as it could be near a 1000$ dollars or even way more. This is why I said there may be a delay getting the procedure done. It's not usual to have anesthesia for this procedure.

    If you can get your cardiologist to write a statement that it would be safer for you to have the procedure with Anesthesiologist coverage. It will help with the insurance approval. Use the safety angle on him too.

    In all you have to talk too, to get this done remember to use the word safer/ safety/ safe often.

    I would like to know when all is said and done, if this works for you.

    sassy :)

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited September 2016

    Sas, please keep this going. I'm a perfect example of you never know when you need this thread about pain management. i suffered a mild stroke that started with excrutiating pain in my left arm, masectomy side. I had unmanaged neuropathy, and scar pain. i'm now with my pain management dr that is within the cancer center. Such a difference.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Val, Thanks and so happy that you are being managed well. It's a travesty that pain management is still after all these decades of "research and talk" by the medical community, that it is not universally managed well.

    A cancer center with a pain mgt doc on staff and on premises. WOW.

    Would you mind describing in detail each section of your problem. A short paragraph on each. So much that is shared all over the boards, are found by others as applying to them. I call it the Ah-Hah moment, i.e. that's me and I can use that to get a resolution.

    Helps in so many ways. Validation of problem, action to take, other ways to manage. For Example, when did they get the pain doc involved. Was a plan written/developed from onset or after problems arose.

  • marijen
    marijen Member Posts: 3,731
    edited September 2016

    ok to post this here?


    MedicineNet.com for Health and Medical Information

    Source: http://www.medicinenet.com/script/main/art.asp?articlekey=77988

    Introduction to pain management

    Pain management can be simple or complex, depending on the cause of the pain. An example of pain that is typically less complex would be nerve root irritation from a herniated disc with pain radiating down the leg. This condition can often be alleviated with an epidural steroid injection and physical therapy. Sometimes, however, the pain does not go away. This can require a wide variety of skills and techniques to treat the pain. These skills and techniques include:

    • Interventional procedures
    • Medication management
    • Physical therapy or chiropractic therapy
    • Psychological counseling and support
    • Acupuncture and other alternative therapies; and
    • Referral to other medical specialists

    All of these skills and services are necessary because pain can involve many aspects of a person's daily life.

    How is pain treatment guided?

    The treatment of pain is guided by the history of the pain, its intensity, duration, aggravating and relieving conditions, and structures involved in causing the pain. In order for a structure to cause pain, it must have a nerve supply, be susceptible to injury, and stimulation of the structure should cause pain. The concept behind most interventional procedures for treating pain is that there is a specific structure in the body with nerves of sensation that is generating the pain. Pain management has a role in identifying the precise source of the problem and isolating the optimal treatment.

    Fluoroscopy is an X-ray guided viewing method. Fluoroscopy is often used to assist the doctor in precisely locating the injection so that the medication reaches the appropriate spot and only the appropriate spot. Ultrasound is also used to identify structures and guide injections.

    What are the basic types of pain?

    There are many sources of pain. One way of dividing these sources of pain is to divide them into two groups, nociceptive pain and neuropathic pain. How pain is treated depends in large part upon what type of pain it is.

    Nociceptive pain

    Examples of nociceptive pain are a cut or a broken bone. Tissue damage or injury initiates signals that are transferred through peripheral nerves to the brain via the spinal cord. Pain signals are modulated throughout the pathways. This is how we become aware that something is hurting.

    Neuropathic pain

    Neuropathic pain is pain caused by damage or disease that affects the nervous system. Sometimes there is no obvious source of pain, and this pain can occur spontaneously. Classic examples of this pain are shingles and diabetic peripheral neuropathy. It is pain that can occur after nerves are cut or after a stroke.

    Nociceptive pain

    Most back, leg, and arm pain is nociceptive pain. Nociceptive pain can be divided into two parts, radicular or somatic.

    Radicular pain: Radicular pain is pain that stems from irritation of the nerve roots, for example, from a disc herniation. It goes down the leg or arm in the distribution of the nerve that exits from the nerve root at the spinal cord. Associated with radicular pain is radiculopathy, which is weakness, numbness, tingling or loss of reflexes in the distribution of the nerve.

