Outpatient bilateral mastectomy w/recon?????

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Jennj99738
Jennj99738 Member Posts: 34

So, my surgeon informed me on Thursday that my surgery will be done on an outpatient basis? Is it just me or is this insane?? I am having a bilateral mastectomy with immediate reconstruction with tissue expanders. From everything I read, this is an inpatient surgery and will take a few hours.

This is freaking me out. It's freaking my mother out who will be here to help me because I live alone. My surgeon, who does not have the greatest bedside manner, asked me whether I want to be someplace where sick people are? She said something like, "There are people with diarrhea and infections in there! Get out as fast as possible!"

Anyone done it this way?

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Comments

  • Icietla
    Icietla Member Posts: 1,265
    edited August 2016

    I did not have any reconstructive procedures, but I have had bilateral mastectomy surgery. I think it was three hours after the start of surgery that I left the Hospital..

    Your Doctor is absolutely right -- you should get out of the Hospital as soon as you can. There are dreadful infections in there that could seriously complicate your recovery, even make you very sick. [Sorry, it just came out that way.]

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited August 2016

    I had the same surgery and I, personally, very much appreciated having IV pain control that a person can only get when inpatient. I, personally, would NOT have wanted outpatient surgery with TEs placed - from what I've read I believe there is definitely more pain with TEs, especially for those of us with well-defined pec muscles.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2016

    My very experienced BS/PS team does do outpatient (23 hour observation - no admission) mastectomy, with TE placement, if all conditions are appropriate. You would need to have adequately controlled pain, no post-anesthesia complications like vomiting or lethargy, have good home support, etc. Most of us don't hit all those marks, so have at least an overnight admission, but both the BS and PS said their patients who do outpatient have as good recoveries as those who are admitted. My insurance company does not permit outpatient mastectomy, so I did stay, but I had a paravertebral pain block so actually did not require much additional pain med or attention from the nursing staff. My husband spent the night with me and got me up to go to the bathroom, walk around the hall, etc. Because my block apparatus was removed late the following day (my surgery had been at 3pm the day before) I actually spent a second night because we needed to see what pain control was like without the block, and my 21-year old daughter stayed the second night so my husband could get a decent night's sleep. I was released early the next morning and really did not need to have spent the second night, but glad I did rather than find in the middle of the night that oral pain meds were not enough. I think you will find that most of the members here spend at least one night if they are complication free.

  • Jennj99738
    Jennj99738 Member Posts: 34
    edited August 2016

    It's very interesting. I would appreciate very substantial pain meds. I don't know what to say. It's not easy for me to discuss with doctors what I want versus what they want. My surgeon is very headstrong. She's supposed to be one of or the best in town so I tolerate it to a point. I wonder what my insurance has to say about mastectomies. I didn't know that insurance policies would care whether you're evicted the first day or stay overnight! Saves them money. Learn something new everyday.

  • muska
    muska Member Posts: 1,195
    edited August 2016

    I had bilateral nipple sparing mastectomy with tissue expanders placement back in 2013. The surgery was scheduled in the afternoon and lasted for 8.5 hours, then I spent about 30 minutes in the recovery room and was moved to 'regular' room at around 9:30 PM. They obviously had to keep me overnight but an attempt was made to discharge me the next morning, i.e. less than 24 hours after the operation. We didn't agree and they kept me for one more night.

    I think you should insist on staying overnight even if you feel fine and this is just for observation. They will check on you frequently, give you antibiotics via IV which is much more efficient than oral administration and you will learn how to control the pain and take care of yourself. For example, the oxycodone they gave me at the hospital didn't go well with me at all. The surgeon was glad I took it while in the hospital instead of being at home.

  • Wendiwithani
    Wendiwithani Member Posts: 108
    edited August 2016

    I had a uni MX with no TEs, so I can't really weigh in on that aspect of your situation. My surgery began at 9 am, lasted three hours and I was home by 6 pm. BUT I did want to tell you that I was sent home with an IV type pain pump and kept it for a week. Unfortunately, I can't remember the name of it for the life of me...chemo brain. It was a total God send!

  • lulu2533
    lulu2533 Member Posts: 108
    edited August 2016

    I had bilateral mast with TE placement. My surgery lasted almost 9 hours. I stayed overnight and was on morphine. I am soooo glad that I was because I was in a lot of pain even with that.

  • Jennj99738
    Jennj99738 Member Posts: 34
    edited August 2016

    I guess I'll have to wait and see what happens? This sounds just horrific. Surgery is scheduled for 10/12. I'll talk to the nurse before then and I'll also talk to the plastic surgeon about whether he might agree to keep me overnight. I agree I want to leave the hospital as soon as possible but I don't want to be in such horrible pain at home. The breast surgeon makes it sound like no big deal. I asked her if I could make it upstairs to bed or needed to rent a recliner or hospital bed. She told me just not to go jogging. Oy.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2016

    My best friend had a BMX, without reconstruction, and was told it would be an overnight stay. Turns out she needed enough IV pain control that she got a second night--which was valuable, because it also gave her the opportunity to meet with the nurse-navigator (who gave her books & supplies) and the social worker (who was able to come up with a list of visiting-nurse/home health aide services to help her with dressing changes and drain management after I had to go back to my family). Yes, there are hospital-acquired infections, but they are the exception to the rule there are common-sense precautions--like insisting everyone washes their hands before coming into the room, personnel wear fresh gloves, and using antibacterial wipes for the bedside table, call button/bed control/TV remote, and bedside phone (not everyone will be calling your cell). Not having to deal with getting your own meals while you are fatigued and in pain is invaluable. Getting a private room also reduces the odds of infection.

    “Same-day surgery” isn’t always the same as “go home the same day.” The “23-hour admit,” which includes an overnight stay, is often done to maximize insurance reimbursement for the hospital; you’re still technically an outpatient because you have not been “admitted” as in inpatient. If you get one additional night, the hospital can bill and be reimbursed for both a “new patient visit” and a “hospital stay.” (Also, “23-hr-admits” don’t count toward their inpatient-incident statistics). If you have very good insurance and have met your deductible (even better, Medicare Part B and its supplement) there’s no financial impact to you--otherwise, watch your statements and bills like a hawk.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited August 2016

    Again, the 23-hour thing. Once I took full advantage by scheduling my surgery in the afternoon. No way the day-op staff could hang around long enough to kick me out, so they just wheelchair'd me into a room. It was a tremendous relief to find I'd slept through the night with no pain crisis and I was quite agreeable with going home.


  • ravzari
    ravzari Member Posts: 277
    edited August 2016

    Mine wasn't with reconstruction (other than 'reconstruction' to leave me flat instead of concave and to graft my nipples back on as I was too large for a traditional nipple sparing mastectomy to look what I'd consider normal, but no expanders or implants or anything; my surgery was about 4.5 hours total) and was done on an outpatient basis.

    What that meant, for the Marshfield system, is that I wasn't admitted to the hospital, not that the surgery was any less of a major surgery; it's that I wasn't what they considered high risk for having complications during surgery, so it could be done at their outpatient surgery center + a stay in the recovery suites rather than needing a hospital admission (which was more expensive). If I had been determined to be high risk for having complications during surgery, they would have done it on an inpatient basis over at the actual hospital, which was about a mile down the road.

    I did stay overnight in one of their recovery suites and was out by 8:30 the next morning.

  • Jennj99738
    Jennj99738 Member Posts: 34
    edited August 2016

    The surgery is in an actual hospital but when the surgeon said I'd go home the same day, I assume she means in their outpatient surgery department. It's very confusing.