    Somatic pain: Somatic pain is pain limited to the back or thighs. The problem that doctors and patients face with back pain, is that after a patient goes to the doctor and has an appropriate history taken, a physical exam performed, and appropriate imaging studies (for example, X-rays, MRIs or CT scans), the doctor can only make an exact diagnosis a minority of the time. The cause of most back pain is not identified and is classifies as idiopathic. Three structures in the back which frequently cause back pain are the facet joints, the discs, and the sacroiliac joint. The facet joints are small joints in the back of the spine that provide stability and limit how far you can bend back or twist. The discs are the "shock absorbers" that are located between each of the bony building blocks (vertebrae) of the spine. The sacroiliac joint is a joint at the buttock area that serves in normal walking and helps to transfer weight from the upper body onto the legs.

    Fluoroscopically (x-ray) guided injections can help to determine from where pain is coming. Once the pain has been accurately diagnosed, it can be optimally treated.

    Neuropathic pain

    Neuropathic pain includes:

    • Complex regional pain syndrome (CRPS), also called reflex sympathetic dystrophy;
    • Sympathetically maintained pain;
    • Fibromyalgia;
    • Interstitial cystitis; and
    • Irritable bowel syndrome.

    Treatment of neuropathic pain

    The various neuropathic pains can be difficult to treat. However, with careful diagnosis and often a combination of methods of treatments, there is an excellent chance of improving the pain and return of function.

    Medications are a mainstay of treatment of neuropathic pain. In general, they work by influencing how pain information is handled by the body. Most pain information is filtered out by the central nervous system, usually at the level of the spinal cord. For example, if you are sitting in a chair, your peripheral nerves send the response to the pressure between your body and the chair to your nervous system. However, because that information serves no usual purpose, it is filtered out in the spinal cord. Many medications to treat neuropathic pain operate on this filtering process. The types of medications used for neuropathic pain include antidepressants, which influence the amount of serotonin or norepinephrine, and antiseizure medications, which act on various neurotransmitters, such as GABA and glycine.

    One of the most powerful tools in treating neuropathic pain is the spinal cord stimulator, which delivers tiny amounts of electrical energy directly onto the spine. Stimulation works by interrupting inappropriate pain information being sent up to the brain. It also creates a tingling in the pain extremity, which masks pain.

    What are other causes of pain?

    Other causes of pain include:

    • headaches,
    • facial pain,
    • peripheral nerve pain,
    • coccydynia,
    • compression fractures,
    • post-herpetic neuralgia,
    • myofasciitis,
    • torticollis,
    • piriformis syndrome,
    • plantar fasciitis,
    • lateral epicondylitis, and
    • cancer pain .

    Headaches and facial pain, including atypical facial pain and trigeminal neuralgia.

    Headaches are a major source of discomfort and lost productivity in the workplace. Many effective treatments exist for persisting headaches, including medication, biofeedback, injections and implants, depending upon the precise type of headache. Botox also provides a useful means of effectively and safely treating headaches.

    Atypical facial pain can be debilitating. Often times it can be treated by injections into local nerve tissue (such as the sphenopalatine ganglion).

    Trigeminal neuralgia, also called tic douloureux, is a condition that most commonly causes very intense intermittent shooting pain in the face.

    Peripheral nerve pain

    Peripheral nerve pain, or neuropathy, can be debilitating. It can respond well to simple treatments such a trigger point injections with anesthetic medicines and cryoablation (an office based procedure which involves freezing the nerves). Examples of peripheral nerve pain include intercostal neuralgia, ilioinguinal neuroma, hypogastric neuroma, lateral femoral cutaneous nerve entrapment, interdigital neuroma and related nerve entrapments.

    Coccydynia

    Coccydynia is simply pain in the region on the tailbone, or coccyx. It can result from trauma or arise without apparent cause. The initial treatment is conservative, with oral pain relief medicines (analgesics). Oftentimes, the pain originates in the portion of the nervous system that we have no control of (involuntary or autonomic nervous system) and can respond to either a local anesthetic injection of the head of a nerve called Ganglion Impar, which is located below the coccyx or by medically destroying (ablating) the Ganglion Impar, usually using radiofrequency.