  • kcat2013
    kcat2013 Member Posts: 391
    edited August 2016

    JennJ99738, talk to your surgeon about it and call your insurance company to see what their policy is on outpatient/overnight/etc. Also find out what the discharge guidelines are for your particular surgery at your hospital. (for example does the patient have to demonstrate the ability to walk before being discharged?- my hospital didn't care that I hadn't walked one step before discharging me. The hospital nurses transferred me from my bed to a wheelchair to my car. It was horrible because once I did try to walk for the very first time since coming out of surgery (when I got home to my driveway!!) I kept blacking out every time I stood up. I absolutely wish I would have talked more with my surgeon, insurance company and outpatient hospital before I had my BMX with TE surgery. I assumed I would be fine with an outpatient surgery because I had a friend who had a BMX with NO recon that was done outpatient by the same surgeon as mine and she did great having it as an outpatient procedure. I won't bore you with the details but if I had to go back and do it over again there is absolutely no way would I have agreed to do it outpatient--or at the very least I would make sure that the place I was having surgery was a 24 hour outpatient center. That was a big part of all my problems--dumb outpatient surgical center was part of a hospital but across the street and past a large parking garage from the actual hospital--and the center's hours were only 8am-5pm. So when I came out of surgery at 5:30pm those nurses were chomping at the bit to get me out of there so they could go home. You may do just fine with outpatient but I would have a plan in place in case you don't and you feel the need to be kept overnight.


  • BethL
    BethL Member Posts: 286
    edited August 2016

    outpatient? I can't imagine. I had bilateral mastectomy and tissue expanders with alloderm. Surgery took 7 hours and I had an epidural for pain relief overnight. My surgery was on a Friday and I left on Monday. Even that was up for discussion because one side became very red and I had been hospitalized for a previous post op infection. Yes there are sick patients in the hospital but I can't imagine going home the same day, especially after expander placement. I work in a hospital and have figured out how not to catch germs. Wash your hands and demand a private room. My insurance said they automatically approve 3 days, doesn't mean we need it but it's there if we need it.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2016

    23 hours for me too. Surgery was as 2 pm released before noon the next day. I only realized it must have been outpatient from info on these boards. I had a pain ball around my neckthat dissolved over five days so my pain was very well controlled.

  • AmyQ
    AmyQ Member Posts: 2,182
    edited August 2016

    My stomach just turned thinking about your post. My surgery started at about 11:45 AM and I was finally in my room at 8:45 ish later that evening. Post surgical fatigue, pain and need for IV antibiotics were the main reasons I had a three night stay.. I could not imagine going home the same day.

    Personally I think it's the hospitals job to keep you safe from exposure to germs and contanements and because it's major surgery you are at risk for breathing difficulties, pneumonia etc if you don't do your breathing exercises.

    I cannot think of any situation in which I'd agree to going home after this surgery. Sorry to be so opinionated but I've been there, done that.

    Good luck

    Amy

  • Yaniza
    Yaniza Member Posts: 140
    edited August 2016

    I stayed one night as required. My feeling is that one night after major surgery is the minimum. I was in pretty good shape after my surgery physically but it is a big deal. And is was good to have nurses emptying my drains so that I could watch the process.

    Best of luck

  • Jennj99738
    Jennj99738 Member Posts: 34
    edited August 2016

    Now I'm feeling more queasy. I will try to contact the surgeon's office and request (demand?) that I be allowed to stay overnight. I don't know how I will function.

    The surgeon said it was not major surgery, just flesh. I tell you, she has the bedside manner of a groundhog on a bad day.

  • Wendiwithani
    Wendiwithani Member Posts: 108
    edited August 2016

    It is major surgery! I can't believe she said that. Geez

  • magiclight
    magiclight Member Posts: 8,690
    edited August 2016

    I was discharged after surgery for BLM without reconstruction at an outpatient surgery center affiliated with a major teaching hospital in Phoenix. However, due to a cardiac arrhythmia I was transferred by ambulance to the hospital emergency room which was about 100 yards away from the surgical center and could have gone by stretcher as there was a connecting corridor. Really!!! I suggest you ask: 1) where do I go if I need further monitoring? 2) am I then transferred to the care of a hospitalist MD? 3) is the surgeon an owner of the surgical center?

    I hope you get all the answers you need to make an informed decision because one you get to the hospital it is too late. I sure wish I had asked those questions as my decision of where to be treated would be very different.

  • fredntan
    fredntan Member Posts: 1,821
    edited August 2016

    I would cancel that. I had my first surgery at sloan kettering. awful place. since I only had 1 removed I wasnt eligible for PCA patient controlled analgesia. I was informed of this in recovery. the PS told hubby I would be in awful pain and to expect a 2 night stay. unfortunately the BS was in charge. I pitched a fit. it took hours to get a PCA. Threw up. Nurses were too busy to help me up.

    If your BS is acting like this now, your likely not going to get adequate pain control. this is crazy

  • PoppyJQ
    PoppyJQ Member Posts: 109
    edited August 2016

    I know its hard to say stop! no! but I have to agree with fredntan... I'm waiting for a call back to see a different surgeon before my BMX in 2 weeks. I asked my oncologist for a second opinion referral to meet one of the other surgeons because I'm concerned with some things, but it took a lot for me to do that.

    If your surgeon says this is not a major surgery (I disagree) then I guess it doesnt matter so much that she is considered to be good. I'm sorry she has added to your worries with her superior attitude. This group is so good, your post has brought up things I hadnt though of or heard before .. pain ball what is that? and when/how do you request a private room? Hang in there Jenn


  • rvgirl2016
    rvgirl2016 Member Posts: 67
    edited August 2016

    I only had  one side removed.  I'm glad they kept me overnight because I crashed with a bleeding artery and had to have emergency surgery about 1 in the morning!  If I'd gone home, I would've been 20 minutes from the hospital.  Just tell them you have no help at home and need to stay overnight!  Good Luck!

  • fredntan
    fredntan Member Posts: 1,821
    edited August 2016

    A Pain ball is another great pain control device. it is left into surgical area and slowly dripps the pain medicine out. I had one with breast recostruction.

    I wonder if this "great" doctor has lost privileges with that hosital?

  • Jennj99738
    Jennj99738 Member Posts: 34
    edited August 2016

    I'm not sure if you mean my doctor, fredntan. She hasn't lost privileges anywhere. My onco, who I do like very much, thinks she is the best here. The surgeon I saw in New York for a second opinion says she's the best here and another surgeon one of my former classmates saw referred me to her as well. I just think she is very stoic, very no-nonsense. I don't care about her bedside manner but I do want adequate treatment. I will talk to her and her nurse further about this as well as my PS.

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited August 2016

    As much as I agree with hospitals being a breeding ground for all kinds of germs, and the surgeons wanting their patients out of there as soon as possible, this is still too major of a surgery to be done outpatient. Maybe there is something in the hospital that she is aware of and that is why she wants you out. If it were me I wouldn't say "no". I'd be saying "Oh Hell, no!"

  • peyton3
    peyton3 Member Posts: 43
    edited August 2016

    I can not believe a PS would tell you that this is no big deal. It is a very big deal!!! This is a very important decision you are making and it sounds like you are having concerns. I would definitely stay overnight at the very least.

  • Jennj99738
    Jennj99738 Member Posts: 34
    edited August 2016

    So, I spoke to my BS's nurse and she insists that this is the way my BS does these and it does not matter whether it's single, double, with or without reconstruction. The nurse advised I will have a home health nurse come to my home to assist for a few days afterward. That makes me feel slightly better.

    I will also discuss with my PS what will happen.

  • vettegirl
    vettegirl Member Posts: 235
    edited August 2016

    I was allowed to stay one night.  I wanted to stay a second night but they would not allow it.  I had home health care come in daily too, it helped a lot.

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2016

    I didn't reconstruct, but I was happy to get out of there. That said, if I'd had pain or complications I would have wanted to stay.

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