    Compression fractures

    Compression fractures of the bony building blocks (vertebral bodies) are common in the elderly as a result of osteoporosis, or loss of calcium in the bone. With less calcium, the bone becomes weak and can break. Like any fracture, compression fractures hurt. Like any fracture, they are treated by stabilization, in this case, by injecting cement into the bone in a procedure known as a vertebroplasty or kyphoplasty. Vertebroplasty is an effective way to treat the pain of compression fractures. Kyphoplasty uses a balloon to restore height to the compressed vertebral body.

    Post-herpetic neuralgia

    Post herpetic neuralgia (PHN) is a painful condition occurring after a bout of shingles. When we are young, we are almost all exposed to chickenpox, caused by the Herpes Zoster virus. Our immune system controls the virus, but it lives in a dormant state in the spinal cord. When we age, or become ill or stressed, the virus can reactivate and attack the infected nerve and adjacent skin. However, in this second attack, the body usually recognizes the Herpes Zoster virus and contains the pain to a localized area, along the course of one nerve. A patient may have the characteristic blisters, which normally heal. Sometimes, however, the Herpes Zoster virus damages the nerve, causing ongoing nerve pain that persists after the skin blisters from the shingles have healed.

    The ideal way to treat the post herpetic neuralgia is to treat it before it sets in. Medications, such as acyclovir (Zovirax), steroids and injections such as sympathetic injections can help prevent the onset of PHN. After the pain is present, injections, local anesthetics, medications [duloxetine (Cymbalta), amitriptyline, (Elavil, Endep)] and pain medications or topical patches can be useful.

    Myofasciitis and Torticollis

    Myofasciitis (pain in the muscles, whether in the neck or back) often responds to conservative physical therapy treatments (for example, massage and exercise). If the pain persists, trigger point injections can be used. If the trigger point injections provide temporary relief, sometimes Botox injections can help. Botox, which is botulinum toxin, can relax the muscles for six or more months, with long-term relief of pain. It provides a safe, effective treatment for what can otherwise be a difficult, ongoing problem.

    Torticollis is spasm of the muscles in the neck, forcing the sufferer to hold his or her neck tilted or rotated to the side. Botox is approved for treatment of this problem.

    Piriformis Syndrome

    The piriformis muscle goes from the hip to sacrum (tailbone). It is important in that the sciatic nerve passes through it. Piriformis syndrome is a spasm of the piriformis muscle. When the muscle goes into spasm, it can squeeze the sciatic nerve, causing pain going down the leg. Piriformis syndrome will usually respond to physical therapy. When pain persists, local anesthetic and/or steroid injection can help. If the pain persists, injecting Botox or Myobloc, which are both botulinum toxins, into the muscle can provide effective, safe treatment.

    Plantar fasciitis and lateral epicondylitis

    Plantar fasciitis (heel pain) and lateral epicondylitis (tennis elbow) are two common pain problems. Treatment starts with conservative options, such as rest, non-steroidal anti-inflammatory medications, steroid injections, over-the counter pain medications, physical therapy and, for heel pain, shoe inserts.

    If the pain lasts for more than six months, Extracorporeal Shockwave Treatment is an effective, FDA approved treatment. Extracorporeal shockwave treatment is not recommended for pregnant women, children, anyone with a pacemaker, anyone on anti-coagulant therapy or anyone with a history of bleeding problems.

    Cancer pain

    Cancer pain can arise from many different causes, including the cancer itself, compression of a nerve or other body part, fractures or treatment of the cancer. There are many techniques to assist with treating the various pains from cancer, including medications and injections. In particular, medical destruction of nerve tissue (ablative therapies) and the use of pumps surgically placed into the body to deliver pain medication into the subarachnoid space can be used. Pain pumps deliver medication that is targeted to pain receptors on the spinal cord. The advantage to the cancer patient is chronic pain control with decreased side effects.

    Medically reviewed by Joseph Carcione, DO; American Board of Psychiatry and Neurology

    REFERENCE:

    "Overview of the Treatment of Chronic Non-Cancer Pain." UptoDate.com. Updated Aug. 15, 2016.



    © 2016 MedicineNet, Inc. All rights reserved.
    MedicineNet does not provide medical advice, diagnosis or treatment.
    See additional information

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Other thing Stopping SSRI"s ab SNRI's

    Repost from another thread.

    I recognize that you have weaned once before, successfully, per your post. What I'm going to write is not just for you, but also for others that follow.

    Each persons weaning off the SSRI and SNRI's reacts differently. Done too rapidly for an individuals body to adapt, can wreck havoc. The slower the weaning the better. Cold turkey or too rapid can have dire consequences. You will read in past posts stories of consequences.

    The switch to Prozac at the bottom end of weaning is a good plan. But just a suggestion from my counselor with 40 years of experience

    I'll give you a worst case scenario of weaning. Regretfully, it was my DH Greg. He was prescribed Zoloft 50mg by the MO. He had a s.e. I forget what, but it wasn't a in the dangerous zone. His MO said "Well you can stop it." I said "You need to wean, and under these circumstances, no less than 10 mg a week" Greg "The doc says I can just quit." He would not listen to anything I said. The doc was a MO not a neurologist, not a pharmacist, and not a psych doc. The doc was a MO. His schtick was cancer drugs, not psychotropics. The other three docs are experts at knowing how the drugs work. MO's are not.

    His weaning---over 7 days, he cut from 50 to 0. We fought about it the whole time. His response was always. "My doc knows best". Within 24 hours of last dose. He developed numbness. Everywhere.

    Testing showed he lost all sensory feeling to the skin and muscles. That he had the potential to regain return sensory to the muscles eventually, but he would never have skin sensory return to the skin.

    We never did the I told you so talk.

    On the day he died, he was ambulatory and versant till 6 hours before death. In a private moment in the last 24 hours, he was petting Schatzi, he said. " I can see her, but I can't feel her." That was his first admission that he couldn't feel. Yet, it had been months.

    These drugs are beneficial, but must be treated with great care b/c they are powerful and damaging if not treated respectfully in their use and discontinuation.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Mari, Yes, completely good. Wish I had the room to move it up to the beginning :) Definitions allow for a common language. Your post allows for a common language. :)

    Another thing learned to late. I wish for every thread I started, was to reserve the first box as an index. I started this thread b/c I was tired of rewriting things. But it now so inter mixed, I'll be forever trying to find stuff for others.

    But have thought I still can do an index box, but it'll be in the middle LOL.

    Thanks, I really like your post. I likely will add it too the topic box by page link b/c the description of each type of pain is so important.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    They missed Pudenal pain. It's in the top ten. Regretfully, I have it. Never knew about the problem till, it assaulted me.

  • marijen
    marijen Member Posts: 3,731
    edited September 2016

    Sas, I have a severe compressed vertebrae - compression fracture, too far gone for surgery. Why was I told Compression fractures don't cause pain? Because I have lots! And I don't see joint or arthritic pain in this list, where do they fit in?

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Mari, know idea.....compression of any structure causes a change. If you look at the anatomy. There are 31 spinal nerves. Each exiting at a at spinal level that affects a dermatome plane. Pain can be tracked to an exact vertebral level

    Image result for dermatome plane anatomy picture


    Compression causes pressure on the spinal nerves. Not the same way in all, but it's like a collapsing building, there is torqueing, pulling, pinching.............depending how the collapse occurs.

    Get a second opinion from a specialized spinal center. Things with spinal surgery are majorly changed over the last decades and accelerating in treatment.

    I had brain surgery in 2012. I had to find the appropriate surgery on the internet. Long story, but no one in my county was familiar with the surgery. I live in Brevard county Florida. Cape Kennedy, Space X, Cape Canaveral Space Center......You would think we had a high level of medical and advanced science and treatment in the local. No, we don't. But the net helped me find a source for treatment.

    Who told you this " Compression fractures don't cause pain? Because I have lots!", and when?

  • marijen
    marijen Member Posts: 3,731
    edited September 2016

    Pain Management doctor and Anesthesiologist told me this, she even put it in writing. I was given gabapentin but can't stand it and I read about your husband not weaning off the meds. Remember Valley of the Dolls? Soon I will be getting denervation for my Sac Jt. Steroid shot in the Sac jt wore off in a few weeks, but while it was working it helped my compression fracture pain? If that doesn't work, then electro stimulation implant is next.

    Spinehealth.com lists all the surgical procedures

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Mari, I went back to review your link post RE: " And I don't see joint or arthritic pain in this list, where do they fit in?" . I didn't see it either. But it is 3 am and tired. If I am too long gone with a response PM me to remind me. Hugs

  • Sara536
    Sara536 Member Posts: 7,032
    edited September 2016

    sas-shatzi, Thank you for posting the spinal nerve chart. You are such a treasure! I've seen it on the wall in a spine center but no one has ever used it to help me describe my pain. (I've had spine surgery at C6/7 and several steroid injections). Whenever I go in, I'm asked to put x's on body diagrams and asked for verbal descriptions followed by questions like, "does the pain stop at the knee? or is it in your groin?" It is almost impossible to describe pain you had yesterday or even an hour ago. My pain never feels like x's, It shoots and travels or spreads.When I look at this chart, I can instantly recognize a pattern that I have experienced and point to it. I don't think looking at the chart encourages me to claim pain I haven't felt. I think it eliminates inaccurate interpretation of the x's. I guess I rant. I need to find a pocket edition of this chart.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Sara YAY, glad you find it useful.

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited September 2016

    sas-shatzi, thanks so much for the wealth of information. I follow this thread closely and appreciate the time you spend n providing such awesome information as I deal with a lot of pain post treatment. I also recommend this thread often to others. I love the pain scale and use it to keep a log and communicate with my Drs and it gives me a good gauge of when to take action based on timeframe and level of pain

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2016

    Other thing: Connectedness

    I have lots of phone numbers and have talked to many folks over time. Initially it was sharing of info b/c it is important to have a contact in case someone goes MIA. But it allowed me to call and vis versa

    What's more important is to think about talking to each other. Not just in troubled times, BUT just for fun.

    It can be sooooooooomuch fun. Hours of fun. Some want to keep anonymity. Okay, get that. But we loose enough contact with the real world b/c we can't talk our real stuff.

    Outside folks so interject platitudes that we know are false.

    Take a chance PM someone that you feel a special affinity for, and have a chat.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited September 2016

    image

    Have I posted this before

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited September 2016

    Hahahaha! Good one!

    How are you doing, Mags?



  • Meow13
    Meow13 Member Posts: 4,859
    edited October 2016

    I am experiencing severe lower back pain when I move. It happened last Saturday night in bed. A charley horse left side. Well I went to a walk in clinic and was sent home with muscle relaxer and pain killers. After a week of not getting better I went to a chiropractor, my first time. The doctor xrayed and said I had buldging disk at least one.

    His wife is seeing the same oncologist I have. The chiropractor thinks I should ask my mo to chime in and maybe get an MRI.

    I have never experienced pain to this degree. Anyone else have anything like this I am getting worried it might be breast cancer in my spin?

  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    Meow: Get that scan IMMEDIATELY. You sound exactly like where I was back in Feb/Mar, but my dr REFUSED to order a scan until I ended up in the emergency room in April almost paralyzed by the unbelievable pain (I had NEVER experienced pain to that degree b4, not even labor pain!). They found FIVE compression fractures and metastases in my spine, pelvis and other organs.

    I'm not trying to frighten you, but it's better to be safe than sorry. I hope and pray that it's NOT St IV, but get it checked out.

    Sending prayers,

    Lita


  • Meow13
    Meow13 Member Posts: 4,859
    edited October 2016

    ok I will call my mo to see if he will order the MRI. The pain is terrible. Was your pain constant or only when you move? I have been feeling over all crappy since Oct. 1st.

  • jcpriest0469n
    jcpriest0469n Member Posts: 86
    edited October 2016

    I agree, you should look into it if the pain is unbearable after all that meds. I am on pain meds and muscle relaxers every six hours and still get strange cramps in off places. Just sliding my leg under the cat in bed causes cramping in my calf. I am trying to drink orange juice with coconut juice,banana in a smoothly and that seems to help,but I need to do it consistantly.Good luck,cancer sucks

Categories